Disabled by Differences or Environment? A Look at Social Vs. Medical Disability Models

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Mom on the Spectrum

Mom on the Spectrum

Жыл бұрын

This video explores the differences between the Medical and Social Models of Disability. This is an invitation to discuss: What accommodations could be made to help you feel more connected to the world around you? Please approach the comments with curiosity and kindness.
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Пікірлер: 105
@withheldformyprotection5518
@withheldformyprotection5518 Жыл бұрын
A revelation that occurred during the pandemic was that I didn’t actually dislike my job, I just disliked the environment that I was expected to perform my job within. Working from home, where I could control all aspects of my environment, allowed me to focus on the work, which I love, and not be anxious and exhausted at the end of each day. Now that I am back in the office environment several days a week, the mental and physical/health issues that I experienced for most of my career have returned. With the new ability to distinguish between the work (love) and the job environment (dislike), I can use this to center my focus on the work, and not let the environment dictate my feelings about the experience. This example is intended to say that for my particular situation on the spectrum, the social model fits better than the medical model.
@sueannevangalen5186
@sueannevangalen5186 Жыл бұрын
I have heard of the social model of disability before, after I saw "Finding Dory." That part where Bailey the beluga with the damaged sonar and Destiny the visually impaired whale shark are about to break out of the rehabilitation facility, and Destiny is terrified of bumping into everything in an unfamiliar environment, Bailey tells her, "Destiny, there are no walls in the ocean"... That illustrates the social model very well. 😊
@TheWilliamHoganExperience
@TheWilliamHoganExperience Жыл бұрын
Lol... autistic sailor here. Few (but far from zero) walls in the ocean. But plenty of reefs, rocks, nets, bouys, jetties, ships, islands, piers, and even windmills to slam into if you don't have a good chart, compass, knot log, depth sounder, dividers, paralell rulers, know how to use them, keep a sharp lookout, and an accurate, frequently updated dead reckoning log. Trust me, even with GPS navigation, you still have to very careful navigating at sea - especially near shore. Just sayin' - even without the awful, invisible social barriers and discrimination autistic people face, life in the social seas is still gonna be rough and full of hazards and challenges. Removing social barriers is just gonna make it WAY easier for us, because social barriers are what sink most autistic ships - mine included. Which is why I live like a refugee on a boat in a harbor and sail it on the Pacific Ocean now. It's way safer than the neurotypical social matrix for me.. ;-)
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
oooh this is a lovely example, SueAnne! Thanks for sharing.
@Nirosha101
@Nirosha101 Жыл бұрын
Wowww
@amandamandamands
@amandamandamands Жыл бұрын
The biggest problem with the medical model is that it is structured to treat and cure. The social model is that you need help and accommodations to live your best life (and some of those may be medical treatments). It took me a while to accept that I was disabled because of what society presents to you as to what disability looks like. I don't think that the social model stops people being called disabled as there are always going to be things/systems that are disabling no matter how well people try to plan things out as quite often there are conflicting supports that people need eg at some curbs there are bumps for blind people (where I live they have them at bus stops so they know exactly where the stop is), that makes it harder for people in a wheelchair to get by.
@TheWilliamHoganExperience
@TheWilliamHoganExperience Жыл бұрын
This is an extremely important topic for autistic people, because autism is litterally socially disabling. Yes, it brings other physiological differences like extreme sensory sensitivities / insensitivities, but the primary challenges I've faced as an autistic person are social. Autistic people are said to like being alone. Perhaphs because of how we are treated if our interests don't align with cultural values related to STEM type subjects deemed useful to nuerotypical society. News flash: Not all of us like computers and counting match-sticks. The fact is, we don't get to pick our gifts. Our gifts pick us. Sometimes for a few days, sometimes for a lifetime. We have zero control over this, and if we are not allowed and able to pursue them fully, it kills us to the extent we cannot. So I've come top think of my autism in two different but complimentary ways: With unaware and unaccomdating typical nuerotypical society, my autism is a severe form of disabilty. It renderes me completely unable to function. This, from both a Medical Disability perspective (nuerotypical pathologizing / normalizing perspective) and from a Social Disability standpoint (enviroment and social context created by and for nuerotypical people). The two are just different aspects of the same problem: Insensitivity, ignorance and arrogance towards people who don't fit well into the NT Matrix. Throw in the deception, greed, gluttony, lust and competition which seems to motivate nuerotypical people when they form social groups to fully understand how disabling autism can be in such environments. Unless you are Bill Gates or Elon Musk etc, and your special interest is world domination. And you came from money. And are a driven, ruthless STEM genius / psychopath / robot who loves money. Lots and lots of money... The problem is love. Autisic people are fundamentaly driven by love, and we are unable to compromise on this. I our interests are gifts which choose us as their messengers. These gifts are fragile and precious. They hold great value for humanity. Autistic people are responsible for some of the greatest