Does What Triggered Your ME/CFS Matter? (with Dan Neuffer)

[@KWilliams22]

Another amazing chat from you both....thank you. I completely agree about viruses not necessarily being the actual cause....that there was likely already a dysfunction there and the virus was the final straw. I think a lot of people believe that they were really healthy before they got sick but as we go through the recovery journey we realise this really wasn't the case 😕

[@CFSUnravelled1]

Yeah, sometimes there is a period of 'mystery illness' years or even decades earlier.

[@alexandraalbertz1442]

Keren, how are you doing? Miss you

[@pattyg.4872]

13 months out from 2 Pfizer jabs I’m still dealing with adverse effects and symptoms that mimic CFS and have found your tips and tricks to be helping me deal with my days. Interesting to learn of the different triggers… our bodies are crazy amazing!

[@jackiegroden416]

I’m in the same boat

[@chrissikadas8269]

Same here!

[@jackiegroden416]

@@chrissikadas8269 they poisoned us

[@pattyg.4872]

I’m sorry to hear that you both are struggling too. I hope you have some support. I’ve been seeing a Functional Med PA and getting some help, still a long ways to go though….

[@jackiegroden416]

@@pattyg.4872 I’ve spent a fortune on functional medicine, health coaches etc… no help… I’m finding the best help and know my path to healing is healing the ANS and Limbic system with rewiring my brain and dealing with unresolved trauma…

[@ljon008]

I agree that when it comes to initial triggers it is really under one umbrella which is Stress and under three categories which are 1physical stress, 2mental stress and 3various viruses. And the stressors accumulate overtime until it fills up our stress threshold and then the ANS flips because we passed our resiliency limit and in a simple way to say it is that’s how we get CFS.And all the other names we call it like ME and so on. We just need the medical industry to understand this illness so diagnosis comes quicker and take care of our amazing people until full recovery. 🙏🏼

[@seffie4363]

very reassuring video and perfect length! Thanks Dan and Raelan xx

[@RaelanAgle]

💓💓💓

[@CFSUnravelled1]

🙏❤

[@alyciahall1111]

Childhood abuse and hpa axis dysfunction go hand in hand. Sometimes the cause is from a long long time ago that continues to haunt

[@kathystoner5239]

Great interview! I love your interviews with Dan!

[@RaelanAgle]

💓💓💓

[@CFSUnravelled1]

🙏❤

[@TheEarthsEyes]

I mostly agree, except if part of how you got to this point blocks recovery, you have to remove the blockage as part of the process. For example, if you have heavy metals blocking your metabolic pathways, you actually have to chelate these out of your body for your ANS and mitochondria to be able to heal.

[@splog100]

Uh oh, I'm unfortunately *more* anxious after watching this, which I know is not what you intended! It's a great video (thank you so much for this and all the other excellent videos) but I am a bit perturbed to hear that concussion is what seems to most stand out to Dan as a possible difficulty in recovering. I have Post Concussion Syndrome and I had no idea that it might be a more difficult "trigger" to tackle than any other. Can Dan recommend anywhere I could find out more info about tackling the concussion part of a CFS situation? I have never found anyone else to discuss it with, or any online forum discussion, etc, yet. Seeing a neurologist has not yielded any real help yet either.

[@anthrax565]

Dan are the intro lessons available on KZbin? Annie

[@a.s.7232]

Thanks so much for this Interview 🌷 Amazing like all the time and gives me a lot of hope! I was triggered by the moderna vaccine. So actually i am fixing that trigger with homeopathy. I dont know if this is also common in the Us. I think its a good start for the healing journey! Sending a lot of love, Anika from Berlin 🥰

[@RaelanAgle]

💓💓💓

[@f.f.2316]

@dan: did you ever come across someone with unilateral issues with their nervous system? I'm having a paresis of the left oculomotorius and nobody can tell me why. No lyme, no tumor, no diabetics or thyroiditis. Also I'm having much more severe fatigue in the left leg and pain in the left leg and my left ear is extremely sensitive to loud noise. It hurts my ear when someone talks too loud or something drops on the floor or anything like that.

[@mrsi82]

This is really interesting. I hear you when say "it needs to be resolved" -absolutely seeing my lung health/bpa post-co vid as have to be considered as part of fatigue recovery. But doesn't mean haven't moved further forward using a mix of recovery practices.

[@martinajavorska1824]

im wondering if cfs tricks to recocery can be also applied on co-vid similar issues.. im so tired (14months) and have something like PEM after every small activity like walking for 20minutes...still so scared that im not long hauler but it turned into CFS

[@slowlivingmom]

Hi guys! Just one question i got from listening. Do you think lime should be treated with antibiotics or is it better to not take antibiotics ?

