♡ Getting my Heart Burned!? (22nd-25th.07.19) | Amy's Life ♡

[@lisawinters4681]

I got you the blanket... I am really happy you love it. I am so happy that it is helping with your pain. I'm sorry I couldn't put a note with it... Sending you lots of hugs and love from Oregon

[@gracehanmore5755]

Lisa Winters where did you get it from ?

[@amyslife4457]

aww thank you so so much beautiful!! its honestly a game changer! ❤️❤️❤️

[@diamondNanny]

What a beautiful thing to do

[@mellier7762]

That's so kind of u ❤️❤️❤️

[@mariannegetty2748]

It’s good to give when you can and what comes around goes around xx

[@harleytyler9899]

So sad she’s not here anymore☹️ rest in the sweetest peace beautiful ❤️

[@deannafranklin9216]

Tom was worried before procedure he was so quiet. Then you got home and he woke some. I am so glad you have him. Love is amazing! Love you and so glad to hear your voice.

[@amyslife4457]

Deanna Franklin yep you know Tom he always gets like that before surgeries & procedures 😅

[@Zxouf873]

Rest in peace Amy 🙏

[@ravenrichards3639]

This is the exact surgery that saved my life six years ago. My SVT was really really severe to the point I’d pass out many times a day. Among other complications from the condition. After my surgery my life improved so much...I still have some small fluttering here and there but it minor and I can live with it now. I really this helps you in the same way. My procedure took five hours. Much love to you for a speedy recovery. Love you and your channel.

[@tanyacrumlish]

You are an incredibly strong young girl! You are truly inspiring . You deal with everything with such strength and positive attitude! Rooting for you always❤️

[@allinkedupalways4163]

Awee

[@amyslife4457]

Aww thank you so much! X

[@MichelleisHaunted]

If I could have even a quarter of your strength, I could move mountains! Always sending you positive vibes girl! ❤

[@harleytyler9899]

For real!!

[@jessthehorse2254]

What I love about this channel is you genuinely wish the best for us, as we do the same for you! You are never what I call a "fake" KZbinr, you always mean every good word you say and I hope you know that we mean every good word in the comments. Love ya xxx

[@amyslife4457]

JessTheHorse thank you so so much! I try to be as real & down to earth with you guys as possible! ❤️❤️❤️

[@rosedlune]

I really genuinely wish you'll never get tired of all the medication and continue to fight the pain you have. I'm supporting as much as I can but Amy you're a super positive person. I love love you. Always be okay, girlie. We got you.

[@nufus7]

I had an ablation for SVT when I was 19...one of the first in NZ to have via catheter...i swear there was 20 ppl in the room & it was super tripy to see my heart on a big screen! Hope you get it sorted xx

[@Cabbage-dk6nu]

I watch pretty much all of your procedure videos, and the one where they placed the Hickman was the last one I watched before this one. 8 months of TPN has you looking SO much better

[@TheMango0013]

Thanks for being so positive. I’ve been battling lots of stomach issues and it’s such a help seeing your strong face always pulling through. Love from Indiana

[@norajung4513]

I can empathize with you with the ablation. I had one done several years ago and it was not only scary, but stressful. I did good before the procedure but when they started "mapping" or making my heart race I got scared and emotional, started crying, I was a mess. I have to say the nurse was great she let me cry and she reassured me that everything was going to be fine. The weirdest thing was seeing the wires in my heart and watching them move with the heartbeat. Sorry your ablation didn't go as planned, but it is really good that the Dr was more concerned about your EDS. Sou is like they are definitely keeping your best interest in mind. Hope you feel better soon and take it easy.

[@sherrichabino1317]

Sorry to hear the procedure didn’t work out but you are so strong and brave. Praying that the doctors find the right meds and treatment to help you. I have SVTs also so I understand. Thanks again for all your hard work in making and editing videos to help educate us. Your Amazing!❤️

[@pauldevery6173]

Two years ago just after Easter I suffered a large pulmonary embolism lung clot and had a catheter placed from my groin, through my heart and into my lungs through which tPa clot buster was dripped in for two days. Had 3 trips to the Intervention suite. A year later a friend had an ablation during which he threw a blood clot (he had one 9 years earlier in surgery). We're both on blood thinners for life. Hugs.