artistic, musical, philosophical scientific, mathmatical, and litterary works in history. With other autistic people and those few but precious nuerotypical people who understand, accept and support me, autism is a gift. Creativity and insight require standing outside of the conventional world. So we really are aliens. Neccesary aliens full of love for life and the gifts we bring to the world. All I've ever tried to do is to share the fragile gifts I was sent to earth with. They don't belong to me - I'm just a vessel. A fully human vessel. Imagine how crushing it's been to have the gifts rejected because I'm an alien who can't hear, understand, or communicate in the primary but unspoken language of social convention.... It's tragic for all of humanity when this happens to any human being. Autistic people are simply more at risk because our differences are greater than average. We are canaries in the social coal mines of a cruel world. We are here to make things better for everyone. For this we are ignored, while being punished for our differences. It's a hell of thing, love PS, I've been a licensed architect for almost 25 years. Your building design analogy is exactly how we design buildings in America now. But it took enactment of the American with Disabilities Act in the early 90s. The ADA is Civil Rights Legislation. It protects all people with disabilities. By law, public facilities must accomodate us. Same for employment, public or private. To not do so when asked is a violation of civil rights, exactly the same as not letting someone eat at a resturaunt because of the color of their skin. It's under the same legal umbrella. So if autistic people really want to make the world more accomodating, we have a very powerful legal tool to do so. The one thing that's missing from all the Autism Awareness and Education channels that I've seen are discussions about the importance of knowing and asserting our rights when it comes to discrimination against us. ...and I think it's important to call it discrimination - because that's exactly what it is. At some point, we have to stand up and refuse to ride in the back of the bus. Class action lawsuits have a way of getting the attention of scoundrels, and bringing them to heel. I'll bet a lot of really good lawyers are autistic and could form a really powerful legal advocay group on our behalf. ...and how much you wanna bet Elon Musk would cheer and fund such a thing? He knows where his bread is buttered ;-)
@Jas-zzz
@Jas-zzz Жыл бұрын
Wow . Good points🌺🌺🌺🌺😻
@bethanythatsme
@bethanythatsme Жыл бұрын
Thank you for sharing this.
@BCSchmerker
@BCSchmerker Жыл бұрын
@LA-Voodoo *Subsets o' the autistic struggle with emotional disabilities.* Emotional disabilities quaify so much as invisible disabilities as rheumatism, postural orthostatic tachycardía, Ehlers-Danlos, &c. from the social perspective. The Invisible Disabilities Association is on mission to advocate for the emotionally and otherwise disabled.
@MsOkayAwesome
@MsOkayAwesome Жыл бұрын
This is an incredible comment! So insightful. Thanks for taking the time to explain all your points so well
@aaafiddleplayer6511
@aaafiddleplayer6511 Жыл бұрын
Love this, thank you!❤
@mmegraham
@mmegraham Жыл бұрын
I grew up as an autistic girl in a family with one autistic parent. I never felt abnormal, because normal was autistic. And I was able to have friends and unknowingly mask and figure out how to fit in without a lot of trouble. I now have two autistic children who live with me. It's only lately that I've realized how very differently my husband's brain is from the other brains in our household!
@kdcraft89
@kdcraft89 Жыл бұрын
Ha, ha, I can't think of a single person in 3 generations who was a "normie." Of course, there were personality differences amongst these people. I don't see much discussion of the personality differences amongst autistic families. There's a lot to be understood there. (The "big five" model of personality is one such model). If I'm an introvert and my brother is an extravert, even if we are both autistic, there can be clashes, for instance. Autism for each A, I has different challenges. Lots of other dimensions, like sensory processing differences, food dislikes, etc.
@muzikelektronik
@muzikelektronik 10 ай бұрын
Look, no hate intended here or nothing but this woman isn't autistic. Autism displays very recognizable traits, especially in communication, socially. The neurological disfunction shows mainly in the inability to pick up on the non verbal lingo. It doesn't matter how 'high functioning' and 'high masking' one is. There is also no display of extreme interest in something. Or maybe only in the views, likes and subs on this channel ànd how well her online courses sell here. It's an insult to people who really are autistic. And as far as her diagnosis; I would like to see that... In doubt if it's an actual neurologist who confirmed this. Probably some therapist (no doctor) who benefits from any diagnosis.
@muzikelektronik
@muzikelektronik 10 ай бұрын
And I'm sorry. I put my (other) critical comment in reaction to yours. That's a mistake, no criticism intended on you... My apologies
@sueannevangalen5186
@sueannevangalen5186 Жыл бұрын
One accommodation I fantasize about getting would be having a quiet, softly lit, solitary place to retreat to at any social gathering, for when the situation becomes overwhelming. Or just anyplace that would be considered a No Talking Required zone. I think it's a fantasy because not everyone has extra rooms in their homes. But certainly the bigger establishments could manage something like that, I think 😊
@pandapuffzee8255
@pandapuffzee8255 Жыл бұрын
Not just the bathroom. XD
@sueannevangalen5186
@sueannevangalen5186 Жыл бұрын
@@pandapuffzee8255 😂 Right, not just the bathroom, where one will eventually be interrupted
@MySkillfulmeans
@MySkillfulmeans Жыл бұрын
Portland Airport / PDX has this very thing. It's wonderful.
@mymobile5014
@mymobile5014 Жыл бұрын
Amazon fulfilment centres have rooms like this. `One of the only companies I know of that care that much about their staff.
