Diagnosing and Treating Mast Cell Activation Syndrome (MCAS)

[@nicholekennedy362]

Omg I swear I’ve wondered if this could be what going on . Everything you’ve described matches me to a T. I’ve dealt with autoimmune diseases since the age of 4. As I get older it seems like it’s always something else . I have been exposed to mold . I’ve seen one of my 8 Drs for 40 years . My ent wanted to do some type of test on me regarding the allergies I have but at that time I had a child on a feeding tube & just had too much going on in life . The itchyness is gonna make me crack up. My scalp itches & body itches so much . She prescribed me an antihistamine hydroxizene or something close to that. I do have poTs and RA & so many other things . I just can’t imagine have another diagnosis .

[@mellimel1174]

I sounds like me too. And I haven’t found answers yet. But my spouse doesn’t want to pay for non-traditional medicine. 😢

[@alexdaugherty7472]

I can identify with the itching. It becomes too much at times. I am sensitive to the barometric pressure, so when the weather changes I react with itching, congestion, stomach pains, fatigue and sinus headaches. It has gotten worse over the last four months, prior to that it was intermittent. It can come on also with stress which leads to anxiety which leads to the same kind of symptoms. Probably your stress is causing the symptoms.

[@sailuvijl6621]

How do we test

[@ashockablack1670]

Who is the best doctor to see about this? Could a dermatologist be aware of this?

[@pjaworek6793]

Those treatments were? I heard "paramine" but can't google such a spelling.

[@Georgia-i6p]

If you have this. You have disseminated strongyloidiasis syndrome. You need helminth treatment with antibiotics . Do not use any corticosteroids, they induce hyper infections leading to histamine attacks.

[@mariogomez56]

Can you write the list of the medicines? I don’t speak english that well, and didn’t hear everything

[@qingdaogrrl]

Quercetin, DAO, Polaramine - all vitamin supplements

[@qingdaogrrl]

Meds - Famotidine to block H2 (Pepcid) morning and night. Claritin/allegra (or similar H1 blocker) in the morning. A different H1 blocker at night (hydroxyzine or benadryl for example). Cromolyn, Ketotifen. Another doctor I know recommends low dose naltrexone.

[@Truerealism747]

So how do we no if it's MCA's or fybro

[@KaplanCenter]

Thanks for your comment. In most cases, a phone conversation is the best and fastest way for us to answer your questions thoroughly. Please give us a call at 703-532-4892 and ask to speak with a nurse.

[@Truerealism747]

@@KaplanCenter I am in uk

[@lauriekline178]

@@Truerealism747 Fibromyalgia is caused by mcas.

[@marycolhenry]

Fix the Limbic system

[@Truerealism747]

@@marycolhenry yes takes some doing as found out I have Asperger's add the cause of fybromyalgia for a lot