Diagnosis of Narcolepsy

Panelists agree that narcolepsy is a group of symptoms often misdiagnosed and/ or underdiagnosed, leading to a long delay in proper diagnosis.

[@kitten1122]

idk how anyone gets a narcolepsy diagnosis because doctors refuse to test for it and claim its "just fatigue."

[@LassieSgr]

I was diagnosis by going through the sleep apnea test and followed with the full day neurological test. I was told that if consistently I am dreaming (REM) with a few moments of lying down is absolutely N. I can also continue dreaming after I am up and walking about, I do also have all the other symptoms to various degrees. Catalepsy but not full dropping to the ground.

[@CagedNephilim]

Wow this is what I go through on a daily I wanna cry I’ve been let go by so many jobs because of this.

[@CagedNephilim]

I also hope to get tested thanks for the idea

[@kitten1122]

@@CagedNephilim find a nighttime job! i find daylight, especially morning light, to make me sleepy again. i cant stay awake for more than an hour without falling back asleep. the indoor lights help so much! i work online and keep the house well lit throughout until i go to sleep and it helps so much

[@HillbillyYEEHAA]

My Dr is convinced that you need to drop down otherwise you don't have it

[@gustiable]

i’m actually taking adderall for ADD but i’m beginning to think that my sleepiness has to to with lack of attention

[@mwngw]

By chance, do patients speak of the onset of EDS subsequent to surgery and the use of anesthesia, such as Propofol? (My daytime energy dropped significantly even 1 1/2 years after minor surgery, and daytime sleepiness increased dramatically. Short term memory has also been negatively affected).

[@HillbillyYEEHAA]

If it can damage your hypothalamus, theoretically yes.

[@gustiable]

i had no idea narcolepsy was a thing i thought i was lazy

[@Roadrunner2462]

How can someone with narcolepsy get help with disability claims

[@LassieSgr]

To get through my 10th year of teaching I had accommodations of no more than 8 hours, two naps a day if needed and I could take my service dog . Also if I was late because I had just pull over and rest it didn't matter. I was very conscientious so I was never ever more than two minutes late . I did take naps everyday between classes. I took the dog sometimes That gave me a way to get disability . Also my service dog has saved my life for many many many timesparticularly at home.When I have a narcoleptic attack I often stop breathing because of the sleep apnea. If it's just a narcoleptic attack he doesn't do anything but if he hears me gasphe will jump on me lick me scratch me whatever he has to do to get me awake and breathing. I suggested for everybodyhard to come by and a lot of workbut it's been a lifesaver for me

[@gustiable]

for the record my quality of life has improved for the better

[@nickiakos7786]

Why can’t you say that Narcolepsy is a symptom of ADHD or Depression. They might have not been misdiagnosed.

[@spoon4578]

Narcolepsy is a neurological disease. It's not a symptom, and there is no clear cause for it. By lumping it in with things like ADHD and Depression, you devalue it by implying that the solution to it is the same as ADHD or depression. An example of a symptom would be "extreme tiredness", or "confusion"; not narcolepsy.

[@The_New_Abnormal_World_Order]

@@spoon4578 Are you the narcolepsy God? Actually all these things are inextricably linked, it all boils down to the brain not forming correctly due to inadequate conditions during pregnancy and early years of life. With the right support, the brain can heal from this, but pharmaceutical drugs will NOT heal the brain.

[@spoon4578]

@@The_New_Abnormal_World_Order I don't feel like explaining things as basic as that to you sorry. What I said is true and whether you want to believe it or not is up to you.

[@noraglassco9438]

Narcolepsy is not a symptom. It’s a neurological disease. If anything, symptoms of untreated narcolepsy resemble symptoms of depression and ADHD. Which is why it’s is often misdiagnosed.

[@HillbillyYEEHAA]

They're actually both connected. People with narcolepsy are more likley to have adhd or add.

[@gustiable]

where were you all my life 😂👏

[@mrs.cloroxbleach4382]

Please can someone help me out. I have many symptoms of narcolepsy. I know hallucinations are one of them. so during the day or during the night whenever I feel an overwhelming tiredness right before I fall asleep it feel like something shakes my body awake. Right before I fall asleep. It happens all the time. Sometimes I am so tired that I just ignore it and basically pass out from being so tired. But most of the time it scares me so bad I fight everyday not to fall asleep. Please anyone give me an honest opinion. Is this a symptom of narcolepsy or do I have a poltergeist?

[@spoon4578]

Hey there. The things that you describe seem to be in line with narcolepsy symptomes. I'm no medical professional but I have narcolepsy and I've experience all the same issues that you describe. I would seek care and advice from a medical professional. They will probably then instruct you to have an overnight sleep test done. From there, based on the info and the symptoms, they can make a diagnosis. I wish you the best.

[@Ginza6_]

Make sure to get an MSLT!

[@Ali-lm7uw]

It's Hypnic jerks, usually caused by stimulants. It's harmless.

[@spoon4578]

@@Ali-lm7uw I think you responded to the wrong comment bud

[@hauscchildt6418]

My hallucinations due to Type 1 Narcolepsy are pretty fluid and expected, only once in a while will they spook me. My main issues are sleep attacks, the infamous fatigue, and the overwhelming desire to constantly be in bed and sleep in the hopes of magically somehow waking up with some energy, which ends up never happening. If you haven't gotten a PSG, MSLT, and MWT done yet, do it. I left it untreated and it eventually caught up. Please consult a doctor though, the overwhelming sleepiness sucks and to have people tell you to your face, "everyone get's tired," hurts. I'm surprised I didn't pass out typing this.

[@gustiable]

i don’t care or i don’t mind that the medication is a little pricey you can’t put a price on your health

[@dtjw8709]

What medication are you on?

[@HillbillyYEEHAA]

But the long term effects of stimulant use is horrific.