Dementia - My symptoms

In this video, I talk about my symptoms of Young Onset Alzheimer’s disease.
#dementia #alzheimer #alzheimers #vlog

[@geelllee]

Please, please, please do language related puzzles like word finds, crosswords etc. my nana has dementia and keeping her mind occupied with the puzzles has made a huge difference to her cognition. It has been proven to help prevent and slow the progression of dementia. It's not a cure, but it will help your brain maintain plasticity.

[@SandyTCF]

This was invaluable for my Mom z”l as well.

[@ruthbarnes9999]

That what they say, but I don't think it's true or accurate for everyone because my friends husband got dementia at about age 70. He's in care now, and dementia took his mind in only 3 years. They did all sorts of puzzles and word games every day for most of their lives. And now my friend, the other partner who is 72, l believe also has dementia in the early stages. This is very young for both to have dementia. So i no longer believe puzzles help. I think what does is a combination of different things. A must is physical exercise.

[@petecabrina]

You know another big thing I think people do not understand about neuroplasticity is physical engagement and even strength/resistance training, maintaining lean muscle mass is also an indicator for longevity. But the point here is engagement of the body is engagement of the brain as well, your whole nervous system all connects back to the brain. This is of course more difficult for people who are quite elderly, but for people this guys age with neuro problems it is very important.

[@xChimkin]

practicing a new language is another little secret to brain health

[@diviajar1411]

Dementia isn't about an under exercised brain. People don't have dementia, or become "worse", because of not using their brain to do word puzzles. There are writers, brain surgeons, physicists, etc, who suffer with dementia.

[@MeditationwithHolly]

I have mild dementia from glioblastoma within the language/math center. The increased stress during the golf situation is so relatable. I when I get too overwhelmed I shut down and it's almost like my brain hurts and I need to sit down. I also can't learn new things anymore. Stay strong brother.

[@realWesMantooth]

Wow, I'm very impressed you are interacting and writing so clearly on here considering everything on your plate. You are stronger than anyone I know

[@Stefan-yl1fi]

Strength to you too, Holly.

[@icezebra]

Wow. My mom just had surgery to remove one of those last June. Thank God it went well but she has the exact same problem you describe, often when she's in public or an intense environment she just gets overwhelmed and freezes up and can't talk or do much. I hope both you and her continue to go strong.

[@realWesMantooth]

@icezebra prayers for your Mother.

[@icezebra]

@ Thank you

[@paulineb66]

I accepted the physical decline of my father, but then he started displaying cognition issues. When the Alzheimer's diagnosis came, it felt like my world ended. It's like watching someone turn into a zombie before your eyes. It's so hard to lose someone before you lose them. Last time I visited there was a mere two hours out of week long visit that my father seemed almost himself again. It was like a Christmas gift. I applaud your courage in speaking out, and I hope a cure is found.

[@JJ-ft6jb]

Have a similar experience, im young, my dad old but he had many heart attacks and some strokes so he got dementia from one of them... Anyway, seeing someones mind die long before their body is scary, he has his moments of clarity which is strange but beautiful but its a steady decline. Very scary.

[@YoungerOnsetDementia]

Im sorry to hear your journey. I believe it's harder for you than it possibly is for him, atleast I think it can be for some people.

[@abbyhesse8738]

My twin brother who is 24 doesn’t have Alzheimer’s but he has CNS Lymphoma a type of brain cancer and his first symptoms were dementia, I just found your channel and I just want to say I’m so sorry your experiencing this. Even as my brothers sister, I find myself in denial and struggling to accept his diagnosis, but hearing from people like you makes me feel a lot less alone. Thank you for sharing your story.

[@YoungerOnsetDementia]

Thank you for your lovely comment, and I'm so sorry to hear about your brother 🙏

[@violetlilith]

My mother was diagnosed at 60 but had symptoms in her early 50s when I was about 10 years-old. The main thing I remember is anger. Hers, for years and then mine. Thank you for sharing your experience. We need more people talking about their journey with the disease. I wish you nothing but the best.

[@YoungerOnsetDementia]

Thanks for your comment. I'm so sorry to hear about your mother. I hope there's still plenty of positive memories you have of her to hold onto 🙏

[@anatolydyatlov963]

This is absolutely terrifying, and I can't express how much I hope for a cure.

[@kenon6968]

Having being the primary caregiver for my mother since covid I can tell you that like in all things in life there are good and bad points she never noticed that she was going away and if anything during the initial phases she became a very free and spontaneous person which was kind of beautiful she never allowed herself that in her "normal" life. It's completely devastating to everyone around you but I think for yourself there could be worse ways to go

[@YoungerOnsetDementia]

I hate how difficult it will be for my loved ones.

[@YoungerOnsetDementia]

Thanks for your compassion. I'm fine, symptoms are mild (people have worse shit going on)

[@mmagpiie2470]

Thank you for your honesty about a difficult diagnosis! I'm happy to hear you have a support group. Loved the lovely singing of the magpie nearby.

[@DontBeATree]

man this was powerful and it takes courage to get behind the camera to talk about it. Cheers mate

[@YoungerOnsetDementia]

Thanks so much, I appreciate the uplifting comment 😊

[@ImNotaRussianBot]

Don't you mean "in front of" the camera?

[@DontBeATree]

@@ImNotaRussianBot Hahaha YES you are right. I guess I got all turned around

[@annealbert9490]

My Father had Alzheimer’s and I’ve been diagnosed with mild cognitive impairment in the last 9 years … I can rewatch shows and movies over and over because I don’t remember. I’ve fed the dogs twice in a row… It’s scary to feel confused …Hugs to you.

[@YoungerOnsetDementia]

I'm so sorry to hear about your struggles (and your dad). Stay strong 💪

[@susanmann5286]

I'm in a MCI group on FB. It's not perfect, but it helps.

[@lauracraig8110]

Such an amazing video and also gives a lot of insight into dementia and how it works. I think sometimes people have the impression dementia patients don't really 'get' what's going on, but it's clear people can fully comprehend and take steps to make life easier and reduce friction. Thanks for sharing!

