Spot on... The sleep hygiene hasn't worked one bit.
@sallyriggs465 Жыл бұрын
So glad it resonated. Hopefully some of these strategies will be more helpful 🤗
@heidihancock5487 Жыл бұрын
Thanks for this video. Ive had awful insomnia since july 2022 after a 3rd bout of covid. It led to severe anxiety, panic attacks and depression. All of which iam still suffering from. I cant sleep more than 2 or 3 hours and my nervous system is alternating between figh flight, freeze and fawn.I will definitely be watching more of your videos thanks. Its good toknow people can heal.
@sallyriggs465 Жыл бұрын
More than welcome Heidi! And hang in there- I was very similar for a long time but can sleep 10 hours straight now 😃
@heidihancock5487 Жыл бұрын
❤ wow that's good to know. 10 hrs straight. How did you get to that! 😊
@sallyriggs465 Жыл бұрын
by calming my nervous system...
@patmccotter42199 ай бұрын
Hi Sally, how did u calm the nervous system?
@skyeblue56693 ай бұрын
▪︎¤▪︎ Omg, that me..Two days before testing positive for covid I wasn't able to sleep at night..Im on day 6 with covid and I'm still struggling with sleeping and eating..I can't taste my food so when I try to eat I get nauseous..With the lack of sleep and food I always have a headache..Not being able to sleep is a scary thing..Plus, I've been getting anxiety and small panic attacks..When will this be over??😢
@esther78678 ай бұрын
Thank you for this! I had sleeping issues before contracting covid, which had just improved to a point where I felt my sleep was 'reasonably ok' - and that is when I got (long) covid and my sleep got completely messed up again! Pretty frustrating. Now more than a year later I have been symptom free for a while, only my sleep is still an issue. I have also found that it works so much better for me to be as flexible with my sleeping hours as I can. I try to give myself space to be in bed for 10 hours every night which takes off some pressure, it helps to be more relaxed about waking up and lying awake, knowing there is some space in the 'schedule' for the time spent awake. There's so many rules about stuff you shouldn't do before going to bed and they made no difference for me, I fall asleep very quickly usually even if I did all the stuff you're not supposed to do... it's just waking up that is the problem exactly as you describe. Love the idea of having something to listen to, I will definitely try that - this also helped me when I got anxiety on the bus/other environments because of the long covid!
@sallyriggs4658 ай бұрын
So glad to hear this was useful Esther! Sending hugs that it gets better soon 🤗🤗
@Arsagon264 ай бұрын
Wow everything you said really hit home hard. I had just fixed my sleeping schedule when covid hit me and it has been terrible since. By now I get atleast 5 to 6 hours of sleep at the very least but often at completely ungodly times. One thing that also helped me some nights was taking a shower before going to bed. I normally shower in the morning but if I lie in bed for hours unable to fall asleep the last thing I wanted is to be uncomfortable. I think it also helped with getting in that fight or flight setting some nights but that could just be projection.
@sallyriggs4654 ай бұрын
Great tip! a warm shower, especially if you don’t have MCAS, can be helpful in inducing sleep.
@Troycharl20 күн бұрын
Thanks this is such great information!
@CocoK131410 ай бұрын
I am so happy to find this video! I start having difficulty to sleep since I caught Covid last month. Even I fall into sleep, I start dreaming with all the weirdest dreams, then I am up around 1-2 am and can't go back to sleep! Everyone around me was talling me to leave the room while I am awake, try not to nap, and keep at the quiet place etc..... NOT WORKING! There was one time I forced myself to tolerate it and ended up with 6 days no sleeping pushed my anxity to the highest level. This vido totally make sense and make me understand what is going now! I am less stress about my sleep now! I will try to be patient and wait for my recovery! Thank you so much!!!
@sallyriggs46510 ай бұрын
More than welcome coco so glad it resonated!! 🤗
@xiaoyichen1779 ай бұрын
Do you fully vaccinated? I take one year to recover my sleep from Covid. I try so many different things and nothing works. I just take some herbal supplements when not sleeping and I do the accupuouture. It’s very very difficult at the time. Now my sleep back to normal now. I think just be patient and pray. It will heal.
@ReAlNeRd18 ай бұрын
@@xiaoyichen177how did you fix your insomnia
@cindynappa1417 Жыл бұрын
Thank you for this information, your recommendations are so intuitive as they pertain to LC. I have been focused on sleep hygiene strategies which have not been effective.
