Cystic Fibrosis Newborn Screening.

[@billiesbagles2917]

My parents are carries of the Cystic fibrosis gene when my sister was born she doesn't have CF she is just a carrier but when I was born i got diagnosed with CF I was supposed to live until 6 but now I am 12 years old turning 13 next year I do my treatments my life is normal I am a normal girl I love Billie elish my fav Singer,loves shopping, and sleeping all my friends know what I have CF but they don't care they love me no matter what my best friends love me so much no matter what CF I always do sports like swimming I am currently doing my treatments my sister is helping me type she loves me no matter what also I hope someday there is a cute for CF and I am proud to say this is my fight song!

[@dustnbrewks8978]

Thank you for sharing!

[@ChrisVSCysticFibrosis]

I was diagnosed at 5, A little late but the awareness now is AMAZING. It's really encouraging.

[@natashagreen-chillaxedprod7769]

Has anyone watched Five Feet Apart? It made me Cry & laugh - it’s great.

[@farmanrashid8794]

I went for a sweat test for my son age one year but no sweat came ,,dr has given appointment for next attempt after 15 days

[@shannonrosewiley]

Hopeful your son sweat next time. My brother had two sweat tests in Jr. High school not because of CF but because he was have issue sweating and it showed he could not sweat.

[@innovationdanceacademy9686]

Is it curable or not

[@NemoursChildrens]

Currently there is no cure for cystic fibrosis. However, for many patients there are new treatments available which may reduce the symptoms and improve outcomes. More drugs are in the research pipeline and look promising for managing and treating CF. For the most up to date information, check out the Cystic Fibrosis Foundation website at CFF.org.

[@tamarasoutham8575]

Not at the moment

[@artisticminds5794]

The only way really is too get new lungs but it wont cure it fully.

[@chelseahinch3604]

INNOVATION DANCE ACADEMY no

[@kawtharabbasabdullah4721]

I'm 23 weeks pregnant I found out today that my unborn baby has systic fibrosis I'm terrifies as I no nothing about this 😪😪

[@NemoursChildrens]

Here's more information about Cystic Fibrosis: kidshealth.org/en/parents/cf.html Be sure to talk to your OB/GYN caregiver and don't be afraid to ask questions about this condition. Another great resource is the Cystic Fibrosis Foundation. www.cff.org/