CPAP Confessions.... 😬

The CPAP Confessions.....
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#apnea
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[@Freecpapadvice]

Have any of you Papper People tried this? What are your thoughts? Thank you for watching!!! You can now purchase the NEW ResMed F40 at cpapsupplies.com: bit.ly/38yPlXk Links: 1. Have a PAP Analysis with me at: axgsleepdiagnostics.com 2. As an Amazon Associate, I earn on Qualified Purchases: amzn.to/3drPax1 Video Sponsor: cpapsupplies.com/lefty Use my CPAPSupplies.com (affiliate link): bit.ly/38yPlXk March Discount...20% off AND 100 Loyalty Reward Points: LUCKYLANKY Don't forget discount code: LEFTY20 if all else fails! Check out my new Amazon Store: www.amazon.com/shop/thelankylefty27 (or....use my Amazon affiliate link every time you shop Amazon. Thanks!) Join this channel to get access to perks: kzbin.info/door/g_Rj5qrxlCo4OX6MMq08gQjoin

[@ventqueen682]

Since the weather has been getting warmer, I have sometimes been pulling my CPAP off while asleep (apparently pretty early in the night). I think that the heated humidifier/tubing made me too hot in combination with the weather. Sleeping without my CPAP for one or two nights makes me feel like absolute trash. I could not imagine going two weeks without it these days. Also, I looooooove Mask Bright, it is my new favorite thing. I'm an RT with lots of hospital experience and have learned so much from you since starting in the DME world a few months ago. Thank you!!!

[@jeffjinai4676]

New to CPAP was not over the moon excited by the whole thing. Your videos are informative and helpful. Lego man way too funny.

[@Freecpapadvice]

Thank you for watching!

[@lynneanilsonthibodaux9220]

I never EVER go a night without cpap! Neither does hubs except when he has to get up with the dogs in the middle of the night and ends up staying downstairs with the dogs poor guy. Slept on an overseas flight with no cpap if that counts (which increased the crappy jetlag I endured). In that vein, I do hope that all commercial pilots who need cpap therapy are using it without fail! Thx for your awesome videos, Lanky!

[@chrish4977]

I'm due for another sleep study this year but I can't sleep with out my CPAP. The very first time I used CPAP was incredible. I didn't know sleep could be so restful. I'm just gonna find me a slightly used machine and save money not having a sleep study done. With oscar I tuned my settings to where I feel really good. I really can't wait for A.I. to take over sleep studies instead of a doctor just prescribing a general setting range.

[@scowell]

Companies (like Jason's sponsor) will write a scrip for you for a fee and consultation. Your doctor's a prick for making you go through another torture session when we both know your diagnosis already. See if you can talk them out of it and just get a titration where they start you on CPAP and find your good pressure. If they make you do the full study then demand an Ambien pill... I've got an Ambien waiting for my titration session next week.

[@marcoantonioosoriomoronatt3763]

No, how horrible, I don't even dare to think about it. In fact, I'm now afraid of having to go a single night without CPAP. My heart was close to a heart attack before using it.

[@tehweh8202]

I was definitely heading in that direction, too. Had a resting pulse of 90, that occasionally spiked to 120 for an hour or so. Definitely not healthy.

[@rasmusstubert7523]

@@tehweh8202mine was 30 lowest and highest 180 at sleep studie, glad to be alive 😅

[@Doublereeder2]

I love the humor with which you present the info, you just crack me up! I only skipped one night of CPAP and felt awful the next day. I was groggy, lethargic, and sleepy. I’d hate to see what a week or two does!

[@biglouise1916]

You were really brave to do without the cpap for 14 days. Special greetings ton Johnson from Spain😀

[@edwardsteiner8086]

The BEST thing that ever came into my life was CPAP! I can't get by a single night without it!

[@beltycat5490]

The last 5 days of your cpap fast was pretty much my situation for decades , a terrible existence

[@usaman7358]

25 years now with severe sleep apnea, UNTREATED (long story). Imagine feeling like that last day for TWENTY FIVE YEARS straight (and counting).

[@JDHood]

Went on a trip last fall and when I unpacked, realized I forgot the humidifier tank (Airsense 10). It was just two nights, but it was horrible. Constantly snored myself awake, throat was raw, was cognizant of how often I was waking up. Won't happen again. Lessons last longest when learned hardest. As for when I first started CPAP, one BIG thing I immediately noticed was that I was aware I was dreaming again and in the mornings, I was groggy as if I was sleeping deep when the alarm went off. Before CPAP, I could not remember the last time I dreamed and getting out of bed was not hard because I had only been half-asleep or was already halfway to being awake.

