♡ Do I Have Permanent Nerve Damage? 😭😭😭 (26th-31st.07.19) | Amy's Life ♡

[@samboling8339]

Amy, the nerve damage may not be as bad as you think! I had major surgery on my neck 2.5 years ago, and I'm just now starting to get feeling back in my numb area.

[@rheagalarneau1366]

Sam Boling I have nerve damage in my hips from my endometriosis surgery.

[@Betha.Latsyrc]

Only just found your comment… I’ve had surgery on both my hips in June 2017 + 2018 and have temporary nerve paralysis four and a half years post op. I can’t feel from my hip to halfway down my thigh in my right leg, and from my hip down to my kneecap in my left hip. It’s a bizarre sensation.

[@mariajj17]

I am a person that believes have been through alot of health challenges and still pushing to move forward but it is people like you who makes me realize things could be worse and it means keep moving forward, you have really inspired me to keep moving forward no matter the challenges in life. Thank you for being so brave and sharing with the world.

[@justn9124]

Amy, don’t worry that much about the numbness. It can take a full year to recover if not more. I had major double jaw surgery (break and reset my entire face basically) 14 months ago and have now permanent numbness on my lip and chin (bad site for numbness you get food stuck there and don’t know it, or bite my lip and not feel it etc..) but I’m used to it now. Have similar thing on my back and hand due to surgery but these areas seem to improve more than the face. What I’m saying, just give it time and be patient, I know it sucks but please stay patient and try not to think about it, almost everyone who’s less than 2 months post op like you will be having numbness so it is SO EARLY to call this permanent. You’re amazing, sending you love and support❤️

[@Blue-dg8vb]

If possible take vitamin C. I was diagnosed with a chronic illness/ pain condition called complex regional pain syndrome that effects nerves/ nervous system. It typically starts after surgery, injury etc. vitamin C is known for potentially stopping CRPS from developing. Sending lots of love and prayers your way. You are such an inspiration to myself and so many others! 💗💗💗

[@savannahballard5786]

When I had my hip surgery they said that the pudendal nerve is able to be damaged because of the post they have to put between your legs to distract the hip joint. I know yours was a long surgery so I would think the damage would just take longer to heal. I wouldn't give up hope! I had nerve damage where my femoral nerve stopped working for 1 year after my knee surgery but it final came back. I couldn't even move my leg for almost a year because one of the quad muscles completely died and had no nerve innervation. It eventually came back so keep hoping and waiting!!

[@erins4183]

Sending hugs Amy 💐💐 hopefully the nerve damage will heal over time. I had a c-section 7 years ago and still have areas that have no feeling, but most other areas slowly healed and are now almost normal. I’ve also had other injuries where the nerves were damaged and again, over a few years, the damage healed/settled. Thank you for sharing another vid with us 💐💐

[@dannyleeds1132]

Hi honey . I’ve had multiple surgeries and after many of them nerves were bruised / damaged . It can take weeks / months and even years for nerves to settle after being messed with . Don’t give up hope just let the body heal and I have a feeling all will be ok and you will get feeling back . I’m here if you want to talk about it . Danny in Leeds ( U.K.)

[@ThinkerBella1]

Than you for posting your experience

[@livliv4169]

Love love love to you Dear One!!! Thank you for your brilliance and love for life and the world no matter how challenging and painful!!! You help me so much! I have many painful illnesses nearly identical to yours. I haven't been able to eat any food in over 5 years and so on and on....But i am a alone in dealing with it all. You are so lucky to have Tom and your family and friends and all of your subscribers!!! You help so many of us who feel alone with these illnesses! Not so alone listening to you!♡♡♡♡ Love you!!! Thank you!!!

[@rowansidhe3239]

I’m trans and I’ve had top surgery with two revisions, which basically wrecks the nerves on your chest. it’s been years since my last surgery and I’m still regaining sensation slowly but surely! I don’t expect it to come back completely but you’d be surprised how resilient nerves can be. I don’t have EDS but I do have a nonspecific HDCT.