@sallyriggs465 Жыл бұрын
More than welcome! Wishing you sweet dreams soon! 🤗
@Kaz-fb9lz8 ай бұрын
Thanks for this video, very helpful. I’ve never understood or agreed with the don’t nap during the day advice for CFS or long covid. With babies they tell you that an over tired baby will have more trouble falling asleep and that it takes energy to fall asleep, wouldn’t that also apply to adults?
@sallyriggs4658 ай бұрын
If you’re in extended fight or flight then yes that “overtired” analogy is a good one! The only reason to avoid naps is if your circadian rhythm is off. But that’s not our issue, so sleep when you can and your body will thank you! 🤗
@imunchienandalusia10 ай бұрын
This is excellent, i've been battling CFS and insomia for SOOOOOO long - and all these things i'm being told, that i've tried frustrate the daylights out of me. I'm not a stupid person, i've tried what they told me. I know it's a nervous system thing. Thank you for validating this. Dr Sally - what do you think about having a telly in the room? I just watching boring youtube videos not action or stimulating movies. It's become my only solace in CFS. I've been told i HAVE to get it out of my room but i feel so lonely during my wakeups. I will just do podcasts if you think that's the best path, since you've worked your way out of this mess. Thanks
@sallyriggs46510 ай бұрын
This is another example of CBT-i fails is. If I was following CBT-i I would say it has to go. But all the reasons you list for having it are valid and important. Full disclosure- I bought a new TV a couple years ago and put the old one in my bedroom for the first time in my life. I watch the Today show when I wake up (and also scroll social media) cos I have a med I have to take and wait 30 mins before the next one (and can’t eat yet so why get up?!?) I’d say keep the TV - it’s not massively triggering your nervous system if you’re watching calm stuff. Also our brains see TV and think it’s real so losing yourself in a TV show (literally) is a break from being sick for a bit!
@imunchienandalusia10 ай бұрын
@@sallyriggs465 Thank you for your response. Saw your video with Raelan today and i think i'm going to do your program.
@sonnja785511 ай бұрын
Great video! I find it helpful to take my antihistamin (Ketotifen) in the evening because it works just as well as Ambien for me. Also I now found a duosleep melatonin pill which has both regular melatonin that let's me fall asleep and long-release melatonin which is released evenly over 8 hours and prevents me from waking up frequently. With the combination of Ketotifen and long-release melatonin I can now sleep much longer and better, often 8-9 hours.
@sallyriggs46511 ай бұрын
Fabulous! Thanks for sharing. I do love my ketitofen too! ❤️
@sarahdean644110 ай бұрын
Best sleep video for us I've ever seen and I had cfs for many years. Agreed with everything you say, I ignored all the "don't sleep in the day"etc advice. Is your book and course for long haul cfs which may include covid effects too?
@sallyriggs46510 ай бұрын
So glad it resonated Sarah! My book (and the online course based on it) are written specifically for people with Long Covid and vaccine injury. But the material will very much resonate with CFS especially if you also think there are some covid issue in there!
@mike_zander5 ай бұрын
Sally, thanks so much for the tips! this is the most brutal symptom with long covid. I had this bad the first time I had long covid. As well as the second time long hauling and now again after a bad crash. I wake up in pure panic, heart beating out of my chest and sometimes super shallow breathing. In the moment, you don't think you'll make it through and it's so easy to let your thoughts spiral. I force myself to do the 4,7,8 breathing pattern to manually force myself into a less sympathetic state. The only thing I have lying around is klonopin which I may have to take small doses for now. When things settle down a bit, my go-to concoction is magnesium glycinate (Nootropics depot brand), sleepy tea extra (w valerian) and inositol.
@sallyriggs4653 ай бұрын
Super interesting Mike when I was in the worst of my Long Covid I found that benzos made me feel horrific and didn’t help at all. So fascinating how this illness presents so differently for all of us.
@ambrosauree10 ай бұрын
Thanks you, that's very reassuring. I'm ina relapse right now, I through it was because of a reinfection but maybe I'm actually healing, I hope so!
@sallyriggs46510 ай бұрын
I hope so too! 🤗
@susandrucker79378 ай бұрын
Thank you for information. Only LC patients get the
@sallyriggs4658 ай бұрын
More than welcome! 🤗
@malintha.leanage Жыл бұрын
thanks for this! very helpful and informative :)
@sallyriggs465 Жыл бұрын
More than welcome!
@max-cs9ko Жыл бұрын
My problem is my sleep timing, I generally sleep at 3-4 am and wake by 12 at noon, I don’t know what to do about it
@sallyriggs465 Жыл бұрын
Does that interfere with what you have to do in the daytime? Or are you taking medical leave to rest up for a while and have a more flexible schedule?