@shasita3361
@shasita3361 Жыл бұрын
I would LOVE a low stimuli room at work. Open office plans are the worst :(
@corafishy
@corafishy Жыл бұрын
I think that one really huge thing that would help autistic people in school settings (k-12 to university) is if teachers and professors were educated about the communication differences that may arise in different students. Masking and fawning can sometimes be interpreted as flirting, and this can lead to students being put in situations where the professors think it is OK to indulge in a romantic relationship. Because they think the student "came on to them". As autistic people, sometimes we don't realize we're in a particular type of interaction until it is so deep along that it is dangerous or incredibly difficult to extract ourselves from. Further, we do not always understand what is inappropriate ... Teaching educators to practice seeking enthusiastic consent (because we know teacher-student relationships aren't going anywhere) and to directly communicate in a way that doesn't assume interest would have made my life a lot less chaotic.
@BAlexThompson
@BAlexThompson Жыл бұрын
On this journey, I'm constantly learning that things I thought were just my own "quirks" seem to be shared by many people in the community. I now realize that I'm a strong masker and I've been building and revising that my whole life. What really sparked something from your comment was how these things can be interpreted as flirting. Often in my life I've been considered a flirt or leading people on. People often thought I was joking when I told them that I don't know how to flirt and many times I can't tell when I'm being flirted with. Over the years, I've learned to recognize certain things... enough to get by. But different personality types and in different situations... I still don't have a perfect grasp on it. I'm happily married, so I'm not pressed too much by this particular facet... but I am concerned about accidentally sending out the wrong vibes/cues in a myriad of situations, especially occupational related.
@rufiohaspan
@rufiohaspan Жыл бұрын
I actually forget I’m autistic until I have to drive somewhere like on a highway or in a city . But when I’m just hanging out at my parents house I’m perfectly fine and just spend my time doing my hobbies and what not . Though I also feel disabled when I look at my brother that’s 37 ( I’m 34) and he’s a lawyer and married with a house and I just work part time and live with my parents atm . ( though I’m gay so it’s harder to meet people and my brothers not so it’s not all autistim related on that end )
@RootwitchQueen
@RootwitchQueen Жыл бұрын
This is something that I've always had to consider because I am physically disabled and used to be in a wheelchair like...almost full time. I've since been able to move from using that wheelchair to using a walker on really bad days and a cane on less awful days lol Making my environment more accessible is something that I wish that I could do in regards to my physical disabilities because there are just some places that are really difficult to navigate with a walker or a wheelchair. It keeps me in the house more than I would like because managing the world as a disabled person who uses assisted devices is just...hard lol As far as being autistic and ADHD and looking at that from a medical/social lense, I DO think that both of those things FOR ME...are disabilities...because while being auDHD is awesome...it doesn't come without severe struggle and absolute mayhem some days. I don't think I could classify myself as being able-bodied even if I weren't physically disabled because there are just some things that I cannot do because of my autism/ADHD that make me feel as if I am not able to fully function like I want to. There's just SO much to this topic that I want to touch on but I don't have the bandwidth right now to organise my thoughts in a cohesive manner and that makes me so frustrated because this was SUCH an amazing video and I want to talk about it lol Thank you so much for broaching this subject and I look forward to future videos on the topic because it is one that I think we need to talk about more as a society AND as a community. Much love from Virginia ❤
@evelynn1173
@evelynn1173 Жыл бұрын
Yeah even though I have no physical disabilities I definitely feel like I have a disability with autism. Like I get so exhausted after doing activities that most people would be fine with. And some of the activities arent even chores like driving into town and doing fun stuff leaves me in a state which I have to sit and do nothing for hours and I want to do stuff but Im just tired.
@joyh6770
@joyh6770 Жыл бұрын
I don't know if this can become an accommodation in the workplace, but I function way better in a 4 10s work schedule as compared to 5 8s. I find it better to get all the work done as soon as possible and have 3 whole days to recover and enjoy. 2 days off just isn't enough time to recharge from the week, which usually puts me in a cycle of burnout.
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
I don't know, I think what the demands of the work itself are may place more or less stress on different people. I doubt my ability to do long hours of certain sorts of jobs.
@deviatedspectrum
@deviatedspectrum Жыл бұрын
Great start to an important conversation. One thing that strikes me about the social model is that accommodations for disabled people often help everyone. For example, if you've got a baby in a stroller, a ramp is a wonderful thing. Great co tent as always. Thank you for all you do!
@lizhyink5636
@lizhyink5636 11 ай бұрын
Yeah, "universal design" of public spaces just makes sense. It becomes more welcoming and navigational.
@beautyandbeyond347
@beautyandbeyond347 Жыл бұрын
All of this puts into words our experience with public school and our daughter. She's 11 and HF autistic. Social struggles and anger issues that result in threats. Public school doesn't take behavior like hers lightly. In our manifestation ard, the principal told us, no joke, they've exhausted themselves in trying to help her and they don't have the man power. We moved her to a charter school for ND kids and she's doing much better!!
