Dementia - Working

In this video, I talk about the struggles of working when having a diagnosis of Younger Onset Alzheimer's disease.
#dementia #alzheimer #alzheimers #vlog

[@privatename8228]

As a person watching your videos I feel in complete awe of what you are doing. By sharing your thoughts and feelings in these videos you are helping people around the world understand dementia and Alzheimer's. You are orchestrating your very own education series worldwide. I know that is probably the very last thing you want to be doing because it is a painful journey. You are turning your experience into something good to help other people. Please know how huge that is. Sending you caring thoughts from Nova Scotia Canada. ❤

[@YoungerOnsetDementia]

That was an absolutely lovely comment. Thank you so much. It doesn't take much for me to do these if I can help people. Plus it gets my out and about with my camera, so I can't complain 😀

[@jdavis3129]

Don’t ever feel that you sounding flat is bothering any of us, as it’s part of the process, and it’s good to tell us when you’re up or down, as we go through our own struggles. And please don’t feel you have to redo your videos until you think it’s better, as it’s okay not to be perfect. We love you just as you are. Take care. 💜 💜

[@YoungerOnsetDementia]

Thank you so much. I think you are right. I wont get rid of the mood, but, I feel it takes a few takes to get what I want to say across (and that might improve as I get more practice!)

[@Debz1707]

Hi Fraser, from Ireland.😊 I'm not a medical person. I do know the early stage of dementia (if that's what this is) often includes depression, lack of motivation. Like, clinical depression. Docs might suggest anti depressant. I think you've also been traumatized essentially, and being gentle with yourself is important. And it seems to me that you are navigating things in the best truest way possible for you. My dad had a brain injury and showed signs of cognitive decline, and exercise helped him enormously to cope. Also I don't know if you find things better or worse, at specific times of day. If you function better in the mornings, do appointments or tasks then. I hope you can hand over stuff that overwhelms you, to a loved one, and/or a professional to sort for you, and you can deal with it in small chunks. Like even a ten minute chunk. Sorry if it's presumptuous of me to be saying all this. What am I like eh? 🙄 The settings of your videos are BEAUTIFUL. I think you should enjoy the nature as much as possible😊 There was nothing wrong with your "presentation", as you put it. I didnt for a second think you were too "flat" and unmotivated to be listening to!!! Life can be a real asshole sometimes can't it. And all we can do is meet it with integrity and acceptance and truth and a little courage, and just the right amount of the f**k you attitude!! Acceptance of stuff like being unmotivated is hard. We judge ourselves for it. The inner societal nazi, says we are worthless unless we are "achieving". Blah blah😊Also four legged friends can be the best therapy. Anyways, jesus, I have a constitutional inability to write short comments! 🙄 I'm working on it. Tho today was obviously a total failure!!! Hugs from 🇮🇪.

[@YoungerOnsetDementia]

That was one of the best messages I've received. I absolutely loved it, and it helped. Thank you so much (and nothing wrong with the length!)

[@awesome_comment]

Your videos are unique and riveting. I have to admit, I watch various channels with people dealing with all sorts of challenging diagnoses. That's probably why your channel popped up on my feed. Your delivery in these videos is something else, raw and honest. You are helping a lot of people that's for sure.

[@YoungerOnsetDementia]

Oh thank you so much, that really helps with the confidence 🙏🙏🙏

[@Bill-is9lu]

Yikes Here I go again. Seems everybody agrees how great it is your doing these vids Fraser. Man, I won't build false hope. I'm 70 and have been working around dementia for awhile. I've seen folks get better. This bull about how frail humans are is just that, bull. Don't give up. Your brain health is worth working for. 🙏❤

[@kerryfromaj9032]

Fraser, This is probably the most important video anyone should watch on what is our actual purpose. I mentioned in my last comment my father is in late stages Alzheimers. I retired at 60 due to inability to continue working. My hobbies and retirement now are not what I expected. My life situation is unexpected now but oddly enough more fulfilling and “right” for me. I would say reducing stress is easier said than done but is the most important change I have made.

