It’s something all the researchers looking at LC and MECFS are trying to figure out. We do know that a number of people do spontaneously recover (and some just have less severe illness to begin with) it’s possible that these are also the people who happen to do “brain retraining” and then it looks like one is causing the other but it’s just correlation not causation

Indeed, that might be the explanation. Thank you for your answer🙏

kzbin.info/www/bejne/jqC0aIRjn7qfgpYsi=0SFEtGuOjVrq7bl1

Yes and yes. Screens are incredibly stimulating and if you’re in shut down and keep pushing yourself into fight or flight when you don’t have the energy to sustain it then you’ll crash harder. And waking up with zero ability to function is diagnostic for ME/CFS and Long Covid. That’s what polyvagal strategies are for. You’ll probably wanna curl up like a ball here. Also you’ll probably wanna join our Facebook group where all these questions and more are answered. Link in the comments if this video.

Thank you a lot. This whole theory makes so much sense to me that i consider to try the SSP as you suggest. Is it possible to start SSP when im mainly in the freeze state?

Yes this is dissociation. Nothing to do with brain fog. I don't use CBT with long covid as it is prohibited by NICE guidelines and many others. But if you are able to use the polyvagal strategies recommended for LC and fight or flight your dissociation should decrease.

Thank you. I really support your opinion in this. And I was thinking the same goes for cfs. The part of the protocol where is told to force yourself beyond your boundaries makes me really upset and I hope they wille change it in the protocol.

Yes I have an entire video on that. Mask plus nasal spray plus oral probiotics plus hepa filter plus FAR UV typically (Swiss cheese model) Escape the Cycle: How to Prevent Reinfection in Long Covid kzbin.info/www/bejne/q5O5m6ynjbCfqrM

@sallyriggs465 Thank you so much for your videos! I have used many of your teachings in my slow but sure recovery. 🥰

yes rashes are very common with covid19 because of the Mast Cell Activation that it can trigger

There are lots of great theories and many skilled scientists working on the answer right now!

@sallyriggs465 If the spike protein is presented both as a foreign human antigen (e.g., due to molecular mimicry) and as a viral antigen, leading to potential confusion by the immune system, careful strategies are needed to manage the immune response and prevent autoimmunity. Here are some approaches: 1. Enhanced Antigen Presentation Control Epitope Selection: Vaccine or therapeutic design could focus on identifying and using only the viral epitopes of the spike protein that do not resemble human antigens. This minimizes the risk of the immune system targeting human tissues. T-cell Epitope Mapping: By mapping T-cell epitopes, researchers can ensure that only non-cross-reactive epitopes are included in vaccines or therapies. This prevents T-cells from attacking human tissues. 2. Induction of Immune Tolerance Tolerogenic Vaccines: These vaccines could be designed to promote tolerance to specific self-like regions of the spike protein, training the immune system not to attack similar human proteins. Regulatory T-cell Activation: Therapies could be developed to specifically enhance the activity of regulatory T-cells (Tregs), which help suppress autoimmunity and maintain tolerance to self-antigens. 3. Immune Response Modulation Checkpoint Inhibitors or Agonists: Use of immune checkpoint molecules like PD-1/PD-L1 pathways can modulate immune responses, helping to prevent the immune system from mistakenly attacking self-antigens. Cytokine Modulation: Controlling the release of pro-inflammatory cytokines can help prevent overactivation of the immune system, reducing the risk of autoimmune-like responses. 4. Temporal Separation of Immune Responses Sequential Antigen Exposure: Presenting the spike protein in a controlled, phased manner might help the immune system distinguish between its role as a viral antigen and any similarities to human antigens. For example, exposing the immune system to viral epitopes first to build immunity, followed by exposure to human-like epitopes in a tolerogenic context. Controlled Antigen Load: Managing the dose and timing of spike protein exposure can influence how the immune system perceives the antigen-either as a threat (viral) or as a tolerated entity (self-like). 5. Personalized Immunotherapy Autoimmune Risk Profiling: Individuals with a predisposition to autoimmunity could be screened and provided with tailored immunotherapy to prevent the immune system from attacking self-antigens. Customized Vaccine Design: For individuals at higher risk of autoimmune responses, vaccines could be customized to exclude specific spike protein epitopes that resemble human proteins. 6. Immune Complex Clearance Enhancement Monoclonal Antibodies: Designing antibodies that help clear immune complexes without triggering inflammatory pathways could minimize tissue damage and confusion between self and viral sources. Pharmacological Enhancements: Drugs that enhance the clearance of immune complexes from the body, such as those that promote efficient functioning of the liver and spleen in filtering out complexes, could be beneficial. 7. Monitoring and Feedback Systems Autoimmune Biomarker Monitoring: Regular monitoring of biomarkers for autoimmunity can help in early detection and intervention if the immune system starts targeting self-antigens. Adaptive Immune System Feedback: Technologies like biofeedback loops in immunotherapy could dynamically adjust the immune response based on real-time monitoring of immune activity. By combining precise antigen design, immune modulation, and personalized approaches, it is possible to guide the immune system to distinguish between the spike protein's role in viral infection and its resemblance to human antigens, minimizing the risk of autoimmunity while maintaining effective viral immunity So in short words, the spikeless virus should be either introduced to the environment or via vaccines. I'd rather the first.

