Clare - "Living with vascular Ehlers-Danlos syndrome (vEDS)."

[@Notperfecttonya]

This was really good, thank you. You made excellent points and it’s hard as a patient with vEDS, when you’re in pain in the hospital and you STILL need to be the one advocating for yourself. Hard stuff. I hope the right people see your message! ❤

[@Catlily5]

It is sad to see that even with such a serious illness medical professionals are not taking you seriously.

[@RallihSarl]

Thank you for sharing your journey. I a male, 40 years old that been competitive in sports until recently just got diagnosed with vEDS after having multiple mini-strokes the last months. I had ambulance personal, nurses and even doctors rolling their eyes over me and I don't even know if will call ambulance next time. At least the diagnose have given me some confidence back. I am far from being hypochondriac, but my mental issues and my anti-depression cure have not really helped convincing emergency rooms that.. I wish you all the best!

[@julie-annbennett2037]

Very comprehensive, thank you for this video. All the best.

[@debbiekeesler6127]

Yes inwish all the best❤❤❤

[@debbiekeesler6127]

Thank you for sharing I alsohave veds. Ive had 11 stomach surgeries, 12 bowel blockages. 2001 , 75% of my intestines were outside my abdominal wall my stomach and my diaphragm dissected from the original positions I ended up having to have emergency hernia surgeries. All of these surgeries care about because of gallbladder surgery.My gall bladder just went ad. Now i havec4 lsrge hernias , and i now have uterine cancer. Now neither one of the doctors will do surgery on me because of cancer

[@Interstellar_369]

Or call you a hypochondriac for… 42 yrs??

[@christinenorris4314]

vEDS is a monster