[@pbrian9527]

Been on CPAP for 5 years and never sleep without it. Low leaks, low AHI, but wake up with headaches and still few awful. 🤷‍♂️

[@SajidKhan-kt6rz]

I was in the same boat until I had jaw surgery

[@DGQ1Q2]

I have curiosity, which pressures ? witch type of mask.?

[@SkunkieDesignsElectronics]

Love your content :) Keep up the humor + great advice.

[@robertstwalley3662]

I cannot take a freaking nap without my cpap, no way could I go a week, I choke out without it. Recently diagnosed with Myasthenia Gravis, now I think the MG is why I need a cpap so badly at night. On meds for the MG, but still need the cpap every time I want to sleep.

[@LeoDodier]

Thanks, Jason, I really enjoyed the video. From the beginning of it I thought Legoland was going to be toast and he was! Nice job.

[@jamesbruzgis9476]

What an opening. Papper ppl, grandpa lefty, thickest……. Polysomnographic technologist! Lmfao. Epic

[@DonnerPassWhisky]

A little over a year ago I went three weeks without CPAP. My machine broke and the big company That starts with A and ends with A jerked me around for three weeks before I got a replacement. Did not feel to well during that time. Was much better when I got a working machine. Cheers Jason

[@abelardogarcia3297]

Hello Lankey, I enjoy your content.. My experience with this scenario is the following: A middle aged person with private insurance gets dx with mild OSA and accepts hypopneas scored at a 3% desaturation. Several years later they are retired and are now on medicare which requires hypopneas to be scored at a 4% desaturation. Medicare will now require this patient to undergo a re-evaluation. The idea to have them stop using CPAP for atleast 3 nights prior to their sleep study is to allow the effect of snoring to cuase inflamation and likely get them qualified at a 4% desaturation. However, there is a loop hole, if the sleep physician dictates on the original interpretation the AI (Apnea index) which does not have a desaturation criteria and it is >5, they might be able avoid having another sleep study.

[@PleasantlyConfused6816]

I feel like you did evert night. Never have felt different since starting the therapy. Might need to check out your service.

[@p4ncakefather]

the all powerful anecdote!

[@Freecpapadvice]

There really is no retort powerful enough to refute.......the anecdote!

[@michaelmarchei8539]

I went in for 2nd study and no one said to do this.... I did however get some Hopped up Sleep Tech who pumped me with 18cm fixed and was super happy they had perfectly titrated me during the study..... Woke up feeling like my head had been run over by a truck.. throat was soo dry i couldnt swallow for a day lol. Ended up being a waste of time basically.... Dr agreed ill stick with my APAP which usually sits around 8cm

[@flilguy]

I have something going on where I stop breathing while using my CPAP. It's terrifying!

[@stevenlowe2817]

Thumbs up to a fellow Tesla nerd. Thanks for the F40 update - had been waiting for cpapsupplies to stock n will order now. Thanks cpap GOAT

[@theleigharchie]

I had 5 hours since starting cpap almost 3 years ago. The power went out. I was bummed but needed some sleep, even if it was bad sleep. My husband said I didn’t snore a bit. He said I breathed steadily and rhythmically through my nose the whole time. I asked my doc about that. Like, have I trained myself to breathe correctly in my sleep? He said naw fam. If you did it the next night, it would’ve been a bit worse, until like 5 nights in and I would be miserable again and snoring. After those 5 hours, I felt like crap, even though I seemed to breathe fine. There’s something to that. Every now and then I wake up to find that I never put my mask back on after I woke up an hour before to let the dog out. I feel like crap after an hour. So, I put it back on and go for 30 min to an hour more of sleep and I feel much better.

[@JessicaLaska]

I’ve skipped using the mask a number of times for varying lengths of time. Where it was 1 to 3 nights no CPAP was definitely tired, headaches etc. Where I went without for a few months (due to frustration over mask leaks) it was like trading one “evil” for another. Everything you described but no dry mouth. Also made me extra emotional/short fused (sorry fam!)

