Diabetics Are Hacking Their Own Insulin Pumps

[@Voltaic_Fire]

Of course the manufacturer warns against it, they're not profiting.

[@Bambuzzsprosse]

Normally, I'm all in for good capatlism hatred but this time I have to put in my veto. The dude from Medtronic clearly said that people can do what they want but they have to warn about it because otherwise IF something happens the company could get sued BIG time. [EDIT: Sorry, the example given was bad; I removed it] Of course, this is just money talking again but this time it's not the fear of less profit but the fear of deficit.

[@user-wz3bs8oy5i]

@@Bambuzzsprosse That's a terrible example, the lady who got scalded by McDonalds coffee got severe burns and required extensive skin grafts. All this because McDonalds keeps it's coffee at a temperature much higher than what is standard and safe to save money. Even previous to that lawsuit hundreds of incidents of burns due to the high temperature coffee had been recorded and McDonalds kept doing it that way because paying of the burn victims or going to court was cheaper than lowering the temperature

[@gordonjamescowiest]

@@Bambuzzsprosse please read up on the "Coffee Hot" thing, that woman sued only because McDonald's wouldn't help out with Hospital costs, she knew that she was partly to blame for the spillage but the coffee was Dangerously Hot and by Dangerously I mean that the coffee was 180 to 190 Degrees Fahrenheit which is 82 to 87 Degrees Celicus. It gave her Third Degree Burns, McDonald's had known that the heat of their coffee could cause serious burns for 10 years and she only sued them because they only gave her $800 to help towards her Medical Bills instead of the amount of $20,000 dollars that she asked for, the woman needed Skin Grafts on her Inner Thighs!

[@beardiemom]

@@Krautstrudel It's not an accident that many got this wrong, either. McDonalds put a lot of effort in to make the woman look as ridiculous as possible so people wouldn't agree with her. I still think there is a point in what the representative of the pharma company said in pointing out that modifying your own insulin pump isn't necessarily safe. Especially with a pump that can receive radio signals and respond to them, you are actually making your body suceptible to technical errors and cyber attacks.

[@computerdores]

@@beardiemom the fact that the pump can receive radio signals is a risk, but wath is even riskier is the fact that an app controls the pump indirectly, because if that app has a security problem a completely new type of ransomware could become a problem; the radio signal problem isn't as important because you have to be in close vicinity to exploit that, while an app could potentionally be exploited from anywhere in the world

[@koolbuddy86]

The DYI system was developed with care, to help someone in the family. The "approved" system is built to make money out of someone's misery.

[@JustMe-12345]

@@Solizeus but medical stuff is way more expensive in the US, in many other countries insurance will cover it

[@EliteTrainedPro]

@@Solizeus Not only is it significantly more expensive in the US, alot of countries do offer a large amount of healthcare for free. Secondly, US is the reason the prices are so high. They have a monopoly over drugs. Especially extremely extremely expensive drugs like the one for cancer.

[@stixxx2k]

​@@EliteTrainedPro In Europe for example, the insurance companies are negotiating with the pharma industry, hospitals and other services about prices. The US is like "How much for this band aid?" - "Uhm, one million?" - "There you go".

[@koolbuddy86]

@plentyness I am not from the USA. And this problem is faced anywhere in the world. Whoever wants to make money, finds a way to do it.

[@EliteTrainedPro]

@@koolbuddy86 I agree that people should make money and stuff but making huge amounts money off of basic necessities should not be allowed. These profits margins are humongous. Food, water, air, healthcare and basic education are all very basic necessities.

[@tiarnancarey5250]

"It's like modifying your car" yeah, kinda like adding a steering wheel because it didn't come with one

[@weakamna]

Just buy the approved steering wheel for 10x the price from the manufacturer

[@stefandorobantu4420]

Absofuckinglutely underrated comment right here.

[@alsteiner7602]

THIS

[@ferpz968]

agree

[@Puddin_tv]

facts

[@KNOTTYBUDS]

Of course. Someone puts the technology out for free, and then a company makes the same thing for $7,000 without insurance. That's some bull.

[@icecreamjunkie6790]

And even then if you don’t have the best insurance or are underinsured then it’s not guaranteed much will be covered. My brother had ALS disease, and he needed a special wheelchair that would have cost $50,000 without insurance. Luckily his wife (a critical care nurse) had good insurance, which covered over 90% of it. But still, a few thousand dollars is not an amount all Americans can fork up out of pocket.

[@generalzucc462]

And don't forget the price tag if something goes wrong with the device

[@icecreamjunkie6790]

@@generalzucc462 Something did go wrong, but luckily insurance covered most if not all of the repair. Of course that's definitely not the case for many people.

[@techtastisch7569]

@@icecreamjunkie6790 What about an Wheelchair could cost 50k?😯 For that amount I could hire someone to custom make one with the best and most expensive components while still having lots of money left

[@MatPandaZ]

@@techtastisch7569 you could get a brand new car and just drive through entrances like 'and what?'

[@murdelabop]

The manufacturer warns against using the hacked systems because doing so might interfere with their profit margin.

[@drguy12345678]

murdelabop the only concern i have is worry someone else could send their own commands to the insulin system and change it. the fix : encrypt the command signal so only chosen persons can send commands , and design the dosage to not be too high/too low (be able to recognise a incorrect dosage)

[@jasonsage1417]

@@drguy12345678 they used bluetooth? Security issue in a device like this? Dumb.

[@IIBLANKII]

Jason Sage if they hack into the phone, they could brick it. They could even delete the app altogether, or change the code of the app to display good numbers, and stop transmitting the signal via Bluetooth; either that or, make it send extreme numbers to give a person a false dosage. It would be better if the family used a Razzberry Pi or an Arduino with a Bluetooth connection without an internet connection. They could just put it as a physical connection to keep it an extremely close loop if the Bluetooth function becomes a high-security risk. Nothing is un-hackable. If it has a chip it can be hacked.

[@iridious6433]

@Artemis Fowl whats the kids name? I want to see the kids story

[@myrecommendedisallmemes]

@Artemis Fowl source?

[@MSkjel]

And people still think Right To Repair is bad for the world.

[@clarkanderson397]

There’s no profit in it. Off course it should be illegal

[@sokritlun1624]

Who thinks that besides Apple?

[@Jordan-xx9ux]

@@sokritlun1624 John Greene. Edit- meant to say John deere.

[@EnricoBM]

@@sokritlun1624 most companies

[@Fuck_Snowflakes]

@@sokritlun1624 Microsoft, Ford, Tesla, Amazon, Caterpillar, Case, John Deere, Komatsu, Manitowoc, etc etc etc etc.

[@patrykzukowski7471]

I'm editing this comment because someone pointed out a very basic thing which is very important: pumps can't work like this cause insulin doesn't work instantly and if pumps would wait for sugar level to increase and only then give insulin you would have crazy high spikes of sugar levels throughout the day.

[@morganfreeman5171]

Right ? We've had closed loop electronic systems on cars since the 80's.....

[@levi4979]

Same, I thought a pump WAS a artificial pancreas.

[@Yes-jp5ob]

One word. Money.

[@abaneyone]

Necessity is the mother of invention.

[@FakeSchrodingersCat]

Maybe not the first place the constant glaucous monitors are pretty recent compared to the pumps. The fact that as soon as they came out no corporation thought of integrating them is pretty telling though.

[@Attaxalotl]

This shouldn't be branded as a wholesome "life finds a way but we find it quicker" story. This should be presented as a showcase of just how much of a corporate dystopia we've got with our healthcare system.

[@joshuanesvacil1758]

Bro the comment just above you says the same thing. " SamiTheAnxiousBean 1 month ago (edited) the fact that people have to hack their devices just make themselves a better device to use and the pharmacy tech is attempting to stop that just shows how much of a corporate dystopia we live in"

[@joshuanesvacil1758]

we are all smart

[@Attaxalotl]

@@joshuanesvacil1758 weird

[@derinko]

Can't 2 out of 3 million people think the same? Even I was thinking exactly the same as this comment without even looking at the comments

[@joshuanesvacil1758]

@@derinko k

[@jacobcallahan4813]

This is the most American thing and so insanely sad that people have to do this just to live

[@michelbruns]

I recently watched one of those “American healthcare costs” videos, there was this guy that was hiking and had a pretty bad accident, when he got out of hospital he got a 300 THOUSAND dollar bill

[@beepboopbeepp]

@@michelbruns Yeah i was shocked when i found out an inhaler in the US can cost around 250-350 $ i just bought a new inhaler for 5,66$ last week here in Norway

[@ArchangelTwelve]

@@michelbruns I mountain bike and so far I haven't had any bad accidents but I know a guy who got a concussion had like a 40K bill and I think parts on his bike were broken. it's crazy how expensive healthcare is.

