Detours: Understanding Acquired Brain Injury: Frontal Lobe Injuries

[@zacstanton2407]

This is unbelievable somebody in this world actually knows what has gone wrong with my brain!!! After 12 years of wondering what the hell is wrong with me, I had frontal love damage in a car accident lost smell and taste, big respect for this video I need everybody who meets me to watch this video !!!!

[@shadymunkee1983]

people will never know the feeling of loosing usual control of your bodys behaviors that we have had since birth and abruptly loose. You are not alone friend there are others like me wandering through the same darkness and it does feel good to know we are not alone.

[@gailphillips691]

Amazing really I had frontal damage from a car accident in the 70s and I received Zero help Im 64 and pretty much just been sliding through life

[@zacstanton2407]

Would my doctor be offended if I just shown him this video ? And said here u go, this might help you out a lot, Because the way this guy has just explained my situation in half hour iv been hoping for this

[@anamolewinebizexp5718]

Thank you for posting this video. My son suffered from generalizing seizure disorder that were resistant to medication from 5 YO to 12 YO. At 15 suffered a sudden cognitive decline and I had him tested at the University of Miami CARD. He was diagnosed with frontal lobe damage. His MRI also showed a reduction in the size of his left temporal lobe. Everything you describe, explains his challenges. He was never able to read or write as he had no access to phonetic memory as well. At 21 he began hearing voices and was diagnosed with schizophrenia. He became aggressive with me. I had no other option than to place him in housing where he could receive 24/7 care and supervision. I have experienced stages of frustration, anguish, anger, and helplessness, trying to get him an education, medical care, psychiatric, therapy and employment supports. I would settle for anything that makes him feel worthy. It is very difficult to find a community that understands our struggles. If you know of any center that works with these patients, can you please share that information?

[@marksmadhousemetaphysicalm2938]

Long term neuropsychiatric care for patients with acquired brain injury is difficult to find…there are some places that do provide long term care for people with Traumatic Brain Injury, but I’m unaware of any that provide direct care for people with concomitant neuropsychiatric deficits such as aggressive behavior…honestly this is exactly what I’d like to see established…because neuropsychiatric disorders are what make recovery so challenging…I suspect you may find an answer by contacting a rehabilitation medicine physician or neuropsychiatrist or Brain Injury Medicine physician…unfortunately only recently, as in this year has acquired brain injury been recognized by Medicare/Medicaid as a “chronic condition” and warranted funding for chronic treatment. This is all I can think of at the moment. If I think of something else, I’ll let you know… prayers for more answers

[@reettaelina]

I would like to speak with you. My son is 24 years old.

[@johnnycookman]

Dang I LOVE this guy! He gets all of us who have suffered so much. I fell off a trailer almost 2 years ago and needed an emergent craniotomy for epidural hematoma with skull fractures. Glad to be alive! Thanks for ALL your videos, you are putting words to everything we all feel. Many thanks and keep up the good work!!

[@shadymunkee1983]

Ty so much for this information as a man learning to find his direction through the valley of the shadow of TBI and a frontal severe TBI at that. TY just shared this with hope it would help people socially understand the changes to my health recently.

[@daveanderson8776]

Great video ! Helps me understand why I am struggling!

[@doxie444]

Thank you sir, probably the best explained T B I frontal lobe damage video on YT . I can't find anything helpful. I need my family to understand it. I have totally socially with drawn now. I have almost no one but my young son. My gp has had me dosed up on venlafaxine, klonopin and promethazine I sleep all the time, I have to be on the wrong medication🤦🏼‍♀️ I have sat here for four years and made no progress at all, I'm going down hill. 😢

[@detoursunderstandingacquir7282]

Medication can provide some degree of stability however to fix frontal lobe injury really isn't possible...I still have deficits from my own brain injuries and im a specialist studying brain injury. I DO see hope on the horizon...a deep brain stimulator targeting some symptoms of ABI, but much research still remains ahead. I also see some hope with stem cell implants and specific meds...but there has to be much research. For now intense cognitive and behavioral therapy are the best tools we have in our hands, as well as educating those around us. Things do improve over time and with effort. There are ups and downs...but it does improve on a slow curve...prayers for healing...