[@alliemcelroy9781]

You are a true warrior. I hope everything goes better for you. Keep positive Amy! We all love you ♥️

[@zackdodge934]

I saw the title and instantly knew what you were talking about, cuz I always used the term “getting my heart nuked.” Seeing you in the car explaining how the doctors couldn’t provoke an SVT at the opportune time brought back a flood of emotions. The doctors could never catch mine from age 11 to 19. Got really close one time, but the nurse denied me access to the ER, cuz he thought I was huffing aerosols. That same visit also got me suspended from the Track team. It was frustrating, but c'est la vie and that’s what I saw you express here. I really liked this video, cuz unlike you I tried to hide my SVT from everyone. I felt like a freak. Long story short…the perfect chain of events happened and my SVT was captured on a 5 lead by paramedics. I felt so vindicated that I finally knew I wasn’t a freak and had a legitimate medical condition. I wish I could have seen this video when I was 11. Anyhow…I had a 5-1/2 hr EP study with a successful ablation. Thanks for making your videos, I forgot about the emotional roller coaster that people have to endure while dealing with their medical issues, doctors, tests and the waiting…waiting…waiting. Your videos humbled me and made me realize, again, how lucky I was. On a lighter note, I do have a ton of funny post op recovery stories now. Thanks

[@iamnotgoldenhar8645]

Amy, I deal with alot personally with medical issues but since I have found you, you have been an inspiration!!! Thank-you so much!! You are a wonderful person and thank-you for sharing your journey wih all of us!!! Hugs from soutj of Detroit, MI United States of America!

[@nieshamontgomery4622]

Wishing you a speedy recovery ❤❤ hope you feel better soon! God bless❤

[@geetika7856]

i had a cardiac cath a couple years back to resolve a large asd, and i had it placed in my groin. completely understand what you are going through, stay strong!

[@crystalhatfield3388]

I had the heat ablation done it's was 4 hrs for me but the doctor told me there only a 99 percent chance it will ever act up again thats been 9 years ago .. so far so good sometimes my heart will skip beats he told me that would happen not to be alarmed .. but you be glad it got done it's better to have that then be on the heart pill for it .. so I know what u was going through .. hope all is well your my favorite KZbinr much love from Kentucky

[@breannab1256]

My EP Study/Heart ablation was the easiest of all of the procedures/surgeries, but definitely the scariest!! I was 15 at the time and they told me my SVT may not show up during the EP study, but they soon figured out it was WAY too easy to set off my SVT. I just remember my surgeon yelling at them to turn off the music and not to let my heart get over 300... definitely terrifying! I was so glad when it was over, though..

[@misslaurennicolesmith6937]

I suffer with night sweats and I 100% get what you mean. 😂🖤

[@DoveEnigma13]

Mine is really bad. Panic sweat smell. But that’s from cancer and totally different

[@cinna8474]

Same. It literally scares me because I'll wake up having dreamed about swimming and then I wake up wet and its like "WAIT WHAT"

[@naturallynats6997]

ladylauren xox I get super bad night sweats and I hate feeling wet clothes on my skin so Sometimes I take everything off in my sleep 😂

[@its_brandeeb]

Mine ended up being a hormonal issue. I finally got it somewhat in control. Ive had over 10 kidney surgeries, and I get chronic infections. Uti and kidney infections make me sweat horribly at night....I hope you're doing better

[@abigaildoll1760]

I have Postrual Orthostatic tachycardia syndrome and dysautomina and I get night sweats a lot, so i know how you feel!

[@TammyGrosso]

You have every right to be scared. My son had it a few months ago. And I was a wreck! Unfortunately, they weren't able to induce the SVT also. His evidently is a kind that has to be addressed while he has the SVT. That sucks!

[@imogenmcpherson4865]

I had the exact problem! I had a study done when I was 9 for my SVT & I had an ablation 3 years ago when I was 14. But they couldn’t trigger an episode so i just went back on beta blockers. Lucky I was under for both of them though cause idk how I would’ve coped awake ! sending love xx

[@lisaioannou6758]

Strongest person I know. Feel better soon Rest all you need.

[@jessdavis3047]

I have had ablations twice now with my pots.. love watching your videos. Also have Gastroparesis and EPI with many other issues.. but love finding others who have the same issues..

[@theunexplainable2995]

Hey Amy! You are so strong ❤ I've been watching you for years now, it's crazy I have ankylosing spondylitis and I'm now being investigated for hEDS... totally wasn't expecting it but does explain alot of my other symptoms, thank you for spreading awareness, I know how hard it must be to record yourself daily but your a blody trooper 💪🌷

[@amyslife4457]

Hannah Harrison thanks Hun! Good luck with your diagnosis journey! ❤️🙏🏼

[@penelopepolinsneemeyer4757]

Glad you’re safely through the other side, Amy. It sounds like the team made a sensible decision on your behalf xxxxxx

[@erinholzhauser]

💖💖 Love you soo much Amy! I am here to support you! Such an inspiration xx 😘

[@ashleyhouchin951]

I hope you have a great surgery and a great recovery!!! You are a great woulderful and strong women!!!