[@michelbruns]

@@ArchangelTwelve "it's crazy how expensive healthcare is." in the us*

[@ArchangelTwelve]

@@michelbruns yea it's just sad...smh

[@sabriath]

A company that profits off of selling the same system is telling you that a DIY venture is dangerous and trying to put fear in people? Shocker

[@stealyonikes]

Who would have thought

[@alexanderunguez9633]

To be fair, injecting the wrong amount of insulin can be just as bad as not having insulin at all. Instrument error and noise are real things in any real closed loop system that can make a system unstable over time. For example, this system relies on an instrument to measure blood sugar levels, if something goes wrong with that instrument, your controller will receive an incorrect reading, and will will give out an incorrect amount of insulin. It's difficult to know if your sensor is prone to failure without a lot of testing, something that DIY communities don't always have access to, since they may be using a variety of sensors. It's arguably more dangerous than chipping your car because your car doesn't need to run while you're sleeping. That being said, the prices on medical equipment in the US are probably driving people to accept that risk. I think that it's a neat project.

[@sabriath]

@@alexanderunguez9633 You sound like you are part of the fear campaign. BEGONE FROM HERE! You have no power over the DIY crowd! But seriously, in any medical device, DIYers will tend to failsafe to a precautionary position, not "wing it" position. This means that if there's a software error, then the code should halt, sending no more signal to the device, which means no insulin injected......not whatever you were thinking. I honestly wouldn't know how to code for whatever you were saying. "If error {insulin = 10000000}"? That's stupid. Go away.

[@thenerd173]

@@sabriath If an error happened due to an incorrect reading; you wouldn’t know unless you did it yourself and know what readings are realistic. The way to prevent this is to gather multiple readings in a short span of time before dosage, to make sure there weren’t any errors in measurement. It could also be programmed to never give enough insulin for it to be a fatal dose. The idea that a software issue is immediately detected and halted is ridiculous. The best a person can do it try to prevent the error, or stop it from developing/being able to develop further. I have no idea why you’re being so condescending when your brain is a pea, at best.

[@MAA-kw4ez]

I have my doubts on this

[@Zeratul187]

7000$ for a fda closed loop insulin pump ..... GTFO

[@SaretGnasoh]

very greedy lol

[@compscilaw]

The prices will go down, for sure. An open system probably means few patents holding things up. One day this will be as cheap as the basic pumps because they will be so ubiquitous.

[@codybullington2015]

@pizza Price actually they did find another product that did the same function for 150$

[@blondy2061h]

With the non-FDA approved version you still need a pump, CGM, and supplies so you're still not going to be in the cheap. Further, you have no warranty if it breaks. On a device your life depends on.

[@lamondhaughton1598]

All about money

[@Chosen1Creator]

"I'm hungry and I want to buy this apple." "Do you have hunger insurance?" "No." "Then it will cost you $120" "I'll just grow my own apples." "But that's dangerous. Ours are FDA approved."

[@allanparkinson89]

Pretty much lol

[@Wizdows]

copied comment

[@MageMinionsOP]

Lol, this is the logic that leads to people ingesting horse dewormer. No one charges $120 for an apple and comparing apples and hunger insurance to medical is completely false. FDA approval DOES mean something and food is different then scientifically studied medicine and vaccines. The reason this video works is they aren't testing a new concept, they're using existing technology and facts about diabetes treatment to make a more efficient and safe system. Your comparison on works if we compare it to "I'm gonna make my own insulin" which people likely don't know how to do and would likely screw it up. Theres a huge difference and you cannot compare these 2 scenarios with the given analogy. It just makes you look like you injests horse dewormer instead of the vaccine cause FDA, not to mention, the vaccine is free.

[@jamielonsdale3018]

@@Wizdows You do realise that 'copied comment' is also a comment which you have copied from someone else? You are not the first person to assert 'copied comment'. Don't be a hypocrite Omar.

[@allanparkinson89]

@@jamielonsdale3018 lol

[@osakoedward]

The "DIY car" analogy is just short for "we don't want you eating into our profits".

[@ORLY911]

Right to repair, right to live.

[@Chrono-bo4zc]

Also there are thousand of guides on car modding and People that do it as a job

[@CJ_Walks]

That's the hilarious thing. The metaphor he uses is just another crumbling pillar trying to justify their product that is in desperate need of competition. Right to independent repair is a pressing issue and gaining legal traction every day.

[@yeetusdeletus8565]

It's like a car mechanic saying you shouldn't mod your own car because it comes with risks because he wants people to go get modifications from him instead for profit

[@ultimatum97]

Pfizer is the ONLY vaccine which actually works for COVID. Coincidence ? I guess not.

[@SamiTheAnxiousBean]

the fact that people have to hack their devices just make themselves a better device to use and the pharmacy tech is attempting to stop that just shows how much of a corporate dystopia we live in

[@P-Mushu]

Welcome to tech

[@etg66]

@@P-Mushu more like this is america

[@Pactastic042]

@@etg66 even in Canada insulin products are not covered and most people pay out of pocket (nearly everything is covered in Canada)

[@seyamrahman1002]

@@Pactastic042 yea but its about 10 times cheaper here

[@samsonsoturian6013]

Goodness, I just got done with a video on Honduran funerals ya privileged liar.

[@jag2944]

Can’t believe the price of the FDA approved pump. $7000

[@louisfriend1851]

Yeah, imagine all the Snickers they could buy for that?

[@JackyUnoriginal]

If something happens to you when you use DIY system no one is responsible for it but yourself. But if something happens to you when you use that 7000 pump, you can sue medtronic or whatever pharma company for millions of dollars. That's the difference. And medtronics has to deal with all the bugs glitches problems with the pump and every time one of the pump has a problem they have to spend resources to fix it,. Who's gonna do that for you when you use a DIY pump? if someone else hack your DIY pump for whatever reasons through a security loophole, you are screwed. It sucks, but someone's gotta pay the bill for minimizing errors and FDA approvals, because these are lives we are talking about and everyone of them is important and thus they are all very expensive to maintain to ensure near perfection.

[@jmonita2000]

J - near perfection? Mine failed after 2 weeks

[@polla2256]

Bet it's cheaper to buy a black market organ

[@bellamyhibler]

ha, my insulin pump was 18,000

[@juanlaino9893]

My oldest son is in his early 20's and he has type 1 diabetes. But thank God for this piece of article kzbin.infoUgkxVYhghKWmrUgXARZ_ydZTvmmcrw5L0I5i At first he thought he had the flu and was lying down on the bed for three days until his sister took him to the hospital. They took his blood and it was 600. What I do not understand is how he could have gotten it, since no one in the family has it. But he is winning the battle now. This is good stuff.

[@beckyboo1433]

I honestly believe a lot of our illnesses come from vaccines. The whole rona thing has opened my eyes a lot. My daughter has renal failure and developed it a few months after meningitis vax. As a mom my gut feeling is that caused an autoimmune reaction that attacked her kidneys 😔

[@hectoralejandrotorrespopoc9232]

Nunca entiendo a la gente que cree en estas cosas sin fundamento

[@evielune]

@@beckyboo1433 I understand where you are coming from but how do you explain that archeologists shown evidence of Diabetes type 1/2 in ancient Egypt artifacts. Alltho I do believe that vaccines can cause sever side effects than are not acknowledged by medical science/industries. I am sorry to hear that about your daughter btw. Wishing you all strength

[@nikita424]

It doesn't necessarily come from genetics. I have the type 1, and my family doesn't have a history of diabetes. In my case, it was an autoimmune response due to high levels of cortisol (stress hormone). An autoimmune response can occur due to many reasons, and it's just a question of luck.

[@hertz42]

As an electrical engineer, I understand that a professional medical product has to be developed, safe and certified. It would absolutely fine if they charged multiple hundred dollars. But 7000?!?

[@fluffypuffyboy586]

aint the price gets paid at least half from the med insurance? In amerika? In germsny it is that way as fsr as i know

[@EliteTrainedPro]

This product has already been developed and tested and all that. It just needs some very simple software to run with it. Usually the US has the excuse of RnD but it's literally not possible in this case. It's basically one of the old devices paired up with a sensor and very very basic code. If they sold it for 150$ that would be a rip off as they are mass producing the items unlike the DIY kit. 7000$ is just incomprehensible.

[@zetahurley294]

@@fluffypuffyboy586 not everyone in america has proper medical insurance, and often it doesn't cover stuff it should. American health care is super for-profit, and when you're selling stuff people need to survive, and profit is your goal, they charge extreme amounts

[@TheInvinciblesPlace]

@@fluffypuffyboy586 and when it comes to insurance, you are also paying for your insurance, right? So, one should be alert of exorbitant rises in pharma products. Because, this can easily translate into costlier insurance premiums

[@六四事件天安門廣場]

@@TheInvinciblesPlace yes but it is still way cheaper because companys have to compete. The german system is way better deal with it

[@McKaylaGamez]

The dude who patented insulin literally made it free because it was so important to him that it helped people. The US said: screw the people who need this, it costs $300 Edit: I’m American, please stop the arguments now, some of y’all are too rude. I myself am gonna back away from the arguments so please stop.

