Dupuytren Awareness

[@marialevick9437]

I've got this in both hands,I've had one operation on each hand and didn't work , now I'm in so much pain and I can't perform my job properly and I'm having trouble holding on to my job. If you have it as bad as me it's a disability, I can't wash my face as I can't cup water in my hands, if I wash my hair it gets tangled around my fingers. I can't open things I drop things , if I open a door and let go I'm still stuck to the handle and have to pull my fingers off the handle. It is horrible. People at work don't believe me and say oh just get on with it, this isn't the case and causes me lots of stress. You have to learn how to adapt to every day life the best way you can, take in mind it will take you twice as long so you also have to learn to be patience .

[@ljt2353]

I'm so sorry. Thank you for sharing these details.

[@maxinedavieds6104]

One of the best informative talks. It’s the “ Y”in Dupuytrens that threw me off from pronouncing it correctly. Once I ignored the “ Y” and repeated it a few times, I got it.👍

[@danamorris3436]

Why is everyone saying it doesn’t hurt or it’s painless ? My hands hurt like hell some days I cannot move either one . It does hurt

[@johnwilkins538]

I'm with you, it was painless at first but over time I have developed many more nodules and with more nodules came more pain!!

[@danamorris3436]

I’m not sure that’s what I have the doctors I go to act like I am crazy

[@catofthecastle1681]

What they mean is that the cords themselves aren’t painful, they’re too hard! But that doesn’t mean that the pulling and bending doesn’t hurt! Or that using that hand doesn’t hurt!

[@nancydegeorge1143]

Hello everyone. I at first thought I had trigger finger in my right hand as it's in my left hand. But, my ring finger got stuck for three days. Push hard onto my palm. I massaged my palm and pulled my finger straight. Very painful. Since then I have had terrible pain in my hand. Can't use it for much at all. I've developed some hard lumps and 'pinched' areas. Had scans last week and waiting for results. I'm nearly 70 and have no family with this that I know of. My hand is swollen and extremely pain so I'm very interested in the scan results 😕

[@redbird671]

Hurts like hell

[@andy8218]

This is the most comprehensive source of information yet that I've found. Lots of detail worth knowing. My surgeon seemed to simply pass over letting me know most of this information. I now have a better understanding of what is going on with both of my hands.

[@DamienKap]

Very thorough, informative, and motivating presentation. The doctor is very articulate , sweet to listen too, and an inspiring advocate for people with this disease. Thank you.....

[@tehya7979]

I am in the early stages of this disease. It is in both hands. I have had radiation therapy on the left hand last year and am currently having it on my right hand. So far I have not seen any progression in the left hand. 😊 Thank you for this video!!!

[@palomahealing5073]

Nancy Valdez I'm exactly the same...Have a small hardened nodule in left hand with no bad effects...but I do have DC-like symtoms in my Right...bad bad pain though! Docs want me to do an EMG...I don't think I will do it...I read its painful for a few days following!! 😨😨😨

[@green15838]

Look up Dan Web on facebook.He talks of oral tolerance and stem cells that are in the egg.The skin inside the egg are made up of stem cells and theses stem cells tells the body to make more collagen.Just four raw eggs in blender with a scoop of ice cream or chocolate milk or anything that you like and it does not taste as bad as you think.I use it for my psoriatic arthritis which in times is real painful.This is free knowledge and it just cost a blender ice cream and four eggs a day and what do you got to loose and oh yea eating some of the egg shell is ok.IT WORKS!!

[@bubblybernice4863]

How did this come about? When did u start noticing problems? If I may ask..

[@bryandonahue4435]

Nancy, how has the progressed and where do you live? I am considering Radiation Therapy Treatment but don't have alot of resources on this, being in the USA.

[@MrCPPG]

What is EMG?

[@kathyferrara4444]

For me I feel that it could be so much worse. I am grateful for Dupuytrens because it makes me realize that I could have a much worse disease. I got mine diagnosed very early which does make it better for me.