[@lindamouw372]

I hope you don’t worried to much. Nerves take 6 to 12 months to recover and your operation is only a couple weeks ago, give it some time. I really hope it will be better soon, just like you I have EDS and some other health problems. You are an amazing young woman❤️

[@Lyn4817]

We are so fortunate to have a loving significant other, who are prepared to put up with us and help us.

[@bellaangus1213]

Lyn R preach 🙏 I’m so fortunate ♥️

[@Undercover_Pineapple]

I had nerve damage when I had my left kidney removed in 2002 and although it's still slightly numb in the area, it improved a lot over the years. Nerves are great at recovering, even when they've been cut through or damaged. I can't say that you'll regain all of the feeling you had before but I know that for me, I did gain back quite a lot of feeling and I never thought I would. Huge love. Xx

[@trudieclarke2616]

Hi Amy! Sorry to hear about your numbness, I really hope it gets better. In your video, when you showed that rash type thing I couldn't believe it, because literally life one week ago I had that in the exact same spot on my chest (I have eczema) and I use this red cream that can be found in Australia (that's where I live too) at any chemist. It's called Elecon and it has helped clear up my eczema so much I literally use it for like 3 days then it's gone, I highly recommend it! Ps I also use this moisturiser that's found at chemists and it's in a blue and white tube called la Roche pose or something like that, it's a moisturiser for eczema and other skin conditions, so I use that first then the Elecon, and they work great together!

[@CyberMeg22]

One doctor i know says that sometimes our numb areas are not so much damaged nerves as stuck sympathetic nerves. I am just constantly amazed at how amazing you guys are!

[@KC-fj9kc]

I know this pales in comparison to your surgery but I just had surgery on my shoulder 3 months ago and started having nerve pain all the way down to my wrist. I was told that I might have nerve damage as well. I don’t fully know your illness and I myself don’t have it, but I know that as I keep working through physical therapy (and believe me there’s days I come home and cry after) it does seem to be getting better. Not saying that’s a cure all. Nerves are a funny thing. They have a mind of their own! Don’t give up hope. I know easier said than done! Also I tried to go vote and it wouldn’t let me 😭😭 But for what it’s worth you’re a winner to all of your fans no matter what! Much love from the USA! 💕

[@majcherj1]

I had “permanent” nerve damage after oral surgery. Half my bottom lip was numb, which made for some embarrassing moments, as I couldn’t feel any food there, so drips and dribbles and glops of food went unnoticed...until someone else saw them, of course! 🤣 Very gradually, the nerves repaired themselves, and now six years later, it’s 90% healed and no more embarrassing moments! 😀💪🏽👍🏼 Let’s hope the same for you, Amy! Nerves have amazing self-repair skills!

[@alexafiretv6367]

Seriously?

[@alexafiretv6367]

So it may take 6 years?! I’m on 2..

[@majcherj1]

Alexandra Pino Of course it depends on the extent of damage and the size of the nerve. better for it to eventually heal than not at all, eh?

[@alexafiretv6367]

@@majcherj1 yes mam of course! Good for you you give me a spark of hope ;) it’s just sensory plain sensory nothing motor lip or chin so it’s kinda annoying the sensations.

[@majcherj1]

Alexandra Pino I know those weird pin-pricking sensations. The worst for me was that I couldn’t feel part of my bottom lip, so I would dribble sauces or have food hanging off it and I couldn’t tell. Until people laughed and pointed! Good luck!

[@dijalegend1934]

I have nerve damage from giving birth and I swear it made me sad in the beginning but it’s gets better as life goes on. I feel like warrior . I got battle wounds man🤷🏾‍♀️🤗

[@eca2014]

My fiance has permanent nerve damage to his inguinal femoral nerve from having a hernia mesh implant and then having to have it removed. He has currently gone through 2 procedures to try and fix it but its only caused worse issues and our next step is to get a spinal implant that stimulates that nerve cluster to keep the pain manageable. I will keep you in thought and prayer as you continue on your journey. I love watching your videos!