[@hawhafunnyraffs5568]

Insulin $300 a vial. Covid vaccine free. "Don't worry I'm here from the State, and I'm here to help."

[@grayblues.6424]

@@hawhafunnyraffs5568 whats the relation between covid vaccine and insulin

[@benefactionhindrance]

@@grayblues.6424 Unsure.

[@aliceb.7681]

@@grayblues.6424 both are necessary. Both are needed. How do you not see their relation?

[@coolene2155]

@@aliceb.7681 because covid is a pandemic. Although, im pretty sure after many years the covid vaccine would not be free.

[@bluzshadez]

God bless that family for sharing to the World their hacked Artificial Pancreas. Having had a relationship with an IDDM/Type 1 for almost seven years, I am so amazed by how advanced injecting has become. I hope that hacked system gets approved. Such gadget will save even more lives.

[@The-Cat]

if god blessed them they wouldnt heve to deal with diabetes in the first place

[@dirtyasianmafia2310]

Em Em - i know right

[@skeptic4937]

God blessed the little girl with wonderful and dedicated parents.

[@dennisf5774]

Em Em everyone faces something different in life. You don’t believe in God yet you expect only blessings like he owes you something.

[@GoogleGebruiker]

@@The-Cat the Lord owes you nothing. Everybody has issues and has to deal with them. If you can't comprehend that, then you have a wrong image of G.D and don't understand/ignorant.

[@bm5298]

"its like moding your car" says the drug rep whos company charges 7k for a raspberry pi

[@soylencer]

TBF, they charge the 7K to cover the cost of researching the technology, shopping for manufacturers, and paying for licenses, trials, and marketing. THAT SAID, eff it, we need massive healthcare revision in the US. People get sicker and sicker with rates like they are when it'd be cheaper to keep them healthy in the first place.

[@bm5298]

@@soylencer no. if you can literally use an opensource the "research" was going to script library or github. plus the actual coding for the monitors is basic c# if/else. the chips and boards to do this have been in childrens toys under 100 usd since the 90s. no it greed. and bureaucrats.

[@matt_b...]

"... not tested by the FDA" - Completely and utterly false statement. The FDA DOES NOT TEST. It reviews and approves/rejects submissions. In these submissions is testing by the owner(s) of the technology.

[@ShaunDreclin]

It's not false then! Just misleading.

[@Mbntbj]

it means it hasnt been reviewed dimwit

[@screaminggoat1631]

Same thing dude. If you review it, then you have just tested it. Just like driving a car. Reviewing a new car is the same as test driving a new car. Same thing.

[@KOTYAR0]

Sooo... basically, bribing?

[@sonordrummerrelapse]

@@KOTYAR0 The FDA and big Pharma are in bed together.

[@Xenexys]

As a diabetic living in Sweden, I can’t imagine the money you have to spend to LIVE. I get everything for free, at least until I am 21. And after that I can only pay up to around $200 a month before its free. The fact that people have to go through this is unimaginably sad.

[@willyfromthehillies]

You're clearly just jealous of all of our freedom s/c

[@Voye555]

sweeden has freedom too

[@sethrawbass]

Have fun paying high taxes all your life

[@detritus3676]

Sweden is extremely rich with lots of money and a small population so it wouldn’t be easy for some other countries to follow suit. But yeah it’s unbelievable how US healthcare system is like this

[@Kelly-xz7hv]

@@sethrawbass have fun watching your family members become homeless when they can't afford their hospital bills

[@ShealMB79]

"it's almost like modifying your car" uh no, it's because you want to make your 7k per unit...the DIY is way cheaper at 150/200 $ Hence the reason why they are also trying to close the back door on the new devices as well. EDIT: Thanks for all the thumbs up and comments!

[@Lia-py1qo]

What a weird analogy lol

[@philspaghet]

Yup, also why you can build a Mustang for

[@ipodgeeze]

Lol is there something wrong with modifying your car? You can make it go faster!

[@shimes424]

It's more like Tesla preventing you from repairing your own car

[@ipodgeeze]

@@shimes424 very true

[@ericmeehan298]

This journalist did an extremely thorough investigation, she did a great job sharing all of the different perspectives.

[@ChrisirhC]

"It's almost like modifying your car" I rather mod my own car than let some unknown wanker do it for me for 10x more money than its worth, or well, 65x more in this case lol

[@jay-d8g3v]

facts

[@jameeboo]

I cannot believe they have big balls to do that to the device thst holds their lives. Id rather mod a car than mod a pump

[@FredGlt]

@@jameeboo there are pumps in cars, you know?

[@callidusvulpes5556]

@@jameeboo I’d rather have a more consistent blood sugar that allows me to live longer and take the small risk of an electronic screw up that hasn’t even occurred so far.

[@dcypher3657]

@@jameeboo I get where you're coming from, and the possibility of it faulting and dumping too much insulin is entirely a real thing, but you also probably don't have diabetes if this is your outlook. This is the cost of *THE PUMP* , at 7,000$.. Nevermind the actual cost of the insulin per month, and guess what.. The pump you paid 7,000$ for has just as much margin for error, it can also stop feeding insulin.. It can also dump all of it. You're no safer. Lol You realize that the FDA runs clinical trials to ascertain weather or not the system could fail; X amount of people at x amount of hours, here's x amount of faults, and then they take those numbers and they allow a certain percentage for "unavoidable fault".. That literally means "We can accept that *"this"* amount of people will be hurt, call it safe enough, and release the product.", so now, before these people even released their hack device blueprints, they went and held a research study of their own. Guess what it entailed? You're right. X amount of people, at x amount of hours, here's x amount of faults. Lol The only difference here is that these people aren't profiting off of your stupidity and hunger to quelled by a sense of comfort. "Daddy government said it was safe, so it must be safe!", which is true in a lot of cases. You usually are better off using regulated products.. But you can't forget that they also have that unavoidable fault statistic on literally everything they regulate.. And you'll never know if you're going to be in that percentage..

[@thebuddha4208]

Finally somebody making something for everybody not just the people that can afford it

[@wesleyrm]

The wonders of Open initiatives!

[@hiddenpotatogamingtv2908]

This would’ve saved my grandmothers life years ago.

[@mohamedbenhamida3748]

Sorry man. I wish you are fine and as well as one can be in your situation this truly brought me to tears

[@mareocarts6750]

R.I.P, sorry to hear that

[@naomiklijs5912]

I understand you're upset. I am upset too. Why doesnt every doctor inform their diabetes patients with this info?! I may loose limbs, or my eyesight, due to bad sugarlevel. I am so sorry that your grandmother even lost her life. The big companies are all about the money, not the people... 😔

[@TheBinklemNetwork]

I'm sorry to hear, can you tell us something nice about your grams? Then the memory can live on with others!

[@noticeablyf.a.t540]

Lmao why would you tell this to strangers

[@meatballerina]

God forbid we make quality of life EASY and AFFORDABLE to secure… Jesus. Corporate America can be cruel.

[@51stcenturygirl]

I would say "is" is more accurate than "can be"...

[@xXYannuschXx]

Gotta love how he shot himself: "It's like modifying your car" So basically: "If you know what you are doing, you are safe." Sounds good to me. :)

[@unclephil4112]

They only people who don't want you modifying your car are the car manufacturers.

[@itsoundzgood]

I've modded every car I own lol

[@CarsSimplified]

Exactly!

[@cholodude97]

About to widebody my e82

[@zerbgames1478]

@@cholodude97 e62

[@meanjeanmcqueen6171]

Of course the pharmaceutical company's version costs $7,000... Thank goodness for those D.I.Yers!

[@AMadcapCow]

House Stark I think the point he is trying to make is that it shouldn’t cost the consumers $7,000 in the first place.

[@KhalidJ]

@House Stark I really hope that you understood how this "hack" works.

[@MinttMeringue]

House Stark while I agree that the FDA-regulated one is safer (mostly in regards to hacking issues) $7,000 is still marked up. It's not clinical trials. We know most of our meds are way too marked up, because they're sold in other countries for less. And only less than a year ago we had the problem with that one cancer drug (I believe it was cancer) that was marked up like 600% and practically no one could afford it. But the guy who made the decision didn't care, he just wanted the extra money.

[@firepower7017]

House Stark You don't need an FDA approval to tell it's safe. All the FDA does is determine if the product is ready to be used to the public. I mean if people are gonna sell bootleg insulin pumps wouldn't it be quickly released to people as fast as possible to gain as much money as possible and hopefully getting away without the FDA catching up?