[@YoungerOnsetDementia]

Thank you so much for your thoughtful comment 🙏

[@JoaoGabriel-jy2df]

My grandfather has Alzheimer's. You're very brave to show us your struggles and internal doubts, besides accepting the onset and evolution of those various symptoms. Believe me, there's some people out there that really love you, no matter what. Enjoy the most of each one of them, because love is an irrational and feeble thing hard to forget. Alzheimer's annihilates logic perceptions, but who said love has a material base? See, everytime my father kisses my grandpa's forehead, the old man cries. Why? He can't move from that oxidated chair, bed or sofa (his legs and arms are stunted). He can't talk or whisper a mere word, just mumble line after line like a broken gramophone. Can't even look me in the eye, he looks at me as if I were part of the landscape! Instead, somehow, of all things mentioned, he can still feel human compassion behind those sour lips. And he cries, because he can't return the affection with a hug or a somber of the smile he had on the black and white photos. Enjoy life. It's a nasty and beautiful thing. Maybe we have a greater purpose in this world, but I prefer to spend every precise minute left to me trying to express love towards my dear ones then believe in a future reunion in heaven. I wish you could have more time! Thus, I sincerely hope you can make them understand how much you love them before the inevitable. That's my final wish, and I pray 'vraiment' to be true.

[@Sch1sMx]

this shit is beautiful and fits like a puzzle piece with my own morals and principles on the meaning of life. it is what you determine it to be, and for me, its making sure i spend everyday guaranteeing everyone i love knows i do beyond a shadow of a doubt, because if i do that, maybe in the unfortunate cases, my loved ones or i can still be at peace without that changing because they know not only were they loved but truly cherished, and they know the depths of it in full. remind your family, blood or not, multiple times a day that you love them. remind them you love them until they're tired of hearing it, and then keep doing it.

[@prairiegirl255]

You are so brave to share your story and struggles with us. If you’re finding it exhausting at work with the mental overload, is there a possibility of you doing a part time position? You don’t want to overload yourself with stress because that could make your symptoms worse. I wish you peace with your journey. Enjoy watching your videos and hearing about your journey through this disease. Please take good care of yourself.

[@chocolatefrenzieya]

Yeah, bud, I get an itchy nose, too, when I think what my kid's going to go through as I progress. Thank you so much for sharing. I don't know why, but it helps settle me knowing I'm not alone. Much love.

[@xMepper_]

Your love shines brightly. We'll make things better one day-- this is one long running story we're all a part of, held together by good and loving people. With hope and warmth,

[@YoungerOnsetDementia]

Hey mate, yep my damn nose goes itchy when the camera comes out (or am I just not aware of it when the camera is off 🤣). I'm sorry to hear you have dementia as well. If you don't mind me asking, are you doing OK?

[@CarrieLovesLife.]

Thank you for being vulnerable and sharing your experience. I am sure it will be helpful to people.

[@YoungerOnsetDementia]

I hope so too!

[@lauriesarris9706]

Thank you for sharing, I have had similar things happen. I am going to a neurologist soon. Also in the last 25 years I have taken care of patients with Alzheimer's. Many prayers for you. ❤

[@jeanetteh.9240]

My best to you as you start the diagnostic process. Sending a virtual hug.

[@CelinatheCelestial]

Hey Fraser! Thanks for sharing your story with dementia. What a terrible disease. Prayers for you and your family. Love from Brisbane, Queensland 💜

[@interfaceprime2171]

Thank you for sharing your story and experiences as to Alzheimers and how it affects your daily life. I live in Sweden and I take care of elderly who are in the middle to very late stages of the disease. You're explaination of how the diease affects your ability to think and how it is made worse by stressful situations is very enlightening for me as those that I care for are of course not able to explain their difficulties quite so clearly, if at all. I appreciate you taking the time to share such an intimate part of your life experiences. I wish you all the best!

[@lisalee2885]

I have a neighbor who has been changing and showing signs for almost 2 years. The other neighbors have noticed too. His wife works in Healthcare fulltime. He is 71 and home alone a lot. Yesterday he brought a bag that had 1 of our Christmas gifts to them in it and a bag of fruit we left for them Sunday. It also had a very angry note saying they are not needy or poor and to stop trespassing. I was so shocked. We have been exchanging gifts and treats for almost 20 years. I feel like he had an angry moment and lashed out. I will certainly respect his command but he did this while his wife was at work and don't know if we should talk to her. We are concerned for him being alone and what may happen 😢. Any tips would be helpful

[@Willowb57]

@@lisalee2885Random bouts of anger and change in personality is very common in Alzheimers! I would let them know what he did and tell them you’re sorry if your gifts upset him. They need to know. They may be seeing issues with him already and just not letting neighbors know. It can be dangerous for him to be him home alone, if he’s that confused

[@YoungerOnsetDementia]

Thank you so much for your thoughtful comment. I can only imagine how challenging your work is. I wish you all the best!

[@pinkplum3379]

Love your attitude. Keep it up. Try to stay happy no matter what. It’s a challenging and sometimes scary journey. Remembering what you’ve been doing and realizing they were not right seems to be a plus. God bless you.

[@YoungerOnsetDementia]

Totally agree, and thank you!

[@louise8752]

Newly subscribed today. Than you for sharing and I'll be thining of you and hoping you have good care along the way. Much love!!

[@susanelainesanner]

Thank you. You very successfully taught me and answered questions I had, all in 16 minutes. Thank you. I look forward to learning more from you, dear man.

[@YoungerOnsetDementia]

Glad it was helpful! Thanks for the lovely feedback 😀

[@SandyTCF]

I did find this helpful and interesting. I’m at a higher risk to develop Alzheimer’s so this is something I look out for. My absolute favourite singer/songwriter/musician had early onset dementia. I learned a lot from his openness with it as well. His name was John Mann z”l. He is Canadian and sang with the band Spirit of the West. I wish you and your beloved ones well with your journey. ❤

[@YoungerOnsetDementia]

Thanks for reaching out (and I'll check him out!). 🙏

[@bck0001]

I wish you the best and thank you for documenting your experiences. You and everyone with this (my dad included) is in my prayers.