[@alysonjade2461]

I’m sorry you are experiencing nerve damage from your surgery. I had my gallbladder out and that surgery though not really as invasive did leave my belly button numb right below it. It’s odd, but not as big of a deal as where you lost feeling. Hopefully your nerves may repair themselves and you can regain feeling there. Sending lots of healing your way.

[@planningrisa2]

Nerve damage isnt fun, but its not horrible either.. I had jaw surgery about 22yrs ago, and was numb for 6 months after from ear to ear...but almost 2 years ago had to have some screws removed by my nose, and I'm still numb on like a quarter worth of my upper lip. If anything, it just feels really weird. As for tape or adhesive, I get a similar type reaction where it looks like the sore you have, but basically anywhere I put a band aid. I just got a sample pack of whats called 'HY-Tape" its made for really sensitive skin, and for people who have the same type of patches you have for your tubes.

[@kricket8801]

I swear I had no idea Tom was a person for my first few videos....I thought you'd named your iv pole🙄🤦‍♀️🤣

[@elleblu1774]

You and Tom always make me smile, thank you! As for MCAS rashes mine vary too but mostly when they’re in the same locations like the face it’s always the same type if that makes sense? Just varies on my body. Hope your hip keeps improving! 💚

[@jessicagibson6011]

It won't necessarily be permanent, after my PAO in December I had nerve damage which they assumed would be permanent but now at 8 months post op I realised the numb patch has shrunk and I can feel the nerves waking up when I touch the area. There is hope x

[@amyslife4457]

Jessica Gibson I’m hopful 🙏🏼🙏🏼

[@madison8568]

It has now been scientifically proven that nerves can regenerate and heal. My shoulder was out of socket for almost 5 years straight and I always had a degree of damage and over the fall it got significantly worse. I had been told to fuse when I was 15 but put it off until I was nearly 20 because I had learned to live around. Fusion is a limb salvage, last ditch effort surgery. My nerve issues got significantly better post op since I acted quickly before when I noticed things are getting worse.

[@maryreynolds5310]

Will definitely be voting for you Amy! You sure deserve it hun. Lol...you two crack me up sometimes..😄 My prayers go out to you Amy!! Let’s definitely stay positive, this nerve numbing goes away to never return! Love ya girl~xo

[@KitMcCat]

I had surgery for scoliosis at 14 (15 years or so ago now) and I have nerve damage. It's down my spine where they put the rods in and all around my torso in a band, particularly where my bra sits. On another note, woman can be drag queens. They're called hyper queens or bio queens.

[@angelaford9663]

Have you tried to use unisolve on your dressings? It helps break down the skin without being damaging. My son has a dexcom and the unisolve helps the sticky junk come off without him screaming from me pulling it off when its time

[@Rose-ju2ez]

So sorry about the nerve damage! Hope it improves-even if it’s a little bit. To avoid tearing skin when removing a dressing, soak it with normal saline, should come off without taking your skin with it!

[@amandaanderson8254]

Don't feel bad my left leg is numb on the left side from sciatic nerve damage. I had an emg last year and I couldn't even feel them sticking me so that was a plus lol... hang in there I am sure some feeling will return maybe all. Lots of love and hugs

[@giannacavalier5233]

I have nerve damage from falling a lot. It isn’t as bad as it sounds at least in my case but stay strong and thank you so much for posting these videos so I can get more educated on my own illnesses

[@laurablanco8574]

Dear Amy I wanted to tell you that I love your videos. I am a nurse so it is interesting to see the work from another perspective. I am from Uruguay (South America), I wish you could read this message and sorry if there is something wrong with the way you write. You are beautiful and I love your positivism.