[@YoungerOnsetDementia]

You have no idea how much your message is going to help me. It's that kind of reassurance that will help in my decision making 🙏

[@donnam2012]

My partner with YOAD has low mental energy, is easily fatigued, things which are easy for me are like doing a high level maths exam for him, in terms of the effort involved. He was a teacher, now on Disability Support Pension and we are in the process of registering with NDIS. Just keep doing little things to progress; it can be overwhelming. His brain is working hard processing information, sensory information, trying to remember, language requires concentration and effort. He takes naps, and nods off unexpectedly at times. He loves nature and exercise, gardening, watching birds and insects. He runs and hikes, with me. These things keep him happy and calm; he is loving and we enjoy our simple life. Don't underestimate the effect of the grief you must be feeling. It will come and go. It's a massive change. Life IS change, of course, but it's tiring and hard on us. Best wishes and thanks to you.

[@YoungerOnsetDementia]

Thank you so much for sharing. I'm so sorry to hear the partner has it. It sounds like he's making the most of it, and that's great to hear 💪

[@jefferywelch0]

I am a nursing student in Canada. Thank you for sharing your story in the depth that you are. Seeing this raw footage is very eye-opening for the world, even though it could be a vulnerable task. There is no doubt everyone watching this is supporting you. There is no expectation to create the perfect video. Wishing you peace ❤

[@YoungerOnsetDementia]

Thank you so much for reaching out and for the kind words. And I'm so glad it was helpful for you. 🙏🙏🙏

[@catherine2281]

I imagine your psychologist is helping you with this big question Fraser. I couldn't make the choice myself, but as an outsider listening to you,i would suggest you should deliver yourself retirement now. You have other " work " / time occupations now. Much love . I don't know if you know, but your delivery of these videos is FULL of love in the rawness of being human. Soooo appreciate you.!

[@YoungerOnsetDementia]

Thank you so much for your kind words, it means a lot 🙏

[@donbunson5031]

I took a huge loss financially when I could not carry on working and my employed partner became my carer. We are talking about 5 times less money and a very tight budget. I love it more now and would prefer less money and more time with her. I enjoy talking with her in the morning more than any job. When I have so little brightness I would rather spend that time with her. I get pretty depressed and anxious most evening with little cause but as my partner is my full time carer she can comfort me. It was so hard on both of us when we were working. x

[@YoungerOnsetDementia]

Thank yoi so much for sharing. I'm so glad that you guys have found your groove. Some good advice for me.

[@rosameijering5161]

Maybe because you feel deep inside you that life is too precious and short to work a lot

[@YoungerOnsetDementia]

I agree. Life is very precious 🙏

[@JC-yb8hz]

My grandmother was diagnosed with Alzheimer's at 65, and we thought that was young. I applaud you for being so candid and open, even on days when you don't feel great.

[@YoungerOnsetDementia]

I'm sorry to hear about your grandmother, and thank you for your kind words 🙏

[@thriverprivate3383]

Don’t worry about views…your contribution is immortal on line even though we are not. Thank you!!!!!!

[@YoungerOnsetDementia]

Thank you for your kind words, and I agree, I'm happy if this video is helping the people who may benefit from it 🙏

[@therese3960]

I enjoy the backdrops of nature in your videos 🌳 Also, most videos I watch are from the carers' point of view, so it is enlightening to hear from the person who has the diagnosis. Why am I watching? To better understand my brother-in-law's struggles 💝

[@YoungerOnsetDementia]

So sorry to hear about your loved one. Yes, when I got diagnosed I went online to see "people like me" but didn't find much. Hoping this helps fill that gap a little for the next person 🙏

[@watchmobiletvnow]

Dont know how I ended up on your channel. Any how, I just like listening to your voice, you can talk about what ever. You seem like a really nice person. Hugs from north Sweden, above the artic circle.

[@YoungerOnsetDementia]

Oh, that's lovely. It must be the Australian accent (but wow, you live in a beautiful part of the world!)

[@Brigitte-j5h]

Everyone else has said the most supportive and beautiful notes to you. I feel them all as well. You are so gracious to show us your journey. I'm Brigitte, and I'm sending a hug from Oregon in the USA. At 64 years old, your condition is one us older people fear. To see someone so young deal with what you are experiencing is heartbreaking.Your videos are so precious and teaches us to not take a single day for granted.😔

[@GirlAnachronism49]

I really hope you find peace and solace in your day to day. Just remember that life comes from you, not at you, what you are doing right now is a formidable example of that, you are doing it right now, even if it doesn't feel like it sometimes. We all see you and hear you, love and respect to you mate 👍💪

[@YoungerOnsetDementia]

What a beautiful message. Thank you so much. Hope you're having an awesome day 🙏

[@mainecoonXFern]

Thank you for sharing, I have chronic fatigue and today said what I was feeling.

