This webinar was so insightful & helpful. Since all this has been happening I've felt totally worn out..more so than ever, needing much more rest & sleep. Thank you Toby for doing this for us...
@CFSHealth4 жыл бұрын
I am so glad you joined us and watched it AND found it helpful!
@homemakersheart36144 жыл бұрын
Oh my goodness thank you! Gemma's talk reminding me of something I forgot: to listen to your emotions. Your body is trying to tell you something.And Dr Olivia speaking on the body's cycle and being cool at night, as well as grounding to help inflammation. Sometimes it seems the internet is triggering brain fog, so I am going to start grounding to help counter act being online so much. Thank you Toby for organizing this.
@CFSHealth4 жыл бұрын
Amazing share! Thanks Mrs Peterson
@lunitee4 жыл бұрын
Yes! When people tell me they find confinement hard, I kind of hey, I have been pretty much confined for 15 years now... Happy that people know how it feels! Well not that happy... I mean, I wouldn't wish this illness to anyone.
@amygregg16584 жыл бұрын
This webinar was wonderful, Toby! Gemma’s part was so helpful for this stressful time. And thank you so much for bringing Dr. Olivia on! She is so wise and compassionate and I loved the research she shared on sleep. I love hearing the science behind the recommendations, and she is such a lovely person! I hope we see more of her. Great job finding her, Toby! Thanks for putting this together right now. I needed this, Toby! 😁
@amygregg16584 жыл бұрын
I was especially fascinated to hear about the research on grounding-that it decreases inflammation and that it decreased vagal tone in the NICU. Wow! Now I wonder if that’s why I always do better when we’re on vacation at Lake Tahoe, where I spend lots of time lying on granite rocks in the sun.
@elinasam62254 жыл бұрын
I really hope Dr Olivia will make that sleep workshop happen! I really like what she had to say and I’d love to hear way more
@kristinlind95984 жыл бұрын
Thank you for your efforts to help a growing number of people with CFS, which is already proving to be a common outcome of Covid-19 (even for those without previous CFS issues - 40% of SARS patients struggled with CFS for up to 3 years). I have a lot of concern about the essential message of 'mind over matter' that so many people with CFS/ME/dysautonomia are constantly being bombarded with. While I appreciate the 'curiousity vs. conclusion' suggestion (which is very aligned with mindfulness and many meditation practices), I felt that Gemma's delivery came dangerously close to blaming the victim (of chronic brain encephalitis) when they are too overwhelmed by symptoms that impact the ability to think rationally, modulate emotions, etc... for PURELY physiological reasons. I think this message could be relayed in a way that steers clear of the implication that you can 'think yourself' out of chronic encephalitis and reminds people that this mindset (while helpful when possible) may not always be possible for reasons that are NOT a simple matter of choice. I personally found the whole "how's that working out for (serving) you?" to be a bit snarky and insensitive, and implied that people are bringing about their own suffering, when some folks may simply not be able shift out of that place without some other tools (eg, anti-inflammatories, pain management, detoxing, etc). I'm currently battling covid-19 after spending years climbing out of the chronic Lyme trenches (with great effort and much success). I can tell you, this virus is BRUTAL and its impact on the CNS is profound for approx 1/3 of covid patients (see article at the bottom of this post). For me, it delivered a new round of issues (GI and respiratory) while probably reactivating my EBV and dormant Lyme bugs (according to my LLMD). At 9 weeks from the onset of symptoms, my vagus nerve is still under siege and I've developed full on POTS for the first time (extremely debilitating), on top of the pain and other neuro chaos, crippling fatigue, thick brain fog, etc. People need a lot of TLC through an onslaught like this - I really appreciated Dr. Lesslar's acknowledgement of the lack of (and importance of) compassion and empathy that many (most) CFS/ME patients encounter not only by medical practitioners and the world at large. I'm interacting with other covid patients from all over the world - many are entering this realm for the first time and, on top of the trauma of the virus, they are now being traumatized by the discovery that medical providers are absolutely clueless about their extended debilitation (and as usual, are telling them it's purely anxiety, poor attitude, what have you). thenextweb.com/syndication/2020/04/30/over-a-third-of-coronavirus-patients-show-neurological-symptoms-study-reports/
@lewisbarham4 жыл бұрын
I'm a big fan of grounding. I've got a recovery bag from Groundology and a pillow case. I also have mats under my keyboard and mouse whilst working at my desk during the day. It's also been shown to reduce 'colic' in babies as it has a calming affect on the nervous system.
@songbirdpoet4 жыл бұрын
Thank you! More good insights. honesty and compassion.
@CFSHealth4 жыл бұрын
:)
@Rozzi3814 жыл бұрын
From Cornwall, have recovered from ME, just had Corvid-19 and all the symptoms of ME are back....having lost seven years to it, I am distressed to have it back.
@IridescentJen4 жыл бұрын
@rozzi wright 💜💜💜
@phill59424 жыл бұрын
How did you recover from it in first place?
@PinkWaytojannah4 жыл бұрын
@@phill5942 want zo know it too
@oclay26644 жыл бұрын
Feel ur emotions it helped me alot
@kayonnewebley71234 жыл бұрын
I'm reading a book called "Deep Nutrition", by Dr. Catherine Shanahan, as I focus on my diet as one of the elements of healing my autonomic and peripheral nervous systems (I am also recovering from a CFS-like condition. Upper Airway Resistance Syndrome to be precise). I am confident that implementing what I've learned from the book is helping me with my journey. May God be glorified forever.
@Sindre94Ipswich4 жыл бұрын
Thank you. Any way to get in touch with you for an "appointment"?
@CFSHealth4 жыл бұрын
Apologies just saw this message - Yes head to www.cfshealth.com and fill out an application form!
@cynthiacastro36984 жыл бұрын
Yes!
@Thomas-ku8fd4 жыл бұрын
Shorter videos is better for people with cfs
@CFSHealth4 жыл бұрын
What was your biggest takeaway from the webinar? Comment below
@joelreboot41034 жыл бұрын
Hey Toby great seminar I've been really at it with trying to crack down on recovery due to the corona virus from chronic fatigue, I'm not so much a severe sufferer as I've never crashed or had any major painful symptoms and I've just been in the wired but tired stage. Anyways I'm a little stuck. For most part my inflammation is going down but I still get random slight pain in my adrenal area that spike adrenaline even when I'm just sitting down and doing nothing and I feel like this is hindering my recovery as sometimes the inflammation comes back again. I'm not sure if its a blood sugar issue my diet or I can't tolerate one of the foods I am eating, lack of exercise or too much movement, my diet is very high carb low fat with some meat. Do you have any insight/tips on what I can do? Also can you exercise in the wired but tired stage? it would mean the world if you could give me your best answer thanks
@cynthiacastro36984 жыл бұрын
I have been taking 2 or 3 sleeping pills together for sleeping.