[@YoungerOnsetDementia]

Thank you, and I'm so sorry to hear about your dad 🙏

[@wendyhandy9065]

❤thank you for sharing I feel more confident with my own memory. I am on hrt to help protect against dementia at 58 & total hysterectomy. 45% of dementia patients have been female as lack of hormones increases dementia & other illnesses. My husband has congestive heart disease & is far more intelligent than me but can’t remember films & tv series I know he has seen before even quite recently 😢. Thank you again for sharing your thoughts ❤

[@briannam668]

I thought the dementia statistics were higher for women just because women tend to live longer

[@11plus3]

The more pharmaceutical you are on the more likely you’ll get it

[@YoungerOnsetDementia]

I'm so sorry to hear about your struggles. Stay strong, and wishing you all the best!

[@ElizabethCwik]

My husband is much older than you and a retired teacher. He is in the middle stages of this illness . Your explanations confirm my guesses as to what it must be like inside his head. And how exhausting it must be. Thank you from the United States.

[@YoungerOnsetDementia]

I am so sorry to hear about your husband. Stay strong, I can imagine it being harder for the loved ones in those later stages 🙏

[@donmcmillan4388]

Wish you all the best. My Mother in Law has had dementia for quite awhile and hers is very slow to progress, she’s 89 and in a home but she’s very happy and knows who we all are. Don’t get up !!!!

[@YoungerOnsetDementia]

Thanks so much, I really appreciate that comment!

[@ALArandom1234]

Thank you for making these videos and sharing your story. Very much appreciated!

[@YoungerOnsetDementia]

Glad you like them!

[@bexlind]

Thank you, sir, for your transparency.

[@YoungerOnsetDementia]

Thank you 🙏

[@Tracymcgrath-p3e]

Not fair 😢 what a strong and graceful man💯🫶🏻🙏 God bless you and your family

[@YoungerOnsetDementia]

Thank you very much 🙏

[@labtheque]

My mom technically has a young onset dementia (either FTD or DLB downstream of cancer treatment). It's wonderful to hear from someone like you, even though my mom is much farther along right now. We had some great times and made some great memories in the early years - she was so funny and carefree. And there were many of those years. So don't get discouraged, even if you can't remember, we/your loved ones will remember for you. So while all the tips on improving your memory are nice to have, my thoughts are that finding ways to scaffold your memory in the future is just as important. Make your own analog hard drive of things you want to remember. Take lots of photos - make photobooks or put them in albums! Seriously, going through those is a lovely thing to do because it's a prompt for the memories you do have and everything is so colorful and cheerful, Even of just going golfing with your buddies, and other hobbies you do. Label everyone and where you are. It's a nice relaxing thing you can do with your family, and a way to tell all those stories now while they're still easy to access. Later, they'll be nice ways to revisit those times. I have a photobook of the vacation me and my mom took to the galapagos islands, that she made. I treasure it. (I also saved every photo she emailed or texted me of her container garden) That's one of the things I really wish my mom did more of. I'd also say handwrite some letters, but you have something as good or even better -- video. A big regret of mine is not saving my mom's voicemails, laughing and singing happy birthday off key or telling me she misses me. To have those things, to know to save those things now... it's a gift, even if they don't understand quite yet. I hope it's not too much of a downer for you -- I also don't want to fall on the tired tropes of "you're so brave"... but putting yourself out there like this? It's incredibly brave because I know how rough social media can get. Your positive attitude is going to be such a strength for you as time goes on. I hope you have a good team moderating and screening the comments, because you are giving us a gift and you shouldn't get stress from doing us a favor. As the Dutch say, veel sterkte (much strength) ❤

[@YoungerOnsetDementia]

This was an absolute pleasure to read. Thank you so much for making the time to give such an open and considered comment. Yes, I've been recording (I like video) all kinds of experiences (although, I'm nearly always the one behind the camera). Yah, I didn't really think through this KZbin thing. I'm ok with the comments, I take the positives out of them (to be honest, the very vast majority are just trying to help, only a couple who are not so kind hearted). I'm sorry to hear about your mum, but I love the love you have for her and the memories you guys created. 🙏

[@MichaelHoward-dv5ph]

I am someone who works in healthcare and works with dementia patients. I hope your doing well and ill be following your journey. I encourage everyone to look up Everywhere at the end of time by the caretaker. That is the best way I can convey what I've seen. Make sure to exercise your brain with mentally stimulating activities.

[@YoungerOnsetDementia]

Thank you so much for your thoughtful comment (and I can only imagine how tough your job is, well done!) 😊

[@jenA9026]

Thank you for sharing your experiences. Very kind of you ❤

[@YoungerOnsetDementia]

No problem 😊

[@AnotherCaroline176]

I'm sure it's not easy to deal with this, you do seem like a smart person and can think of a lot of examples. Some of the symptoms sound familiar to me, sometimes I have to think harder for routine tasks. For me it seems part of Hashimoto's. Not sure if this helps but I think auto-immune processes in the brain can lead to inflammation. For me supplementing with selenium is important with regards to the memory and calming down the auto-immune response. There are quite a few supplements and diets to try (or food groups to experiment with cutting out if you might not do well with them, for me for example oats and bananas). All my best

[@ruckinehround6965]

Your story echos my reality, I have not been diagnosed but suffer immense brain fog. It’s so noticeable to me I have become angry and that’s not my normal self. I do my own Maintenance on my family vehicles and have had to resort to doing a check list for a simple oil change. Started writing things down as a guide for myself, almost two years ago…I forget things, like movies…..My doc made an appointment for an assessment but I missed it another 9-12 month wait. Oh well

[@YoungerOnsetDementia]

Thanks for reaching out. I'm sorry to hear about your struggles. Also sorry to hear that you have to wait so long. I wonder if you can try and see another doctor.

[@ruckinehround6965]

@ the public system here is all we have and only option is wait for referrals and then wait some more. It’s frustrating but without a two tier system and lack of doctors that will push for you it’s all we can do is wait.