[@eveenz7165]

So sorry the study didn't go to plan. The longer the operation is the longer it takes to get over it. It was funny today as Courtney posted a vlog. Then 4 minutes later Rachel posted her vlog. Then yours so feel lucky to see 3 of my favourite people in one day. Sending you lots of love Amy ❤

[@laurenwelsh551]

I am 16 and recently had an EP study with a possible ablation to see if I had WPW a heart condition. I didn’t end up having it though but it was still strange to watch a wire go in my heart and they had to give me an injection to block a pathway in my heart which felt like someone was squeezing my heart.

[@janemaas4225]

You are truly an inspiration to me. I know you are unbelievably strong to endure all the procedures that you do. Amazing 💜❤️ Sending lots of love ❤️💜❤️💜

[@lizzielizard3926]

I live in WA :) but north- wanneroo and I've been over here since 2014. I recently had a hip surgery- my was opposite- too deep a joint and had a few bits and pieces cut off and other parts repaired- recovery's the worst

[@alisha20033]

Hope u read this... your so strong x and such an amazing person ♡♡♡♡ your my idol. Your sick yet your so happy and strong such an amazing human... love you hope u feel better soon

[@charlottebouglas7557]

Well done any I know that Eds gets in the way of everything but the best thing is to stay positive just remember to keep that amazing smile on your face and live your life to the fullest xxxxxx

[@sandrataylor4877]

Tom is an angel!

[@pennysue8849]

💖💖💖 I thought I seen all your video's but somehow this popped up and well ..love and prayers To Tom and Amy's entire family 💜💜 stay strong everyone she truly was a complete rare jem xoxoxoxo

[@KitMcCat]

Pretty sure I have that exact same heated rug, it's a beautiful distinct colour. I love my rug so much, as do my cats

[@TammyGrosso]

On yea, I forgot to say that his pain/meds to keep him from moving, also didn't work while he was in hospital. But when he came home,many hours later,he couldn't feel or move his lower body. It was really scary. We were told it was a delayed reaction to the meds.

[@thefirthster1535]

I know that feeling! I ended up having two ablations done this year with the possibility of a third one. No sedation for both, which was pretty uncomfortable. I was diagnosed with atrial tachycardia, which is the least common version of SVT. Still on beta blockers since I ended up with a bit of VT, which is a bit of a bummer, but it's still way better than it used to be. I'm sorry to see that the EP study wasn't successful. Wishing you all the best with your recovery! 🧡

[@courtney6126]

Do the paper gowns bother you? I have the same issue w reactions to some things if they’ve been washed in certain laundry soaps that I end up being allergic to. Just a thought, if it would help. Feel better!

[@amyslife4457]

Courtney Wright we don’t have paper gowns here! x 🤔

[@courtney6126]

Amy's Life oh no!! Have your supplier look online, then just keep one w you if you know you’ll need one.

[@natashacorrigan6917]

Tpn can cause night sweats. I made my tpn run over a longer amount of time and it hasn't happened since. But obviously rule out infection too .

[@lindajedeon9441]

Forever missed 😥😥😥 I think of you offen 😥😥😥

[@lilmissoopsie8537]

Oh girl well done I've had an angio to and it was so so soooooo painful when they were injecting and putting it in my groin my mum was outside the room and could hear me screaming and wanted to rescue me! Hope your feeling a bit better now! Thinking of you 💕

[@mrsr5689]

Hi hun what meds u on for mast cell? ,i have pots and mast cell .hope u feeln better soon sorry didnt work

[@erikagreen9403]

So much love to you!! Prayers from me and my family ♥️

[@alysonjade2461]

Glad to hear your procedure went ok, but so sad the tests were inconclusive. Hope you get to feeling better soon!!!

[@abbeybrandt608]

I have one of them blankets and I use it alll the time, I actually use it as a electric blanket and put it underneath my sheet put it one an hour before you go to bed and it’s so toastie I highly recommend xx

[@amyslife4457]

Such a good idea! I think I might do that! 💓😅

[@abbeybrandt608]

Amy's Life love you so much hope you are okay xxx

[@cherylreilly5244]

Prayers for the drs to get the right combo for your heart. God bless.

[@Lyn4817]

So sweet to see Tom with his Broccoli.

