ME/CFS Recovery - Strategies for Staying on Track (with Dan Neuffer)

[@ljon008]

Normal is not normal, I totally 💯 agree. People that knows, know what Dan mean. Don’t focus on society and social media rather focus on your health and inner peace. For all my CFS angels out there,someday you too will fly again. 🙏🏼

[@RaelanAgle]

❤️❤️❤️

[@brainretrainingmamma1664]

I don’t usually comment on You Tube but I feel compelled to after listening to this (which is probably the most authentic video I have watched in the CFS category). I have CFS and I also have 2 small kids and financially I have to work for us to just stay afloat. I have not been able to do recovery perfectly at all, and actually comparing myself to other people online who seem to be perfect in their recovery, was actually a huge stressor in itself. So I let go of that and did the best that I could. I have a job that has flexibility and allows me to work outside in nature for some of it. I walk my son to school and wouldn’t consider any schools that were outside of walking distance. I eat junk in addition to eating healthily because I found that cooking “from scratch” in itself was a massive stressor in terms of how much time and energy it took. I am now about 80% recovered and have also let go of the time frame that I put on myself to heal. Maybe one day I will share my story to other Mum’s with CFS, or people without financial security to show that it is do-able. Thanks for sharing this!

[@Bachconcertos]

I can get excited & caught up in a work project and before u know it I've been working 12 hours straight or til 3 in the morning. Especially when I was a KZbinr - highly toxic job because it can require or appear to require endless activity. KZbin terminated my channel for no good reason at all & no warning - turned out to be the best thing that happened to me for my mental health.

[@tammyprovost8320]

You talk of how important it is to keep your eye on the goal and maintain good habits & structure. Yes!! For me, It took a lot of work and a couple years to put all this in place, but I finally did! I've got a good ways to go to full recovery, but I know I'm definitely on the right road. Thank you, Dan (& ANS Rewire), and Raelan! Your work/knowledge is priceless!

[@RaelanAgle]

Tammy, I'm so happy to hear that you are finding things that work for you! ❤️

[@jayverasummer]

I'm so glad you two addressed this topic. Something I keep thinking about is how I also want to be one of those people who returns to "give back" after recovering. (I've already taken a wellness coaching course, but I'm still not recovered yet. Maybe went out of order, haha). I also think giving back to individuals who are already sick is great, but trying to change the overarching culture and public policy to prevent the illness from forming in the first place would be even better. We live in an illness-producing culture and I believe our illnesses are signs that not only our individual lifestyles and choices need to change, but the broader culture needs to drastically change as well. Highly sensitive people evolved to support the survival of the species. I might sound a little out there, but I believe most people who get CFS/fibro/POTS/long COVID/etc. are HSPs and our symptoms aren't just alarm bells for us, but for humanity as a whole.

[@deborahjenkins4434]

Thank you both so much. This is such a valuable reminder of the importance of intention setting and presence. Easy to do at home, alone, in my journal, but much more difficult to stay on track when with others, due to wanting to join in, or be accepted, or people please. Every day is a training day! I am 3 years into ME/CFS and feel as tho I have been to the University of Wellness! I am starting year 4 at Masters level! So looking forward to my graduation... 🎓😍🙏🎉

[@Bachconcertos]

U get caught up in the momentum of work - u are on a roll and cannot stop at a normal time of day.

[@dekabrokke1793]

I can identify with just about everything you both were discussing. Very helpful! I am learning to listen to my body and not the temptation of detrimental choices ( pushing self, goodies, device time). Thank you both Dan, Raelan, just what I needed!

[@RaelanAgle]

Thank you, Deka! That is so nice to hear and so kind of you to say ❤️

[@Lapetiteperfumeboutique]

I think this was a really valuable conversation to have-thank you so much for having it! I have lot of respect for the contributions you both have and continue to make for the CFS community. You are 100 percent correct in that making healthy choices feels a lot of the time like going against the grain as they say. There’s a wonderful book that’s speaks to this topic in a very thought-provoking way by Pilar Gerasimo called “The Healthy Deviant”. Pilar has her own recommendations for how to remain authentic to oneself and avoid falling prey to the unhealthy norm; it’s both inspiring and validating.

[@RaelanAgle]

This sounds intriguing, I can't wait to check it out

[@dustyblue7727]

Thank you for mentioning the book of Pilar Gerasimo. I 've bought it yesterday!

[@idragonfly]

I'm glad you switched the recording button back on too. 😊

[@RaelanAgle]

Me too!

[@kimwarburton8490]

i feel SOO much better about my lapses now XD meditation is the hardest one for me to stick at, though diet runs a close 2nd and currently mine's been atrocious (every 3 days; pizza, bounty bar, mars bar, sweets) my sweet tooth has come back with a vengeance Thing is, as i get better and can handle more foods, i increase the frequency until i feel worse again lol i swing between perfection and the complete opposite XD Even so, my progress over time is still there. Im finding reintegration the hardest cos ive so much fear

[@pamelarose229]

So many great messages in this video - yet another amazing source of help for those who need it, Raelan! It was an honour to get a mention part way through too! 😆

[@RaelanAgle]

💓💓💓

[@birgitlilliehook5139]

Oh my god! What a wealth of information in this video. It spoke straight to my soul. This is a video I will watch more than once. Thank you very much to both you Raelan and you Dan🌹

[@RaelanAgle]

💓💓💓

[@gregschmelzle8227]

Thank you so much for this video! I have had ME/cfs for 10 years! I am just starting to get some answers through your videos!