[@YoungerOnsetDementia]

Let's see if we can kick some goals tomorrow (and if not, that's OK!)

[@NotTheFirstNoel]

Thank you for sharing with such openness! I lost grandmothers on both sides of my family to Alzheimer’s (both diagnosed in their 80s, so not early) and am trying to learn as much as possible as a future caregiver to my parents. I’m 44 and was diagnosed with ADHD this year as I’ve become more aware of my own executive function issues. Hearing some of your symptoms makes me question myself, but I’ve been responding well to ADHD medication so I’m hoping that’s “all” it is. In any case, please don’t apologize for how you present yourself in these videos! You’re sharing helpful information in a way that is truly engaging - I haven’t seen anyone else do it as well on KZbin! Sending lots of positive energy your way.

[@YoungerOnsetDementia]

I'm sorry to hear about your loved ones and their journey with dementia. ADHD, is rather common in my family and I can safely say, there is a lot of similarities in symptoms. That's not an "easy" condition, stay strong 💪

[@YoungerOnsetDementia]

Oh, and thanks for the kind words about my videos, that really helps with the confidence 🙏

[@galatea5455]

Don't worry about being chirpy, or worry that you're depressing us; this channel is for you to document your journey (good, bad, the ugly, and the beautiful), and for your family to look back on when you're in your later stages of the disease. Just show up as your authentic self, we're all here for you.

[@lukaswater25]

Thanks for sharing your life with this disease, you are helping a lot of people.

[@YoungerOnsetDementia]

Thank you for the encouragement 🙏

[@susanelainesanner]

Thank you, dear sir. This video impacted me intensely. I've been struggling with similar thoughts and realities to yours, although I am 75 years of age and, as yet, undiagnosed. I appreciate your honesty very much. Take good care of yourself, even if it means cutting us out of your life. Take good care of you. While you were feeling flat, I was feeling caring towards you. Yes, I imagine you have people all around the world caring for you, for your peace and comfort and good health right now.

[@YoungerOnsetDementia]

Thank you very much for your kind words. I'm so sorry to hear about your struggles, and you are right, it's about a positive life and making those choices that support that 🙏

[@Avwavwavw]

Deeply appreciate you sharing these unfiltered thoughts. It brings us so much value. Perhaps one could see this as the beginning of a second “work life” in sharing the reality of dementia with the world - you are a talented storyteller and videographer & I am sure the community benefiting from your videos would be interested in supporting through patreon or similar. All the best.

[@YoungerOnsetDementia]

Thank you so much for your lovely comment. Wouldn't that be a lovely job, to be able to help people. I don't think I could ask people for money, though. But who knows, I need to have a chat with a financial planner to see what I need to do about work.

[@Inos74]

I took care of my mom with Alzheimer, all the way. How many years you have to live independently... hard to say. Only one thing I want to share. Your family. Your family will need outside help to take care for you at some point. At this point you may can not understand this and refuse "strangers" in your house. So start this process sooner than later. So you can stay in your home and your family has some breathing time. Living with an Alzheimer patient is extremely exhausting.

[@YoungerOnsetDementia]

Thank you for sharing, and im so sorry to hear about your mum. Yes, I need to look into options for me. I don't mean to sound flippant, but, I'm hoping I can get into a home (or some sort of care that isn't my family) when I'm in the later stages. The staff can deal with me.

[@Inos74]

@@YoungerOnsetDementia I think that's a very smart decision of you. Your family will not be able to deal with you at some point, on top you are young and in physical good shape which makes it even harder

[@galatea5455]

@@YoungerOnsetDementia That's very smart of you to consider at this point when you're still quite sharp. Planning for the later stages of the condition now, will help your family later. I work in a hospital in the U.S. and it's not uncommon for a patient with dementia to be admitted (for something other medical issue, or from a fall) and for the family to admit it's getting to the point where they're no longer able to care for the patient. Sometimes they just need some respite care (someone else takes care of the patient and the primary caregiver gets a 'vacation' of sorts), or they need information on long term memory care facilities. U.S. private insurances typically won't cover non-medical home care, adult daycare, or respite care; many people don't realize this until they need it, and they find themselves in a tough financial situation. Some private insurances and medicare (U.S. insurance for people 65 and older) will cover part or all of the cost for memory care, but it's not guaranteed. Many Americans don't realize they need long-term care insurance, and even then, they need to check the fine print of the policy to make sure it covers Alzheimer's and Dementia.