[@18rickster18]

Thanks to socialized healthcare .. if there was any competitors with these companies prices would be a lot lower

[@thyrone7534]

“This has not been approved by the FDA” FDA: *proceeds to make the exact same thing for a higher price*

[@weakamna]

I don't think it's the FDA that sets the prices, they only ensure that a system is safe to use for people and has a formal system and certificates for ensuring that.

[@elizabethfrohn-hengst296]

The FDA didn't make it or set the price all they do is approve that it is safe

[@nnitro527]

@@elizabethfrohn-hengst296 But how do you know the enterprise is not paying the people who say its safe from the FDA as a mean to make their product more attractive?... i mean corruption happens more often than we think so....

[@nnitro527]

@@elizabethfrohn-hengst296 a okaay thanks

[@npip99]

​@@weakamna If random people can put together a pump that works in such scrappy conditions, then any of the millions of doctors making $200k-$400k/yr be able to easily get the FDA to approve a pump they made themselves. The FDA is the problem, they refuse to approve anything unless you spend hundreds of millions of dollars doing random BS, making it insanely expensive for us, but still too expensive of a process for other people to be willing to make an alternative.

[@nithishkumar914]

Imagine selling a product for 7000 USD and expecting it to do well, when people have done it better with a Arduino years ago.

[@crazymonkey60123]

It's all about money 🤑💰

[@codemelon2698]

Actually it is a raspberry pi

[@MAL1GNANT]

@@codemelon2698 RPI GANG

[@601salsa]

It is disgusting how expensive pharma makes life saving medications and devices.

[@ClaudioCosta1900]

What's really disgusting is USA not having free healthcare for all

[@NoNoseProduction]

This isn't life saving. This just makes life easier.

[@EdwardDragon96]

@@NoNoseProduction Someone with diabetes would disagree with you buddy.

[@halicusnguyen8864]

@@EdwardDragon96 I literally laughed out loud when I read their comment

[@NoNoseProduction]

@@EdwardDragon96 failed abortions usually disagree they are in fact what they are.

[@Hannah-rs5ch]

We literally have these in the UK? Hypo-unaware patients are given these + a monitor linked to phone for free? Why is America's healthcare system so bad?

[@imaanahmed4965]

Because it's all about the money. Big pharma only care about the money

[@MightyPony]

Money my guy

[@Ryysight]

Because in the UK, any medical breakthrough, big or small literally helps the system and saves the entire country money because of how incredible the countries health system is, in the USA, curing something costs money, it isn't right... please never take your NHS for granted, the British people are generally super healthy and happy because they have a healthcare system that was literally designed with them in mind, as far as I know only the UK, Canada, South Korea and Japan have a system like that which was actually made to benefit the everyday person (probably more but those are the famous examples), it's a gift, cherish it.

[@C-64]

Because you pay more taxes

[@Ryysight]

@@C-64 nobody in the UK complains about paying more taxes for the NHS, most people are more than happy to

[@eduardovargas1133]

Sounds to me like Medtronic knew how to do this a while ago, and didn’t release it until people found a way to get around their current systems flaws.

[@edmundac]

One of the biggest thing that prevented it before was an accurate continuous glucose monitoring system. The CGM tells the pump what you bs is so that it can give you the required insulin. Reliable CGMs have only been around for the past few years.

[@blondy2061h]

Medtronic has been working with the FDA to get increasingly advanced systems approved. Their biggest hurdle has been that until recently the accuracy of their CGM had sucked. Most diyers are using Medtronic pumps and Dexcom (a Medtronic competitor on the CGM scene) CGMs.

[@velvet123]

Yeah but the FDA wont approve it. Blame it on them. They will restrict certain things and also insurances as well where they wont pay for the system.

[@hayleymarse2853]

They most likely knew about it but they have to do a lot of testing. It usually takes about 5 years to fully come up with a new pump and get it approved by the FDA. Having a pump be able to automatically adjust your insulin could potentially be very dangerous so they have to do a lot of research and testing on it to make sure it is safe. For that system to work you would need to have a newer CGM because the old ones were not very accurate and having your pump give you insulin based on an inaccurate BG reading could cause lots of highs and lows and be dangerous to your life

[@awesomeat9113]

velvet123 they won’t approve it because they want to make sure some random open source is 100% safe

[@secondchance6603]

"The company warned against using the hack system." Because they want you to buy another overpriced system made by them... money, money, money!

[@csonweedagain5054]

Planned obsolescence is the downfall of the human race, man

[@MatPandaZ]

It could also be that the system hasn't been approved or tested by the regulatory system and could cause death.

[@joestevenson5568]

No, because they legally can’t advocate using non approved drug delivery systems.

[@Chris.Pontius]

Also it's a fair warning because in the wrong hands, there can be significant dangers to tweaking these machines. They are not saying: "don't use this". They are saying: "using this, comes with risks." Which seems fair to me.

[@csonweedagain5054]

It's not a warning if they restrict you from other means. There's something to be said about companies that use psychology to shill money from people. Technology really isn't that complicated as it seems, like most companies would have you to believe. The problem lies in those who don't want to learn and have the money to have everything done for them. People with money to throw away fit exactly into any big companies example of a "good" customer, and those without the means to pay don't mean anything to them. Think what you want about a company that views money as success, but they are not here to help.

[@confusioned2249]

Big pharma: No! Don't use that! It can be dangerous! Also big pharma: **rebrands and sells for 7000$**

[@berty1422]

But you guys let them abuse you.... its not their fault they can profiteer from someones life....you let them do it. We just laugh at America, it is a 3rd World country. Its only 16 years ago that 1800 people lost their lives to Hurricane Katrina. A 3rd World healthcare service, guns, and a drugs cartel, Mexico will soon be building a wall to keep you guys out...

[@confusioned2249]

@@berty1422 Yeah, it's also more of that anyone who can stop them, just helps them to get a cut of the profits and also the government won't actually do anything. Honestly i'm glad i live in europe. It's not the best but it still sounds so much better than the hellhole americans have to deal with.

[@Ejiro__Kirishima]

@@berty1422 “you guys let them abuse you” oh I see, we’ve switched to victim blaming wherever your from.

[@y.a100]

@@berty1422 Most sick people don't have the strength (both mental and physical) to fight those companys along side fighting their illnesses

[@thelorax2208]

im sorry i mustve missed the part where there people chose to have diabetes (type 1) where these people could just choose to boycott the insulin industry to make it better because they didnt "need" it or better yet just grow your own insulin right? the fact is yes the blame is some to be placed on the americans for being poor judges of character when it comes to electing their policey makers but the thing is these people cant afford to do anything that would actually hurt the companies because they cant LIVE without it.

[@lsulsu]

I’ve been using the system described for 1.5 years and it’s much better than anything commercially available.

[@hendog5396]

lsulsu yeah right the Medtronic 670g/ cgm might be expensive but it works better and isn’t made in a garage. I wouldn’t want that thing controlling my bg

[@mtgfatalpush7640]

@@hendog5396 if u have the experience of makin them then y not, better then wasting 7k on something that only cost 50-100ish to make lol FDA kits still comes with bugs, and if anyone thinks something is "bug" free is insane lol.

[@hendog5396]

MTG: Fatal Push I guess if someone really wants to risk it, they can. I never would, but to each his own :/. In my experience I haven’t had any bugs with the pump it’s self but quite a few with the cgm.

[@nullnull5976]

Hendog this is open source

[@nullnull5976]

Hendog anyone can contribute lmao

[@emileelareeda496]

manufacturers: “hey what ur doing is risky” manufacturing: *makes their own version*

[@bassman9261995]

Its not risky because it could malfunction. It's risky because its remotely controlled, instead of controlled onboard. If you can hack in and remote-control the pump, someone else could too. They're probably not saying it because they don't want to get sued for making hackable pumps

[@w1mark275]

@@bassman9261995 I agree, it seems really sketchy on why you would need your **phone** to receive information via bluetooth from your glucose monitor to send instructions to your insulin pump. You're giving all the power to your phone to make all the decisions when you can simply have your glucose monitor connected to your insulin pump. I think it makes a lot more sense for your phone to just be a convenient device to monitor your health, and not something that directly controls your health. Connecting your personal health directly to the internet in general does not seem like a good idea. (Although I can't be for certain, perhaps there are some circumstances where it is beneficial)

[@AzKat69]

You have to consider that most people are absolutely stupid.

[@samsonsoturian6013]

Yeah. If someone who doesn't know what they're doing modifies the device they could break it and hurt themselves.

[@retiredhamster7003]

@@chadthundercocksexhaver3959 Nikola Tesla didn't discover A.C current

[@madisenkornele3227]

"Its like modifying your car" Me from a working class family in Texas: 🤠 so its completely fine and much less expensive?

