Dancing, Movement, Medications, and Living Well with Parkinson's with Pamela Quinn

Pamela Quinn has been a dancer and choreographer her whole life. In the mid-90s, when she was diagnosed with young onset Parkinson's disease (YOPD) at age 42, her doctor told her to rest and not move. This didn't sit well with Pamela, and ever since then, she has been moving and working hard to live well with Parkinson's. During this conversation, we talked about her work, her business (PDMovementLAB.com), how she manages her medication, being her own advocate, and preparing for opening night at the World Parkinson Congress in Barcelona this summer.
You can look for online classes and learn more about Pam here: pdmovementlab.....
Have any questions? Don't hesitate to reach out to [e-mail].

[@splashesin8]

Thank you Pamela. This is beautiful. 🚣‍♀️🎵🎵🎵🎵

[@mikeholland7093]

Thank you for this conversation.

[@1tennismama]

Pamela was so informative, thank you

[@JohnWeihs]

Good discussion Mel and Pamela! I agree with the need for discussion and availability of dosing strategies. I use liquid Amantadine, continuous infusion CD/LD on open label use, and also use partial pills for betting dosage control. All are helpful. The comments on the opportunity to gather anecdotal information is spot on in my opinion also. I agree that variety in exercise is important; I'm a proponent of stimuli reaction (ping pong, tennis, etc) along with weight and cardio. Also I'm fortunate to have dance opportunities. Thanks for discussion clinical trial involvement as a way many can help the community. Well done.

[@davisphinneyfdn]

Thank you for watching, John!

[@richalenekelsay5056]

@@davisphinneyfdn 38:43 38:43 Hi Liz. This is the first of a number of discussions I have saved for my own continuing education. We can talk about these later or not at all. It’s up to you😊😊

[@elainestrong871]

Looking forward to the release of your online course.

[@Schouse15]

Great interview! Very helpful. Thank you

[@splashesin8]

This is fantastic! I wish I had not missed it during live in progress, but soaking it up now❣️ I frequently follow people I can hear walking to augment my navigational caning technique, (as a short cut, to avoid display boards sticking out in front of stores on the street and in the mall) and used rhythm with my tapping early in my adjustment to long cane navigation. Used dance form to try to hold my alignment. 💕 I didn't even really know what was going on with my movement situation at the time, just that those things helped. I am excited about using the skipping of the cracks, as a different mechanism, and love this term, "cueing."

[@triciabyrne7761]

I know there are many researchers working to find the cause or contributing factors that result in a diagnosis of PD. Is there anything at all that has been learned so far that has been shared publically?

[@davisphinneyfdn]

Tricia - There are many potential causes, contributing factors. A quick Google search will give you loads of research and information on this topic.

[@triciabyrne7761]

@@davisphinneyfdn Thanks. I had and it all seems pretty flimsy. Toxins and ones genes sounds like no one has any idea of the cause.