[@Ava_Orchid]

Nerves can take a really long time and still regain feeling. I had a bikini area numbness for almost 4 years. I thought it was dead completely but I got almost full feeling back. They can regenerate :)

[@ashortstory1871]

I had knee surgery about 9 months ago and had a completely numb shin for a long time, it looked like it would be permanent from the "sweat test" that my doc did, but it's slowly coming back. I woulnd't say it's fully normal now and the feeling is still a bit different than normal, but I certainly don't notice it much anymore nearly a year later

[@mimma7181]

Hi! I was at kidney tumor surgery last years january. And I got permaned nerve damage at my right leg, from genitals to knee. That burning and elecrisity pain is killing me sometimes. I used Beurer EM49 TENS, EMS + masage device to helps my pain. And it really helps☺️ I recommend try that if its possible. Sorry by the way, my english, its bad, I know, but its not my native language☺️ because I' m Finnish 😄 I hope you will get help to you pain♥️ Bless you🙏♥️

[@ljpebz5014]

You 2 are so adorable! Couple that laughs together.... & be as daft as brushes together.... will stay together & laugh themselves through many happy times to come! Xx

[@Booya9272]

My favourite British dessert is Banoffee pie. And because you are in Perth there is a bakery in Bindoon which makes the best Banoffee cake/donught thingy I have ever had. You have to have a cup of tea with it though, it’s the greatest combo on earth.

[@TheMASHHLife]

Hi Amy I went in for surgery in March of 2016 and when I woke up my right leg was completely paralyzed. My who story is on my channel if your interested. but after a year I started getting movement back and my feeling has been getting better. There is always hope.

[@leslieholland7843]

Have you tried 3M blue fragile skin tape? It's hard to find in the US, but we found it for least expensive in Amazon. My husband had bed sores, and that tape caused the least pain.

[@makhaelab5180]

Post notification ganggg! Love your videos

[@nicolesinclair9223]

I had the same rash on my stomach last week. I completely understand what you mean about different types of mast cell reactions. The week before I had hives and the week before that I had the red rash that came and left as quick as it came. It has no rime or reason! 🤔 hang in there girl..... Your doing so good despite everything you have gone through lately. Stay soft and take one day at a time! ❤️

[@Justmealex95]

I had nerve damage after a c section. I’m almost one year post op and have most of the feeling back in that area! I pray you get some feeling back at least❤️

[@marnie9063]

Nerve damage cannot be classed as permanent before six months, most doctors won't Diagnose it until 1.5 years afterwards. Nerves take time to heal. It's still super fresh, so please try not to worry too much that it'll be permanent just yet. 😊

[@LecheVitrineUK]

I get all different kinds of rash reactions like that as does my daughter, we are not diagnosed though with anything other than 'IBS' despite trying to get answers and doctors observing 'concerning' symptoms and significant pain. I know I have to be really careful about what I put on my skin esp sticky things as they will often just pull off my skin leaving a weeping mess. I reacted to the rear defenders I had to wear for an MRI and I'm told it's not possible to react to something like that. My daughter just had a reaction to her Fitbit, weeping sores. I never thought these were ' things' my mum always had to be careful what plasters she used on me as a kid, they'd stick them on us at school of we fell then my mum would try and get it off because it's react and it would pull skin off!

[@gwenbrown-keesee3163]

Woman can be drag queens too. It's called a bio queen. Much love and support to you Amy. Your so amazing.

[@aniyahl_l2620]

Hope every one is having a good day

[@bellaangus1213]

aniyah lopez you too!

[@s.ml.9060]

you too. I had a bad day : (

[@sarahgee]

Amy, how do you come to terms with ‘accepting’ your condition for what it is and what may come of it? Perhaps ‘peace’ would be the better term. I’ve been sick for half my life already and my disease has made a major decline in the last few years. So much so that the threat of going on long term disability is creeping up. I knew the prognosis and I knew that eventually I may not be able to work anymore but it is just a sour thing to accept. Especially at such a young age. My life has just begun.