[@janethitti6013]

Very important information, it is longer than I expected, but well worth the time. Thank you Dr.

[@graemetessier7888]

What an informative, honest and excellent video.

[@dellahumphrey8204]

Had surgery a week ago. My pinkie finger appears straight under the bandages, but the exercises are painful. I am glad I had it done.

[@helloyall4355]

Just now finding this video. So far I haven't gotten this- I think. But what I have so far is 6 trigger fingers operated on, 2 Carpel tunnels done on both wrist and 1 ulnar, so far in 2 years. Got another trigger finger surgery in the morning. Had one finger done twice. I'm beginning to think there is no end in sight. Need 2 more fingers done and my other ulnar done as well. I have 2 torn rotators to go as well. God help us all.

[@green15838]

Look up Oral tolerance stem cells and 4 raw eggs with egg shells a day.And look up Dan Web on facebook,this is free knowledge.

[@evelynalcaide8578]

Pressing the tip of a pencil between each finger helps release the meridians. It is a releasing action doing this several times. These are also called baxie points in TCM. Marma points in Ayurveda. The most simple tasks of daily living become difficult. May we all release and get better...

[@orchidflower360]

I have been wondering if the using my acupressure mat (I have the DoSensePro) would ahve this benefit as well as increasing circulation and relaxing tissues. Based on this I'm going to guess it would be beneficial. Will try it and watch for any soreness, as an indication to stop

[@Cholla51]

Thank You Dupuytren Research Group! Just joined the research group & donated. My brother (81) & I (71) have it, Mother, God rest her soul, was Swedish. Think possibly Viking Curse! lol! I have always had a meatless diet, mostly because I don't believe in corporate animal farming, its cruelty & damage to the environment. Now I am mostly Vegan, vegetable juice, fermented foods etc. & don't eat out. My DC case is a very slight curve Rt. little finger, my brothers is REALLY bad. I play guitar & will try anything! Anyone heard of Potassium iodide, DMSO, Vitamin E & CalMag? I tried it in a very small dosage and seemed to soften the callous. Lets end this!

[@sharonb.campbell2934]

This is great. I just happened across it because I have a hand 'contracture.' I typed my hand problem into my browser, and LO! I'm making an appt with a hand doc when I wake tomorrow! I've been complaining about my hand for about a year and describe it as if it's turned into a claw .... thank you!

[@rudyruiz9521]

I'm screwed. Had it since my early 20s, hasn't really progressed but sucks every day. My thumb is effected and painful that bothers me every day. My fingers are in a more moderate state. Yet they still are hard to open.

[@queensigal]

I just got diagnosed . The only cool fact is that I might be of Scandinavian descent . I broke my pinkie but it might be irrelevant . I am a bit concerned .The doctor did not explain too much .I am really worried .

[@bubblybernice4863]

What symptoms were your early symptoms? What type of doctor diagnose you?

[@bubblybernice4863]

@Christie Minerva Oh. I didn't know.

[@Sianodak47]

I went for the needle therapy they stick a needle in the cord and rip the collagen ,as they put pressure on the finger Had both hands done . It took half an hour no pain and my fingers are straight !, and no down time !

[@michaelcrowley3517]

I had both hands done,a year apart, the hand that was most recently done needs to be done again.

[@oliverjamieson5747]

Very frustrating.. I have dupuytrens disease and am only 21 years old.. hope it doesnt get worse quickly.

[@johnnavidad1457]

SAME HERE! I got the news a week ago and I'm Asian so I'm even more rare! How's it now after 3 years ?

[@jewellevy]

I'm a pianist and a piano teacher with this disease. I'm 79

[@yasminalibazoglu3424]

I developed this in my right hand 4 yrs ago, I have epilepsy, which I believe the medication I take may have contributed. Although my hand does not have pain and it also lays flat, no contracture. Also I am not aware of anyone having this disorder in my family.....

[@shucksful]

Yasmin Alibazoglu .... is the medication you’re taking called Gabapentin? That’s what I take, and now I have one in my left palm. Thx.