@kdcraft89
@kdcraft89 Жыл бұрын
I've studied the idea of models over the years. Here's one take: We can never know reality fully, but work from models that more or less approximate reality. While this is often helpful, the model is never the reality. These debates over models are simply refinement of the models. I try to form my own ideas which may or may not line up with a particular model. I tend to think that autism is a normal variation in human behavior, and evolution has preserved this variation because it had value in particular environments. I loved hearing Temple Grandin speak about the genetics involved, highly complex (we don't understand them). Plus genes interact with the environment. Culture is part of the evolutionary process, too. Current culture, esp social media etc tends to favor simplistic yes-no, right-wrong etc. This is why I want to spend limited amounts of time online, I don't want to argue with strangers in my head. Of course, we also find like-minded people (about autism) online and this can help us understand ourselves and others better.
@nwingatechi
@nwingatechi Жыл бұрын
I’m trying to reconsider environment at work to make it more comfortable for my senses. New chair. Moved excess file cabinets out of my cubicle so I don’t feel trapped. Reduced items on my walls and desk. Small things but they make a huge difference.
@mortyblink8355
@mortyblink8355 Жыл бұрын
Great to bring this up. I' d add that living in the society with zero autism-awareness is physically crippling. God bless you. Amen
@whitneymason406
@whitneymason406 Жыл бұрын
Great topic! Have a good weekend friends!💞
@gracefulkimberella
@gracefulkimberella Жыл бұрын
I think understanding is the beginning of change. So development of phycological investigation is where autism awareness rightfully began. Furthering the conversation, as you are doing here, is the necessary next step. Develop what "we" know while simultaneously developing how we want to present this information to "them." Then public education is the third part. As we discover what works, we'll educate each other. Then this cycle moves forward while the next generation picks it up. So, as with all things in life: make a discovery, learn what you can, discuss, develop the knowledge, educate appropriately, repeat. It's when we stop or detour progress for whatever reason that's we begin to fail. We're not failing now, we just have a different way to talk about it because generations before us noticed what they did.
@cmyk01092
@cmyk01092 Жыл бұрын
I really like this topic! I am looking forward to continuing this conversation, bc it is exactly what I am having within my circle of close friends. There are three of us: 1) who has been formally diagnosed with ADHD & “As🍔’s” (what do we use instead nowadays?) 2) a neurotypical who came from a family with various addiction problems 3) myself who is a very “highly functional” neurodivergent person. My #2 friend thinks #1 uses his “disability” to be an “@$$40L3”. Being stuck between the two & who can understand both views, it’s been such a struggle. While I am still very lost in terms of how to mitigate the differences of the two worlds, I have started bringing these differences to the surface, at least with my partner and I. As mentioned in the video, the way we define “disability” is DRASTICALLY different. I think we can start there. For me, often these conversations turn pretty interesting. ☺️
@pascie12
@pascie12 Жыл бұрын
Thank you so so much for making these videos! It's been a huge revelation and comfort to just know this is what's been going on with me. It all just fits!
@michaelhaardt5988
@michaelhaardt5988 Жыл бұрын
I love the way you structure this topic! I believe both models are in fact true and do not even contradict with each other. The key to any progress is to learn people can be way more different than you could possibly imagine. It's something the majority outright says they know and accept, when in fact they have no clue of the actual extent of difference unless they bump into it on a very personal level, and even then many refuse and reject it. That behavior can be explained by constructivism and it is a tough and real problem I have no solution for. It requires to question the way you build mental models of the world and once you crawl into that rabbit hole, you'll find there are a few more that look fine but actually are wrong. People are by no means keen to do that.
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
I so agree with you!
@IllyDragonfly
@IllyDragonfly Жыл бұрын
A little area with some plants and where it's required to speak lowly (like in libraries) would be nice also in offices, restaurants and other places where many people hang out. It would make me want to flee less frequently from social places if I had a corner where to 'recharge' and just get rid of the extra energy.
@michele0324
@michele0324 Жыл бұрын
I have ADHD, Ehlers-Danlos, POTS and Dysautonomia (dysregulated ANS) so I struggle with sensory issues and executive function challenges (in addition to dysregulated bodily systems). I came across your channel last week and have watched nearly all your videos. Your experience coupled with your knowledge has been extremely informative, helpful and validating for me. I value your channel and this community very much. I thought I'd pass along two YT resources that helped me with conversation skills and being mindful... 1. Wizard of Words, Dan O'Connnor, is a communication expert whose videos address conversation and social skills. "Small talk for introverts and those on the spectrum." is a great place to start. 2. SagaJohanna is an autistic Scandinavian creator and minimalist. Her videos have an ASMR vibe that I found to be helpful with relaxation and mindfulness. Enjoy!
@tomsale5142
@tomsale5142 11 ай бұрын
So you have pain with your dysautonomia
@leosthrivwithautism
@leosthrivwithautism Жыл бұрын
Controversial is the right word. Because when I've attempted to talk about the same topic it turned into a tense conversation. And I wasn't even taking a side just like this video I was trying to be non bias. And offer my views on both sides and what I believe are the pros and cons of both sides and yet some people felt like it was almost a personal attack they got so tensed up. But this video explains it in a language much better than I can explain it. Very informative!
