Ciarlo's Spina Bifida Story: Look at Him Now

[@FranksieTheBarber]

I was born with spina bifida, the doctor told my parents i would most likely be brain damaged because of the excessive water in my head and i had a 95% chance of never walking, today im almost 18 and i can walk, talk and do a lot that some people cant, i am proud and blessed to be where i am today.

[@Robertm243]

My son has spina bifida and he is the greatest blessing in my life. My wife and I adopted him from birth.

[@deborahtawadros567]

My youngest son has Spina Biftia Occulta, along with Duplication 15q Syndrome and Autism. His SBO didn't effect him much. They say he also has mild Cerebral Palsy but I think his muscle problems are related to his other syndrome. His Arnold Chiari malformation corrected itself without surgery. He is now 19 and attending college. He walked unaided around age 2 1/2, did an official run a year later and said his first word at 4 1/2. He has had five stomach surgeries( at age 3 and 4), four foot surgeries, 13 bouts of pneumonia( his first 4 years of life), RSV and numerous other illnesses and procedures. These children, like yours and mine, are miracles and inspirational. God bless and keep up the good work.

[@dannyhrnndz7053]

They are great parents. I am 51 yrs old I also have spinal bifida. My parents supported me through the good, the bad and the ugly. My life is great. I have to great daughters they are so smart and beuatiful just like their mom. I thank God they have no health issues. My 3 girls are so supportive and understanding. I would not change anything about my life.

[@amybrock9840]

They are precious ! My daughter was born with spina bifida , she is very smart as well . She is now an adult . She is such a blessing !

[@hayliabrown5886]

One of my closest friends was born with Spina Bifida, she had surgery at birth and fourteen other surgeries throughout the years. She is in a wheelchair, but is one of the brightest people I know, so kind to everyone and a great friend to me.

[@skiellach]

As one who is an RN and who had a relative deliver at the SDU @ CHOP, I can attest to the fact that the care is superb!

[@Saba.2a]

He so adorable that i want to hug him through the screen .. Aaaaw you so lucky to have him so close to you .. I'm feeling envious

[@marklee4769]

Ciarlo looks like he has a great spirit, continue the good fight !

[@beverlydust5381]

I have spina bifida and hydrocephalus I was born in the 1960s I can do most things on my own encourage others to challenge themselves to as much as they can independently.

[@christenmoon7296]

It breaks my heart to see videos like this my daughter has myelomeningocele the most severe you can have

[@ellethebat5624]

He's so freaking adorable 💙

[@khweziemdletshe1829]

amazing story made me cry

[@holywierdo]

i looked for spina bifida cause we had a lecture about it, now i ended up crying because of the video

[@mahmoudgamal2262]

Medlue the same 😥

[@pollyanna38]

I was born with SB in the 70''s. My mom felt the same way, at first. Sweet video!

[@marygarcia2706]

Beautiful story. Had me in tears.

[@vimbaicarr5516]

His T-shirt ❤️ “fearfully and wonderfully made”

[@amompher]

Our son has Spina Bifida as well, Nationwide Children's Hospital did a video on our son and Spina Bifida, including his birth and surgeries. We definitely know where you're coming from!

[@lollipop823]

He's soooo beautiful.

[@jellysparkles6106]

wow. he is so amazing.

[@kingmufasa8929]

He is so cute!!!

[@gracieanderson2207]

My name is Gracie I’m 18 years old I have spinabifida as well and hidraceppalas i have had 15 surgeries my last one was a rode infusion because I had skuleeosis and I’m doing great ( sorry I can’t spell my own dignosis lol)

[@crumpfamilyvalues7935]

I had tears but they were happy tears🥺😊

[@kylahbeukes9247]

Just absolutely Beautiful!

[@LOTW1]

Hi, I have a friend that is expecting a baby with spina bifida. She feels confused and lost because she wants to have the baby, but the doctors are giving her a grim scenario and her husband doesn't want her to have the baby. She doesn't care that the baby is coming with spina bifida, but her husband attitude and the doctors prognosis are affecting her. What do you guys recommend to her? Does anyone have words of encouragement for her? To my undertanding, the baby has the problem in the lower back very close to the butt.

[@amybrock9840]

Nefario El Zelote these children are a beautiful gifts from God . Yes they are more work then a normal child is . Give the baby life , I'm so glad I did . My daughter who is now an adult is such a blessing . I can't imagine life without her . God has helped thru the difficult times . Choose life !

[@anjymasmil]

Awww! What a cutie pie

[@ilovesatan5951]

what a cute and happy little boy+

[@amieljacob1515]

i have spina bifida and i am the luckiest one in a hospital because i could walk and my doctor was on tv

[@richardhutchison3123]

Somehow she reminds me of Allison Janney as C. J. Craig on The West Wing. God bless your family in 2020!

[@alvaroalas2450]

amazing story

[@abui2000]

Hi I Have two-year old baby with spina bifida and hydrocephalus. Anybody knows the name of that toy chair in 2:28 or how I can find it?

[@katiecarrascoza4654]

I think it’s zip zac or something my brother has Spina Bifida and has the same one

[@katiecarrascoza4654]

It comes in different colors too I think

[@SQuiKenya]

He is so cute

[@daniellepeters3913]

in witch level he has it?

[@michaelspooner7254]

omg hes so lucky hes a surviver

[@briannadennison1228]

i have spina bifada myself

[@briannadennison1228]

***** you do????

[@briannadennison1228]

so do i

[@briannadennison1228]

i mean i have myelomeningocele

[@briannadennison1228]

+Stephan Darnutzeri mean I have myelomeningocele

[@remieshanance6158]

brianna dennison hmu let's talk

[@ellishahockham9821]

I have Spina bifida

[@ellethebat5624]

My sister has this,she's 41 years old :)

[@emilypetsche1]

My bf has spina bifida

[@connorjenkinson7430]

i have spine abifitda but it got left until i was one so it got worse

[@lollipop823]

Crying

[@kimfinley6147]

My brother died from spine a bitfita

[@mollydao2173]

I was born with spina bifida

[@bobjames8907]

He is so much like my brother (who has the same disAPPITY

[@jayb4476]

i have Spina Bifida i am the same

[@remieshanance6158]

Leaked JTB24 hmu let's talk

[@katiecarrascoza4654]

Warrios God what age did you like be able to walk? My brother has it and he’s gonna turn 4 and can’t walk still

[@carrieann3959]

I have Spina Bifida!

[@serenityboman9544]

I am 12 yrs old and I have spina bifida

[@roshikhan9593]

My son spina bifida

[@blablablabla-hs1nz]

i have it on l5 s1

[@junemiller2638]

and I am only 11

[@junemiller2638]

my name is kira.miller weird