[@ConfusedCorvid]

This might sound strange, but hearing you put your experiences into words I found quite reassuring. I experience significant brain fog and some memory issues because of my chronic illnesses. My conditions are different from yours but how you describe your symptoms feels so familiar to me. On good days I’m okay, my head feels clear and my thoughts flow and weave together. But bad days it feels like I’m trying to think through custard. Simple things fall out of my head when I go to say them. I can be staring at a mug in my hand and really thinking but I can’t figure out what I need to do to make my coffee. I make it everyday multiple times and I’m expecting to be able to…and then I try and I don’t know what to do once I’m holding a spoon. Everything feels confusing and like I need time to get it untangled. It’s difficult to explain to people, especially since they mostly see me on good days. I’m usually really good at advocating for myself and my needs but I find it so hard when I can’t piece my thoughts together. Often I try to hide it from people when I’m foggy because I just don’t have the capacity those days to explain. It feels the least daunting to just do the minimum I need to and get out of the situation. My girlfriend is wonderful, she is always okay to tell me something again even if it’s the 5th time I’ve forgotten. We use some of the same strategies, she messages me things after we talk about them so I have it if I forget. I literally never can get her work schedule in my brain. It cycles over a few weeks and I just can’t keep track of when she was working and what week we are on. She doesn’t mind, it’s pretty much an on-running joke at this point. I’m lucky to have her. All this to say, I really appreciate you sharing your experiences. They really struck a chord with me. It means a lot. 💜

[@YoungerOnsetDementia]

Hey mate, thanks so much for reaching out and I'm sorry to hear about your struggles. It might help going to the doctors and just having a chat (could be many explanations for your experiences)? Anyway, all the best!

[@klmklmklm2581]

Thank you for posting this. What subtype of dementia do you have?

[@miserablebrian]

I feel more bad for all the bugs that you're fending off than for he dementia! But seriously I'm really sorry that you're going through this. I can't imagine what it must be like. Stay strong!

[@YoungerOnsetDementia]

Ha ha, yes, they were definitely persistent!!! Thanks for the support.

[@lachouette_et_le_phoque]

Thank you for sharing your thoughts, Fraser. I'm curious, when you watch back your recording (I assume you would, before uploading), do you feel that your speech pattern has changed at all? Like, do you struggle with finding the right word more or talking slower than you used to? For some reason KZbin suggested one of your videos to me, I didn't look up anything regarding dementia. Very interesting though, funny how the algorithm works sometimes.

[@s-c..]

I’ve had a string of suggestions of people talking about their pre-diagnosis symptoms for various illnesses lately. What does YT know that I don’t?! 😂🤔

[@Mila_Brearey]

Awesome video! I, for one, want to know as much as possible because it affects so many people. Thank you. ❤

[@YoungerOnsetDementia]

You're so welcome!

[@gdiup9241]

Did you ever suffer from traumatic experience or PTSD or concussion? Dementia is one of the final frontiers for sure. So much to still learn. Glad you're doing small things to help cope.

[@AndreyMakarov-i7h]

Everyone has PTSD

[@gdiup9241]

@ No, not really...ppl use that term too casually.. 🙄

[@jine7123]

@@AndreyMakarov-i7h Incorrect.

[@FyerBear]

​@AndreyMakarov-i7h stress post trauma? Yes, obviously we have all had traumatic experiences. Stress diisorder post trauma? Absolutely not. Horrible take

[@childofcascadia]

@AndreyMakarov No. They dont. The "D" in PTSD means "disorder". Its normal to have stress after a severe trauma for a while, nightmares, it pops in your mind constantly and so on. But that "disorder" part means you dont mentally heal from it and your brain gets locked in to the trauma. I lived with someone with PTSD. Not everyone has what he has, you cant function easily in life if you do, go to work, go to the store and deal with normal life. The term is way overused by people. But if you actually have it, you have a lot of trouble functioning in life, not just "oh, I keep thinking of the time that bad event happened".

[@Aaron-lp3zt]

It just makes me really happy to see you happy. Thank you for making my day :)

[@YoungerOnsetDementia]

My pleasure 😊

[@eoKingNoodle]

Thank you so much for sharing! Your energy is just beautiful, I wish you endless wonder in between the struggles ahead, I haven't watched you before, this video just popped up and I really enjoyed spending this time with you :)

[@YoungerOnsetDementia]

Oh, thank you so much for reaching out and letting me know. Hope you're having a great day 🙏

[@YoungerOnsetDementia]

Thanks so much for your lovely comment. 🙏🙏🙏

[@llnow1237]

Heartbreaking diagnosis. Thank you for including us on your journey. I expect you are exhausted with advice but just throwing out a suggestion re the carnivore diet, the value of ketones which can get through the blood brain barrier (where glucose can’t due to plaque). It might be worth exploring. Dr Anthony Chaffe and Dr Baker are great sources of information. Take care.

[@YoungerOnsetDementia]

I'm happy to hear the advice, so thanks for passing on the names.🙏

[@llnow1237]

@ Dr Anthony Chaffee is actually in Australia (I know big Country) - he’s a neurosurgeon. I believe he’s a Canadian now residing in Australia. Highly recommend his Carnivore channel.

[@YoungerOnsetDementia]

@llnow1237 thank you so much 🙏🙏 (and it's a big country, but also what a small world!!)

[@mrping2603]

I'm really touched my your experience - thank you for sharing. I'd love to stay with you throughout your journey

[@YoungerOnsetDementia]

Thank you so much for your lovely comment 🙏

[@theprodigalson4003]

I have these symptoms and I am under 30. Stay strong, learn as much as u can, using your brain for maths, and language helps bunches

[@mark2073]

Maybe yours was from covid

[@mrshou112]

hey - the chances of it being onset early dementia are quite low. It's more likely depression or brain fog from diet. Could even be undiagnosed ADHD. I wouldn't freak out or jump to dementia and if you are that worried about it then you can get tested.