[@india239]

I had night sweats when I was going through the menopause, which you are clearly not. It sucks. I got them during the day too. I can also commiserate with the UTI. I hope you are feeling better

[@silc.1002]

Amy and Tom my two favorite people in the whole wide world I’m so glad you started your abrasion procedure one step at a time my dear Amy my prayers are always with you

[@elizabethsmith5615]

Was oblation done? Confused

[@wendy-8560]

Amy, I have to get a E.P. S. study done and I've been terrified to do it so I keep putting it off. I know I need to get it done, but my brain is telling me. "Don't do it!" I have W.P.W. so I need to get it done soon so I don't keep getting episodes. All that just to tell you that you are such a strong woman. I guess you would have to be with all the medical problems you have. I have always kept you in my prayers and will continue to do so. Take care hun!!!

[@Kim-n-Brian]

Sounds like my epilepsy when they try to catch a seizure I don't have one but yet when they're not looking for one I'm falling on my face...lol

[@TheMelbox68]

Kim-n-Brian ....Our farm every time the doctors try to trigger a seizure in my son it Just never happens. But soon as we are home he has one. They have never triggered one in him his whole life

[@leaveitalone]

I have to have heaps of local anesthetic too. When I had a tooth pulled I needed 3 lots.

[@ourwoodlife9747]

Your 100% right about the night sweats. I have a heated blanket just like yours. It's amazing for my fibro pains. Do you still use your weighted blanket? Ive just ordered one today. Xx

[@amyslife4457]

Brisgirls life I do! Although I haven’t used it since surgery because of the weight on my hip, but when it’s healed fully I’ll be using it again 😅😅🙏🏼

[@Pseudochick01]

I had 2 ablations back in 2004, and I was scared to DEATH😰 (I was a cardiology nurse at that time, so I knew what was an EP study...). They stimulated my heart up to 260 bpm, it was like if an elephant was jumping on my chest and squeeze my neck at the same time, and had to stay still.. I really don't want to get through this again.

[@summerfun20111]

You are such a kind soul! I love watching your videos. I am right there, rooting you on. Love you and Tom!❤️❤️❤️

[@ruthannbowman8061]

I'm sorry they couldn't do the whole study I hope you get it sorted out sorry your going through this I'm glad to see tom there for you your so brave and I'm keeping you in my prayers sending you love and hugs from south Carolina

[@CourtneySeamans]

I have Ehlers danlos as well and they also want me to get an EP study done where they will determine SVT, IST or something else and I’m so so nervous. I hope it works out for you♥️

[@cassandradavis5739]

Keep fighting Amy I'm so in awe of your strength and courage much love from Mississippi

[@DoveEnigma13]

You’re so damn tough. Rock on When I have night sweats it smells really weird. Like panic sweat. But that’s from cancer so it’s different. I am seriously proud to see how you just kick all these illnesses to the dirt. I don’t think I could do it

[@kristadesote6252]

I love you guys. 💖 your so strong and and beautiful. I couldn't go through everything you have to. Sending you lots of love and good vibes.

[@sarahjo5570]

my night sweats are the opposite actually. They have such a specific smell and it's for sure not mild or pleasant, but then like sweating regularly I don't usually smell at all, that's funny.

[@kecrn4132]

Sarah Jo - I’m the same!! It isn’t a BO smell tho.... it’s so weird!!

[@sarahjo5570]

@@kecrn4132 same it's like its own weird stink😹😭😹😹

[@darkbluematter1753]

Sorry the EP didn't work out. Glad you made it through that difficult procedure okay. I just want to give you a (gentle) hug. 💙💙💙

[@donnaloveall1470]

You are an amazing girl, and Tom you are a such a great person and the love he gives you is so pure, God has surely blessed you to have such love💕 I have a guy like Tom and he's been carrying for 53 years, we were 16 and 18 when we married. I keep you close to my heart and hope you enjoy a long life together.🙏 💫🇺🇸

[@tobijones1193]

Biggggg hugs... rest up Amy ☺️

[@maryreynolds5310]

Hi Amy, love you too. I hope you were able to get some rest, and hope your feel better every day! xoxo

[@catherinek9839]

How do you deal with severe period cramps and bleeding as i have it.im on the pill but it still happends when im on a break.I struggle sometimes as i have hip and back problems

[@katiej9006]

Body odour comes from the bacteria on your skin doing its life cycle. Along with sweat it requires a warm and semi stable environment. This is why armpits arm pits smell but not your face or neck etc when you work out. BUT if you don't wash after a workout it smells because its become a warmed and semi stable environment.

[@emilycontant890]

Did they end up doing an actual ablation?

[@pauldevery6173]

Thank God you're back. Really nervous about the pause in the posts made me think something terrible happened.