[@RaelanAgle]

Greg, I'm so sorry to hear about all of your health challenges, I hope you find your fastest path out of this ❤️

[@Jade-bf5we]

A lovely discussion from both of you. It's important to do something each day that we can give back to ourselves. We are so good at giving our energies and souls to others..but upon reflection what do we give to ourselves?. Whether this be a bath by 🕯️. A walk on the beach or in the forest. Life does get in the way, if this is you. My advice stick a coloured sticky label above your kettle with a nice daily to do task. Such as a massage, yoga, a walk, meditation. Or seeing a friend. Even if it's only 10 minutes. We all need to give ourselves some self love and tender loving care.

[@rebeccawillis272]

This is what I needed to hear today, thank you for recording and sharing!

[@RaelanAgle]

So glad!

[@jessicam807]

This may be one of my favourite episodes of you Raelan! What an amazing conversation. Thank you.

[@RaelanAgle]

Awww I really appreciate it, Jessica! Thank you! 💓

[@MariamHH79]

I am so glad you switched to "recording" 11 Months into recovery, maneuvering through the everyday craziness while maintaining my focus, this conversation might have been one of the most valuable and very helpful to me. Thanks so much Dan and Raelan. best wishes from Germany - Mariam

[@RaelanAgle]

Wow, this is incredible Mariam! You got this! ❤️

[@RightNowx3]

Thank you so much for sharing....I feel the Same most of the time. Why do I have to do this when everybody else don't have to...but at the end I always find myself thinking that's not normal our work culture today

[@DavidGWilliamsArt]

Great conversation. Really needed to hear this discussion at this time in my recovery. Thank you as it was very helpful 😊

[@RaelanAgle]

I'm so happy to hear, David, that you've found this channel helpful! Thanks for taking the time to share that ❤️

[@dustyblue7727]

Thank you so much for sharing this video, Raelan and Dan! It helps a lot to realize that not everything will be easy when you're recovered. Even though I knew that already, it helps a lot to hear the two of you saying that.

[@RaelanAgle]

Thank you! That is so nice to hear and so kind of you to say

[@barbarada6308]

Thanks Raelan and Dan. You guys are my CFS heroes. Dan, I have not yet been able to make your program work for me but totally believe in it. Thank you for bringing up the topic of body image. Very few people mention it but it seems to be prevalent in CFS/ME/FM sufferers. As someone in my 6th decade, I can't believe how the body beautiful driver has accelerated in the past 4o years or so. At first it was mainly women but now has moved on to men - the hair, the body, etc. It has been ingrained deep into my subconscious and I am having a hard time routing it out.

[@RaelanAgle]

❤️❤️❤️

[@maggytamney]

‘Normal life is toxic’ ….wow it is so true, making healthy choices means swimming against the tide and standing strong in our chosen lifestyle

[@kimwarburton8490]

these are the best vids -conversations between you two, i hope you keep them up forever, they are SOOO informative, insightful and engaging

[@RaelanAgle]

Thank you so much, Kim!

[@irenepapaspyros4847]

A pleasure to listen to both of you! Thank you ❤️

[@RaelanAgle]

Thank you, Irene! 💓

[@a.s.7232]

What keeps me on track....: your videos Raelan💝 Dan is also just a great person. He has the best energy and the conversation gave me a very good feeling. Thanks so much 🙏🏽 I love you both, Its Anika from Berlin 🥰🥰🥰🥰

[@kathystoner5239]

I loved this chat between you two! It was so very good!

[@RaelanAgle]

Thank you, Kathy! Loved it too! 💓💓

[@JacquiQ]

I went on a three day brain retraining course. Came away a different person. did not last. Talked to my coach on phone ...felt good again ..didn't last...talked to her again, felt good...did not last ...in the end I decided this stuff does not work and is not sustainable. It was like i needed that constant pep talk and that i am unable to do it myself or by myself. I do think brain re wiring is a must have component but for me I quickly go back into old negative thinking and symptoms get me very down and I fell like "i can't do this"

[@deion312]

Wow, loving hearing both of your thoughts... so great to listen to.

[@RaelanAgle]

💓💓💓

[@dommccaffry3802]

great conversation. hope dan is recovering ok from covid.

[@Sarah-ug8vk]

I really appreciated the honesty in this video.

[@jacquelinemetzner8391]

Thank you, i love Listen to you both. It is always helpful

[@RaelanAgle]

💓💓💓

[@Livan88]

Thank you. I really needed to hear this right now. 😊💕💕

[@RaelanAgle]

💗💗💗

[@dianeeva1858]

This was great! Thanks for turning on the camera. I actually had been wondering how you have been balancing/managing your return to work Raelan.😊

[@RaelanAgle]

💓💓💓

[@shaunnarochelle]

its true what raelen said - the amount of friends I know who express that they really want to live a more wholesome life!