[@christachristie]

You have a choice to sleep and be drugged up or do something different. I am alone I'm 50 and going on 3 years in August. I refuse to let my children at the time 21 and 25 my children stop living their life to burden them. I recovered with both hands in cast I did it alone. And walked to and from my job / work. So with a child around how do you sleep so much let alone allow yourself to be drugged like that.

[@MisterNiles]

@@christachristie Ableist garbage, I'm 55 and the main issue post TBI for me is that I have constant suicidel ideation and emotional dysregulation. I have tried many classes of medication and no prescriptions I've been able to access have worked. Ketamine works. It helps me not be in constant psychological and physical pain from constantly wanting to kill myself. I can't afford it though. Rich people medicine. Cash only. And I don't know of a black market. Psilocybin and ayahuasca analogs work too. IF I can manage to force myself to take them. I need a medical infrastructure. I can keep an appointment with a doctor, but not with myself when psychedelics are involved. So I suffer most of the time. I'm glad you managed to help yourself. Not everyone can. Not all of us have the same resources or executive function. Just because YOU are ABLE doesn't mean others are Hopefully they can, button cannot. People telling us we should be able to don't know what they're talking about. Stop shaming people.

[@bobtaylor170]

​@@christachristieyour comment is extremely rude. It may be that your own injury prevents you from recognizing that. What you said is extraordinarily rude, because you are supposing that you and this person have identical DNA and identical injuries, and that what you have been able to do, she can do. Stop that right now. We get enough of that sh*t from the healthy. Don't do it again.

[@trishgager2882]

My son is 32. He was slapped really hard when he was five. A month or so later he had a partial complex seizure. A month or so later, he had another seizure. He lost consciousness and had to be ventilated. When he recovered they sent him home with medication to control the seizures. He was a very different kid after that. His entire life he has been punished. We finally just received his MRI results yesterday. The results show "subtle small foci of the left inferior frontal lobe encephalomalacia which may relate to sequelae of prior contusive injury. I have the photos, and a specific image is called out, but nobody has shown us and discussed any of it with us. Everything you are saying in this video is EVERYTHING my son. I have often been troubled by his lack of drive and many other things going on. I am reaching out because he has zero support with this. He needs more tests to determine his severity. He is one of those who went to prison because he doesn't understand what he can and can't say. Its been nothing short of pure hell. We are in Texas and he has no money. I am begging for help.

[@JillMiller-q2m]

If he is still having seizures from this location, they may be able to remove that area of the brain and it will significantly improve or eradicate his seizures. My son had the surgery last year and has been seizure free since.

[@bobtaylor170]

Trish, what do you need? And where in Texas are you? Is your son still in prison?

[@trishgager2882]

@bobtaylor170 I can't get him established with a neurologist so we don't know the level of damage his brain sustained. We've been denied disability several times since he turned 18 because he can't afford it. He is living with us, but even THAT alone took over a year to get accomplished because if you have to figure out the best way to fight the powers that be when they are wrong. We live in Red Oak, Texas, just one town south of Dallas. Thanks for reaching out with your questions. Majority of people could care less. My son can't work, because no job is gonna take the time to lead him around by the ear all day reminding him of everything he needs to do or what he forgot, misplaced, etc. I could go on forever. The red tape doesn't care.

[@trishgager2882]

@user-uj1kg3sr8y he has not had a seizure since he had to be intubated at 5. He is currently 32.

[@bobtaylor170]

@@trishgager2882 he should be able to get SSI. Is that what you're referring to? Whatever you do, you MUST have a lawyer who specializes in Social Security. They don't charge unless you win, then, they take a percentage of the back payment. Why can't you get him a neurologist? Every state has a Brain Injury Association and many have a Brain Injury Alliance. Also, by law, every state is required to have a State Head Injury Administrator, though I have no idea what that person has the power to accomplish. I know Texas has an excellent Brain Injury Association. ( These are "satellites" of The Brain Injury Association of America. ) The Brain Injury Association of Texas can hook you up with a local support group, and you may be able to get all sorts of useful information and help from them. Doesn't the University of Texas or Baylor have a medical school branch in the Dallas area? If so, there is a potential source of help. I was almost killed at age 7, and have been disabled ever since. I lived with my parents until they were dead, which was when I was close to 50. It's a terrible situation which people like me and your son and families like ours must bear. KZbin is, shall we say, casual with its notifications, but I want you to stay in touch with me. Here are two email addresses for me: [e-mail] [e-mail]