[@annipsy2185]

i do too, i have severe adhd i think its related to some "available/active memory" stuff

[@YoungerOnsetDementia]

Thanks for the advice. As for yourself, don't stress, just have a visit to the doctor and then you can see what might be going on (could be many things)

[@YoungerOnsetDementia]

Great response!

[@Sophiecjp]

This makes me a bit worried. I am 62 and I noticed that I do not remember anything I watch. The only upside is I can watch things over and over again and it is like watching it for the first time. They did do a test on me and said everything was OK but I don’t know.🤷‍♀️ I am so sorry for you because you were too young for this to be happening. I admire your bravery and going through this and I surely hope there is a cure and it will be in time for you.

[@YoungerOnsetDementia]

Thanks for reaching out. Im sorry to hear that you also have memory concerns. It is difficult, if you continue to worry about it don't give up on getting help.

[@blocinmotion]

Thsnks for sharing. Very insightful.

[@YoungerOnsetDementia]

Glad it was helpful!

[@GamIngDoge.]

I have all my respect to you, this is the only disease (and others related to it), that I fear and would not be able to live with. All good to you.

[@YoungerOnsetDementia]

Thanks for your thoughts. I'm hoping I'm mostly just happy in whatever "world" I am in at the time (when it's later stages)

[@Goldenretriever-k8m]

Please get a gamma 40 light therapy light. They flash at a certain speed and it does something to help your brain waves focus. My mom had dementia and it relieved her symptoms for a while. Use it for an hour a day. Her neurologist recommended it. There are studies that jt helps mice but also maybe/probably humans

[@YoungerOnsetDementia]

Thanks for the advice!!!

[@5thdimension954]

Typically,the earlier the onset of dementia the faster the progression. I wish him the best in living his best life possible.

[@YoungerOnsetDementia]

Yep, I heard that as well. That sucks.

[@s-c..]

Thank you for posting this Fraser, hopefully it will really helpful for some people, as well as very interesting & informative for the rest of us. All the best.

[@YoungerOnsetDementia]

Thanks for the uplifting comment. Hope you're having a great day 😀

[@LoneWandererNV]

If you've not already, I'd recommend reading a book called "The Power of Now" by Eckhart Tolle. While it won't get rid of the dementia, it will teach you who you are at the deepest level, which dementia cannot take from you.

[@MsCValentiner]

YES❗Eckhart Tolle's The Power of Now (there are also a ton of videos with him here on YT), and also becoming a habitual meditator. Another biggie is thinking hard about what kind of person you want to be when your dementia progresses. My mother, who I took care of for 10 years, was extremely difficult and only got worse. Belligerent, accusatory, hateful, cunning, paranoid - 24/7. She refused the diagnosis and couldn't stand the gradual loss of control. If I get the diagnosis, I want to become kind and merry. That would be something to set as an intent and work toward. Knowing meditation and letting go will make that goal much more likely to succeed.

[@nomandad2000]

@@MsCValentinerI wonder if you’ll have any control over attaining that kind of outcome though?

[@dancing_fig]

Thank you for sharing so much of yourself in these videos! I don't have dementia, but have some friends who are dealing with significant cognitive issues, and so really appreciate your openness. I'm curious - if you're willing to share - what have been the most supportive responses from people in your life? (And the least supportive, if it's good to get that off your chest 🙃) It also sounds like you may not be together with your kids mom any longer? (Sorry if that's a wrong assumption). If that's true, I'm interested in how your Dx and symptoms have affected your relationship with her and any custody issues, but I know that's a question that gets into her privacy as well as into the private info of your kids. I'm full of questions (fulfilling the stereotype of the US right here), but I don't want this to come across as an interrogation, so I'll stop here. But as someone who's lived around academics all of my life, I can only begin to imagine how tough it must be to have to come to terms with a diagnosis like this when that's your field. Sorry you got dealt a crap hand in this, but my sincere appreciation at how you're wanting to help others.

[@mauiswift6391]

My sister and cousin both were in their late 40s when their early onset dementia started, they are both now I their early 50s. It also runs on my father’s side of the family, so it’s genetic.

[@brijac04]

How are they doing now cognitively?

[@mauiswift6391]

@ not great particularly my cousin who is 54 my sister 52.

[@petecabrina]

You know its worth exploring this more deeply and even getting genetic testing done to see what snp's could be involved, because sometimes there are ways to treat the methylation pathways which can be involved. I have studied this on and off myself for 10+ years, due to having ME/CFS 20+ years now and have gained ground by treating different nutritional/vitamin pathways, there are even clinics for this these days. Medicine needs to actually step this up more, they continue to neglect basic understanding of nutrition, methylation and how it may relate to specific genetics, I am sure it will improve in the future though.

[@susanmann5286]

I was in a group meeting with several people. I had just met them, but they were "my kind of folks!" It was literally all I could do to follow the conversation. When it was my turn to read something out loud, it was all I could do to finish reading it.

[@YoungerOnsetDementia]

Thanks for sharing, I'm sorry to hear you're struggling. Stay strong 💪

[@hannakinn]

My ex is 71 he suffered a brain injury from a bicycle accident as a child, his short term memory was never great after that according to his family, he'd go to get something and forget what he'd gone to get. He became an alcoholic in his 20s and drank and smoked cigarettes into his mid 50s. He has signs of dementia now, terrible short term memory, he did work at a big box home store but now works at an auto parts store but will say he works at "The lumbar yard". He forgets and refers to his adult step son as my son, that's his stepson from a wife 10 years after our divorce. He completely forgot about the woman he left our marriage for and forgot that she died after they broke up, she died in assistant living from Alzheimer's. My ex constantly forgets what gender his dog and cat are and has no clue what their names are. He argued with me about their names. He refuses to go to the doctor saying he thinks he had a small stroke and that's the issue and nothing can be done about it. He never can remember our son's wife's name, he does remember our grandchildren names. His mother developed Alzheimer's in her late 80s and died at age 97 primarily from Alzheimer's. It's a terrible disease. My ex generally acts as if he thinks it's funny, he says he's lost his mind and laughs about it but it's much more sad than funny to me. 😔

[@YoungerOnsetDementia]

I'm so sorry to hear what he (and everyone around him!) has gone through. Stay strong!!!