@max-cs9ko Жыл бұрын
@@sallyriggs465i had a flexible routine as I am a student and it doesn't interfere my class timing, but i feel irritated because of it as I loss half of my day time sleeping
@sallyriggs465 Жыл бұрын
I hear you on the irritation. Everything about Long covid is beyond irritating. But in all honesty if you can just go with this for now it will a lot less stress on your body. And more than likely as your nervous system calms down and gets into rest and digest more, your normal sleep pattern will begin to return.
@max-cs9ko Жыл бұрын
@@sallyriggs465thanks for your feedback
@briechilli4496 Жыл бұрын
Thank you so much for this video. I am in a living nightmare with my long covid since May 2023. I have slept as you explained only 2-3 if lucky a 4 hour night for all these monthssss. My fatigue is severe, i am couch/bed bound with awful brain fog/issues and panic/ dread, mainly in freeze. Heart palpitations, taking 5 mg beta blockers, i cannot tolerate sleeping meds or ssris. I was healthy and fit before covid living a normal life, power walking, doing exercises and on no medications at all. I am 67 yrs old female. Can your course help me ? I have zero motivation due to the crushing exhaustion. My mind feels empty, i feel hopeless.
@sallyriggs465 Жыл бұрын
It’s hard for me to make promises about the course. And I can only speak from experience and what I have seen with other clients. Your situation sounds very similar. And we can all benefit from nervous system calming.
@chandrasekharreddy5863Ай бұрын
I have Mild COVID in last week. Now I am not getting sleep at all.
@sallyriggs465Ай бұрын
That is completely normal. I had covid again end of August and my dysautonomia was kicked off all over again and some nights I didn’t sleep until 630am. All the same strategies apply.
@moorishmoorish49295 ай бұрын
Thanks what nervous system medication best to look for
@sallyriggs4655 ай бұрын
Typically for nervous system change we are using Polyvagal strategies rather than medication, although supposedly famotidine does activate the vagus nerve (another reason why it can be great for us, but check with your Dr obviously)
@seriusblack84203 ай бұрын
After mild covid , started experiencing below symptoms - severe anxiety, debilitating insomnia , frequent panic attacks made me stay closer to the bed for most of my day time, its irony that even when i could not sleep during nights , daytime sleep evaded me, along with few more symptoms like swallowing food , completing small amount of lunch used to take more than an hour , simply bathing after 15 days used to give me palpitations, even if I tried to go out I started filling sensitive to normal wind and gave palpitations , medicines helped me in majority of my ongoing recovery, CBT later on helped , So I think it depends on level of symptoms and I still feel when I was in abyss medicines armed me to fight against formidable foe
@sallyriggs4653 ай бұрын
CBT for insomnia or something else? Which medications?
@seriusblack84203 ай бұрын
@@sallyriggs465 CBT only for Anxiety issues that too post Medication for Insomnia and other anxiety issues medicines included a medium term course of Clonazepam and Escitallopram SSRI , I was informed by my healthcare provider that SSRI would continue for longer period which I am still on
@brandonyoung49104 ай бұрын
Never had issues with insomnia til after covid. One occasion I did not sleep for 40 hours then another point I stayed away for 30 hours then slept for 2.
@sallyriggs4654 ай бұрын
So sorry to hear that. Sadly super common. I hope you feel better 🤗
@oriondragos58762 ай бұрын
I just got Covid and haven't slept in 3 days. I've had sleep issues in the past but have never gone 3 days without sleep. I tried Ambien which has worked in the past but it didn't work for me this time around. I also heard Ambien has been linked to dementia?
@sallyriggs4652 ай бұрын
If you’re still in an acute covid infection it’s very normal for your nervous system to go into sympathetic overdrive and for a lot people this resolves naturally and doesn’t turn into long covid. If you have acute covid you should be home and resting 24/7 anyway so it doesn’t matter when you sleep. I recently had covid again and I had one night where I didn’t get to sleep until 630am and then I just slept all day. No biggy. Try not to be anxious about it and make it worse.
@oriondragos58762 ай бұрын
@@sallyriggs465thank you for responding. I’m actually on day 5 of no sleep. I feel super exhausted and it t feels as if my nervous system is on full on-mode. I’ve been trying to listen to meditation podcasts and although it slowly tired me I was never able to get into full sleep, just close my eyes. I do feel more anxiety than normal so maybe that is a big reason why I can’t sleep?Hopefully you may have more insight. Thank you Sally.