[@gonnabeok.]

Very brave of you to open up and share. Do you not have any family support ? Depression is horrible. There is medication to help you. Don't worry about the future it just makes you more depressed. ❤

[@YoungerOnsetDementia]

Thanks for reaching out. I have family support and have started medication. Just need to do some practical things now like see a financial planner 👍

[@laddieokelley6095]

I am so happy that you describe an employer who accommodates your condition. As you talked, the term "auto-pilot" kept coming to me. The stress and anxiety you describe most likely exacerbates your mental condition. Might it be possible just to put your head down and move forward in life? I am not qualified or prone to advise, only speaking to difficult periods in my own life when I have needed to go to auto-pilot. (Please don't stress over these videos. I would think it important to us that you be authentic.)

[@YoungerOnsetDementia]

Thanks for reaching out and offering some lovely advice. When yoi mean auto pilot, do you mean "forget about the diagnosis and move on with your life"?

[@laddieokelley6095]

​@@YoungerOnsetDementia I am sorry. Of course you cannot forget about the diagnosis, but if possible not become bogged down in the "what ifs" and other issues. You have people who love you and who probably are willing to shoulder some of the burden. In the rare times I seemed stuck in a "toxic swamp," I have learned to relax and just carry on with life--sort of a mental trick that helps emerge from the stew. I am not a psychologist, I might be full of shit . . . but I do know I care about you.

[@YoungerOnsetDementia]

@laddieokelley6095 that's so much for clarifying. I completely understand what you mean. There's a lot of wasted energy in much of this. For the most part that was the approach I was trying to take. For the first 6 months after my diagnosis I really tried to bury my head in the sand and not waste energy being concerned about it. I thought I was doing OK with it, but then crash in November. So I'm trying this approach now, and that can change 🙏

[@timothyvanderschultzen9640]

I'm 61 and fear getting a diagnosis, but its getting harder to hide symptoms.

[@Karatemom68x3]

😢🙏

[@YoungerOnsetDementia]

I'm so sorry to hear you're struggling. I can't (and shouldn't) give advice, but, I hope you can feel comfortable enough, at some point, to not have to hide it. 🙏

[@nicksterp2805]

Yup work sux. I'm nearly 45 and the thought of working for another 20 years feels impossible with no dementia. That's great you have a supportive workplace. Just try and take it one day at a time, 1 hr at a time. You'll prob miss work once it's gone. It's good for you socially.

[@YoungerOnsetDementia]

There's definitely great aspects to it. And I love the people I work with. I think reducing hours will be a first step in either case. I'm sorry to hear your struggles with work 🙏

[@nicksterp2805]

@@YoungerOnsetDementia thanks Frazer. Mental health nursing is tough

[@RootsReconnected]

I really admire you for making these videos, and appreciate the honesty and candour with which you speak. I am no doctor, but it crossed my mind that some of your mental fatigue and low motivation could be due to stress and/or depression at receiving your diagnosis. You haven't long been diagnosed, and it must be difficult to come to terms with what you've been told. Don't be afraid to take some time off to adjust to the news. Be gentle with yourself, I am glad you have a good support network around you. Thank you for doing what you're doing! I wish you well.

[@gabrielle-uk3nl]

Hello Fraser, I find you special in the most positive way. Your videos are welcome always. Thank you so much for taking time and making an effort to talk about something so private like your health. Stay strong ! Hugs & greetings from the frozen Norway.

[@YoungerOnsetDementia]

Oh, thank you so much. That means a lot to me. How amazing, I had the air-conditioning on today (was a hot one!). That frozen Norway sounds really good right now!