[@beforeandafterphotos]

Car def looks like a spaceship

[@nomadsolos]

Aah Joshann - What happens with the Tesla if the grid goes down and you need to take a trip? As someone who has been on Cpap (bi-pap) for 6 + years, I only had one night back in August of last year that I did not use it. I was in a hotel and could not get the plug to work in the receptacle next to the bed so my Resmed Aircurve 10 could not be used. I was awake all night. That afternoon I had Hotel Mtnc up to the room to fix it, and right away I took a nap. So NO - can not sleep without it.

[@Freecpapadvice]

If the grid goes down I'm not going anywhere anyway. Not pumping gas and not charging up. Throw a 10 ft extension cord in your travel bag. That happens way too much!

[@cris_miko]

When I dont use CPAP, I'll have an event that causes my dog to growl and bark at me to wake me up. And she NEVER does that when I use CPAP. I have no doubt she is aware I've stopped breathing, and she is literally in my face waking me.

[@Big_Tex]

I’m not going to not use MY CPAP. A night without it is miserable, I’ve been there during a power failure. I shudder to think how I’d feel after a week or two. Before I was issued a CPAP I was an absolute zombie every afternoon and would have to crash into a nap in the early evening.

[@sirenmuscle]

14 days without cpap, I would be dead. 2 days max and that is horrible.

[@gregcarson3444]

I can not sleep with out the CPAP anymore, my own snoring wakes me up when I try to. Guess that is 15 years of being a papper person.

[@CarlosGarcia-ij4yg]

No way I'm going without it for even one night

[@snospmoht3252]

June 2021 to February 2022 without a cpap was WAY long enough for me to know I don't ever want to have to go without it again. That's the time from the day my doctor told me to stop using the %&@!# Dreamstation until the day I took delivery of the AirMini that I was finally able to find and buy by myself. Nine months of hell. Short spells of nights with no electric power, bouts of nausea where quick bucket access was paramount, and things of that nature are the only exceptions to my 100% compliance nowadays. How you stood two whole fricking weeks is beyond me. I love me some good data but dude... don't think that I would be able to sacrifice that much for science. Too outright dangerous.

[@LeoDodier]

And perfect timing, I was going to contact you to get a recommendation for a full face going from the N20. I’m gonna give the M40a try…

[@judeanlee1608]

Stopped using cpap for five days. Had a cold and nose was totally stuffed up. Starting back up tonight and hope to sleeping better.

[@moidfpv]

I tried to go without my ASV last night because I'm so frustrated, but only made it to 1am - painfully dry throat, waking up constantly and catching myself not breathing. My problem is I feel horrible whether I use it or not. I do have some pretty good days but I've developed dizziness/vertigo and extreme exhaustion and inability to focus/stay present. Met with my sleep doctor (MD) and he kept mentioning Orthosomnia. Never heard that term before so I wrote it down. I'm actually angry now that I've looked it up. Wtaf? I'm getting a lot closer to meeting with grandpa lefty. I feel it's just a pressure adjustment problem, but I have no way to find the right setting, so I'm at the mercy of these sleep techs who seem to be just guessing and making me wait a week or more to see. Meanwhile, I have to live those days one at a time and it's no fun at all.

[@cebruthius]

ASV can be quite tricky to get right. Lots of settings, that have to be tailored to the individual. Orthosomnia is just a word doctors use to insinuate that you are "unreasonably obsessed" about your sleep quality. It's a huge red flag that you are being targeted by Medical Gaslighting.

[@moidfpv]

@@cebruthius Thanks for the reply. I thought that was a red flag. I had a lot of questions since I've been using CPAP then ASV for a year and have never met the MD that works at the Sleep clinic here. I thought that was the right approach since I had a lot of questions. But as I did he started dropping the Orthosomnia term. He then started asking me if he should change the pressure settings! Like what?? I was confused so I just said, look, you're the doctor I have to defer to you for stuff like that. In any case, he did change one of the settings and it was a little rocky at the start but I'm feeling better now. The vertigo has reduced quite a bit for example. I still don't feel what I would call great, but not being super dizzy all the time is an improvement. Thanks again, have a great day.

[@cebruthius]

@@moidfpv What you wrote about dizziness intrigues me. I also have experience with dizziness. Do you have a ResMed ASV? Does it show blips on the Flow Limitation graph?

