CMML - Diagnosis & Treatment :a presentation by consultant haematologist Dr. Daniel Wiseman

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MDS UK Patient Support Group

MDS UK Patient Support Group

Күн бұрын

Пікірлер: 14
@macpduff2119
@macpduff2119 Жыл бұрын
I was diagnosed with cmml-2 June 1 2023. (19%-20% bone marrow blasts and white blood cells). This week I learned that I am responding very well to my Azacitadine treatments. and the plan is to start reducing my treatments - trying to reach a stabilization level. Thank you for your research. This video is so helpful in helping me understand. I can't thank you enough. I am being treated by Dr Zeidner at Lienberger-Basnight Cancer Hospital, UNC Chapel Hill, NC.
@ALOKRAWSINGHAM
@ALOKRAWSINGHAM 10 ай бұрын
Hello, I just wanted to know how you are responding to this chemotherapy please share your experience.
@Pr0ph3cy-k5z
@Pr0ph3cy-k5z 8 ай бұрын
How are you doing now?
@drdeb_ocherry
@drdeb_ocherry 3 ай бұрын
Incredible, I'm in good shape, I'll sign up. 70, 135 lbs, exercise 3xweek since age 16, eat organic am vegetarian for 20(+) years. Happily married 50 years next year
@DonnasJourneychitchat
@DonnasJourneychitchat Жыл бұрын
thank you for putting this video together .. i was diagnosed with cmml and ive learned alot about it in your video im doing treatment and then going for a stem cell transplant after my 4th round of chemo im takin 3 shots in my stomach 7 days in a row out of the month it is called vidasia Not sure i spelled it right and then 2 weeks on 2 weeks off of a pill called venclexta i started with the 100 mg tablet but i take 4 of them at once so 400 mg daily i must travel 3 hrs from home for my treatment towards the end of the month .you made this very easy to understand and ive watched lots of videos to understand .. thank you so much oh yea im 56 yrs old
@ifucknlivemyideallife
@ifucknlivemyideallife 11 ай бұрын
Hello. I wish you health! My mom was diagnosed with cmml at 46 years. Doctor said that without transplantation she will die 😪 Did you transplant bone marrow? I hope it went well 🙏
@DonnasJourneychitchat
@DonnasJourneychitchat 11 ай бұрын
Yes I had transplant on November 8th I’m still in treatment away from home for 100 days I’ll go home mid February but so far all is doing good I’m fully graphed and in remission thank you
@ifucknlivemyideallife
@ifucknlivemyideallife 11 ай бұрын
@@DonnasJourneychitchat that's really awesome!
@RyanJackson-t2t
@RyanJackson-t2t 3 ай бұрын
So I have a weird question my family is from Manchester I’m in the states and my whole monocyte count has been a 13% for over 9 months on my labs how worried should I be I was till I have pv but i stay in a constant state of a mild cold sneezing cold sweats with exertion consistently in have white chalky streaking in 3 of the nails in my right hand that consistently comes back sign of anemia I’m told
@PRIYANKASHARMA-ey8bv
@PRIYANKASHARMA-ey8bv 10 ай бұрын
Hello, My father is diagnosed with CMML-1, in May-2023, he had gone through 2 cycle of Azacitadine, but the medicine didn't suits and he has severe pain in legs, we have to go through transfusion every 15 days, is there any treatment other than chemotherapy and stem cell transplant
@ALOKRAWSINGHAM
@ALOKRAWSINGHAM 10 ай бұрын
Hello can you tell me where you're getting treatment for your brother?
@PRIYANKASHARMA-ey8bv
@PRIYANKASHARMA-ey8bv 10 ай бұрын
@@ALOKRAWSINGHAM Currently, we are taking treatment from Mcleodganj
@ALOKRAWSINGHAM
@ALOKRAWSINGHAM 10 ай бұрын
@@PRIYANKASHARMA-ey8bv Please Visit Rajiv Gandhi Cancer Institute, they can give proper medication
@ALOKRAWSINGHAM
@ALOKRAWSINGHAM 10 ай бұрын
​@@PRIYANKASHARMA-ey8bv please see a doctor in Delhi or Mumbai
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