[@Chelle8847]

Apparently, I found out during my nerve conduction study tests things, that nerves grow 1mm per day. in your legs. So, nerve damage is not always permanent! Just may take a longggg time to get them back. I have nerve damage in both legs and feet, lower legs and feet are mostly numb, it's very weird altho kinda used to it now. Try not to worry too much. Ask if you could have a nerve conduction test, they will be able to tell you more! Chin up girl. You're doing so well

[@darkbluematter1753]

Welcome aboard the coffee train! Sorry to hear about your nerve damage. I have some from my endometriosis/bowel surgery, the numb patch has shrunken over the years. It's been 4 years now, and I think what's left is permanent, but it is much better than it was initially. Hope yours improves too.💙😊

[@kecrn4132]

Any time there is an incision and the nerves get cut, there is damage to them....there will be numbness, tingling and weird feelings for a minimum of 6 months post surgery.... it is very normal!

[@marieked]

It takes months to know how much damage you’ll be left with. I’ve had two major surgeries that left me with permanent nerve damage and I was told it can take up to 2yrs to know where you stand. I also have permanent nerve damage from a spinal cord disorder that left me paralyzed and with sensation disturbances, like numbness, tingling, other odd sensations. You do get used to it weirdly enough!

[@cathcoll7961]

Nerve damage I had with a wrist surgery I had many years ago Took 4 years to settle I ended with only 10% issue When it was 70% for the first 2 years So don’t give up hope Lovely Love you both always ❤️❤️❤️

[@lorileewalters2018]

Prayers to you sweetie!! You’re awesome

[@bellaangus1213]

Just voted and will continue to vote and will also vote for my husband for you. You always make my day better. Love to you and Tom from the USA 🇺🇸

[@dalesmith6577]

Va-j-j......crack me up. That's what I call it! I am a new subscriber. Found your channel after my most recent bout of gastroparesis. This really just started for me a few months ago and it is miserable. You are amazing, brave, and I just love your channel. Just wanted to tell you what an inspiration you are and that I really enjoy your vlog. Tom takes such good care of you. I think you're both adorable. Thank you for being a source of great information about gastroparesis. I am going to watch and like all of your videos and endorse your nomination.

[@Rainehunkin]

We haven't gotten a "Things that make you go hmmm" in a while.

[@joshuacreel3000]

Bioqueens are a thing, rupaul actually had a lot of issues a few years back for the fact he wont let bioqueens and transqueens compete on his show. but yeah no they're definitely a thing. if you want a broader (though admittedly a lot more hardcore, dont watch if youre easy to ick out) representation of drag theres a series on youtube by the boulet brothers called Dragula that might be your thing.

[@thebeokfactory]

I have arthritis (age 25) and on my days i stay in bed i paint my own nails. ive been learning for three years and i started with gel like you but i love Dip now! really easy and no a lot of filing.

[@kayahayward]

I had to have my ankle reconstructed and I had to get a nerve block. It was like an epidural for my one leg, but it gave my permanent nerve damage in both of my legs and my lower back. Unfortunately no one ever told me that I would have nerve damage, so it was a surprise to me. Now my legs and back randomly go numb or feel like they're on fire.

[@aggynancy4920]

You are truly a lovely lady going through what you got to live with do not worry about nerve damage keep going on I have nerve damage and I just get up and go it takesme a little time to get up it is my back so keep going on I need youhow do you keep your hair and nails looking so good love you

[@india239]

Many many years ago I had a Caesarean and had sensation loss but it came back. When we had bone augmentation in my upper and lower jaw for dental implants I was so swollen and numb it was awful. Gradually the sensation did come back. I hope this happens fir you, best wishes

[@tyiyoung6101]

Out of interest, my right forearm is numb and tingly, any one have any ideas what this is

[@elleerobb6972]

Not sure the best way to get a comment to you. I have EDS and my entire nervous system got fried because of it. If it is permanent, there are these amazing things called Neuro simulators, I have one on my spine, and they make a HUGE difference to my permanent nerve pain. Might be worth bringing up at some point in the future. Still new to your channel, but have got a couple of EDS friends to watch too

[@CyberMeg22]

Re the mast cell stuff ... There about 200 molecules that can get activated over a 24hr period each with their own dermatologic and systemic signatures. That' why you need to avoid high histamine high FODMAP I'm told. I am on all sorts of meds. What are they giving you meds wise?