[@mickdundee7604]

I find if my wife is talking to me i will just interrupt and talk aboit something completely different i cant control it i just do it ive only just been told i have tbi as i was attacked with a claw hammer 25 years ago and front of skull was caved in i had no jelp no xray and sent home day after also ptsd long term thank you so much for this video its making more and more sense as to why i am the way i am

[@AndrewB221]

It’s HELL! I have a Severe Traumatic Brain Injury and most of my damage was to my Frontal Lobe and Prefrontal Cortex

[@detoursunderstandingacquir7282]

most of mine was right prefrontal...definitely stinks...im just glad im able to do this...i dont compare myself...can always find plenty worse amd can always find people better...just trying to do my best every day...some days i do some i dont...hopefully you find helpful information here.. .

[@AndrewB221]

Mine was prefrontal and lobes and cerebellum

[@AndrewB221]

Comatose for 2 1/2 weeks and took almost 8 months in hospital and therapy and then home bound

[@AndrewB221]

That was 8 years ago and I got worse, the mind lingers and CBD and Marijuana ease everything and takes you to your soul in peace

[@AndrewB221]

Parkinson’s and Dementia and Retrograde Amnesia and Anxiety

[@Diana-jk7is]

Thankyou so so much for this very informative video on ABI/TBI. 💫🙂☀️🌺🌸💮🏵️🌻

[@cynthiamonteforte7658]

Excellent video. Thank you.

[@lilyangiolini3837]

Thank you so much for this incredibly informative video. Our son is recovering from a sever TBI.

[@detoursunderstandingacquir7282]

working on a pediatric TBI right now...glad we can help...we have a facebook site...Friends with Brain Injury. Everyone with our company has brain injury, our physicians, nurses, psychologists, therapists, neuroscientists, and CEO and President and Editors and Hosts...all of our people have acquired brain injury. I tell you this so you know to hang on to hope. Im a brain injury specialist and was almost done with my PhD in neuropsychology before my injury back in 1994. Good luck and prayers to both you and your son. Reach out to us if you'd like.

[@jx14aby]

@@detoursunderstandingacquir7282 Have you given any thought to what infant male circumcision does to an infant's developing brain? You know that anesthesia is not always used, and the infant can experience excruciating pain, and have thousands of nerve endings severed preventing the man's entire central nervous system from ever developing normally. Ever think about that?

[@theadhdbrainsmotherandsont4955]

Very informative 🧠

[@detoursunderstandingacquir7282]

Glad it was helpful!

[@bobtaylor170]

​@@detoursunderstandingacquir7282who are you? You don't identify yourself anywhere. Your content is superb. I think this is the fourth video of yours I have watched today.

[@christachristie]

Any info for West Virginia area for TBI IM 50 i had a stroke while driving and flipped my mini cooper 3 times and my air bags never deployed. I have been on my own since that day. I can not work i have tried even mcdonalads and dollar general. I am not able to do what i love and have been doing 30 years plus working with special needs i was a cna till the accident im unable to do this now. My struggles everyday i feel im alone. No one explained to me what happened i feel like im not that person from before. I have had to learn basically everything over plus my left dominant hand was damaged i can no longer use that hand and right hand i lost my pinky and damaged. I have had skin graphs and my left hand still broken i need help. I have been left and no help . Going on 3 years and my left hand is still broken now because been so long my thumb is in so many piece that my thumb has shrunk 3 times smaller then my right

[@jsbradley35]

Hi. I was with my boyfriend in WVA on a camping trip and he fell and sustained a severe tbi. He was treated at West Virginia University medical center in Morgantown which has a neuroscience center with specialists dealing with tbi.

[@channeling764]

I had a right frontal lobeTBI at 3 years old…My life has been a nightmare. I’ve been fired 17 times for being slow, dumb and stupid. I’m insanely creative my executive function has been crippling. I’m 35. I started getting medication for attention at 27 and after that my life changed for the better but now Im in so many meds so I can work it’s ridiculous. At least I can keep jobs now.

[@lindaseitel6639]

My TBI in 1979 caused complete loss of smell.