More than welcome!

Sorry to hear you went through all that. Glad to hear you figured out the vagus nerve connection. That was also huge for me (and lots of videos here). We all have so much anger. And justifiably so. I hear there is a class action law suit that started in the UK (for healthcare workers) I hope we also get one here I would happily sign on!!

Bioterrorism? Really?

It really is hard!! Hang in there. You can get better I am sure 🤗

There are a number of trials using Paxlovid to treat Long Covid that either show it doesn't help or the study was poor design or small sample size etc. We have zero trials to my knowledge of Paxlovid to treat acute covid in patients who already have long covid... If you have long covid and paxlovid is all you can get by all means take it. But we have better drugs with efficacy for treating acute covid for patients with long covid.

@@sallyriggs465 The Yale Paxlovid for Long COVID (PAX LC) Trial is, as far as I know, still ongoing. The attempt is to address ongoing viral pesistence, if that is an issue with some Long Covid sufferers. To the best of my knowledge, Paxlovid has better success for most people right at the beginning of the infection.

@@sallyriggs465 Thank you for your response although I must note that my comment regarding the Yale study into Paxlovid has disappeared. If treatment with Paxlovid benefits people at risk for severe disease or are immunocomprmised (New England Journal of Medicine, July 2024, Nirmatrelvir for Vaccinated or Unvaccinated Adult Outpatients with Covid-19), could it not offer similar benefits to people currently suffering with Long Covid? If the severity of reinfections could be reduced with this antiviral, is that not a benefit to a current sufferer? I agree that we are not discussing treatment drugs, but rather viral control with reinfection. Of course, Paxlovid would have to be taken within 5 days of testing positive.

Thanks they were definitely way more mild than my original infection in March 2020. And the way back is a little more complicated for those of us with Long Covid.

I have been very fortunate not never get Covid because I don’t be exposed by lots of different people and stay away from crowded places especially in winter season I would consider myself very lucky because over 90 percent of Americans has have Covid!

great question, I was using Korean KN94 because they fit me the best (and I struggle with head straps giving me migraines) but now when I go to high risk settings I wearing an Aura 3M N95 (and tolerate the pain).

Does the clot hurt ?

I think it isn't fair to bad mouth any colleagues protocol on the internet. But seems like this question is just trying to get me to say something controversial. This video is about how to recover from Acute Covid. Are these acute covid treatment protocols? Are they vastly different to the FLCCC one...?

@@sallyriggs465 they seem similar to FLCCC. I’m just trying to figure out what to do, lots of different info.

That's fair enough. For acute covid that FLCCC protocol has been around since 2020 and they have added to it as evidence has emerged. If you want to share the other two I can give you my thoughts based on the research, but if they are fairly similar often it just comes down to "what can I get prescribed"...

Are you in the U.S. Cila?

@@sallyriggs465 Hi-Yes, I live in MN. CJ

thanks so much Rhonda!

I did not get it , as I have long covid and not vaccinated, he regrets having 2

@@samanthapurcell3125 So sorry to hear that Samantha. Sounds like he needs to watch my preventing covid infection video!! And well done you for not getting it!! 🤗

thanks so much Samantha!

forgive me what's your question about LDN??

@@sallyriggs465 will it work for any of these conditions

Which conditions? LDN is well evidence based for ME/CFS so if you have LC that has an ME/CFS component or you have Long Lyme with ME/CFS or another post viral with ME/CFS etc then it should help.

Data says its about 50:50 at the moment so pretty long odds for the financial investment/effort to go and get it etc.

💯!!

Yessss

That is completely normal. I had covid again end of August and my dysautonomia was kicked off all over again and some nights I didn’t sleep until 630am. All the same strategies apply.

Nobody who works in healthcare is very doing it for the money!! There are far easier ways in the world to become rich… And every human deserves to be fairly compensated for their work, especially those who live with chronic illness, have trauma histories and nervous system dysregulation and probably spent far too much of their lives people pleasing!!