[@yasminalibazoglu3424]

@@shucksful yes, Gabapentin is the nerve med, however I had the Dupuytren before I started the gabapentin. This is why I mentioned my taking a medication for epilepsy (which is different) I don’t know if this is of any assistance to you. 🙏

[@pinkfreud62]

At least this disease is not fatal. Disease sounds terrible. My dad's side of the family has had Dup. My grandpa, my uncle and his son and my aunt, all on my dad's side had Dup. My grandpa never got the surgery, but it didn't seem to bother him. Him live to 90 and my aunt, who had it, got surgery about 30 yrs ago. She had to quit her hairdressing job. She's 90 and still around. My cousin just had surgery at 55. I'm feeling a nodule under my ring finger and I'm hoping it doesn't turn into Dup. I'm almost 59 so wish me luck!

[@lynporter5090]

Very informative. Thank you. Great. Video Explains. Very. Clearly.

[@susanfrary7424]

I am having non-surgical Graston and Medi-vaccum done every several months. It's freeing and stretching the tendon. It's helping.

[@DupuytrenFoundation]

Please contact the Dupuytren Research Group [e-mail] to discuss your progress!

[@sheilas9405]

Could I be part of a study group? I am of Swedish decent and I’m in the beginning stage of this disease where I only have the lumps in my right hand. I am 60 yrs old. It itches and I have intermittent pain. I’m also a nurse and I need my right hand because I have a brachial plexus palsy in my left arm. As a result, I cannot supinate my left hand and heavily rely on my right hand.

[@sprocket-YT]

has Dupuytren's ever been treated like cancer & a nodule or nodules removed at the earliest opportunity & also treated with radiation therapy?

[@attaway3857]

I have it in both hands. I’m 54 years old and this is very uncomfortable when I’m typing all day long so it is effects my job now.

[@larryhagemann5548]

Thank you for your comment. My wife is 52 and has the same issue. We are looking at treatment alternatives and finding that Europe seems to be ahead of the curve on treatments. Good luck to us all!

[@catherinerobilliard7662]

I have it, in both hands, at 64 years old, following 48 years of typing. I've taken early retirement.

[@aniz40]

Question: Do you know if there is a realation between intake of special foods / vitamines and exercise to do/take or not to do or take??? Or how to prevent it or make it worse..??

[@phylisrogers5144]

informative, view until the end, you can become an advocate be asking for information and talking about this- hell raise some money for itso many have this, who would have knownget a second opinion- always. please keep creating updates on this, enjoyed this, felt better after watching it and more informed- nov 17

[@bubblybernice4863]

Would a primary care doctor be able to diagnose a nodudule in my hand?

[@despyper]

Great presentation and very thorough in not pulling any punches with the “Disease” process. Unfortunately I have it in both hands and I an certain it has a Genetic link.My father was a Mason and I used to think that was his “ secret “ handshake but in fact was Dupuytrens,he never talked about it but still managed to have a 6/8 handicap in Golf most of his life 👍😀

[@suziemiddleton007]

18:00 love the measuring device. Have you ever looked at using essential oils to support this.

[@catofthecastle1681]

What is your medical training?

[@johnhall8455]

Has any research/ treatment using a device that bends the fingers in the opposite direction of the contracture been tried, that would help straighten them back? I wonder is this kind of device could be used when sleeping to reverse the contracture.

[@chetharmon2106]

I have it. Got the shot for two out of three fingers. The pinky and adjacent ring finger. the untreated middle finger finger prevented the ring finger not to straighten as well as the third one did. (The pinky finger)

[@peachmelba9333]

I have a question- maybe you can give me an answer- I have congenital hammer toes- yeah I know pretty rare- but will it make me more likely to develop this also? I am having Repeated cramping where my diigets temporarily look like this syndrome. 😫 could it become permanent? PS I am female aged 76- if that has any bearing on this problem..

[@larryhagemann5548]

Excellent presentation and I am shocked about the lack of grants available for research when so much government money is spent on the study of stupid things that do not affect a person's well-being.