[@lumueller-kaul7667]

Thank you for the candor. I have all the symptoms you mention in varying degrees, fortunately I've always been known to be mildly inappropriate and brutally honest, and that hasn't gotten too much worse. Can you recap the medication you mentioned? I can't get off the couch without stimulants but I think only adderall isn't quite appropriate.

[@KimRobbins]

Very fascinating! They've only recently decided that illnesses like schizophrenia can be a result from TBI. My son fell as a toddler and hit his frontal lobe on the corner of a marble fireplace. He seemed different and withdrawn ever since. He would later have 2 concussions in football. He was battling some issues that we didn't realize and would eventually get a diagnosis of schizophrenia at the age of 17. There is NO genetic component. Everything you discussed is what he battles PLUS he deals with hallucinations. He is 23 and on disability. He wants so much to live a normal life. TBI is absolutely disabling many times.

[@detoursunderstandingacquir7282]

yeah, neuropsychiatric disorders are very common in childhood survivors of ABI. Hopefully he is able to find competent clinicians. If you can find a NEUROpsychiatrist that would be good

[@KimRobbins]

@@detoursunderstandingacquir7282 yes, I checked into that. I'm on the east coast and the closest one was in the Midwest somewhere. But I'll keep searching. Ironically, when I wanted him to see a neurologist in the beginning she was like "why did you come to me?" She just accepted a diagnosis without even looking at his brain. Daniel Amen says that "psychiatrists are the only medical doctors who virtually never look at the organ they treat." But the neurologist didn't really either. No doctor ever suggested a brain scan after his accident. And I didn't know to ask for one. I finally talked a doctor into doing an MRI after the schizophrenia diagnosis but they didn't really examine the pituitary gland (I was trying to rule out any tumor that might be pushing on the pituitary gland and causing hallucinations). All psychiatrist should order brain imaging and bloodwork so we can possibly prevent any further decline, at the least. I'm sharing your video with my family so everyone can more fully understand some of my son's issues.

[@AndrewB221]

Oh, and music and I’m very musically inclined and play about 15 instruments

[@EstherExtreme2024]

Very insightful

[@KittyBatSasha]

It's intriguing I had a small meningioma 1 cm by 2 cm over my right frontal lobe approximately in the area you said could destroy an artist's career was . my tumor was on the outside of my meningioma and did not specifically penetrate into my brain it did cause a visible divit in my gray matter . that tumor CREATED my artistic career

[@marksmadhousemetaphysicalm2938]

There are interesting anomalies where you see what’s described as “savant syndrome” after brain injuries…new skills after brain injury…highly unusual what you described but I’ve encountered two or three cases…out of thousands of patients…quite remarkable…

[@reginaldwilliams617]

Can I get a consultation with you? I was involved in an automobile accident. My neurologist will not clearly explain to me all my issues. I need someone to explain my DTI MRI to me

[@marksmadhousemetaphysicalm2938]

We are working on a series to teach viewers how to read their MRIs…

[@butterflyfields314]

When being assessed with a head injury/mTBI, why do doctors, psychiatrists, psychologists, and neurologists testing cannot seem to differentiate between frontal lobe damage, PCS and ADHD?

[@detoursunderstandingacquir7282]

its the same region involved so diagnostically, it looks very similar.

[@bassthis]

Do you know how to read CT scans?

[@christopherkearney5843]

So i had a brain infection 36 years ago, when there was no Mri machines around. So all the information that I have read recently, even if I had a mild version. There is probably some damage. What i best i can describe with the infection. Is that there was a pimple or ball of puss inside my brain and the infection was attacked by the immune system. And the result was neuronal damage

[@tejasaiid106]

That is amazing

[@ladyJustis]

Thank you. Could this happen if a baby was born with a slight forhead indent? She 13 with 10mm white matter on the left frontal brain. Neurologist said we'll keep on eye on it but for now her behavior is out of control and even odd. Where can we go from here for more help?

[@detoursunderstandingacquir7282]

pediatric neurologist or pediatric neuropsychologist or pediatric behaviorist depending on what you are searching to resolve...unfortunately kids have not been a focus of neurological research. Damage to the right frontal lobe could cause behavioral deficits or someone to have developmental delays...unfortunately making an absolute determination of a single cause is just not possible...it certainly is plausible and is consistent with damage or lack of development to the right frontal lobe...but without testing by a pediatric neuropsychologist, a definitive conclusion cannot be drawn. Dealing with problematic behavior falls to a behavioral psychologist, psychiatrist or neuropsychiatrist, and/or a pediatric neurologist and possibly a physical medicine/rehab doc. If you can find a Brain Injury Medicine Doc that would be even better.