[@hastyheadshot0751]

Bro fr

[@1907timo]

Patient: "Doctor my insulin pump isn't working correctly" Doctor: "Did you check if someone wrote something about it on stack overflow?"

[@ya_hya]

i admit this is something i would do

[@rasmuskp93]

and then you end up finding some idiots post that makes your pump randomly start pumping at max capacity until it has emptied the reservoar...

[@ya_hya]

@@rasmuskp93 OUCH

[@cahan557]

@@rasmuskp93 makes your sugar level graph spell out “lol”

[@YanYanicantbelievethistakenffs]

Lol

[@igbc176]

"Is like modifying your car..." instead of taking the car to your enemy's mechanic

[@mochidomo]

More like, the only mechanic in town that forces you to pay up or die

[@jacobkeltz3584]

Modifying your car if your car didn't have break pedals in the first place.

[@jackdeakins]

Dude wtf I live in finland and we've had this for so long but you don't need to hack anything. I have a pump that does everything itself...

[@dtesta]

Yeah, I though this whole video was weird. I am not diabetic, but I am pretty sure my diabetic friends has been using auto-insulin pumps for like 10+ years in Scandinavia.

[@mintmemes1289]

Same. I’m not diabetic but I think this is a things in Australia without all the hacking

[@tywillis2395]

This is a strictly USA problem. Money over lives.

[@king.kthebest6158]

Fulinland is amazing...

[@cinema.zipfile]

some of us are broke, Emerald

[@Meekerextreme]

$7,000 LOL See that is the problem with healthcare and medical devices. There is no reason it cost $7,000

[@burgrz_tasty1237]

There is a reason, not a good one though, and it starts with an M

[@rektrakboi3127]

@@burgrz_tasty1237 and ends with oney

[@hughgordon6435]

Shareholders?

[@samsonsoturian6013]

If we removed all the stuff that made it expensive, you'd whine about the lack of R&D and safety regs and qualified personnel.

[@samsonsoturian6013]

@13. Ghani Ziyad Sagiansyah remember, though. You always get what you pay for.

[@Napert]

A $150 diy hack Fda - THIS IS SOOOOOOOOOOOOOOOOO DANGEROUS $7000 brick that does exactly the same thing Fda - this is fine

[@karel3112]

well, the hacked version sends radio signal to the old devices, what if there is someone with the same diabetes walking around and you adjust their pump. whoops someone died. but yeah 7000 is way to much for the technologie. but i bet those thing would cost a lot less in other countries.

[@jfbeam]

The hack _is_ dangerous. And I'd bet the $7000 brick is as well, but at least it's not tethered to a cellphone, RPi, and a flaw in a decade old pump that allows an external source to tell it doses. As she points out herself, this house of cards doesn't always stay together.

[@xxhellspawnedxx]

@@karel3112 In the graphics, it looks like it's using bluetooth. By no means a safe system, if ever there were such a thing, but one that you can't interface with accidentally, which precludes 99,9% of the dangers. Additionally, if it's set up properly, you actually need physical access to the device to tether a new controller to it, making it even safer. But the danger is always there, that there's some technological bug that makes the system go haywire, which obviously can be really dangerous. The question is, will there ever be a point at which we're significantly safer than that? I don't think so, honestly. You'd need redundant secondary and tertiary sensors, at which point it becomes a massive hassle to deal with.

[@SweetMoonSugar]

@@xxhellspawnedxx i'm not thinking" what if someone with the same pump picks up"your" bluetooth signal and "their" pump gets adjusted", I'm thinking,what if someone had malicious intent? People steal cars with bluetooth, and more... whats the range on the "radio signal"/bluetooth pumps?even w laws in place(?), the damage is already done :c I like the physical access idea though.

[@Suthriel]

People do bad things like stealing cars, because they want some sort of profit or reward from it ( like the item itself or the money, if they sell it). There is not much to gain from manipulating pumps, other than harming people. So the usual thief or bad guy have most likely no interest in that.

[@ErnestJay88]

FDA certified system $7000 with threat "you're GONNA DIE with your DIY system !" even thought people are getting healthier with $150 DIY

[@averagerage902]

@CheckAvability Well written code I assume.

[@razy70]

@CheckAvability Any device can malfunction including a $7000 FDA approved one.

[@ErnestJay88]

@CheckAvability 7000 bucks "FDA certified" doesn't mean the pump will never malfunction.

[@ottoorman5646]

it is called insurance

[@jacobp.2024]

The resources and development that went jnto this device do not warrant a 7,000 dollar price tag.

[@livingspringsfarms2530]

I love how doctors think modifying you car is a bad idea Like really that’s the best you could come up with

[@3mar00ss6]

it's not a doctor it's a spineless paid person

[@hemsagar]

It's never the doctor buddy. Never.

[@hi14993]

My response is easy : if it is MY car where do YOU get off telling me what I can or cannot do to it if it will never pose a risk to those other than myself?

[@3mar00ss6]

imagine studying 14 years just to squander your reputation with that ain't no way this is a doctor

[@Unironically_dom]

Its like art/ natural selection, see what works and remove the mistakes.

[@h8rsbeware496]

I'm sorry, but private healthcare is so tone-deaf. "We fixed an issue that you figured out we intentionally made!"

[@reiroll5]

The “modifying your car” guy looks like your classic Disney villain

[@alistuma999]

Lmao true, he's extremely expressive and making super quick body and facial gestures that are almost manic appearing. I thought he looked like someone out of speed racer or lupin.

[@fgfhjfhjfbhfghf5771]

Man can't even put up a real argument. Car mods are also something that people should be allowed to do

[@Weird_Jellyfish]

@@fgfhjfhjfbhfghf5771 ya and it's like they sold you a car without a steering wheel and a gas button with one setting

[@gblargg]

His face is a little too animated.

[@WorldsOkayestSorcerer]

“It’s a lot like hacking your car..” Let me stop you right there, Chet, because people do that to pretty great effect.

[@jaidathompson3478]

the only time i hear negative stuff about car modifications is when they get arrested for it😂 people don’t wanna ruin their car while modifying it, people also don’t want to ruin their bodies to modify it

[@WorldsOkayestSorcerer]

@@jaidathompson3478 Evidently some people are willing to take that chance which, IMO, says plenty of awful things about the US healthcare system.

[@jaidathompson3478]

@@WorldsOkayestSorcerer in america if you’re not born into middle class or above its like die or be poor concerning health conditions

[@jaidathompson3478]

@@WorldsOkayestSorcerer all thanks to the lovely art of *lobbying*

[@WorldsOkayestSorcerer]

@@jaidathompson3478 I’m squarely middle class, having escaped from abject poverty, raised by a single mom working two jobs; and lemme tell ya, the insurance ain’t any better the two or three rungs I got up on the ladder, ma’am. In fact, it seems to have gotten worse.

[@TheGoldenRiolu123]

oh by the way, you DONT want the FDA getting involved at all even if they approve it, regulations on something like this will come in fast, ruining the open-ness of the system.

[@TheGoldenRiolu123]

also, corporations putting this out can make any changes to this to earn more money, and they will. the open system being hackable is great, because you'd be able to dodge the effects of a potential corporation buyout of OpenAPS, by communicating with users to hack away the changes

[@thesaintmustwalkalone708]

And that drives prices through the roof.

[@vayne7556]

@@TheGoldenRiolu123 the issue with that device is....it's hackable.I definitely wouldn't take the risks to save time with a device that could end my life.

[@real2rek]

The only reason they did this so quickly is to save their marketshare.

[@MrFbtube]

Every day we stray further from god

[@samsonsoturian6013]

That's baseless

[@crazymonkey60123]

What a innovative company!!! There is no way they used the open source code to build this no way!!!! 🤡⬅️ CEO

[@StoneCoolds]

Lol, builts a 5 dollars device, pulls some strings to get it "approved" and then sales it for 7000 dollars to "help" Aww such a kind and warm heart, even jesus christ would be touched

[@buttersoft7659]

He is rewriting the Bible

[@potatotoes]

He is the Messiah.

[@stephaniemomma]

Our 7 year old daughter was hit in a hit in run by a drug dealer right before the pandemic, December 2019. We didn’t know she had type 1 yet, and the trauma of the accident triggered her first episode and sent her into a coma. She spent 4 days on a ventilator and was presumed brain dead for sometime. She’s since made a near full recovery, she still has diabetes and some stress/mental issues, like a fear of falling asleep since she’s worried she might not wake up again, another coma; but overall, she is much better. I took advantage of my work closing during the pandemic and I returned to school to finish my degree and devote the rest of my life to working on a cure. I’m in the molecular and cellular biology program.

[@GrandDuchessT]

Wishing you best of luck! Hope you manage to find a cure ❤️

[@xXxserenityxXx]

Have you looked into Crispr technology for a cure?