[@jonathanrichmond940]

I have it in both hands my baby finger has fully contracted on my left hand and i have knots in my right hand.

[@SuperSpaceGirlHDTV]

Find Jefferson. He will cure you with his magic terry cloth touch. He's a miracle worker.

[@sajsultan1839]

How long does the nodules take to appear then to a cord ?

[@utah133]

At 67, I have it in my left hand. It' just the lump-dimple thing so far.

[@FEARisCOLD]

Is there anywhere in nyc that you can recommend to get evaluated?

[@angelinabrown6839]

Looking for that in NYC as well

[@wstagner]

Thanks to Dr. Charles Eaton.....one of the early USA alternative treatment adopters.

[@margareteby1588]

wstagner ij

[@evelynalcaide8578]

Giving yourself constant fascia release stretching massages with sweet orange, oregano and lavander essential oil. I just developed this condition and being a massage therapist experimenting different options has helped open and regain range of motion. Vit E and magnesium.

[@sheilas9405]

Evelyn Alcaide I have just the nodules now. The hand specialist told me not to massage it but you have with a good affect?

[@calvinsimons6731]

Sir thnak you very much for the information you provided in this video. However I have one question, but first let me state that three of my uncles had this disease. I was wondering whether this condition was connected to persons that may had and addition finger growing on the pinky finger. As a young boy I had a finger like growth on pinky finger and this was also common with my uncles. Can you address this and if possible could this be common in other persons.

[@learn2b1]

I have DC, I've had scar tissue build up that begin 8 or 9 years ago. A family member told me she was taking primrose oil, (omega 6) and coincidentally gained movement from her DC condition. I was beginning stage two in my left hand. I tell you straight, I began taking primrose oil daily since that day and have reduced most of my scars in my palm and regained FULL movement of my pinky and ring fingers with no pain in pulling them back. Do a study and then tell me its snake oil!! Ill take that supplement until I die. I use my hands for my livelihood. try taking it and give it two to three months. you will reduce hand pain. my scars have reduced and softened, but are not gone completely

[@ozbizbozzle]

My little finger is now at 100 degrees after surgery. Do you think primrose oil will help with that?

[@Johngaltsghost]

PCPs can misdiagnose as a ganglion cyst

[@nataliegist2014]

I’m lucky I have trigger finger and thumb and Dupuytrens.

[@darrelltalbott4830]

Thanks buddy

[@lynengels1021]

I have it in my right hand just noticed it recently I’m 61

[@nebeckwith9435]

Great presentation. I have had surgery on both hands and will need it again on my most recent hand only done last year. I long suspected that the lump in my arch of my left foot could be related. Now I know that it is!

[@timberwolvesxx7250]

great channel

[@swetabothra2304]

What kind of doctor (specialist)treats this disease?

[@TaraTaraTaraTaraTaraTara]

I have just had 2 operations to release fingers…here in new zealand we see an orthopaedic surgeon

[@Sianodak47]

20 years old my ring finger started with a Nott by 21 it had started contraction

[@susanfitzpatrick2094]

Thank you !

[@gamaltaher9714]

Thanks

[@queensigal]

Is this a handicap?

[@GilaMonster971]

Seagull Livingstone it can be if it is so bad that your seriously limited from using your hands.

[@TaraTaraTaraTaraTaraTara]

I gave up working because of it

[@kidvicious2227]

Vince Neil sent me here

[@GilaMonster971]

I was taking glucosamine and collagen to help with back pain from a couple surgeries and developed lumps in my palm and a nodule on a finger joint. I know it’s Dupuytrens, but hopeful I will be one of the rare ones that it resolves it’s own. Obviously I stopped taking the supplements.

[@jewellevy]

I also developed dupuytren after collagen loading.

[@lovewillwinnn]

More proof of a Designer 🌎 ✨ ⚛️

[@RameshKumar-pj5gd]

Cll me my haind poroblam

[@vilorijaspasevski1106]

Prevedi te na drpski