[@moidfpv]

@@cebruthius Yes I have a ResMed 10 ASV. In the flow limit chart I see a lot of spikes on both good and bad nights. Are you on SleepHQ? It's easy to share data with people there so I could show you my data if you want to see it. I'm ranging from as low as AHI=3 to 20 (last night was 17.5 and two nights ago it was 3.47). I'm all over the place with no consistency. Every day is a roll of the dice on how dizzy I'll be not to mention how overly exhausted and/or how much trouble focusing or staying present I'll have.

[@juliemcmahan1207]

I had brain surgery on Feb 1st. I had to go without my CPAP for 2 weeks after the surgery. I felt horrible, but thought it was because of the surgery (still recovering!). However, a couple of days after resuming my CPAP it seemed like I turned a corner on recovery, mainly in how sleepy I was and how dry my mouth was. I've been using my CPAP since the 2 weeks were up, but my AHI's have increased. Do you have any idea or experience on why this would happen? I had a craniotomy for an aneurysm clipping. Thank you!

[@davidpeterzell789]

I still can't fathom why sleep docs tell us to forego CPAP for a few days before visits. If it's to remove any residual adaptations to CPAP then what are the adaptations?

[@DoubtingThomas333]

What is the reason behind not using cpap before another study? My problem is that even a few days without it makes me feel like I'm going to lose my sanity. Another issue i have with any study they do, is a lack of care factor for leak rates when using their supplied nasal mask.

[@scowell]

You have the right to use your own mask... they don't mind. They'll freak out if you tape your mouth... let them. Avoid another study at all costs, neither insurance nor Medicare require them, I checked.

[@levelman4214]

I could never do this, I would constantly wake up in a panic attack from not breathing. I can get by with a nap without it but have to be in recliner with my head tipped way back over top of chair.

[@cebruthius]

Don't let the internal Tesla cameras spot you playing with your lego man!

[@gregblair5139]

I don't even like when they do a split night in the Sleep Lab. I've been using CPAP since (July, 1999) meaning almost 25 years! I even ran out and got a different type of mask when I had a forehead injury.

[@LucMasse-pr5uu]

Where is the data? 😢 Since you have access to type 2 sleep study equipment, I thought you would have done sleep studies before and after the 14 days without using CPAP. A curious Papper Person 😉 Also, I had unstoppable hiccups recently, so I stopped the PAP treatment for 2 days (even when I managed to stop the hiccups, it started again instantly on the PAP treatment) : I felt like crap, I was sleeping about 15 to 18 hours each "night" 😴

[@bethover4hu544]

Even after one month on CPAP, I don't really notice any improvement in my morning tiredness. Hmmm...

[@veryberry39]

I got my cpap in 2019, started using it religiously in...I wanna say 2021? And there's almost no improvement. I think there's a TINY difference, but otherwise yeah, it's frustrating. So many people talk about this rapturous difference once they began CPAP, and I'm still tired day after day. (for what it's worth, have you had other tests? Thyroid, iron? I thought testing for hemoglobin was the same as testing for iron, but it's not!)

[@Freecpapadvice]

@@veryberry39 I'm down for taking another look at your data.

[@KPHVAC]

I feel terrible after one night without using CPAP. By day 2 I'd be trying to rig up a mattress pump to my CPAP mask! My sleep without CPAP is horrible.

[@OldePhart]

Tested the F30 a few days ago and the nasal pillow area was so thin it wouldn't seal against movement and that where I need the pressure.

[@OneIdeaTooMany]

I'd like to do a sleep study WITH my CPAP on but they won't allow it. All i want to know is what i was doing at the time and what my body is doing.

[@scowell]

Yeah... *that* ain't happenin'... my diagnosis AHI >100, no thanks. I tried going in for a sleep study recently (14 years on CPAP by now), it was torture in the extreme... and they wouldn't have mercy on me... my doctor made a *big* mistake sending me in without Ambien... I though I'd tough it out with three Benadryl... didn't touch it. Six hours of torture later I escaped... they said later they'd got enough data to give me a diagnosis... the doctor told me insurance would want a study every so often... I talked to *both* my insurance and Medicare and both said no, that's between you and your doctor. I think he owns part of that clinic, srsly. Anyway, I can rant for hours on this... if you find yourself without your machine in a situation, find a straight-back chair and sleep in it... prop your head up, you might get an hour or two, it will wreck your neck. Anyway I've got a titration session coming Tuesday, single and bi-level, got an Ambien waiting at the drugstore... at a different damn clinic for sure. And that '>100' diagnosis AHI? Pretty sure the tech had mercy on me and fudged the number, that first taste of sweet sweet pressure I'll never forget. REM rebound, anyone?