[@lucilletenhove3116]

Amy the nerve damage is probably not permanent I had it and it went away in 1 and half months don’t panic but everyone is different it may take longer love watching your channels keep going one day at a time

[@suz7196]

I have had 2 C Sections with the first one I was numb from the belly button to my "Vaja" and that lasted for many years but gradually the feeling came back. My second C Section there was absolutely no numbness at all and I don't know if it was because it was different surgeons or a different practice but rest assured slowly and surely the feeling will come back.

[@anneschmidt9587]

Amy, How does your pain patch work with other medications you take for pain? I used to take butrans for chronic pain but it was extremely difficult to take other acute pain meds. How do you do it?

[@annsasmrchenoweth3953]

Amy I keep trying to vote for you love but either I'm just not smart enough to figure it out I click what I want to vote on and it just takes me to another person. I want to vote for YOU because you are an inspiration to I would say us ALL!! You never give up you just keep fighting. I have 5 emails I can keep voting for you with. I just can't figure it out. Can someone help please or Amy can you explain what to do. Xoxo always from Lawton Oklahoma in the USA 💞💞

[@annsasmrchenoweth3953]

Oh nevermind I just read where you said they closed it. Dang it im sorry I missed it. Your video just showed up on my feed like 45 mins ago 😕😕. I'm sure you got this though your truly an amazing person. 💞💞

[@lynnette3020]

I get the same rash. I will simply run my fingers and lightly scratch under my breasts and next thing I know I have a rash like that, and yes next day it scabs. I had a ruptured disc in my neck , Drs thought I could come out of surgery parazed , thankfully that did not happen altho I did have a small seizure ( first time in my life and only one so far too) and it left nerve damage in both hands and right arm. That surgery happened in 2012 and an emg test was done last year and still all the same. I have EDS H and V . I also have Fibromyalgia which took on a MS symptoms and actions, I also have OA, and Early onset Disc Degeneration Of My Spine.

[@NurseMickiLea]

Just found the TTMYGM hoodie and ordered it ASAP! I have been using Toms things to entertain my patients in ER. Hope I don’t have to pay him royalties. My favorite one is about the US Bald Eagle. Love you and how you try and stay positive through your ups and downs. I suffer from chronic pain and PTSD and find your channels inspirational and they keep my issues in perspective. ♥️ from USA Minnesota where hoodies are needed 9+ months of the year TTMYGM🤔

[@user-il4ec9iq9m]

I am a bit confused on how to endorse on the Wego health awards website. Should there be a button to press to vote? Because if so I do not see one. Could somebody please offer me some help

[@em-agan]

I have MCAD reactions like that too! I have eczema and my mast cell always makes my eczema flare up bad, so I have so many different types of rashes 🙄

[@gilbertoperez424]

Hope you feel better soon.

[@chickenniggiee6777]

Rupaul has an event next year at Perth exhibition, never ever been more excited

[@barbh1]

Two friends of mine recently had a new kind of tape put on by their doctors, and both friends had the skin pulled off.

[@jodichannells9446]

I have been watching rupauls drag race and I noticed one of the ladies has EDS and I was like hey that's what Amy has. Before you I would of had no clue what it was so you definately represent 😘

[@donnaowen5953]

Which lady? Love that show

[@jodichannells9446]

@@donnaowen5953 yvie oddly, she's in season 12

[@donnaowen5953]

Thank you

[@philiplabrie3822]

The numbness may feel very weird at the moment but you get used to it. My leg is numb from an accident I had at 10 (36 years ago). The nerves do grow a couple of mm a year so you will find that the numb patch will decrease gradually. Is the numbness just on the surface skin receptors or deep? You stick a needle in until you can feel it (Doctor did that to me). If it is the skin only it may improve quicker

[@tkentch]

Mine has came back don’t give up hope!