[@Hannah-dr1rl]

Thanks

[@RaelanAgle]

Thank you SO much, Hannah! How incredibly kind and generous of you ❤️

[@ich.werde.gesund]

This is such an important video! I love it. Thank you Raelan and Dan!

[@RaelanAgle]

💓💓💓

[@tracyhagler2146]

Love this! Absolute truth! ❤️ Side note: We also have a new puppy (Aussiedoodle). Here we are six months later and we are in love with him. But the puppy chaos has been crazy 😂

[@RaelanAgle]

❤️❤️❤️

[@annielizabergen]

Thank you so much raelan for saying you sometimes eat crap and drink wine! This gives me hope for my future (hopefully near!) Recovery life as I worry about trying to live in constant sainthood 😂 ps: today is Day one for me in dan’s program!! I plan to post here again one day saying how much progress I’ve made. ☺️💪🙏🎉💃

[@RaelanAgle]

💓💓💓

[@nolamayer4101]

Thanks for your honesty 🥰

[@RaelanAgle]

Thank you as always, Nola!

[@kelsangzopa6727]

Hi Raelan, I put myself a reminder three months ago to watch it again. I'm going to do that today! No coincidence, I'm reading "The myth of normal, Trauma, healing and illness in a toxic culture" by Gabor Maté. I was thinking how it would be awesome if you could interview him! Best regards, Zopa

[@RaelanAgle]

💖💖💖

[@Bachconcertos]

I was on vegan for eight months & I did get better but then I was still sick because I needed some chicken some fish some beacon some fat especially in the winter. U have to eat healthy which means no sugar pasta processed foods overall - u can have a piece of cake once in awhile.

[@Bachconcertos]

I'm comparing myself with the 80 year old who is full of enthusiasm & joy & energy strutting past me down the street while I'm dragging my cement heavy legs like a tortoise and she's the hare

[@alexthornton9236]

Thanks!

[@alexthornton9236]

Thanks for all your hardwork Raelan! Giving people hope like you do is a beautiful thing.

[@RaelanAgle]

Your time and generosity to show appreciation is a beautiful thing! Thanks again, Alex.

[@alexthornton9236]

Raelen, thanks for all the videos. Just wondering, is the youtube 'thanks' feature the best way to donate some money to you in gratitude? Thanks, Alex

[@RaelanAgle]

Hi Alex - yes this would be the best way. And thank you!

[@homemakersheart3614]

I appreciate this video of your chat.There is something you mentioned I could really use - in your newsletter you send, you had some tips on self care with a new pet (puppy in your case). I could REALLY use this. Is there a way I could get a copy of that article? Thanks you so much, Dee

[@RaelanAgle]

I took a look but unfortunately can't recall which one that was!

[@lenestrandkristensen9589]

Takk!

[@RaelanAgle]

Thank you so much, Lene! 💓💓💓

[@Bachconcertos]

People are lonely & isolated. Being at home all the time is lonely being at we work is lonely

[@Bachconcertos]

Why don't people talk to each other at the office & at we work?

[@agnetahallberg9845]

I heard that Dan Neuffer is a former physician... what does that mean, medical doktor or physiotherapist or what? Agneta fr Sweden

[@FreshAgenda]

Physicist... physics. A scientist.

[@birgitlilliehook5139]

Fysiker. Jag trodde först han var läkare, blandade också ihop begreppen.

[@Bachconcertos]

Most work places to work are toxic

[@samgrassie]

Has anyone in the comments actually seen significant recovery? Having hopeless day

[@alexandraalbertz1442]

I fully recovered with his program. I wish you the best

[@Bachconcertos]

U have given an inaccurate picture of yourself.

[@davidburian5095]

Dont get this wrong, i think your work is important, at the moment, but i cant wait till biomedicin did its job and we dont need this dumb explanation of a severe organic disease anymore.

[@hiperboreanwolf8022]

exactly, she doesnt even have ortostathic intolerance, its ridiculous, she never had ME. No, her work its toxic. Its not science based. Its for stressed people who are fatigued. Nothing NOTHING to do with ME.

[@hiperboreanwolf8022]

exactly, she doesnt even have ortostathic intolerance, its ridiculous, she never had ME. No, her work its toxic. Its not science based. Its for stressed people who are fatigued. Nothing NOTHING to do with ME.

[@taghazoutmoon5031]

All diseases has a stressor and emotional cause which lowers the immune system to fight off viruses and other problems

[@joelcollins5665]

Leave toxic workplaces/relationships. Eat healthy. Don't drink too much. Ok now that we have that complete and utter common sense out of the way.......

[@grahamkeil2253]

Thanks

[@RaelanAgle]

Graham - you teach me so much about generosity and gratitude. Thank you as always for this! I hope life is treating you well and that whatever health challenges you might be facing - the puzzle pieces are slowly (or quickly!) coming together for you 💛