@camclark7046
@camclark7046 Жыл бұрын
Undiagnosed autistic here. I only started to suspect that I am autistic less than a year ago, so I am very much still learning. Autism is both: a medical disability and a social one, but unlike with some, the to models cannot carry equal weight. For example where the weighting is more even, I am nearsighted. The medical solutions is a corrective lens. The environmental adjustments can be things like high contrast edges to steps or curbs. Or online restaurant menus so I can zoom in and hold my phone close enough to see without my glasses. With my autism, there is nothing medically to fix. It's called a "disorder" because medical science says "you don't fit our mold so we should be able to adjust you." But there's nothing to fix, because there's nothing broken. Our brains are just wired differently. The only treatment that we have is to look to the social environment. There are attempts to teach autistic people how to behave in this world - I've been trying to teach myself the tricks of social behavior all my life, and I now know this is masking. But it is purely external change and does not do anything to alter my brain. I need social conditions to change in order to thrive. I need options for sensory- friendly environments. I ways to escape when everything becomes too much. I need more than anything to understand autism and how it manifests in me. The medical approach is important because a diagnosis is a significant step in the journey of understanding. But it is only one step, and one that is not critical for everyone. Channels like this one by autistic people and for autistic people are incredibly helpful. Thanks so much for this channel and the part you play in my journey.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
💓
@passaggioalivello
@passaggioalivello Жыл бұрын
I love being autistic, but neurotypicals are trying to make me feel like I am disabled. This isn't a planet for neurodivergent people.
@kdcraft89
@kdcraft89 Жыл бұрын
Great point! Sometimes highly masking autistic people will do that, too. Be overly critical. Once (and if) they accept themselves they would be less critical and less likely to try and police others behavior.
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
@@kdcraft89 I think that happened in a couple generations of my family, judging from old stories and personal experience.
@tomsale5142
@tomsale5142 11 ай бұрын
Use the middle finger in em I've learnt my lesson the hard way
@leehunter639
@leehunter639 8 ай бұрын
I appreciate your video. Thank you for your perspective. I’m raising a son on the Autism spectrum and I am going to watch this again tonight with him.
@darbydelane4588
@darbydelane4588 Жыл бұрын
All models for defining reality (including those defining human beings) are socially constructed. I love your comparison between the social and medical (deficit) models of neurodiversit(ies). Well done.
@emilywagner9186
@emilywagner9186 11 ай бұрын
Hello! I loved this video so so much! I have been exploring these videos because I do seem to relate with many autistic traits and have been exploring that, but seeing this particular one I wanted to share a little on my perspective as a therapist. I work with SMI (mostly psychosis and bipolar with delusions…that kind of thing) and I found this to be incredibly relevant what I do. It has been so incredibly frustrating working with doctors and government assessors when I have someone who is experiencing mental health crises daily and getting no help, but the moment they, for example, break their leg they can get all the help and resources in the world. I really appreciate how you broke down both models and put this in perspective. Let’s stop trying to “fix” people and start giving places the resources needed to make society more accommodating to people with different thoughts, behaviors, and neurologically 😸❤️
@HealingHands_Rusty--Parks
@HealingHands_Rusty--Parks Жыл бұрын
Holy biscuits soaked in gravy grease, I didn't even know there were medical and social. I liked the description, well said and a brilliant important topic to the team of Mom on the Spectrum KZbin channel. I have known people on the spectrum but there are things that make lots of sense. But I don't know if I myself AM on the there (maybe undiagnosed) but the folks I have known are spectacular beings and so kind, thoughtful, considerate, capable and intelligent. I'm so happy this channel is here. Thank you autistic community for honoring the world with your life and pressence and Mom on the Spectrum KZbin channel for the insights and information to help those on or maybe know of someone on, or wonder.
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
On topic, I like this analysis of the subject how to view autism. Because I can see merit on both sides. Totally off topic, but I love your expletive that has no bad words in it! My family has a similar tradition. My youngest aunt, for instance, says Great horny toads and little hammer handles!!! When she feels an expletive is called for😅😅😂
@galespressos
@galespressos Жыл бұрын
Thank you! As was said here, we need to invite more people to the table to be able to move forward. @Mom on the Spectrum Also, being sensitive is a strength. Being aware is a strength. Being able to pick up information that other don’t and knowing it needs to be responded to is important. There is a lot of information that society is missing out on, so true and I’ve also said that. We are like antennas as you said. I’ve said we are like canaries in the coal mine. People should pay attention not say what a stupid canary for getting sick or dieing. Typing here from mattress. If people would not devalue and would remember good, it would be helpful. Small accommodations help. Further limitations and devaluing, forgetting all the good done and good existing, and all the attempts, destroys value.
@tomsale5142
@tomsale5142 11 ай бұрын
Do you suffer with pain with your autism just found out lately I have Asperger's add hypomobility fybromyalgia pain
@logicalameetsworld
@logicalameetsworld Жыл бұрын
This is a really topic and I'm glad your bringing it up. When it comes to the example you gave about Neurodiverse people creating the leaps forward in humanity and how they're remembered, I find that what's left out are the struggles they faced being wired differently. Most of the bridges I've built to the world have only been built from one direction. It would be nice to have afew builders offer to meet me half way. This Autism isn't going away, around 1 in 34 or 36 children will be diagnosed going forward so this will gave to change at some point.
@Jas-zzz
@Jas-zzz Жыл бұрын
Good point if we are use to bending backwards all the time or most of the time for others no wonder we feel can feel disabled having to work twice as hard while being way more "responsive".