@sallyriggs4652 ай бұрын
@@oriondragos5876 And are you then sleeping later in the day when you are tired...? Or you literally haven't slept at all for 5 days. No sleep at all for 5 days would be a bit worrying. What does your PCP/GP say? Also curious what meds did your doctor give you for the acute covid? Again just to reiterate that Acute covid and long covid are different illnesses. More info in this video here: kzbin.info/www/bejne/oZmunn17q9OIa6csi=RNw4C8AtY5cpQuw-
@oriondragos58762 ай бұрын
@@sallyriggs465 I was able to get a bit more sleep albeit with the help of some sleeping pills. It's hard for me to fall asleep without help from meds since the past couple weeks. I used to be able to fall asleep after reading chapter of a book. Anything you recommend to help calm the nerves other than meditation? Thank you and sorry for the late reply. Haven't been motivated much
@EvinFox10 ай бұрын
My sleep rhythm is 7:30 pm - 4:30 am.
@sallyriggs4659 ай бұрын
And if that’s what your body needs right now that’s okay! Sleep before midnight is twice as powerful anyway so that may be why your body is pulling for that! Just go with it.
@JonathanGlassco6 ай бұрын
Hi Sally, any tips? I am 90% recovered from LC by practicing meditation and brain retraining. I am now able to sleep through the night again (after a few years of terrible insomnia), however, my issue now seems to be unrefreshed sleep. I will have a full night's deep sleep (my Oura ring shows I get into REM and deep sleep) but I wake up feeling out of it and have bags under my eyes. It's like my brain is not fully getting to bed even though my Oura ring shows that I am. Has anyone else experienced this? This is the only thing I have left then I will be fully recovered, very frustrating!
@sallyriggs4656 ай бұрын
This is absolutely standard. Your nervous system still isn’t getting into rest and digest when you sleep. Just need to work more on your nervous system.
@JonathanGlassco6 ай бұрын
@@sallyriggs465 do you think working out at night (8pm) is bad for this? I feel much more fight or flight after working out.. but it’s hard to work out in the morning with nonrefreshed sleep
@sallyriggs4656 ай бұрын
@@JonathanGlassco unfortunately yes this will push your sleep back alot as it will take a long while to get the adrenalin and cortisol out of your system at 8pm at night!
@pelilin25199 ай бұрын
Cant even fall asleep 😢 will this heal. Im so tired.
@sallyriggs4659 ай бұрын
If you follow the recommendations in the video it should help…
@pelilin25198 ай бұрын
@@sallyriggs465The anxiety and performance issue was very hard to swallow when lacking of sleep.
@rachelfrancoeur80207 ай бұрын
@pelilin2519 my friend can’t fall asleep either. Have you found any Dr that can help or believes you?
@rachelfrancoeur80207 ай бұрын
Dr Riggs, my friend hasn’t slept naturally since she got long haulers Covid and was treated with antibiotics and steroids. No one understands her fatigue yet inability to sleep. Only benzos work and even they don’t work all the time. She has been to so many drs and they blow her off as depressed (put her on antidepressants ) or anxious. Duh😢. Her heart always feels racing, her eyes feel like they are twitching, she is exhausted and unable to work, has a chronic cough and clears throat all the time. Brain fog as well. No Drs seem to know what to do. She have terrible health insurance and very little money. What should she to to get proper help? She is only 46 yo.
@taplubambhos28695 ай бұрын
So right everything you've said. Both my parents died in covid 3 years back I'm 35. I have ptsd from it and a body that doesn't recover easily from exercise. Recently I had severe stomach ache and subsequently insomnia. My gf had the same. I only sleep from 7am to 12 pm. I thought I had sibo and bad gut bacteria so i took b vitamins and got overdose and tingling. Then we connected the dots. We have covid again. She gets low grade fever. Our dog has fevr she had it earlier in covid as well. We were out of breath on a walk. So sad we are. Really hope we recover soon. Our apartment really does give us ptsd. We are torn between memories of my parents and the horror we faced of no available oxygen in delhi india. It was really nightmarish. I am in therapy. I really hope my body recovers. Thanks for ur video
@sallyriggs4655 ай бұрын
More than welcome. I hope you both feel better soon. 🤗
@ryanlogan291110 ай бұрын
Nicotine patches or gum….
@sallyriggs46510 ай бұрын
Lots of people are certainly talking about this treatment. We don’t have any randomized controlled trials. Anecdotally on platforms like Eureka people are reporting mixed response. Also lots of side effects and drug interactions to look out for.
@rachelfrancoeur80207 ай бұрын
@ryanlogan2911 can you explain your comment “Nicotine patches or gum”? My friend has not fallen asleep naturally since Covid diagnosis in 2021. No sleep meds work except benzos and they don’t even work all the time. I’m exhausted and dread nights.