I also have pseudo seizures but haven't had a seizure in yrs.Wonder if relate?

Yes super common symptom!! I feel like there was a really helpful research paper published recently explaining why but sadly I had a reinfection recently so my brain is much again in terms of memory. But when I come across it again I’ll circle back and give you more details.

​@@sallyriggs465Thank you I'd be interested. Hope you feel better soon.

If you go to www.sallyriggs.com it should pop up on the home page as a checklist/quiz for you to fill out!

Yes there is a strong relationship between Dysautonomia/POTs and Mast Cell Activation Syndrome (MCAS) which causes histamine issues (amongst other things)

More than welcome!

Yup all possible symptoms of Long Covid. We’re currently up to 211 possible symptoms. So sorry you’re not getting any support from doctors. Where about in Texas are you? Dr Robert Groysman in Irving (Dallas metro area) is incredibly knowledgeable about long covid and will treat people by telemed if you are further away.

@@sallyriggs465 hi thank you for responding also might be additional to terrible allergy season in Texas but I’m located in the Dfw area as well and right now I’m taking day quil and night quil and keeping sore throat spray on how hand but I feel everything is ramped up due to having Covid prior because allergies never affected me especially in the throat area

Thanks. It’s been a rough month but definitely getting there.

I was about 97% recovered when I got acute covid again last month. I am still recovering from the acute infection but all indications suggest I’m going back to baseline.

@@sallyriggs465 ok. Thank you. I have been dealing with long covid for about 15 months and feel like I am never going to better.

@@Galilelo_Telescope I am hopeful you will. And the ANS is a big part of the picture! 🤗

@@sallyriggs465 what is ANS?

Unfortunately I just had acute covid again for the first time since March 2020. I am still working on recovering from that after 3 weeks.

@@sallyriggs465 Sorry to hear that! Covid cases has been increasing after Labor Day weekend unfortunately! Any ideas how you managed to get Covid again and was your symptoms mild?🙏🏽

It is evidence based to activate the vagus nerve amongst other things. It’s probably one of the most important drugs we can take but obviously check with your medical provider.

Yup that definitely sounds like the startle response. You need to shake it out if you can or if not then do some orienting.

If you’re still in an acute covid infection it’s very normal for your nervous system to go into sympathetic overdrive and for a lot people this resolves naturally and doesn’t turn into long covid. If you have acute covid you should be home and resting 24/7 anyway so it doesn’t matter when you sleep. I recently had covid again and I had one night where I didn’t get to sleep until 630am and then I just slept all day. No biggy. Try not to be anxious about it and make it worse.

@@sallyriggs465thank you for responding. I’m actually on day 5 of no sleep. I feel super exhausted and it t feels as if my nervous system is on full on-mode. I’ve been trying to listen to meditation podcasts and although it slowly tired me I was never able to get into full sleep, just close my eyes. I do feel more anxiety than normal so maybe that is a big reason why I can’t sleep?Hopefully you may have more insight. Thank you Sally.

@@oriondragos5876 And are you then sleeping later in the day when you are tired...? Or you literally haven't slept at all for 5 days. No sleep at all for 5 days would be a bit worrying. What does your PCP/GP say? Also curious what meds did your doctor give you for the acute covid? Again just to reiterate that Acute covid and long covid are different illnesses. More info in this video here: kzbin.info/www/bejne/oZmunn17q9OIa6csi=RNw4C8AtY5cpQuw-

@@sallyriggs465 I was able to get a bit more sleep albeit with the help of some sleeping pills. It's hard for me to fall asleep without help from meds since the past couple weeks. I used to be able to fall asleep after reading chapter of a book. Anything you recommend to help calm the nerves other than meditation? Thank you and sorry for the late reply. Haven't been motivated much

Unfortunately yes you are going to get far more helpful and up to date information from this channel and other on YT than from the majority of doctors 😞

for years i have held so much shame because i thought "i did this to myself by not trying hard enough/not doing enough/not pushing through my anxiety enough" - this was exactly what i needed. thank you

More than welcome. Definitely not your fault! And so glad you found this! 🤗

@@sallyriggs465 thank you so much

I still stand by everything here!! My book and course are still available for purchase!

Upsets me so much the narrative of failure that these brain retraining programs push. Definitely nothing wrong with you!! 🤗🤗 you just need to learn, befriend and support your nervous system.

@@sallyriggs465 finding this alternative narrative that it really is not all just needing to think better thoughts or that im at fault has been a lifeline. i have this saved! thank you!!