[@bootyclap69k]

That sucks bro

[@DefaultChicken]

I wish you the best of luck in your research, and your daughters health!

[@brandonquinney1645]

Hope you find a cure, but when you do please make it go public before you are shut up by the government or big pharma, please.

[@howiesworld9056]

That guy couldnt have made it more obvious that he’s never even opened the hood on his car once

[@MyBrothersMario]

"Its a bit like modifying your car" Oh so basically completely safe if you can follow basic directions and increasing functionality? I'm not seeing the downside that guy was trying to point out.

[@PatrickBaptist]

LOL no joke, the dude is just into making money off "legal" drugs, they aren't smart at all when it comes to practical things in the world.

[@IrishSpyHD60]

Was literally thinking the same thing. My girlfriend is a type 1 and I like to watch think type of content for her.

[@JEAthePrince]

Lol

[@ddanbeatz186]

@@MyBrothersMario welding an exhaust is basic now ?

[@MadsFeierskov]

When I first heard about insulin pumps I just assumed this is how they all worked. Seems strange that a manual measurement and calculation would be needed, when there is already a computer stuck to your body.

[@drfill9210]

Not the biggest leap ever, no...

[@Katy-sh3ru]

I think it's because it can't work as quickly as the pancreas. So you need to tell it how much carbohydrate you'll be eating

[@crogg8889]

1918: I bet there will be flying cars in the future! 2018: diabetics are making their own insulin pumps

[@tweetyericsson]

1918: What's a diabetic?

[@crogg8889]

tweetyericsson didn't say they knew, they just wanted flying cars man

[@neelav2394]

1918: I bet people will come up with original jokes and ideas in the future! 2018:

[@joylessdancer4554]

Except the pump was made by a company that spent hundreds of millions on R&D......

[@p1xel870]

Tbh this is better than flying cars

[@andrew8293]

This is why I support and use "Free" software it does technology right and gives the user full control. If we all work together we can end proprietary closed and expensive systems and do things right.

[@TheSkepticSkwerl]

Microsoft, until recently, profited purely on closed software. Now they have hardware.

[@ojkolsrud1]

We need both. Open source things is often "hacked" closed source things. Open source couldn't exist like it is now if money wasn't invested in the closed source things in the first place. They could and should co-exist.

[@ojkolsrud1]

@Catalogus That's true, but taking the scientific literature and making something useful with it often requires a lot of money. In some instances, the science behind a product was also ordered and paid for by the people who make the product too. An example would be an internal combustion engine. The science behind it is free and open to anyone, but making the actual engine is a lot of work, trial and error. Most people can't afford to create these useful things entirely on their own (which would be "open source"). The companies who make these useful things may not want to open source it - which is why all software isn't free and open source. That's the reason why I'm saying that we need both.

[@safir2241]

I think fixing your car is better than buying a new one.

[@razzyrazberries]

Especially when buying the new car is about 4600% more expensive.

[@safir2241]

Also buying a more expensive car

[@DanSlotea]

This is not fixing, it's converting it into an airplane.

[@naryrokobs1847]

You shouldnt try to fix your car if you know nothing about your car....

[@naryrokobs1847]

You might also say "you can look up everything you need to fix your car on the internet" the actual scenario here is life or death.... i wouldnt chalk it up to what the internet has to say about keeping me alive.

[@SomebodysNephew]

These people making this open source for everyone are incredible people. This is the real power of technology.

[@michaeljimenez239]

"key words he said, you BUILD your OWN system", That is not really hacking lol. That is like like putting freeware monitoring tool on a raspberry pi and saying you hacked it or it's a hack, you didn't hack, you installed open software on an eligible device......this is more of a modification as you are not hacking to get into or access to unauthorized data via a preventative measure.

[@SoberAddiction]

Everything is a hack these days. Can't get your smart lights to work? Free life hack: get up and turn on the switch.

[@michaeljimenez239]

@@SoberAddiction for reals lol

[@michaeljimenez239]

@Ei Dirst they say hacking a device multiple times, not systemic hack or "life hack" lol

[@michaeljimenez239]

@Ei Dirst literally the title says "HACKS THEIR OWN PUMP" DO YOU NOT KNOW HOW TO READ?

[@SoberAddiction]

@Ei Dirst Don't get me wrong, I think this is great. We need more of this. But the term "hack" has been so diluted recently that its frustrating. especially those 5 minute life hack videos. We need the right to repair and we need to be able to do what we want with our hardware without being limited corporations.

[@sang8720]

7000 For the FDA approved version? Good Lord

[@adaml.5355]

Actually hardware for that system is probably around $100-$200 most likely. Or even less!

[@captaincool6268]

how you supose they got that aprobation :v

[@ccmcdoug]

extremely frustrating.

[@purplepill2024]

@Ben Hutchinson, the hardware is never that expensive. It's the R&D that goes into the device, the testing, and the months of fielding questions from FDA to get approved that's costly. In a piece of hardware like that you'd need a full staff of Sourcing, Marketing, Clinical, Software Engineer, Electrical Engineer, Mechanical Engineer, Software Quality Engineer, Program Management, Quality Engineer, and Regulatory to make sure all the testing and documentation needed is provided to the FDA. A project can take up to 1-3 years to get to market after submission, during which time a company isn't making money on their new product yet.

[@pauljs75]

@CheckAvability It just cuts out the ridiculous mark-ups of the middle-man. Guess where the boards and electronic circuit components come from? Device manufacturer basically gets stuff from there for pennies, and does the final assembly to put the "Made in U.S." label on it.

[@marlon778]

"It's almost like modifying your car." You mean like how car guys mod their cars to have more horsepower and/or run at increased fuel efficiency, therefore catering their property to their specific needs? Yeah, real dangerous.

[@bingus5775]

That was a really stupid thing to compare is too. Was the guy even trying to persuade you not the mod a pump?

[@rosehabaduck4783]

I would rather mod my car for 2K than pay for a new car with the same mod for 20K

[@thewisebanana29]

Hahahaha cylinder 6 goes brrrrrr

[@pearldrummer7217]

Medtronic probably has $20 in each unit but charges you $7000 for each unit.

[@Kr0nicDragon]

$20 is being generous, probably more like $10

[@Floccinaucinihilipilificator]

There cannot be more than 40$ of hardware in that thing, with a bulk manufacturing deal. To say the equivalent of ''Don't get the affordable one, instead buy ours, regardless of your financial situation'' makes someone a bit of a death merchant...

[@fahlenbock]

7k..... wtf is wrong with the government, that should be given out for free.

[@Mkrabs]

Ever heard of US.America?

[@Nomadic.A]

Its medtronic... Not the gov. that sells it. Healthcare in the US is a business.

[@shipshrekt2156]

Fooorrrr ffreeeeeeee gibs me ting binmmyyyy giimmmmyyy

[@ABQSentinel]

It is being given out for free... that's what the OpenAPS is. If you want a system that is tested and approved by the FDA (translation: you have someone you can sue if something goes wrong), then it costs $7K. People get their panties wedged in their crack when they hear how much this stuff costs, but they fail to understand that a big part of the reason medical stuff is so expensive is because of the absolute MOUNTAIN of lawsuits that are always being filed against these companies.

[@geekay2747]

Well, someone has to pay for it. Would that be you paying for someone else's free stuff? The problem with socialism is that you tend to run out of other people's money and then everyone loses. Admittedly, 7K is a bit much, but the price will probably decline as other players enter the market.

[@lovelylychee2255]

Did the fda just rip/copy someone’s diy hack???? Uhh?

[@JaySee5]

No a company did. The FDA simply approved it faster than normal.

[@pazuzukomardukkkjoiimmimmi3604]

They did and jacked price 700 percent

[@superjare23]

If it wasn't pattoned

[@matsab7930]

JaySee5 that’s so corrupt... how is this not prevented in the US? Why are the people in charge of protecting the population and upholding people’s rights not stepping in and doing their jobs? It really does seem like parts of the US government have stopped doing their first job - putting the people first - and are a little more focused on making a profit

[@RetroGamerr1991]

"It's almost like modifying your car". Yeah it's like taking a 1970 Challenger and replacing the inefficient carburetor with an electronic fuel injection system. Ya know something that can also adjust itself automatically.

[@kuroexmachina]

from 150 to 7k and they really do be like "why are you running?"

[@kariissmol9172]

in germany, your insurance would pay in full. and yet, the USA is still killing it's lowest income people.

[@apocalypse487]

Yeah, car mods are not equivalent to insulin. Any person who talks like car mods are bad is usually pretty ignorant. People having been modding cars forever.

[@emossg]

There is also the difference that when you modify your car you might cause harm to other people if something goes wrong. Modifying insulin pump only risks your own life.