[@flufwix]

I think you’re doing a great job with these videos. And it’s okay to feel flat and be honest about it. We support you regardless

[@YoungerOnsetDementia]

Thank you so very much 🙏

[@steppen3682]

Thank you so much. I think of you often and will continue to do so. ☀👍

[@YoungerOnsetDementia]

Thank you very much. I really appreciate it 🙏

[@mainecoonXFern]

Fear not, loving the sound og the bush!

[@YoungerOnsetDementia]

I'm so glad it came through. I should talk less in the next one!, ha ha

[@jacobisraeli3404]

Hey man appreciate your videos, I hope you take the time to enjoy nature and the world

[@YoungerOnsetDementia]

Thanks so much. Yep, I sure do!!!!

[@Figaroblue]

Thank you for sharing your journey.

[@YoungerOnsetDementia]

🙏🙏🙏

[@etet4536]

It looks and sounds like you live in paradise! You inspire me, and I'm grateful for your videos, thank you.

[@YoungerOnsetDementia]

You are so welcome!

[@toniccloniciconic]

I really appreciate what you are doing. The surprise diagnosis I got in my late 20s isn’t as devastating as yours but when I started having seizures randomly I felt robbed of my entire life. Work, driving, energy and everything else. I felt like a wanker for taking those little things for granted. Because my seizures were brain related I couldn’t discern whether the lack of motivation, care, energy and declining work performance were because of the seizure disorder or because of the depression that came with it. I hope you can find a comfortable medium at some point. I love your insight and honesty. Thank you for sharing ❤

[@YoungerOnsetDementia]

I'm so sorry to hear about your struggles. Thank you so much for your kind words. And in terms of the "not as devastating" I don't thinkbit matters, you still lost things we all take for granted. 🙏

[@Goldenretriever-k8m]

My mom got anti depressants and they helped her mood so much! She also loved TV shows, she had her favorite shows and she loved reading the subtitles out loud and would have fun. She loved watching me dance and would dance too or sing with me.

[@YoungerOnsetDementia]

Ahe sounds amazing 🙏🙏🙏 Yep, I've started on antidepressants as well 😀

[@RickCT2000]

Your videos are superb and well thought out. I admire your perspectives and unvarnished honesty

[@YoungerOnsetDementia]

Thank you so much 🙂

[@oldpal2678]

Appreciate your videos. Your experiences are valuable. Thank you for sharing with us.

[@YoungerOnsetDementia]

I appreciate that!

[@pripri3404]

You’re very engaging and easy to listen to. Wish you well.

[@d14551]

Thank you for being willing to show us what dealing with this diagnosis is really like. I see that you are struggling, but that doesn't bore me, it makes me feel more for your situation.

[@YoungerOnsetDementia]

Thank you so much for your kind words. I really appreciate it 🙏

[@hope4lisi]

Very much appreciate and enjoy you sharing with us ❤

[@YoungerOnsetDementia]

You are so welcome

[@ruslan1997100]

Thank you for sharing your experience. After watching, i have the feeling that you are experiencing depression. The symptoms that you describe Loss of interat Sleeping more Anxiety All 9f the could be due to depression. It is also well known that depression can worsen the symptoms of dementia . Please make sure that you take to a psychologist because there are treatments that can improve your quality of life.

[@YoungerOnsetDementia]

Thanks for reaching out. Yep, I went to the doctor end of last year and got on some medication and have started seeing a psychologist. I'll be all good, was just in a lower point 🙏🙏

[@ForeverYoung20092]

Yes, dementia can indirectly affect you by causing mental health issues such as depression and anxiety. As your disease advances and you become less aware of self and atmosphere, that will minimize. Are you currently on medication to treat your anxiety ? So sorry you have to go through this alone.

[@YoungerOnsetDementia]

That's bloody annoying isn't it (but glad it will go away)!!! Yep, the doctor put me on antidepressants at the end of last year. 🙏

[@ForeverYoung20092]

@ So glad! Although it’s not a magic pill developing coping mechanisms or distraction activities will help too.

[@susanmann5286]

I have now read three books written by folks WITH Dementia. I am typically not this direct online, but I think you should write one.

[@YoungerOnsetDementia]

Oh, gosh. It's a lovely suggestion. But, I couldn't do it. I groan when I have to write anything now 🤣

[@edda682]

I enjoy listening to you and you have a lively face.