[@TheEarthsEyes]

Imho what worked for me was 6 weeks of antibiotics WITH lactoferrin (you can get it at eg. Whole foods, disrupts biofilm so the antibiotics can penetrate the dormant/cystic state of Lyme). Also helped my gut as much as possible - took probiotics and ate really clean to reseed the microbiome well.

[@johnny_kim441]

i recently seen the video raelan interview who recovered by using curable app . but icant find it now anyone have seen?

[@RaelanAgle]

Should be this one kzbin.info/www/bejne/l6Saemhrnb5lb80

[@kimwarburton8490]

I hope you keep collaborating together, i gain so much more from both of you when you bounce off of each other :D

[@RaelanAgle]

Thank you, Kim! 💓

[@sjoerdvermeijden]

Are cognitive behavioral therapy and brain retraining similar?

[@CFSUnravelled1]

Brain retraining can take many forms and can be defined differently. I suppose CBT could be brain-training if applied in a certain way.

[@synnevashaustveit9825]

You did not mention age as a factor… and how is menopausing contribute for us who have to go through this? Thank you for keeping up moral 😁🙋🏼‍♀️

[@CFSUnravelled1]

I agree that menopause can be a contributing factor, and stabilising symptoms from this is certainly helpful during recovery. I can say that I have come across people from all ages and lengths of illness that have recovered.

[@melissapowell5592]

I watched Dan's 4 intro videos years ago when I first became ill. However, I used other strategies to get "better" only to crash again and again. I purchased DNRS and have tried it, but I have a difficult time accessing good memories at this time. I get really frustrated and end up quitting the rounds because of it. No, I should not give up, but that's another story. Dan, may I ask how your program is similar or different to DNRS? You mentioned using other techniques to address the brain also. Are those things like polyvagal exercises or somatic exercises? I am set on doing a brain retraining program but am unsure if I should try another one or just suck it up and get good at DNRS. Thanks so much for your time and response.

[@Marykguise]

Great question Melissa! I’d love to know the answer to this too!!

[@sheridanbeverley9173]

I did ANS Rewire 5 years ago and the main rewire technique did not involve visualisation. Dan's rewire technique is much quicker in duration compared to DNRS. Once you have it down pat you can do it really quickly.

[@kempoutzzz]

@@sheridanbeverley9173 wow awesome! thanks for sharing Sheridan. Did you recover using ANS rewire?

[@sheridanbeverley9173]

@@kempoutzzz I didn't but it did help a bit 🙂

[@grahamkeil2253]

Thanks so much. If I could kiss you I would!love the care that Raelan shows. She palpably shrinks and is genuinely saddened when ref to wishing all people would recover.. on a deep level all we want is for someone to care! Thanks for Successfully caring!!

[@RaelanAgle]

Thank you, as always, Graham! 💓

[@sushilaananda3365]

Great discussion. Here is my question for Dan (I am working with ANS Rewire): I have atrial fibrillation which my electrophysiologist believes was caused by dysautonomia. The antiarrythmic medication that I have taken for years recently caused a severe cardiac crisis; I am now trialing another antiarrythmic. I find that antiarrythmic increase fatigue for me, yet electrophysiologists feel that once atrial fibrillation has been established (even though medically controlled) it cannot be cured. Have you ever come across a person with Afib caused by autonomic dysfunction whose Afib resolved when their ANS was restored to balanced functioning?

[@CFSUnravelled1]

Many of these conditions cannot be 'cured' - CFS cannot be 'cured' - CRPS cannot be 'cured' - and yet, we see people recover and get well again. I have been told by people that they had atrial fibrillation and then they recovered, but I cannot verify how accurate this was as atrial fibrillation and standard palpitations sometimes get confused. I myself had palpitations that fit the description of atrial fibrillation as they were erratic, but this was not medically diagnosed, so I can't say for certain. Palpitations are quite common in the CFS Fibro community, but I am not sure how many of them are atrial fibrillation or not.

[@sushilaananda3365]

@@CFSUnravelled1 Thanks, Dan. Yes, palpitations are very common and can look and feel like Afib but for most ME/CFS patients, it is not Afib which can only be diagnosed by an ECG. More usually it is premature atrial or ventricular contractions which are distressing but not harmful. So this seems to be a question without any real answer at the moment.

[@HilaryRouchy]

I feel in I could find a way to increase my atp l would start to improve. I'm very open to any suggestions

[@Star5dg]

Dan must be exhausted with all these interviews lol

[@grahamkeil2253]

A man who is learned and genuinely cares!!

[@heartcenteredhealing-r9e]

Omg!!! I love your doggie or cat?

[@RaelanAgle]

Dog! 💓

[@Jane-pg8jv]

❤️🙏❤️

[@RaelanAgle]

💓💓💓