@logicalameetsworld
@logicalameetsworld Жыл бұрын
@@Jas-zzz Sometimes it seems that because out brains are different it's solely our responsibility to fit into the world, like the movie Alien Nation only we didn't crash land on earth we were born here.
@logicalameetsworld
@logicalameetsworld Жыл бұрын
@@dr.christopherjohnson935 I live in Kansas, I've never believed in safe I believe in preparedness and redundancy. I did not grow up in environments you would call safe. Regardless I am fine with my life and have a wife who over time has helped me build bridges to the world. I am not the easiest person to know but I do try to develop friendships as much as I can.
@L3o-baker
@L3o-baker Жыл бұрын
if academia was more in tune with the social model of disability i feel like they would have realized that autistic burnout predicted zoom fatigue
@CatholicOnTheSpectrum
@CatholicOnTheSpectrum Жыл бұрын
One of the biggest issues for me was always being misunderstood by everyone else, to the point where it even cost me my dream job because I was told "The crew doesn't trust you" without any real explanation. (I came back with a better job so I mean, it worked out, but still...?) Then, certain sensory issues made it hard to take care of a family because I would get put into shutdowns or meltdowns. I do extremely well in my current career, but personal/social life is just a wasteland.
@TheWilliamHoganExperience
@TheWilliamHoganExperience Жыл бұрын
Totally.
@TheTalieincali
@TheTalieincali Жыл бұрын
oof, same. I'm trying to recover from a year-long burnout. I can do work, but I literally have zero friends and zero social life.
@CatholicOnTheSpectrum
@CatholicOnTheSpectrum Жыл бұрын
@@TheWilliamHoganExperience It drives me up the wall.
@CatholicOnTheSpectrum
@CatholicOnTheSpectrum Жыл бұрын
@@TheTalieincali I hate how I'm so good with work but so bad at personal life.
@TheWilliamHoganExperience
@TheWilliamHoganExperience Жыл бұрын
@@CatholicOnTheSpectrum Ever heard of "The Milgram Experiment" or "The Stanford Prison Experiment"? Nuerotypical people are, uh.....animals my freind. Those experiments proved it, and they've been replicated dozens of times with the same same results across cultures. If you are unfamiliar with them, seach KZbin - Plenty of clips and documentaries about both. They were conducted in the 1960s, as researchers were trying to figure out why ordinary humans become so cruel under certain circumstances - you know - like in Nazi Germany and stuff. Take a look, and then tell me why it's important to fit in with these monsters. Science and psychology dtill don't have any answers for any of it, so it's just ignored - like it doesn't exist. When Milgram published the results, he was driven from Yale. It cost him his career. The Stanford thing is even more disturbing to me as an autistic person, because it shows how individual sadism aggregates and amplifies in group settings where there's an imbalance of power. Grab some popcorn and take a look....
@lizhyink5636
@lizhyink5636 11 ай бұрын
Well said. Thank you very much for explaining this.
@rebeccadolashewich7094
@rebeccadolashewich7094 Жыл бұрын
I would feel more connected to the world if I was actually heard & protected when I go to authorities here in Texas for help. I am neurodivergent & when I reported being sexually assaulted & left for dead a detective told me it was the alcohol talking. It’s scary when you can’t get help from police to be protected from such terror. I called 911 when my mother in law’s boyfriend assaulted me & my children, and the police in Texas sided with who assaulted us. The deputy even put me on a psych hold because he said he didn’t like my attitude after I was assaulted. I was held involuntarily at horrific facilities where I was abused and saw so many disabled people abused. I went to the police again, to not be protected. It’s really scary here for disabled people in Texas. I graduated from UNT & was registered through the disabilities’s office because I am ADHD. When I was held involuntarily at facilities here in Texas where I was abused by psychiatrists, they refused to even call my own psychologist or acknowledge that I am ADHD. A bully that was a psychiatrist told me I was manic as I was forced to clean up menstruation blood of another patient. It was hell. Tarrant County Sheriff’s Department didn’t even care about any of the disabled people I saw abused. Only one of the facilities has been closed down, & the courts here in Fort Worth let the psychiatrists who tortured me and countless patients get away with 55 felonies. It’s very scary here. I advocate for women, minorities, disabled, & LGBTQ families here that are being so abused & the police even threatened me to leave politics alone as they held me and forced me to go to court to get custody back of my own sons after being held involuntarily at Sundance Behavioral. If we could get Justice when we are tortured, that would make me feel more connected in this world. Until then, we will not let those who torture disabled people and get away with it scare us from telling others what is happening here. It is happening. Sundance Behavioral. Tarrant County Sheriff’s Department. These bullies will get held accountable for their crimes one day & I’ll feel like I once again connect to the community around me. I’ll feel safe. Disabled people are three times more likely to be assaulted.. we need more places to go to for help when we are being terrorized in scary criminal institutions. We need people out there who care about all the people being tortured in “rehabilitation centers”, where corrupted psychiatrists will hold people involuntarily for a paycheck, even when the police brining the people in are the ones who need to be in the psych wards for being psychopaths. It’s scary here in Texas. Yet, we won’t stop standing up for our rights. Far too many have been harmed and far too few care. www.cbsnews.com/amp/texas/news/sundance-mental-hospital-pleads-guilty-to-criminal-charge-in-plea-deal/
@alisonmeeks5580
@alisonmeeks5580 Жыл бұрын
Excellent points.