[@faebalina7786]

Hope you are generally doing well.The most promising research is on the connection between viruses and fungi triggering dementia.

[@YoungerOnsetDementia]

Thanks so much for the advice!

[@ronalddonner3396]

Wow that movie thing happens to me a lot.I hope it's not a symptom of dementia.The issues with cognition however seems serious.You seem quite put together in your speech, so I pray things stay steady for you.

[@YoungerOnsetDementia]

Yep, I have no idea if forgetting everything (as if you have never seen any part of it before) is a symptom of dementia. I would assume there are many other explanations as well.

[@InvaderSprinkles]

Thank you for sharing. I just turned 30 and am from Canada. Im starting to have memory issues and its been quite terrifying. I do take a lot of medication, have had over 25+ suicide attempts, and struggle with ketamine use because it helps my chronic pain. I have been wondering if I am starting to experience something like this... sometimes names and thoughts are so difficult to remember. I dont know whats happening and I wonder if these facts are causing my memory issues or if its something more. Ill continue to follow your account 💜

[@YoungerOnsetDementia]

Hey invader sprinkles (love the name), I'm so sorry to hear that you have been struggling with memory issues, and also the broader challenges with mental health. If you continue to be concerned it might be worth speaking to a doctor. Hope my videos can help in some way 🙏

[@leaellas8400]

Start eating foods rich in MCTs or take MCT oil supplement. Healthy fats are vitsl for helping prevent or intervene with progression of degeneration.

[@leaellas8400]

Look up Dr. Eric Berg topics regarding Alzheimer's and dementia. He has a few videos on dietary solutions. Yes, diet is data in the role of health.

[@darestone3335]

Nothing related to nutrition has ever been proven to modify the disease course as far as i know. Could be helpful in prevention but yeah...

[@rosameijering5161]

And tumeric

[@rosameijering5161]

​@darestone3335 if you eat bad for one day, you already feel it so of course it have an influence. It can be negative or positive impact like with everything in life

[@nomandad2000]

@@leaellas8400he is a quack and a grifter. He’s also a chiropractor, not a medical doctor.

[@laddieokelley6095]

I am almost twice your age and live in a remote, isolated place. Sometimes days go by when I have no direct interaction with people. I sometimes wonder how I would know if I developed symptoms of dementia. I think your awareness is obvious because you still work, you have a partner and daughters, you have (I assume) an active social life. At the grocer I often have problems with opening those damned thin plastic bags for produce and another shopper will intercede to help. I ask myself if that person perhaps thinks I have dementia. My best wishes for you; I feel that your good attitude will carry you through.

[@MsCValentiner]

That could be dry fingertips.

[@rayc.8555]

It sounds to me like you are fine. I also live in an isolated place and dont see many people unless i go shopping. Exercise helps as well as reading and doing puzzles. Take a course in anything that involves learning and being around people. Your concern is no different than most. Dont watch TV.

[@laddieokelley6095]

@@MsCValentiner I think you are correct. A woman in Aldi last week showed me how she licked her thumb.

[@laddieokelley6095]

@@rayc.8555 Thanks for your assurance and advice. At 80 I am active dealing with firewood and gardening and tending bonsai. I do a fair amount of creative writing and reading my New York Times feed (but not politics or most hard news!). Best wishes to you.

[@YoungerOnsetDementia]

Thanks for your thoughtful comment. I think the best thing to do is don't stress about it. If you're concerned, see a doctor. All the best!

[@ericonca]

This is fascinating. Thank you for sharing. Have you ever forgetten you have Alzheimers, and losing self-awareness of the symptoms? I'd imagine this would be the most terrifying part.

[@YoungerOnsetDementia]

Thanks for your comment. No, my symptoms are mild 👍

[@le13579]

Im not sure if it helps but in cancer land (even treatable ones) people say the old you died at the time of diagnosis. This is the new you who is not the same person and cant do the same things. Thank you for talking about you condition. ❤️

[@YoungerOnsetDementia]

That's bloody awesome advice. I really appreciate that 🙏

[@janeoliver3000]

You’re a brave man…I work in Aged Care and you are so young…please keep us posted darlin’

[@YoungerOnsetDementia]

Thank you, I will 🙏

[@RocketCityShooter]

Have you ever been a psych patient on a benzodiazepine medication? I’ve been on them for 20 years and now I’m fighting to get off of them after finding out how demented they can make you and increases your risks of dementia by 2.5x I feel for you dude. Keep your head up!

[@silkekoehlmann4188]

Watch Videos about Lithium!

[@YoungerOnsetDementia]

So sorry to hear about what you are going through. Nope, I've never had them. Stay strong 💪

[@elizdonovan5650]

If you read this, can you tell me what tests were done to determine that you had dementia? Thank you for making this video, and I wish you well. 😊

[@YoungerOnsetDementia]

Hey there, I've posted a video about the diagnostic process (I'm not sure if that is helpful for you). I don't remember the names of the test unfortunately.

[@TurtleMoonTube]

Hi, Thanks for sharing. Good lack with your channel, and dealing with the disease. I have MCI, that is not Alzheimers. And, my mom has AD. So, I can relate in some ways. I'm curious. Are there many bugs there ? Or, is the continual scratching and swating related to AD or nervousness?

[@YoungerOnsetDementia]

@@TurtleMoonTube just bugs!

[@howardsimpson489]

It is the Australian salute, you just get used to the endless flies.

[@Chameleonit]

As usually watching internet makes me feel I have all symptoms in the world.

[@Tomiply]

1:29 I have friends who forget entire events, movies and so on all the time, and they're like 25-27. It's hard to say sometimes. Some people just have terrible memory.

[@YoungerOnsetDementia]

That's true!

[@institcheswithcrochet]

I can watch the same series more than once and dont remember watching the first time. Lol

[@YoungerOnsetDementia]

Ha, it has its advantages...wish I would forget Stargate, loved that series. Watching for the first time again would be awesome!