[@ladyJustis]

@@detoursunderstandingacquir7282 thank you! I appreciate your response, I'm looking into pediatric neurologists now

[@detoursunderstandingacquir7282]

@@ladyJustis good luck and hopefully you can find one who completed a fellowship in Brain Injury Medicine.

[@daveanderson8776]

Are you a medical professional ? Just wondering 💭

[@detoursunderstandingacquir7282]

yes...and a survivor...there are many of us, unfortunately.

[@detoursunderstandingacquir7282]

there are several doctors and nurses on our channel. All of us have acquired brain injury. About 14% of physicians and 18% of nurses have acquired brain injury...very few of us will admit to it because of extreme discrimination in medicine. Unless of course that's your whole specialty, as it is mine.

[@lumueller-kaul7667]

@@detoursunderstandingacquir7282 I'm a physician, too, of course we're all researching like crazy

[@AndrewB221]

Dedicated my life to fitness and health and coffee and cigarettes and just experiencing life

[@AndrewB221]

Call me unhealthy? I completely beg to differ! I can ran extremely fast and long distances, I do a lot! And Cardio machines and Bicycle a lot, and Massages and everything

[@moanamason2454]

1st - Ice skating. Legs went out from under me, tried to put my hands down, they slipped apart, hit on left side of forehead, head bounced like a basketball, vision in right eye vibrated for 30ish seconds. 2nd time - jumped by 5 guys, king hit behind right ear knocked out, hit the concrete, head stomped, left side temple area, basal skull fractures in prefrontal lobe area. CSF leak. Frustration, anger, rage issues. Easily triggered. No drive. Need reassurance like a child when triggered. Shit story, bro.

[@TJ-zq1lt]

Hey can you read my mri scan

[@david5062]

Severe pre frontal here, im pretty much a living zombie

[@lolajohnson4722]

Can't smell

[@lolajohnson4722]

Tumor removed from frontal lobe

[@Jeremy-wy2qc]

So where fucked ?

[@liamgarland1425]

Lad so where fucked ,? Tell me are you living every day to day if so your not fucked it's equality and change a better place for everyone stay strong be cool like fonzey , look around I bless myself when I see people living with disability worse than my self,

[@AndrewB221]

You got it bad? Try my shoes on and every single day I forget who I am and what I’m doing or what I did, everything! I remember past memories? Nothing else

[@DirtyBrian]

I'm sorry to hear what you're going through. I know from my own experience (recovering from two nearly identical TBI's that took place within two months of each other) just how difficult it is to try to get through each day with those types if disabilities. I still have a long way to go but, I was able to regain short term memory and can now recall things from today, yesterday, a month ago, etc. My memory certainly is not what it once was but, I'm grateful it's not what it became immediately after the accidents. I hope you can find a way to improve upon your current conditions and regain the abilities of your memory that you've lost.

[@christachristie]

I'm with you on feeling like it's bad. It's going on 3 years and from that day forward. I am not the person I was before. I am alone. I learned who really cared and didn't. I am blessed to be alive. Not only is it my brain but both of my hands are damages my body changed on alot of levels. In pain everyday of every minute. It's become the normal that's something I know alot about. I had to do it all alone no one set of a care giver to help me and I definitely didn't know how to do it. I forget alot and I call it brain farts all the time

[@lumueller-kaul7667]

@@christachristie I'm sorry to hear that you are alone. I'm so lucky that I moved to Colorado before I became hard to employ. Medicaid is very generous here.

[@christachristie]

Sorry to hear that I take notes so I know for the next day .

[@dennyfie]

​@christacim so sorry for your injury,I let my old high school sweetie stay with me for 14 months after not seeing or talking to her for 45 years,she was trying to get help at Cleveland clinic I invited her to stay with me she was missing appointments and was suicidal,we both knew no relationship just come and try to rest as she had a slip and fall and has TBI Really bad,needless to say the relationship was a mistake so I had to ask her to leave 9 months ago, what I witnessed was just awful.I wish all of you the best.