@moonowlmama
@moonowlmama 11 ай бұрын
Wow, thank you for this succinct video, as the topic has been a bit muddy for me to grasp until now. 💛
@MomontheSpectrum
@MomontheSpectrum 11 ай бұрын
Glad it was helpful!
@OtakuDYT
@OtakuDYT Жыл бұрын
I think why the social model is so poorly seen is it actually requires hard work from the world as a whole to accommodate disabled ppl rather than just labelling us and leaving us the burden to "fix" or learn to live with our own issues.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
Yes. Some mature and challenging changes need to be made and it isn’t just simple straightforward solutions. It’s cultivating a new mindset.
@davidlanier7006
@davidlanier7006 10 ай бұрын
I just ran across your KZbin page recently. Okay, like it or not, we are disabled, period! It doesn't matter if you split the disability in to different categories, we are still disabled. We're also considered mentally ill, too. And of course that's a form of disability. The problem for us is that we are given little or no consideration for our disability. Most people do not even attempt to understand us and our disabilities. If we're not disabled and it's only our environment that makes us disabled, then why are we sensitive to so many things like light, sounds, smells, textures? Why do we have complete meltdowns over simple things? I hate to admit to it because it also applies to me as well, but we are most definitely disabled. That's my story and I'm sticking to it.
@staceyruwoldt9158
@staceyruwoldt9158 Жыл бұрын
I thought long and hard about it but I'm right on board with you Taylor, people changing the language they use to describe neurodivergent people.. Is a good start said with love and respect 🥰 Like how I quite like the term neurodivergent, but I especially love the terminology 'Uniquely human'..... That's my most favourite of all when describing myself, my neurological differences 😍 If more neurotypicals used that language and thought of us as uniquely.... Human, which means different and beautiful and born exactly as we were meant to be, the world would be a much better place said with respect, love and kindnesses 😘❤💜💚 xoxox
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
💓💓💓
@FoadAbdulla71
@FoadAbdulla71 6 ай бұрын
thanks so much Ask when these models were created, by whom, when, and where
@Jas-zzz
@Jas-zzz Жыл бұрын
Yeah I think our environment makes us disabled. I am autistic, ADHD, C-PTSD, dyslexsic, by the way. The way the world works is not based on the love for the gift of life and love of others. Instead people are hyper focused on any little thing that makes someone different. Even just by briefly looking at someone, their is judgement over the shallowist of things, the way we look. Prejudice . Things can be better then they are though right? More knowledge more power. Doctors especially in the US it seems need to listen to adult autistics instead thinking they know everything because no knows everything. That way everyone is aware. What I have seen with our community getting together is just that❤. I listened to a high functioning comunicating with a very low functioning autistic and it was amazing !The low fuctioning adult could not talk bur had one of those devices that help you talk to others? How much was learned and how much they had in common. But what usually happens if you meet a family member or doctor that are more familiar with so called lower functioning they usually say something like ," well my ( brother, sister ,cousin, etc) who is diagonsed and is nothing like you . They need way more help, why are complaining." But can you imagine how much better the asistence would be for kids even if the proffessionals listened to adult autistic individuals who can communicate better then when they were little?❤❤❤ We learn so much from each other and its refreshing to see☺
@Federico-zm1ym
@Federico-zm1ym Жыл бұрын
Thank you for thank you for making things awesome and right videos how I would like to know of how I would like to know of how an autistic person's brain works like for meltdowns and all that you create a you create an amazing content thank you so much and I love you with the bottom of my heart You're the best I love you Taylor
@thegracklepeck
@thegracklepeck Жыл бұрын
Totally unrelated but is that an Urtext piece of sheet music on that music stand? Who plays/sings? My big passion as an autistic is music. :)
@dhrlh
@dhrlh Жыл бұрын
I feel bad that you feel you need to walk on eggshells talking to this community. It means the community needs to be more kind in the comments.
@brigidbuechle6968
@brigidbuechle6968 Жыл бұрын
Where does this idea come from that if you have a disability there is an implication you are less than?? A disability isn't a character flaw -- it shouldn't be something to be ashamed of. I am autistic and I consider it a disability. I don't think of myself as less than. Do I think society can accommodate people on the spectrum better? Yes! But, being autistic is a diagnosis for a reason. It is not an identity. Similarly, someone with a wheelchair who cannot walk is disabled because they cannot be autonomous. I think having different disabilities can shape and inform who we become, but they aren't who we are. We are more than the sum of our individual variations that deviate from the standard.
@rocstar279
@rocstar279 Жыл бұрын
🙌🏽🙌🏽🙌🏽🙌🏽
@msrhondaj6151
@msrhondaj6151 Жыл бұрын
I a mom to 3 beautiful kids who are autistic and it has been quite a journey thus far❤. The following TedEx talk really shifted my thinking around disability vs disorder : kzbin.info/www/bejne/d2KkhpeXfZJ4hq8. The “Double Empathy” study is quite insightful on how subjective the view around autism and its label of “dis-ability” is placed on us by those who have overtime developed their own standards for “normal”. I am more prone to view autism has being differently abled than just putting it straight into a box of disabilities. If we started off in a world of ONLY neurodivergent people and only had that view and experiences in life the topic of neurotypical individuals would then be labelled by us as the ones who are disabled in our autism “normal” world. Ultimately our world is neuroversed and that means accommodating both neurodivergent as well as neurotypical individuals for all of our abled abilities whilst we support and accept each other as well for those abilities that are differently abled.