[@knuffelbeer193]

Next time you have surgery, make them use a silicone based dressing like mepitel or mepilex. I use them all the time on patients with very fragile skin and I’ve never ripped it.

[@jessicaking369]

I get that reaction on my face, back, arms and chest from antibiotics. I have M.E and if I need antibiotics I have to go into hospital for them as none as "safe" as I have the rash and slow delayed allergic reaction. Love your vlogs you give me so much strength and hope ❤️xx

[@Hey.its.Lala95]

VOTEE FOR AMYY

[@shekeyra100]

i thought your hip would stop popping out after op you amaze me how strong you are x

[@larissa_8237]

I got a rash like that from the hospital post surgery, I pray to God you dont have the same thing. Mine went from being in one little area to all over my body and they (Dermatology) cant get it to go away..I'm covered in scars head to toe...my lesions are deep also came out with permanent nerve damage same area as you...but mines severe pain all the time not numbness

[@elliewaters997]

Do the pain patches cause side effects?

[@rheagalarneau1366]

Actually women can be drag queens.

[@cadencemcgary4950]

Amy you could be a bioqueen! Idk how popular they are in your neck of the woods but I know a lot of clubs in my area are super accepting of woman drag queens! If you're serious you could totally look into it!

[@CyberMeg22]

He says they should always look above the affected areas after taking a thermo-imaging scan.

[@EllaJane1992]

You get shellac/gel polish 😝 they always look nice ❤️

[@asafpovo1304]

I've got also nerve dmg in my both arms its feeling num and it hurts if you press on it. I really hope its a temp but its not feeling any better... hope we all get better

[@tammyrowe-wallace7322]

I get hives that blister and they look like the lesion on your chest. It really sucks when I get them on my hands and feet, especially between my fingers and toes!

[@ebonylowe1809]

I have the exact reaction you do and was just diagnosed with mast cell reaction. I have it underneath breast area too. Benadryl helped me.

[@shannonouellette1975]

Haha the ending was so cute 💛

[@jadekimmm2767]

Aha your feeding tube that was glowing looks like it said feed me on it 🙊🙊 so sorry about the nerve damage it’s tough I have it too post back op I have no feeling in my low left leg ❤️

[@Tiffythompson17]

Omg I used to have like a burning sensation and then I would have scabs for what seemed like no reason.....my forearms break out all the time red bombs and itching like crazy....I haven't been diagnosed with mass cell but I've felt like I might have it.

[@sarahchapman7999]

Adhesives cause my skin to blister if I'm not careful. Lost a PICC line because of it.

[@korupterjessica]

I clicked on the link but it doesnt say anywhere to endorse or vote for you i dont understand xd

[@ellagrace5623]

Where did you get those sweatpants I want to get some 😂! Love you Amy (and Tom)!!! ❤️🥰❤️

[@sonicksymphony8162]

That mast cell looks kind of like my psoriasis when it gets bad

[@eveenz7165]

I get that rash on your chest from all types of dressings or necklaces. I yelled hello courtney when I saw her. I watched Rachel's vlog b4 this so i have seen 3 of my favourite people today plus Tom. Thanks for the laughs. Sending you my love ❤

[@jaywilliams7029]

Its it bad what I'd give to trade you all my medical issues and personal issues. An my zero support I have. For all your medical issues, personal issues, plus all the support you have hun. Actually I take that back I don't wish all my issues on any one else.

[@cassandradavis5739]

My birthday was July 27 wow Amy you are amazing and I admire your strength and positivity keep fighting I'm with you girl