[@scowell]

@@terri90069 What was your original AHI? They start you at 5cm and bump it up every so often. I could probably get away without it, but what the hell, have it in reserve if needed... it's a split night titration, half CPAP, half bi-level... the sooner I get to sleep the more time for titration tuning. They will give you the pill, you don't have to use it, but with all the wires etc why not I figure?

[@AlwaysAudacity]

R.I.P. Legoman.

[@ederdmann7347]

Sounds about right for the medical people. Stop the thing that’s helping me stay alive. Why don’t you stop all my meds while you’re at it. 😂

[@Jalmari1]

If I don’t use cpap my partner cannot sleep either because I move like crazy 😅

[@OldePhart]

We so had no power overnight so no CPAP. That was an awful night. I can't imagine 5 days without. I'm not that fat so I'm really surprised I'm so addicted.

[@michellerose3796]

If I am sick or my allergies are acting up, I cannot use my CPAP, so I force myself to side sleep for that night. It isn't CPAP sleep, but I can manage a few days with it without issue....beyond that, no dice and it's like my body 'forgets' how to sleep with CPAP after that break. Booooooo.

[@joelow1282]

That’s the same issue I have .

[@Kellybt21]

I'm struggling with a perforated ear drum that my cpap is blowing open after it heals. I've tried stopping cpap but it's a miserable experience. I'd rather have the ear troubles and hearing loss because it's that bad.

[@NeilBaylis]

How much are you paying LegoMan? Whatever it is, it's not enough.

[@ASpectacular3777]

Coolest ride!

[@kchortu]

OK lego man is awesome in this video

[@bmills9821]

I can’t sleep a night without my cpap or bipap

[@shirleyfenile3393]

No way can I do this. On cpap 6 yrs. If I even pull it off, I wake with headache, chest pressure, and dry throat.

[@davidpeterzell789]

A Tesla? Have you tried CPAP while driving?

[@davidpeterzell789]

Does the ASPCL know about you?

[@theprincesbride]

Are you gonna review the F40?

[@Jay-Cup]

It puts you at risk......

[@preetimittal2123]

Please answer my 3 question ..i am from india ...and very stressed for my father 1. My father has a deviated nasal septum nd sleep apnea with ahi 46 , he is currently using cpap but some studies suggest that septoplasty can cause central apnea in future... but how? 2. My father getting aerophagia without Epr so ...he use Epr at 2 level ..my question is if he is having central apnea caused by Epr in future so what should i do???..currently he is using apap pressure minimum 8.8 to max 10.2 ...and Ahi is 2 sometimes 1.6 3) how can i lower my father Ahi under 1.0 ? Currently Ahi is between 1 - 2 and maximum 95 % pressure goes to 10.0 ...so what should i do...we dont have oscar support because we are middle class people and use resmed airstart 10 Thanks....

[@joelow1282]

Jason appears very fit . I thought only “heavy set people” need Cpap . Me being one of them . Relatives say if I lose weight my apnea should go away . I take it this isn’t true .

[@Freecpapadvice]

Interesting video in the future about this.

[@tehweh8202]

It affects all sorts of people. Apparently petite women are supposed to be very prone to OSA too because of narrow jaws and airways.

[@maryrollins607]

I hope your wife was gone on vacation. 🙈

[@bertg.6056]

The guy can't be bothered with a studio setting, instead does his presentation while driving somewhere. I guess viewers can figure out where they stand.

[@Freecpapadvice]

You know I'm a KZbinr and not Paramount or Universal.....right? My "staff" (my cat) and I will try to do better. 😂😂🤣

[@bertg.6056]

@@Freecpapadvice Your car videos are analogous to the videos of women complaining about men while applying makeup. Just not that important to devote full attention to the video.

[@Freecpapadvice]

Yes...."your car videos"= 1 video. Done because subject matter was extremely short and required no demonstration. Driving (around my neighborhood) allowed for a change of pace as well as the setup with Legoman. I think you are reading into it a little on the negative side. Do you take it as a personal attack when someone parks in front of your house? Inquiring minds want to know.

[@bertg.6056]

@@Freecpapadvice I'm just giving you my point of view as a viewer. You can have your own opinion.