[@YoungerOnsetDementia]

Oh, thanks 🙏

[@mainecoonXFern]

There is grief in losing abilities

[@YoungerOnsetDementia]

Yah, I feel that's going to be the case

[@calmrestored6031]

I love these videos. Thank you so much for sharing your journey.

[@YoungerOnsetDementia]

You are so welcome!

[@MarisaPaola-um5yb]

Thank you Fraser, appreciate the video, thank you for your honesty.❤

[@YoungerOnsetDementia]

Thank you for your kind words 🙏

[@Bill-is9lu]

Wow I read through some of the other comments after making my own comment. Sorry I had an opinion Fraser seems everyone does I do know it's important, as a caregiver, to help someone in your position not give up hope simply put somebody that know what they were doing around might really be able to assist you in reversing some of this. I said reversing. Keep looking for someone that feels they can help. Hang in kid. Your doing a yeoman's job. Really quite heroic pal

[@serenadm6619]

Very interesting video, I think you present your points really well :)

[@YoungerOnsetDementia]

Glad you think so!

[@pamelalindsay1433]

I appreciate this video. Thank you.

[@YoungerOnsetDementia]

Glad it was helpful!

[@gjermand]

Thanks for the video

[@posawesome]

Thank you for another video brother, also please ignore most of the diet stuff, most advice on diet comes feom people who did 0 reading into the studies. Do your own research into the topic by reading studies and opinions of the best researchers

[@ryanoverlay4592]

He's a researcher, he knows about evidence. But it's also difficult for hopeless people to avoid trying something with no evidence because they feel they have nothing to lose so I don't think we should judge.

[@YoungerOnsetDementia]

Thanks for the advice. Yep, I'll definitely do my research 🙏

[@bobfunk5055]

its all a big mix of emotions, you will never be able to say x is demetia, y is burn out. Try to be kind to yourself, its so each to say and so hard to do. Much love from an internet stranger.

[@YoungerOnsetDementia]

Thank you so much internet stranger, I think you're right

[@EmEm872]

Please dont apologise to us. We wouldn't be watching these if we weren't interested and enjoying listening to you. :) I feel it would definitely be useful to have a chat to HR about alternative duties. It may be that you reduce your hours, or are given longer to complete tasks or can work from home at times if that will be helpful for you. I wonder if you are continuing to process and adjust to this diagnosis? Maybe thinking/hoping/wishing it's burn out rather than early onset dementia is part of not quite believing/accepting that this is truly happening. I love the scenery and birds in the background, I live in Perth and we had some cockies making lots of noise and lots of mess as they sat in one of our very old and huge trees. They pick at the thin branches or something and our garden will be littered with them tomorrow I bet. I was a psychologist but about 4 years ago, had to stop work to be a carer for my elderly dad. I was telling my husband earlier today that if I wanted to return to work as a psychologist, Id need to do further study because of the time I've been away and at 57, I just don't know if I could do it. Thankyou for sharing the crappy times as well as your better days. M xx

[@YoungerOnsetDementia]

Thank you so much for the kind words, and I'm definitely having times when I'm struggling to accept the diagnosis (although, I do that much less often now). It's strange isn't it, that feeling of expertise has a bigger impact than I thought it would.

[@marcundoran1935]

Love this video, thanks

[@susanmann5286]

I just went to my storage unit in my bldg to place Christmas decor, etc, back in storage. All the items I removed in order to get the decorations out five weeks ago were on the floor outside the storage unit. Also, I found the top half of an artifical Christmas tree IN the storage unit. It wasn't mine. BTW, I keep the storage unit locked.

[@YoungerOnsetDementia]

That sounds stressful 😳 hope you're doing OK

[@pauli2169]

Great video. What can I tell you. I am 64 and stopped working 4 years ago because I met the criteria for pre-pension. For the last 10 years or my career I also could not be arsed, it was an effort to drag my carcass in everyday. At the same time , I wanted to do the best job possible (I am a perfectionist) and it was ultimately exhausting. I don’t have dementia but there were days where I was also foggy and really quite flat as you described. I am also taking an hours nap nearly every afternoon. So,it must be difficult to know if you are having normal life symptoms or dementia symptoms. I will say that the last four years have been the best of my life, zero stress, I have never been fitter, my back pain has gone, my mood is just upbeat. Don’t know if this helps at all but just wanted to pass on my experience. Why not take your retirement now? I know it’s not easy when you have responsibilities but what if…I don’t know , maybe I am talking BS but what if you removed stress and was less depressed, could this help with your symptoms by slowing them down. Feel free to tell me I have no idea what I am talking about 😂

