Charlie Gard - Medical Ethics and Law

[@ilandsnow]

your friend has such a soothing voice and manner! great video you guys

[@mmh607]

I truly appreciate your time and effort to make these videos. They will help so many students!

[@ridgecamden6273]

sorry to be so offtopic but does someone know a trick to get back into an instagram account? I was stupid forgot the account password. I would appreciate any assistance you can offer me

[@subhashinisivagobi9995]

I'm preparing for my med school entrance interview and your videos have helped me out a lot. Basically everything in your channel is helpful. It's given me a better insight on the life of a medical student. Thank you so much.

[@abdulfatahyousfi646]

Very insightful and clearly explained video. The setting, background music and you two ofcourse, compliment each other perfectly. Would love to see more !

[@juliettecavaye7086]

Abi said "we have to remember that they're dealing with loss that none of us can really comprehend". This made me think - empathy is a really important attribute of a doctor (or is said to be) but can you really empathise with people going through that? What parts of medicine can we empathise with a patient if we haven't gone through it ourselves? Is compassion more important than empathy?

[@mailinglists7415]

I have always pondered this, I feel like there's only so much you can understand about a person, it's most likely that they would have grown up in a different culture/religion/values/abilities etc, so I don't really understand how we can fully empathise with a patient, I feel like we can only do it to an extent really, would this be a good point to bring up during an interview?

[@juliettecavaye7086]

I think if you could back it up well then it would be good and if it fits in with the question. I've had 3 interviews and have not yet been able to talk about it.

[@JMP147]

Super great video once again! Thanks for the taking the time to make these.

[@sanahkarimi3611]

Ali is such an inspirational guy and so genuine and down to earth... wish I will be able to study medicine at Cambridge in the near future like you

[@Notyouboy]

Ali! Excellent comprehensive video explaining the nuances of this case. Really appreciate you taking the time to create these videos.

[@dorothyb.]

I am using this video with my children's nursing students and its a wonderful discussion to help them understand the issues associated with these painful decisions. Thank you

[@G_17.]

You give such light into these difficult and dense topics! I truly wish you the best in your career. Keep up the good pace :)) - medschool student and Puerto Rican fan 🙌

[@pwincezzetz]

Ali all i can say is thank you. Thank you thank you!

[@lisachisnell8137]

You are also correct, that when Dr Hirano saw a more recent scan (July 2017) his opinion then changed. But what has not been mentioned is that Charlie Gard' s parents wanted to transfer their son to Dr. Hiranos care months earlier. Based on scans at that time, there was a chance the treatment might have had success. But GOSH (Great Ormond Street Hospital) refused to let Charlie transfer at that time, and motioned to have parental rights removed. The legal battle began. And Charlie's condition continued to deteriorate without any treatment as court battles ensued. No one will ever know if the treatment might have been successful in Charlie's case? There are many facts to this case which have not been covered by the MSM.

[@tanushukla8833]

Very useful. Student of Law from India. This helps me in deciding the subject I should take as an optional subject in my second year. Thanx a ton.

[@christinagkegka7321]

Thank you so much for this! I am writing my uni ethics assignment on the case of Charlie and this has been a god sent!

[@svevamonacelli9724]

Hi Ali! thank you so much for all you do to foster this medical-loving & aspiring community. I was wondering if you could record a video on NHS policy and essentials to know for MMI or if you have some valuable resources to direct me to? I have my interview in 10 days and as an international applicant it'd really help to get a grasp on it! Thank you so much! Cheers

[@im000x]

thank you so much for this series!

[@francesukah9168]

Just had a look at your website! and came across your channel a few days ago, and you are just a Godsend! thank you, thank you, and thank you again :) I really appreciate all the effort you put in the video's, makes it easier and more enjoyable to watch

[@hannahbaker313]

These videos are really helpful in prepping for interviews! Question: Who decides which patients to not resuscitate? And are the patients/ families included in this discussion?

[@Hokcey5]

Fantastic videos, I really appreciate your ability to carefully walk us through the complexities of medical ethics!

[@mirandapiana9070]

Thanks for this video! Very useful :) the background music was a bit too loud though.

[@098pink]

What are your thoughts on Dr Bawa Garba’s case ?

[@andrianchan8565]

Thank you for this discussion.