[@lameas66]

I had alot of this after surviving a heart attack. Thanks for this info.

[@YoungerOnsetDementia]

Sorry to hear you had a heart attack (but glad you survived it!)

[@njphilwt]

Did you have a physiological exam or head ct? I find it remarkable that you can recall so much detail about not recalling.

[@YoungerOnsetDementia]

Yep, I had various testing. I agree, it's amazing what things I can remember and what things I can't.

[@GameTek-yg6ew]

condolences, i know very little about dementia, some people are misdiagnosed with alzheimers when they actually have MTHFR gene mutation, which causes malabsorption of vitamins, i know lithium, cbd/thc have some brain protecting properties, they are not safe to use togheter at the exact same time, since they both mess with electcrolyte balance. i know n-acetyl-cysteine and spirulina can be used to detox the brain for heavy metals. There are stem cell treatments for brain injuries in certain countries but might require a gofundme There is evidence of keto diets have brain protecting properties, showing great improvements in bipolar, epilepsy, schizophrenia, resulting in greatly reduced dosage of medication and stabilization of disease. there is mixed info about intermittent fasting helping with a pretty broad spectrum of illnesses. hope u find something that helps you!

[@YoungerOnsetDementia]

Thank you very much for the advice, and for the support 🙏

[@GameTek-yg6ew]

@@YoungerOnsetDementia i hope u find many good treatments, medications and doctors! i learned these to cope with bipolar disorder👍👍

[@GetGoodAsh]

I had a stroke almost 5 years ago and I’m now in the low 20th percentile for working / short term memory. It is so bizarre. Some days, it’s not a problem. Other days, bad brain days, it’s like navigating the impossible. I feel so confused sometimes. I’m overwhelmed easily and disconnected as a result. I relate to a lot of this.

[@YoungerOnsetDementia]

Thanks for sharing. It's strange isn't it, how some days (or hours) are notably worse than others. I hope your doing OK.

[@donbunson5031]

You are describing similar symptom's to me (not dementia) and I don't feel that bad about it most of the time. Writing this is a pain as I just can't remember where I started who were I am going to, it just fall out. I had more to say but forgot, so best of luck.

[@YoungerOnsetDementia]

I can't remember your first point....🤣

[@AnnikaK87]

That's horrible getting alzheimers so young! :(

[@ijustneedmyself]

I volunteered at an adult day care center and there was a 50+ year old client with dementia. I felt so badly for her... But 41 ugh. Even worse.

[@YoungerOnsetDementia]

It's OK, my symptoms are fine now. Thanks for caring 🙏

[@marcundoran1935]

How long ago did you get your diagnosis?

[@dwolf2700]

He says 8 months ago at the beginning of the video

[@bethraines5474]

Thank you for sharing your story. I am sure you have looked into everything. But by chance are you taking any SSRI’s or the other medications that can cause cognitive issues.

[@YoungerOnsetDementia]

Thanks, um, I've only just started taking antidepressants (past month), so unfortunately it won't be from that.

[@CitarNosis317]

AI could be a useful tool. Like ChatGPT or Claude for example. You can upload documents, they have "memories", so you can just feed your diary to them, you can ask them questions later and they quickly remember it all so to speak.

[@YoungerOnsetDementia]

Thanks for the tips!

[@DanielWillen]

I've always donated to research, hopefully with how powerful computers are getting they can help us find a solution. I am not a doctor but I would suggest looking into the Keto diet, it's basically moderate protein and high fat diet where you rely on ketones for fuel. There have been positive scientific studies on it that suggest it aids with cognitive function.

[@YoungerOnsetDementia]

Thanks for the advice!

[@kingscrump]

Video games can be really good for your brain. I suggest you find some you like and play them to keep your mind sharp. Additionally, nicotine itself, independent of smoking may improve cognition and reduce the risk of dementia.

[@starwyvern010]

This was a fascinating look into dementia, thank you. I'm only a little older than you and I was watching a movie last night with a friend that I'd seen at least twice before. I was surprised to realize I couldn't at all remember how the last chunk of the movie went. This video makes me want to get tested as I strongly relate to a lot of this. I have yet to forget how to do simple things I've done before, but the brain fog is real.

[@YoungerOnsetDementia]

I'm sorry to hear you have been having some struggles. If you're concerned, it might be worth having a chat with a doctor. I'm not sure if this helps, but I wasn't able to remember any of the movie (was literally like I've never seen any of it)

[@starwyvern010]

@@YoungerOnsetDementia Thank you for your reply! I think for now it's just something for me to keep an eye on. I have ADHD so working memory has always been an issue, but I feel like since I came down with Covid back in 2021 my memory has been declining pretty hard.

[@Jim1971a]

I worry about this. I’m in my 50’s and I forget my coworkers names constantly. It’s so embarrassing when I have to stop in the middle of a sentence because I just can’t remember the name of a person I’ve worked with 3-4 days per week for 2 years. I’ll say something like “Can you please ask……..” and I just can’t remember the name of the person I want them to ask and the person is 15 feet away from me. Or, I can’t ask someone to help another coworker because I know I don’t know the name of the other coworker even though I’ve worked with them a long time and I’ve said their name thousands of times. I have to think for 20-30 seconds or walk over to the schedule to find their name.

[@leejordan001]

I am 40 and I forget the names of my coworkers too. There is a specific women I dayly go to check her name on the plaket at her door. I just cant memorize it at all…

[@howardsimpson489]

I have a series of words I cannot remember. I know these words and by writing them down dozens of times I can find them slowly. Silly words like peacock, Adele, Theremin, Glover, Waihi (streets). My son used to tease me roughly 30 years ago, Dad, what's that bird? It is no worse now, memory is mostly okay. I multitask with few failures so just assume some circuits in my head were neglected all those years ago.

[@YoungerOnsetDementia]

Yah, I have that issue as well, it's not nice is it. Doesn't mean you have dementia though. Maybe have a chat with a doctor?