[@gaygay5676]

IF THE THING MALFUNCTIONS AND YOU ARE SLEEPING, MOST LIKELY YOU ARE DEAD.

[@vaguedreams]

@@emossg unless you're driving, or are a nurse / doctor, or emergency response, etc...

[@vaguedreams]

They've also been fudging up their cars as long as they've been modding them as well.

[@milo3733]

god, the fact that allowing people to do this hack was considered a "flaw" and was "fixed" makes me so mad.

[@theCodyReeder]

This is so cool!

[@Vincent-gn3xh]

Ikr!

[@livewellwitheds6885]

ur also missing the point about why do we need this? why isn't it easier to get? ect

[@chronofactor2037]

@@livewellwitheds6885 Imagine necroposting, also I'm pretty sure he probably knows and knew that it is wrong to overprice life saving medicines.

[@j4mil448]

Hi cody

[@ruger12]

hi

[@liigk7190]

This reminds me of a story I heard a while ago. A group of engineering student was pitching an idea to a pharmaceutical company and claimed that their idea can help cure a long lasting disease. The company replied that's great, but how is that a business idea?

[@burnabee5915]

4:16 how much did the FDA pay this guy

[@Michael-lc8yl]

Burn A Bee He was entirely reasonable, especially considering he’d be legally liable for endorsing this hack.

[@chevon1920]

Not the fda, medtronic

[@nicknuzzi7738]

Unlimited prescription amphetamines.

[@Nicksperiments]

They promised him 100 matches on grinder

[@coltonjacobs5383]

I mean, if anything he is concerned becuase it is open source so its open to hacking i would assume, and thats not a good thing if u rely on it for your life

[@jholotanbest2688]

This is a good example why American healthcare system is the worst in the world.

[@brianlofton2489]

jholotan best and yet the American system brings about the MOST innovation within healthcare in the world and people COME TO America for healthcare because their “FREE” healthcare can’t give them the treatment they NEED or maybe want. Yeah, sooo bad. 🙄

[@jholotanbest2688]

@@brianlofton2489 Well I think the purpose of the healthcare system is to server citizens not to be innovative. And American healthcare is objectivity the worst compared to what it costs. If you are not in the top 10 percent American healthcare sucks. And I have never heard of anyone going to US for healthcare but I can imagine that some exorbitantly rich may do so but in grand scheme of things that is irrelevant.

[@Kit_Bear]

@@brianlofton2489 I like how you defend a system that hyper inflates costs of treatment, gives you a poor level service and cancels your treatment if you go over your Bronze package limits. Hey, Got a pre-existing condition? Cancelled! Smoker with a broken ankle? Cancelled! Didn't put a period or capital letter in the right place? Cancelled! Can't afford our treatment? GTFO onto the streets ya Bum! You can't afford to die in here! Yet in the UK there isn't a value put on your treatment, no-one is refused treatment and no-one needs to take out a mortgage to pay for it and no-one suffers either medically nor financially. WHO ranks the USA at 37th place in world healthcare and the UK as 18th place. Statistics paint the greatest picture Brian. We get the treatment we NEED and it isn't "Free" as you put it, I pay around $125 a month for National Insurance which covers me for EVERYTHING. Broken finger? No problem. Heart attack? No problem! Car accident? No problem! Cancer Treatment? No problem! And I can rest assured that I won't have any bills which can cause a heart attack. Even if I lose my job I will still get the same level of treatment as I would if I still had the job. Again, NO BILLS! Walk in, get treatment and walk straight out.

[@Lemonz1989]

@@brianlofton2489 Honestly, the US innovation argument is wrong - true that the US is ONE of the most innovative countries in the world, but it isn't that much different from other rich countries when looking at true innovation results. That is innovation input vs. innovation output, so basically bang for your buck. The US being the 3rd most populous country in the world with 328 million people (4.3% of all the people on Earth) as well as being a rich country, it's only natural that the most visible results come from the US. That doesn't mean the US is "the best" - it's just the most prolific for the same reason as I mentioned above. As for people travelling to the US - that's mostly for experimental treatments or treatments that require highly specialist equipment that can't be economically viable in a country with maybe 4 - 10 million people (which is around the population numbers you see in many European countries). For example really expensive equipment to treat some type of rare cancer where a country with 10 million people would only have maybe 50 patients a year compared to over 1600 of such patients in the US, where the US maybe has only 3 such treatment centers. I have a rare, but benign type of endocrine tumor called a pheochromocytoma on one of my adrenal glands. I am to have it removed in a few months for "free". There are only around 10 removed a year in the country I live in (Denmark), so there is only one hospital in the entire country where they have the experience to remove such a tumor. It wouldn't make sense to have such procedures done in every hospital in the country, because it would be a risk to the patients to spread out the knowledge when you can concentrate it in one place. These things can be problems in small(er) countries, where in the US it would make sense to have more treatment centers for this particular problem.

[@NoCumBacksiFunny]

Except you would have died waiting for outdated healthcare when I can walk in the hospital with my insurance and walk out within a few hours with modern technology and treatments

[@austina4189]

Would you rather get up to start and tend to a fire to keep the house warm, or set a thermostat to keep a temperature throughout the day? It's the same thing with diabetes

[@everythingpony]

Um how if both the devices do the same thing?

[@randalleskildsen2694]

@Rainbow Dash It's a figure of speech....starting a fire to keep the house warm equals Manual diabetes pump. Thermostat to keep a temperature throughout the day equals a hacked artificial pancreas pump. If you don't understand I can't help you.

[@austina4189]

Rainbow Dash i'm not comparing FDA to DIY.

[@ishikawa1338]

I prefer wood, its cheaper. So bad analogy

[@DarkViperus]

Yeah, but the issue is that diabetes is continuous. Every second of high blood sugar is causing damage to your body. So, istead of having 30 mins of damage, and then 30 mins of no damage, and 30 mins of damage etc... Its much better to simply not take damage, that BTW adds up during the years.

[@ABZer0x_x]

And this, my friends, is why right to repair is so important and why big companies are fighting against it. The average person can do a lot more than they think when it comes to technology, don't let a lobbyist tell you otherwise.

[@RyanJardina]

It should be mandatory for all medical devices to be open source.

[@PatrickBaptist]

People won't like it once they get hacked into with that smart or rather moron phone.

[@RyanJardina]

@@PatrickBaptist Yes, they're bug and holes. At first, but look at the the security in the longevity. Open versus closed source. Open source always wins. This device is an extension of the human body. It should be a fundamental right to understand how it works. Especially for the people who use it and depend on it daily/hourly.

[@among-us-99999]

Ryan Jardina no, everyone could search for safety gaps and..do non-good stuff

[@tangerinetech5300]

Sounds like the stupidest idea ever especially since most diabetics are your average person that knows nothing about any of that

[@zachburke8906]

dontlikemath -.- if they can do non good stuff when it’s open source they can do non good stuff with closed source. It’s just harder to find those non good things with closed source, but obscurity is not security. The devices would be safer in the long run if they are open source.

[@vilosey2013]

I know going in it was American healthcare but god this is weird.

[@Ongbruh]

They’ve basically re-invented fuel injectors on a car but for their body

[@a-s-greig]

Here's hoping it goes mainstream.

[@KaidenBird]

Now the only question is: Can it run DOOM?

[@alcejaylos.4257]

Add an immersive feature where you die in the game you die in real life

[@rookhook5222]

If a ti84 plus ce can. So can this

[@mid5503]

@@alcejaylos.4257 hardcore difficulty

[@matbilko3318]

Can it run crysis?

[@orlandoesa1002]

Maaaaybe?

[@MrDJRadeEEYo]

The car modification thing was a bad analogy

[@germanher7528]

I want some neon bars on my pump!!!

[@九头金蛇]

@@germanher7528 why not some tinted windows?

[@Apostrafi]

@@九头金蛇 how about getting bigger tires!

[@VonSchpam]

It wasn't even an analogy! What was he referencing as a comparison? All he said was "This is bad; because cars", he didn't make the connection with insulin pump, nor explain why it is bad.

[@shrijaiswal486]

I want Burgundy Tires😏😒

[@Vod_MacDuff]

It's 7000 because they know that they can get that much from insurance companies.

[@jeremyc6054]

In reality, they probably get a fraction of that from insurance companies, because the insurers negotiate rates with providers (when you ask a provider "do you accept my insurance" what you're really asking is "have you established a set of negotiated rates with my insurance company"). The $7000 is just the list price, which is what they charge to poor sots without insurance. They're the only ones who pay that amount. This is not unique to insulin pumps; this is the norm throughout healthcare. Typically insurers pay about 1/3 of the list price (although there is substantial variation); it's only the uninsured who get hosed for the full amount.