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
That would be the ideal, but I don't see it happening in my lifetime.
@SuperMar10GalaxyBro
@SuperMar10GalaxyBro Жыл бұрын
😊😊🎉🎉❤
@GreenBlueWalkthrough
@GreenBlueWalkthrough Жыл бұрын
Why get dianosed with autism if your not disabled by it? Like I was disnosed at age 4 and my Mom oped to forget about it becuase of the label... And only remembered when we went to see the mental US gov disablity doctor who happened to be an autism specialist and saw I was very autistic and asked my Mom if I was ever diagnosed... Then stated "Why was he not on disablity sooner?" Because it's that obvious I am disabled with autism... Which if you weren't why get diagnosed? What does it matter?
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
It was that obvious to an expert in autism. Not a lot of people have that training. It can affect your life deeply even if you get by at work ok. It is a matter of identity, often, and self acceptance. I was hypercritical of myself before I was diagnosed. I didn't know why I couldn't do many things in social settings that others did easily. Being diagnosed allowed me to let up on hounding myself for "dumb errors" that were the result of my autism.
@ShaunaAurora
@ShaunaAurora 10 ай бұрын
My partner and I are both neurodivergent and we talk a lot about how our environments haven’t been supportive to us. We are late-presumed ADHD and Autistic. I actually do have an ADHD diagnosis now and on waitlist to be evaluated for Autism. Neither of us felt like we were given the chance to develop our skills or shine. Our families and schools were not supportive and day to day life can be challenging. I often feel disabled like the medical model presents, but then I will also realize that my environment doesn’t support me. It seems as though the more capitalism progresses into late stage, the less society feels welcoming and accommodating for me/us. Some things have improved- like the ability to shop from home and meal kits have been life savers. But work expectations increase to levels that are unhealthy for us and pay and benefits don’t keep up with the cost of goods and services. We are like the canaries in the coal-mine of the dysfunction this is creating. It’s common for neurodivergent folks to have autoimmune disease and my partner has asthma which is exacerbated by climate change from smoke from fires. My inflammation is made worse by lack of access to healthy foods. So our current economic system, in my opinion, is creating a very inhospitable environment for us neurodivergents.
@ShaunaAurora
@ShaunaAurora 10 ай бұрын
Also it seems like you’re only allowed by our society to be eccentric if you’re a billionaire. If you are low income, you are shunned and punished by society for being different. Economic privilege plays a big factor into how we are accommodated.
@vnlyn3046
@vnlyn3046 2 ай бұрын
Source?
@The_Vanished
@The_Vanished Жыл бұрын
Hello, befin using external regulation of emotion until its internalised. You will refain normal neurotransmitter levels. Fix fhd srimulation problems. Do the work and he autistic will gain any practice until internalized! You are alrady perfect, you beautiful, you are able to gain facial composure and be able fo use normal expressions. You hace to practice!
@GreenBlueWalkthrough
@GreenBlueWalkthrough Жыл бұрын
I disagree with those definitions as they are simply not true... Disability is the inability to do things you want to do... Like superman has the disability of being unable to give blood or get shoots with in reason because his skin is nearly impenetrable. I'm disabled with Autism because I can't work or atleast by the US gov's standard I am disabled but not enough I have a hearing in a month to fix that to disabled enough as I can't work a normal job and get income becuase of my ADD-Autism, Scerfrenia, Crons-Colitus, GERD and a host of other things. That said I am also a polymath and savant becuase of Autism and am good at many creative things... But I need to use calculators for any amount of math despite being able to do calc and aerospace engeering... But I'll never get a degree in it... So yeah saying Autism makes some one factually better then any one is just stupid and very racist not that you are but still that mindset is worring to me.
@GreenBlueWalkthrough
@GreenBlueWalkthrough Жыл бұрын
6:21 No that's different... sensitive is getting hurt easier responsive the ability to react quickly... Which compared to normal people people with autism don't do... Like you know how easly people can tease me because I don't pick up on the tease?
@joycebrewer4150
@joycebrewer4150 Жыл бұрын
My school mates used to laugh at me because, even well into a new term they could still so easily lead me astray from the classroom I needed to go to next. All I saw during breaks between classes was a swirling sea of people, most of them taller than me.
@GreenBlueWalkthrough
@GreenBlueWalkthrough Жыл бұрын
@@joycebrewer4150 Aw... I did not have that issue but I do with driving like I know my cardernal diractions and where major land marks are but roads and diractions? I just don't and need a co-driver.
@GreenBlueWalkthrough
@GreenBlueWalkthrough Жыл бұрын
Bad video... where did you get those defitions from as I never heard them be used by anyone outside of the adult autistic community? Where IRL their is just "a physical or mental condition that limits a person's movements, senses, or activities." Or in my case "a disadvantage or handicap, especially one imposed or recognized by the law:"
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