DR EDWARDS answers Functional Neurological Disorder (Conversion Disorder) fnd hope

[@ronwyn70]

I don't feel this still answers any question as to how or why we get FND and why so many doctors know nothing about it , I have read and researched myself and seem to know more about FND than the doctors but yet still have had no help I'm fighting a battle on my own here and all I want is someone to say this is what you should be doing to get well again instead I'm going down hill fast and there are days I wish I would just die that keep fighting something that there is little know about

[@Shaggy-lu6dz]

i agree completly. this is pissing me off. i cant walk yet i cant seem to get on disability. doctors dont want much to do with a guy with a fucking mystery disorder so i havent been able to get a family doctor let alone a referral to a neurologist or psychiatrist since being diagnosed months ago. i wonder how many other people there are like me who when money started rolling in steady and about to get a house with the girlfriend just went completely downhill thanks to FND? i wish there was a way to put leverage on the political system to put more money towards FND research and doctors nobody should live like this.

[@susanpennells988]

I have to agree with you Ronwyn, . Iv been diagnoised and told to go back to neurologist in a year, they diagnosed me with Parkinson’s at first, then after three years FND . Had no help at all .

[@niseyedwards2650]

Going to psychotherapy for this could help. I recommend physical therapy, as it helped me a lot but didn't get rid of all the symptoms, just improved it enough so I could function. I went through some horrendous workforce abuse at a company and this is when it started. I was blamed for things I did not do because they wanted to retaliate and be nasty. Now my nervous system is not functioning properly, it is giving off mixed signals, so to speak. There was damage to my psyche along with narcissistic abuse I have suffered. I wish they would look at this and possibly the cause and PTSD.

[@bywhackyofsnappersforum5392]

I had symptoms for years, also had epilepsy years ago to, never thought to mention it to neurologist .

[@frankbarron4568]

With my diagnosis the neurologist I'd been seeing after her dad and he could not figure me out there was raised protein in my spinal fluid and he said my spine was in a bad condition in 2004 I had C5/C6 discectomy and fusion then in 2009 I lost my balance and 10 years later I got the diagnosis now I've had blackouts so no driving or operating machines or lifting etc I've two prolapses in lumber area , I've got barrettes oesophagus and I have my MRIs of full spinal yet with all that I'm still been stigmatised with FND you should go on the sites on face book there you will get a true insight it appears we don't have an answer let's put it as FND , I had a major fall 4 years ago my daughter's said I was like a zombie smashed my face one of my hands was under my body fractured my wrist girls had a good laugh .so all I can say O yes my wife said I do stand at the window just staring at the shutter she was freeked out after paranormal activity

[@hollyhobbles4790]

I just happened to discover this. The first question

[@samanthablinn4520]

Bonjour Bridget! This is fantastic!!!!

[@wandalynnellis7814]

I've had it mostly all my life but wasn't diagnosed until I was in my late 30s. I was diagnosed ADHD at a child. DA I had that for most of my life. I feel gaslit alot because of the DA

[@denisesajones]

12 years ago i had a pain in my leg ,a couple day's later i started having involentry movments in my face arm leg ,right side ,lost unconionus but i could hear and feel but cant respond,a few day's later i had a seziue thingy phoned ambulance ,buy then i couldn't come around,first dr said i had stroke,then i had another attack so sent me for eeg although i was unconsious but still could hear and feel.i was removed from the ward and put on stroke ward,,well nurologist called a sycatrist as dr said it was in my head,sycaatrist told him straight this woman is ill u need to do tests,next thing he wanted to discharge me ,althogh i was unable too walk talk ,do anything fr myself,my friend refused until i could get help,eventually i had help my daughter stayed with me,forgot to mention while using walker i kept falling backwards,took me 6 months to learn to walk and talk again.. my own gp told me if it happens dont waste nhs time just sleep it of,so since then i not bothered with drs,but its worse so i went private she said i have FND,,, so it started 2006 seen nuro 2019 ,she sent me for video recording lastwweek i had an attack while there i was out for 65 mins and my face right side also left leg started involentry movments,when i came around nurse said i have never ever seen this before ,im dizzy all the time,pins and needles ,my legs are bad all day i fall ,my legs cramp in the calf and uoer part in night and day,i sweat alot the last 4 years its dripping from me,so tired ,awaiting now to go back to see her results... as i thought it could be ms or als disease ...........

[@frankbarron4568]

Did you have any spinal operations

[@cb-uk4ey]

I am seriously trying to understand this but the websites smack of a Munchausen's dream to me. Trust me I am trying....

[@jevongriffin6769]

Hi Dr Edwards..question:I have been told I have FND and am currently doing 20 weeks of psychotherapy.i my self feel I have MSA as I fit more into that group.how do I make anyone listen. I feel I've just been misunderstood or a lack of knowledge maybe.advice would be nice.Thank you.

[@kristenwhite2701]

jevon griffin If you mean MS they find lesions on your brain for that. I don't know what MSA is.

[@frankbarron4568]

Psychotherapy it's all a load of bull they don't know what's wrong so they are fobed off sure the want too do a EEG and another brain MRI with and without contrast I've seen it from 4 year old MRI I've got a big white patch on it so will be intresting

[@murphymcsmooshface7004]

Well neurologists need to find the time