[@godofrasiofernandez]

@@jeremyc6054 even then one third of 7000 is insanely high price that nobody pays anywhere else in the world for that basic health product wich is also worse since you need to hack it in order to be able to proper sleep while keeping your daughter alive

[@note2tee]

Stole the idea and act like it was their idea and profit from it

[@Chuloon]

Yess! I hate minimed ... when I called them to ask questions about their pump over a decade ago the lady on the phone didn't even know what kind of batteries it used.

[@fidelcatsro6948]

@@Chuloon have you tried Keto and IF? this might reduce the need for insulin in the first place and prevent weight gain

[@evanjones5257]

@@fidelcatsro6948 Are you dumb? Ketoacidosis is not an option for managing diabetes. If you go without insulin for more than a few days, you will probably die.

[@davidbradford38]

Evan Jones think he meant keto diet

[@bingus5775]

@@fidelcatsro6948 I'm pretty sure this is mostly for type 1 diabetics which need to take insulin or else they will die

[@Halesnaxlors]

Open Source is the one thing that stands between us and total dystopia

[@Echiomega]

4:16 that guy sound so fake, look at how many different expression he's making every time lol

[@mauimonique]

Echiomega Bingo! Over exaggerating to make his point seem bigger & right.

[@draculatod3559]

Ever heard of aspergers

[@escueme]

Echiomega, good catch. He has no idea wtf he's talking about 😂😂

[@valied8131]

Interesting point there friend

[@hifiveguyy]

Reminds me of Ajit Pai and he’s talk about net neutrality

[@andyspaceishere4035]

Dont trust the guy who looks like ajit pai

[@everyonesaidmynamewasstupi3713]

lmao

[@pexfmezccle]

Racist.

[@litcexl8124]

@@pexfmezccle He is not racist, he just looks like him.

[@ragamuffin1588]

Do you really have to make fun of him?

[@zudy9067]

@@ragamuffin1588 What part does it makes fun of the person? "who looks like ajit pai" is just an adverb clause to mention which guy not to trust

[@unclephil4112]

In this video: government enforced monopolies increase costs by 600%

[@dtesta]

150 USD to 7000 USD is NOT 600%. Just saying.

[@paullelyukh2422]

@@dtesta yeah its 4600%

[@natasham8063]

7,000 divided by 150 is 4,650 percent It's not 6 times as much, but 46

[@dlcdaniel705]

The last price change on Novologue (the most prescribed insulin for both Type 1 and type 2) went from and average of about 10$ a vile to an average of 290-300$ a vile, without insurance. A vile lasts me about 15 days. Also, copays go up for no reasons and with no warnings a lot.

[@greyhound4204]

@@dtesta us education

[@theweirdsistersoracle2]

Yeah, he's saying the same thing phone makers were saying about having outside sources fix your phone. They just passed a law saying essentially that was bs and we can take our phones somewhere else. Why can't they do the same thing here? Oh wait, I know, money.

[@gurpremsingh]

#RightToRepair

[@Auralain]

imagine having hundreds of billions of dollars and being able to research all this and find every solution, but instead random people have to hack it and do it themselves down with the rich.

[@ivorymantis1026]

"if you're going to add additional risk!" Well...maybe if your company acted quicker to fill a need, or didn't rely on archaic technology to milk people for money, these people wouldn't _be forced_ to modify medical equipment for not only ease of use but for better quality of life. Do no harm, aye?

[@user-rk5cu5tg2g]

Is all good to laugh at america from outside, but I genuinely feel bad for the people that live there.

[@Marcos_P_F]

USA* America is fine

[@cy4ni430]

@@Marcos_P_F Genuine question, whats the difference?

[@dhdk5321]

@@cy4ni430 USA is part of America. Remember that America can mean both South America and North America but from my experience whenever people say America, I would usually think that they’re talking about the US rather than North/South America as a whole.

[@danielphendarko2651]

@@Marcos_P_F "hamburger per baldeagle wingflap" 🤣🤣🤣

[@pico42ytalt87]

this is why i would consider moving to norway.

[@Lankynibs]

It makes me so angry that the fda approved version is so expensive, just like insulin is in this country. Ugh.

[@welsh_Witch]

diabetes legit in a pay to win mobile game

[@GodOfChaos_HeXa]

isnt better in europ / germany, insulin pumps are always expensiv bc they arent mass produced they are hand assemled and go threw thousends of quality controls if you finaly get your pump its save to say that is has a minimum live time of a few thousend hours just for testing

[@stripedrajang3571]

Shen, why do you sound so upset, mamita?

[@bm7654]

Can someone tell me how to get thru an airport with an insulin pump. I went thru Fort Lauderdale and I plainly told them that my pump couldn't go thru the machines, and they bypassed the machines only to put it thru a machine at the end of the line and told me it failed the test and would need to go thru the X-ray machine. Even told me I would have to go back outside. Acted like it was the first pump they had ever seen. How do you handle airports?

[@clarehalacy9266]

I don’t have an insulin pump but I have a medical device in/on my body and it really depends on the security agent. There’s no real protocol in place for them to be dealing with medical necessities which is why it seems like no one has any clue what’s going on when you get to TSA, cause no one actually does. I would recommend calling TSACares ahead of time, it’s a service for people with specific needs like if a person has a service dog or medical device and would rather be walked through security to make sure there’s someone who actually knows what’s going on who can escort you through security and can act like a liaison,

[@edmundac]

Typically I just go through the scanners and I've never had any problems with the pump afterwards. But, I've also told them I can't go through the scanners before and they do a pat down and then everything. You don't have to disconnect it and give it to them. They have no right to take a medical device from you.

[@laethe230]

You put your foot down and say you will not subject your medical device to potentially damaging radiation.

[@sadabetas]

You can opt for a physical screening I think.

[@T1DPlaxisZer0TBG]

Lol in canada I just let them know and they just pat me down

[@fastxsam]

So people figured out how to spend $150 instead of $7000? Shocking. That's called being smart not hacking.

[@criostasis]

The pump was hacked before the $7K big pharma version came out. They copied the hacked version and patched the firmware on the new version to make sure it couldn't be hacked again just so they could charge a ridiculous amount. 🤔 We're you paying attention to the video?

[@Lunarmemory]

Also, that is exactly what hacking is.

[@Lunarmemory]

@Pye22 Hacking can mean a lot of things and the term even predates the computer age. I think most simply it means to extend the functionality of something beyond it's intended purpose. Also, if hacking only referred to hardware modification, why would we call unauthorized network access "hacking"

[@ysf-psfx]

They're attaching a Raspberr Pi to their pump and using an exploit to send external commands... couldn't be more of a hack.

[@chrisho1499]

I am impressed how this device is outdated, I guess it's all about money. They kept this tech outdated in order to sell you another "upgraded" device at a cost of 700 dols because there was no other device on the market.

[@user-zu1ix3yq2w]

Chris Ho a practice I call "milking"

[@gamingfreak619]

Meanwhile Europeans: Look what they need to mimic a fraction of our power

[@vary01]

Why? Those are all the same devices, moreover there is no way to buy some of the newer ones outside of the US.

[@hunterhunter2215]

@@vary01 yes but you wouldn’t have to pay for it in Europe and the industry wouldn’t try to stop it.

[@gamingfreak619]

@@vary01 👆

[@biggiesmol]

Science and technology, the only neutral, honest and wholesome part of the news nowadays. Thank you

[@SDM17RG]

Science isn't really neutral now. A lot of false articles lead to fake news.

[@PatrickBaptist]

What a joke han. Not all science is honest, alot of it makes as much good sense as getting milk from a boar.... Then again some drugs are made just from that ummmm boar milk.... Not a joke in the least. Nothing wholesome about technology, if you bothered to research it you will find the technology is killing you, RF for instance..... If that is what you worship in life then well that isn't much of a life at all.

[@tangerinetech5300]

@@PatrickBaptist I like how your one of those idiots that thiks holding a phone to your head will give you brain cancer but your telling us this from your electronic device. So have fun with cancer.

[@ironsidesupport8122]

even if the DiY loop doesnt work right away they can manually dose until its accurate. I'm glad software programmers and engineers came together to make a affordable pump for diabetics

[@jaidathompson3478]

PEOPLE THAT ARE “hacking” ARENT MODIFYING THEIR BODIES THEYRE EFFICIENTLY ACCOMMODATING TO THEMSELVES

[@memesick4ever]

Well changing any products software and making it do stuff that it isn't intended is called hacking and that is 100% illegal but whatever...

[@crazymonkey60123]

@@memesick4ever hacking can be used for good and help with software. If you're against that than support these companies that are taking advantage of people. 🤡

[@suckstosuck7605]

@@memesick4ever yeah it’s also hacking if you change your tires or repair your car yourself lmao

[@HiHi-ur3on]

@@memesick4ever Not all hacking is illegal.

[@balto7798]

It's sad when you realize how easy this could be invented years ago