[@susancarr8998]

Try Prodrome NEURO. Two drops bring me back for a couple of days at a time. I have Dementia caused by MTHFR gene mutations from Hell. Dementia from any cause is nasty. I want to say horrible. But you cope the best way you can. All the Best on Your Journey.

[@YoungerOnsetDementia]

So sorry to hear that you have dementia and thanks for the advice. Stay strong 💪

[@kathyh4804]

Praying for him and his family

[@YoungerOnsetDementia]

Thanks very much 🙏

[@nobertstanel9428]

Exercising. The blood preasure makes your whole body alive. Truly alive.

[@YoungerOnsetDementia]

Thanks for the advice!

[@diane9247]

Thank you for this.....

[@YoungerOnsetDementia]

My pleasure

[@Goldenretriever-k8m]

Anxiety and depression, bipolar symptoms like mania, and schizophrenia symptoms like paranoia and hallucinations with Alzheimer’s.. unfortunately it’s neurological. But I agree that having it is stressful and can cause depend anxiety

[@terrapin323]

Neurological meaning you understand the mechanism?

[@YoungerOnsetDementia]

Thanks for the knowledge sharing 🙏

[@truthjustice61]

New subscriber here. So sorry to hear of your diagnosis. You might want to look into the carnivore diet. It has helped some folks with cognition issues. Best of luck and all the best.

[@985Mindy]

The automatic stuff you say you have to think about is the motor planning, which is the front part of the brain.

[@YoungerOnsetDementia]

Thanks so much!

[@julialander9192]

Think u should see ocd specialist this might help doctors have got illness wrong in they patients hope u get right treatment

[@dharmaboy75]

I started drumming at age 46. I heard it helps learning a motor skill like that.

[@YoungerOnsetDementia]

Yep, doctors told me to learn an instrument. 👍

[@snakeace0]

This is important: Dementia has essentially been reclassified these past years within the scientific field to a metabolic disease. I dont know what your diet and daily physical activity is like, but ketogenic diets (or even carnivore diets) coupled with exercise which specifically increases mitochondria activity and counts showed great therapeutic success. So were talking endurance based activities sprinkled with intense sprints. Also keeping the head ACTIVE is key. Playing complex puzzles or videogames help alot. Especially those where you need to orients yourself alot. Give these options a try. This is what i would do if i was in your position. Good luck to you brother.

[@YoungerOnsetDementia]

Thanks for your knowledge sharing. I really appreciate it 🙏

[@Joseph-kp4rv]

I have to ask... have you ever had your hbA1c, glucose and fasting insulin tested at the same time on bloodwork? Have you also ever looked into studies on Tadalafil with respect to memory and cognition?

[@YoungerOnsetDementia]

Hum, I have no idea about the first part (they did bloods and urine). Thanks for the advice.

[@Joseph-kp4rv]

@@YoungerOnsetDementia Is there a way for me to message you? Looks like KZbin won't allow my comment, but I'd like to point you toward some resources I use for my own chronic diseases! The reason I mentioned those labs in particular are due to the recent coining of Alzheimer's as "Insulin resistance of the brain!" In regards to your reply, I would highly recommend that you ALWAYS get a copy of your labs on paper. It's best to get a second and sometimes third opinions! I know that based on where you are, it may not be such an easy option, but there may be *affordable* concierge medicine / lab reviews that are also high quality depending on where you look!

[@GlossaME]

What was your diet?

[@YoungerOnsetDementia]

I just try and eat food in its least process form (fruit, vegetables, meat, fish) as often as I can.

[@DanielAusMV-op9mi]

My spiritual perspective is, everything in life will come and go but you (or experience itself) is permanent, this will never go. I don't like giving advice but i think it is valuable. Experience, or being here is not bound by the brain, i hope it may help you a bit, even if you dont believe it, I sincerely do. What do you think about that? Could it be true for you?

[@YoungerOnsetDementia]

There's nothing more important than staying in the present!!!!

[@gwendolynne3]

Look into methylene blue. I worry about it, too, as my dad went through it

[@YoungerOnsetDementia]

Thanks for the advice. Sorry to hear about your dad.🙏

[@nrcgio3680]

Do they have an idea of what could have caused it?

[@YoungerOnsetDementia]

Thanks for your comment. Nope. They just said I'm unlucky. Although, my buddies on the golf course say I'm lucky all the time (guess it balances itself out) 😆

[@annipsy2185]

this is my natural state of being with adhd 😅 not to be insensitive of course just sharing my own experience💜 working memory? it doesnt exist for me 😂so baad

[@YoungerOnsetDementia]

I have a loved one with ADHD, and there are definitely similarities. I'm sorry to hear you have it. Stay strong 💪

[@mailill]

I just heard the claim in a video that "problems with night vision or central vision, floaters, and light sensitivity issues are the earliest signs of dementia." and that "There is a high correlation between problems in the retina and problems in the brain" I wonder if you - or others with the diagnosis - can either confirm or refute if that was the case for you? The video I mentioned is called "The Earliest Warning Sign (DON'T IGNORE)" and the name of the channel is "Dr Eric Berg DC" (BTW, he is a chiropractor, not an MD)

[@mindfulmaximalism]

I love Dr Berg. I have night vision problems, floaters, and light sensitivity issues. 😱

[@mailill]

@@mindfulmaximalism I've had floaters since I was 16 (now in my early fifties), and also have light sensitivity issues, but while I'll admit my memory and focus are not what they were, it doesn't seem like dementia. Yet. 😅 I am now cutting carbs, though, and I wish I had started earlier.

[@YoungerOnsetDementia]

Thanks for your comment. Hum, I do have poor vision (but it's due to the shape of my eyeballs).

[@KatsCorner]

Eat a. Carnivore diet. Watch Dr Eric Beeg. I had no memory for comprehension and eat a lot meat now and my brain works really well now like it did when I was kid.

[@YoungerOnsetDementia]

Thanks for the advice

[@DanielAusMV-op9mi]

I wish you all the best 🐝❤❤❤

[@YoungerOnsetDementia]

Thank you very much 🙏