[@NATUREFORTRESS]

This heart ablation procedure seemed relatively normal at the time, but... now knowing what happened to Amy? Sometimes maybe it's better to leave well enough alone. Love you and miss you Amy. Big hugs for you Tom, if you see this.

[@shannonouellette1975]

Love watching all your vids....your such a beautiful soul 💛

[@dariannafriend817]

I was just diagnosed with POTS and I’m trying to learn all the ends and outs of managing it. Any help is welcomed! 😕

[@rebeccaingram980]

I’m having the same problem with night sweats it’s awful it’s like getting in the shower fully clothed every night! X

[@brigettedupnik7611]

Also night sweats aren’t usually sticky

[@Ghouls_and_Grimoires]

Hi!! I know you may not notice me but just wanted to say hi as i watch all your videos and youre literally my role model 💗

[@clairelightfoot5776]

Had an Ep study but they weren’t able to ablate for me. They said maybe I had too much Valium before :( they said I had dual av node, Don’t really understand but it was still terrifying. I can’t take medication because it conflicts with others that I take but I’ve never gotten over 210 and I use different techniques like bearing down to slow it down when it happens. Good luck with everything

[@melissacaudell1622]

Good luck lots of hugs and prayers

[@carolanngarcia9799]

I have been looking for a PO Box number to send you a gift Amy. Where do I find it?

[@amyslife4457]

Carolann Garcia it’s in the description of all my videos xx

[@littlemj90]

I totally get you on the night sweats! It is different to normal sweet. It's a side effect of my antidepressant I'm on

[@catherinek9839]

Iv had that problem.i had a few times of svt and when i had a 7day tape it didnt show up and like 3 to 4 days in i had a severe reaction and it was red and my skin was peeling so they decided to stop it.i had it once and by rhe time we got to the hospital it had stopped its just typical so they put it down to acid reflux and like my mums a nurse so she keeps an eye

[@ndayerose]

WHAT is the songs name from when your getting out of the car?!!! You have the coolest music in your blogs

[@kecrn4132]

Usually the time consuming part of ablations is locating the area that is causing the arrhythmias.... where the ectopic beat is starting....sometimes it happens where they are not able to locate it 😰😡.... can be so frustrating! Good luck!

[@NatrualAthum]

could you do a video with a tour of all the scars you have.

[@Bones77777]

My daughter had SVT as a baby she nearly died twice but luckily for her it was a prematurity issue and she grew out of it by 3 monnths, hats off too you for dealing with it for this long I cannt imagine how you mom must feel xx (I'm using my bf account that's why I'm called Mrbonnes 🙄😂)

[@redheadlady41]

Oh Amy! So, so sorry for Lal the things you have to deal with, my prayers are with you everyday. And GOD BLESS TOM! He has been such a fantastic boyfriend to you. Tell him he's your knight in shining armor LOL

[@charliew3130]

Hope your doing well❤ Stay strong👌👌 Love your videos and everything you stand for xxx

[@mccoycyndi]

Thats what i use for my rheumatoid arthritis! I go through atleast 2 to 3 a year but its the best thing ive found for RA & Fibro pain

[@mccoycyndi]

@@shaybatty3785 im sorry ! I use a heated throw on high and lay on it! I have fibro too so the really feels good !

[@mccoycyndi]

@@shaybatty3785 where are you at ? Amazon have them also ! I dont know why it always so expensive to recieve stuff from here ! Its ridiculous

[@mccoycyndi]

@@shaybatty3785 yes it is .. im not sure if amazon does .. we have walmart here also and they have them too. There has to be a way .. well now amazon delivered Amys blanket ! If theres a will theres a way ! We need to look into it !!

[@Kris-cu1vx]

omg I get night sweats too (from my antidepressants) I think I sweat so much so fast that it doesn't get a chance to smell. I just wake up dripping wet and COLD

[@makhaelab5180]

I love you and your videos so much your doing so well!

[@alyssawssinging4039]

Hey Amy I get reactions from the tape from the Ivs when I Have procedures and I’m glad ur doing ok

[@caseydykes117]

I used to be on lyrica and they used to give me the WORST night sweats omfg. Never realised it was lyrica either untill I came off it. My partner used to wake me up because I’d be buddies under the doona and absolutely soaking (again not like normal sweat smell) and you just feel WET. But it is crazy but I hope you figure out what it is xx

[@---hh8jn]

All of your videos are so awesome! Keep going girl, you're a fighter!

[@larrynorem6193]

How is your house coming

[@eduardopadilla5505]

a Great and huge warrior!! keep going your way doing your best! Blessings.