[@YoungerOnsetDementia]

Thanks so much for reaching out and sharing your experience. I'm sorry to hear you were struggling, but so great it turned out well. I agree with everything yoi said. I need to speak to a financial planner 🙌

[@thriverprivate3383]

WOrk isn’t upset with you because they are showing more love and care than you are to yourself. How would you want to treat someone in your position if it was not you? Yes you are lucky in that regard AND you are sharing your luck which is so gracious and not everyone does that. Also you are going through grief, both for the moment and anticipatory grief which is work..it is a big emotional load so you are lifting weights with all this and your brain having to work harder. The village should take care of all within it financially. No more butt implants and fancy cars and excessive wealth…our species priorites are messed up AND have faith you have enough who love you in life and know you and there is more humanity than not in the world. “Stuffed working” …Stuffed a word for passion? Feeling full from work? You sound like someone who wants/needs to know the what and why of things (I’m like that too) AND just not how life is ..its a yin/yang thing; sometimes we just have to go with flow without a why which is true and real about mortality in general and decline in particular. I hope you have lots of hugs and are gentle with yourself. WHen intellect doesn’t cut it turn to art, music and nature.

[@YoungerOnsetDementia]

There are so many beautiful points in this message. Thank you very much for taking the time to craft it 🙏🙏🙏

[@justlivin8629]

You are an amazing storyteller. I am starting a channel and you are helping me figure out my shit. Thank you

[@YoungerOnsetDementia]

Oh thank you. And I'm so glad I've helped encourage you to do your passion 🙏

[@jovialjadegoliath7071]

After watching a few of these videos, I really thought I was starting to understand what it meant to get "stuffed". But here he goes talking about not being able to work effectively because he *can't* be stuffed. Wasn't getting stuffed a bad thing? But you also need it to work down there? My world is turned upside down (which, I guess Australians are maybe just more used to...). Anyway, I will keep watching to try to get to the bottom of this. Also learning a lot about dementia, thanks.

[@rosameijering5161]

It is very interesting though. Because burn out feels the same as altzheimer

[@YoungerOnsetDementia]

So confusing!!!

[@pauli2169]

You are right, I had burnout at age 58/59 and I was not here at all. I was putting my wallet in the freezer, forgetting appointments, struggling to gather words to make a sentence. Simple tasks like paying bills was so exhausting I had to lie down afterwards. I was also deeply and seriously depressed. I remember my doctor asked me to take a test for Alzheimer’s and I was shocked but I thought, maybe this is what I am going through. At the end , I passed the test but was off work for 9 months with burnout. There has to be some connection there.

[@Bill-is9lu]

Hey Fraser I've worked with and around folks with dementia for the last 15 years. Never anyone so young. But I've seen all the folks older than 60 from a couple of simple things. You've probably already checked it out but it always amazes me how many people don't. My first question would be what are you eating? I've seen it make a difference so often including when you eat and how you eat anyway you're far too young to give up hope 👍🙏

[@OpenGangnamStyle]

And yes some dementia affects *all* nerves not just brain area. The whole body wastes away.

[@YoungerOnsetDementia]

So annoying 😑

[@rosameijering5161]

And also, you talk about deep things, which you don't know the anwsers about, so it is completely normal if you feel like struggling recirding the video. Expecially when you don't feel your best. Know that people are interested in the truth when they watch a video

[@YoungerOnsetDementia]

Yah, you're completely right. Thanks for the advice 🙏

[@Robert-p4n3c]

Thank you.

[@YoungerOnsetDementia]

No worries!

[@tamask]

I'm just at the beginning of the video, but it would have been nice to know what you do for work. That would have added a bit of context.

[@YoungerOnsetDementia]

🤦 I was going to add that in text and forgot about it. That's the kind of shit I've been doing lately.