[@nurulsyazwani1882]

thank you soo much for the fruitful discussion ! I have to present about this case tomorrow pray for meee

[@priscillaose5772]

Shared this video before I finished watching. It's so useful

[@martin22336]

I truly feel that he should of been given the chance for an experimental treatment even if in the end the treatment didn't work the parents can know that they have tried everything.

[@josemerlin9169]

I agree but not when that treatment can potentially do more harm to the baby than not having the treatment. The experimental treatment may have put the baby in a lot more distress which means it may not have been worth it.

[@lisachisnell8137]

Nucleotide Therapy is not painful, but when hospice removed life support, Charlie suffocated, and struggled to breathe for 12 minutes before he passed away. His parents had to watch this. When life support was removed from Alfie Evans, he did not die, despite "expert" testimony stating that he would die within 15 minutes. Then hospital refused to feed him. Family had to fight for two days to try and get nourishment for his son. Being okay with euthanasia, passive or active, is getting into dangerous territory. Remember who is the 'father' of Eugenics taken to this level ... Hitler

[@imperialhistorian4201]

The court battles delayed whatever efficacy that treatment could've done.

[@tommajor6247]

Thank you so much for putting up these videos. May I ask your opinion on other current/recent topics, such as staffing shortages and junior doctors' strikes?

[@zoey101745]

Ali Abdaal omigosh this vid would be so useful before my interview on Wednesday!! :)

[@Philippahatton]

This is a fabulous video. Thank you.

[@KyKanda]

This was an exceptionally made video! Nice one

[@jimmy2k4o]

What disturbs me is the hospital went out their way to subvert the wishes of the parent and ensure Charlie died. I believe they believed they were doing the best thing for Charlie, they’re not evil. I heard people compare this case to religious people refusing blood transfusion and the doctors over rule the parents wishes to save the baby. This is done to save life not to overrule parents. This is a case where a hospital/court overruled parents to ensure the child’s death. Does anybody else see this dramatic difference here? Some people only see this as parents vs doctors and doctors win, I see this as “Charlie lives vs Charlie dies”

[@MsBRETTB]

I just never understood, if the parents had the money to fly their own child across the world for what they believed was life benefitting treatment, why would/could the hospital stop them from that? That is the part I can not understand, whether 'experts' believed he was in pain, I just felt is irrelevant to what the parents believed were in the best interest of their child. Thank you both for providing this overview, it is very good.

[@harrietjones1409]

Fantastic video, thank you again! I have a dilemma I was wondering you could help me with-at my school I need to do an essay similar to an EPQ. I will be doing it on a medical topic, but I don’t want to pick something that will be overdone. I know, for example, an essay on something like this case will be common, but I want to do something different and original, but still really interesting. After you nearly 6 years of training, is their anything that you think would make a good topic? My only though at the moment was the effects of music on dementia patients, but I don’t know if lots of people will do that. Any suggestions?

[@Harley411]

Dear Ali you should creating more this kind of videos

[@HassanPoyo]

Thank you so much

[@HassanPoyo]

Just had a question on this. Literal life saver!!!

[@jimmy2k4o]

During this case I was arguing hard for Charlie’s parents. I know the medicine and the odds were slim to none but ultimately this case proved that British people have less freedom than we thought. People would say the doctors and judges understand the case better and the parents are being emotional etc but I always ask how many times a year will those doctors nurses, lawyers and judges visit Charlie’s grave? Just a point that perhaps the people best suited to make decisions for a baby are the people who love them most. USA offered help Vatican offered help Parents wanted to receive it Hospital went out their way to make sure that didn’t happen.

[@mostem9605]

What is your background music? It’s soo calming. Btw great video as always!

[@shaninaholmes8575]

Hey Ali I just wanted to say that this series is sooo helpful, thank you so much also I wanted to ask you if you were given an ethics question where you had to prioritise between 2 patients say for a blood transfusion or an organ transplant who would you choose? A 14 yr old girl that just had an accident and a 41 yr old man that attempted suicide. Could you please tell me how you would tackle this question please and thank you

[@shaninaholmes8575]

Ali Abdaal thank you sooo much I was really stuck on those sorts of A’s where you have to choose one or the other

[@vanessa-ul7nj]

this music making me wanna cry

[@ding9633]

Why does non consensual non therapeutic infant circumcision still happen?

[@anonymous-user-2024]

Thank you for the video series. Would it be possible removing the background music to eliminate any noise distraction? Thank you for your consideration.

[@SDninou]

thank you Soo much !! .. (Abi is really cute Btw)

[@lol-fl1dc]

Great video.

[@lisachisnell8137]

Actually, Nucleotide bypass therapy has had success in treating children with Mitochondrial Depletion Syndrome. And, yes, it is still in experimental phase.

[@ramcharge2704]

The music in the background was to much

[@aminzairi2211]

nice video 👍

[@jimmy2k4o]

And people tell me the death penalty was abolished in 1967. Well here’s a judge who sentenced a baby to a certain death, or preventing his slim chance of health.

[@cathy4113]

what if it was a life-threatening situation, who decides what to do with the patient? the parent or the mdt?

[@jons9721]

The patient if capable and there are reasonable choices, again assuming there are reasonable choices then the parent. If there aren't then the doctors and if challenged the courts

[@annahwq]

hey, really informative and great video, however the music can be a little distracting at times, perhaps you could lower the volume next time?

[@kalopsia7115]

i can imagine that the larry nassar case has had a big hit on the medical community. would you guys ever consider making a video about it in relation to medical ethics?

[@kalopsia7115]

this is a good article to read for an overview of the case: www.theguardian.com/sport/2018/jan/27/larry-nassar-trial-gymnastics-sexual-abuse

[@CG-vu2eb]

Could you give me your view point in covid vaccination of children.

[@jimmy2k4o]

Interesting you say “the parent say one thing and the doctor say another you need a third party to arbitrate” Unless the parents are advocating for something that is cruel and unhealthy like withdrawing treatment then yeah you’re right. But all other cases should the parents choice After all they love that baby more than the doctors or judges. They advocating to move Charlie to get experimental treatment that may help him…..not denying transfusions because of religion. Ultimately who is in charge the parents or the doctors? And who should be in charge? Great almond street was just embarrassed that if they moved him and the Americans or Italians were able to help they would lose prestige and funding. Charlie gard was one of the darkest episodes in British justice/healthcare.

[@rubiksworld2170]

They did cover the reason the case went to court as being the rarity and severity of his condition. Tests suggested Charlie was in pain and it would’ve been inhumane to prolong his suffering so that a poor little baby could be subject to experimental treatment. It’s a really sinister assumption for you to conclude that a hospital would ever withhold life saving treatment because they did not want Americans to claim the success. I suggest you read further on this topic and perhaps rewatch this video that addresses a few of your concerns. There are many cases where the NHS provide the budget for rare treatment of UK-based patients who are sent to other countries for it (if the treatment is not available in the UK).

[@jons9721]

Fundamental rule of English (and Scottish) law is that parents do NOT have rights over children. No one has a right over anyone else unless they are slave. What parents do have is a responsibility to protect their child's right which is something very different. That is the same in every 1st world country with the exception of the US where kids are far more seen as property (its Christian fundamentalism). Doctors do not have a legal , financial or medical relationship with the parents of a child. They obviously will have a human relationship with those parents but that is something different

[@ebonysmith928]

I can’t hear or understand her

[@KASWBA]

It's not a question of who was right in knowing the best interest of Charlie, it is about whether or not the state has control over someone else's child. You British have to regard for liberty.

[@mariamc2727]

i would die for abi

[@yuaby5069]

I really hope I would have subscribed to your channel earlier.

[@manuelaa4982]

Iam Charlie Gard, Hospital praticou eutanásia. Eu lembro. Este hospital praticou eutanásia!

[@AnnabelleJARankin]

Still very sad for the parents, they should have been able to take Charlie to America. 28/7/19 today so thinking of Charlie.

[@seemakadian7613]

The girl needs to be clear when she tell something, otherwise no one will understand .And video will be useless.

[@sydneyjohnson3855]

I feel like you assume a lot about Americans but then critize us for making assumptions

[@jurajuraj70]

Wow the lady is so cute 🌹. Why so cute lady choiced such devil's (solicitor) profession.

[@rubiksworld2170]

Why do you consider pursuing medicine ( contributing to saving lives) as a bad thing?

[@haleypierce6635]

Sad he died. He could have been helped.

[@rubiksworld2170]

It is quite sad but how do you think he could’ve been helped if there was no treatment and he was just suffering his whole life 💔