[@sianthriftedandfancy]

Can you get disability payments at all? I would hope you could get income support. I am sure you will have a retirement of sorts, you won't just go from working to being un able to have cognition, there will be years you can enjoy relaxing, being with your family, going to parks, the beach. Maybe there are new hobbies you can pick up, like painting or photography. Its only natural for you to feel flat and unmotivated at this time though, I hope that you find many things to look forward to, outside of work. Much love to you and your family.

[@YoungerOnsetDementia]

Yah, I need to look into what options are available. I agree, I'm sure I'll have some good adventures in those years. 🙏🙏

[@mwearne8711]

Be kind to yourself, you will also be your harshest judge. Thinking of you.

[@YoungerOnsetDementia]

I think your right, thanks for that 🙏

[@TreeTrunks8264]

@@YoungerOnsetDementiaI think I have dementia I’m 15 and my dad keeps saying I forget stuff a lot idk tho it’s really rare for my age but I can relate

[@JV-um8qs]

Surely you qualify for full disability payments? I know Centrelink is difficult though and I probably don't understand the complexities. I think it's completely reasonable to be unmotivated and unenthusiastic about work, if it were me I wouldn't want to spend my last year's independent having to work, it feels pointless, life is so much more than work. I feel like whatever makes you happiest right now is what's important, and if that's not work, then you shouldn't be putting any pressure or expectation on yourself to strive for it. But I guess it's easier said than done in some instances.

[@YoungerOnsetDementia]

Thanks for your message. I need to look into it all in more detail. But, I agree with you, life is too short to not enjoy it 🙏

[@susanmann5286]

Do you have a group such as the Alzheimer's Association the USA? I know The one in the UK is called, "Alzheimer's Society." The one in the USA addresses all types of Dementia, not just Alzeimers.

[@YoungerOnsetDementia]

Yep, we have Dementia Australia (which provide education and a phone service). I will take greater advantage of them 👍

[@jumpy4912]

If you haven't already, try coconut oil. Research about it, it might help.

[@YoungerOnsetDementia]

Thanks for the advice

[@TreeTrunks8264]

@@YoungerOnsetDementiayeah cocunut oil solved my dads dementia he started figuring stuff out again

[@niteshadepromises]

Please take the time to look into switching to a strictly ketogenic diet. The areas of your brain that are not working well with glucose can use ketones as an alternate source of fuel.

[@YoungerOnsetDementia]

Thanks for the advice 🙏

[@melissaroth4467]

Could depression be adding to your difficulties?

[@YoungerOnsetDementia]

Yah, I went to the doctor end of last year and she got me on some medication and seeing a psych. I was feeling fine, and then it just hit me. Will be OK, everything passes 🙏

[@jozo8527]

Hugs

[@YoungerOnsetDementia]

🙏🙏🙏

[@nicksterp2805]

You look like you live on a beautiful ppty. Lucky you have all that leave. Maybe going part time is the answer

[@YoungerOnsetDementia]

Agree 👍

[@ruckinehround6965]

Diet……so many things in our food. Any thoughts.??

[@BreadwardIII]

Could you be less vague?

[@erumrahman8762]

Yes..​@@BreadwardIII

[@erumrahman8762]

Yes..​@@BreadwardIII

[@Christian-qu9ml]

Can't you get a disability pension?

[@YoungerOnsetDementia]

I need to check into it, but, I don't think so, my symptoms are still very mild.

[@OpenGangnamStyle]

Have you received anything MRNA related since around 2020?

[@MonstrousInsect]

Have you received anything female-related since 2020?

[@OpenGangnamStyle]

@MonstrousInsect Yee.

[@MonstrousInsect]

@@OpenGangnamStyle Blow-up dolls don't count.

[@YoungerOnsetDementia]

Nope

[@Karatemom68x3]

I’m so sorry that you’re going through this. I can’t even imagine what your feeling and the questions you must have and the wondering of what’s to come. Please don’t apologize there is no reason at all that you should apologize for anything!!! I’m actually impressed at how well you are keeping it together and expressing what your going through!!! I pray that You Will have several good years ahead of you & that YouWill come to a place that you are able to have joy and peace in your days!!!! Thank you for sharing your concerns with us, I hope it is somewhat helpful for you!!! Take care of yourself

[@YoungerOnsetDementia]

That was such a beautiful message. Thank you for making the time and consideration to share it, it means a lot 🙏

[@Karatemom68x3]

@@YoungerOnsetDementia 🥰❤️