Dysarthria, Speech Problems with Chiari and Periodic Paralysis

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1000 Dominoes

1000 Dominoes

Күн бұрын

This is one of the ways my episodes present - dysarthria occurring with severe weakness. I woke up in a state of partial paralysis at about 5 am, and the episode continued for four hours. An hour later, I had another one that lasted for an hour and a half. Then I had seizures off and on between 4 and 10 pm. Just a day in the life of whatever this is - periodic paralysis and Chiari malformation are the two things that ring true the most with what I know about myself and my life-long history.
UPDATE: I was formally diagnosed with Chiari malformation in August 2019. The evidence was in my scans from Oct 2018, but when I asked my PCP about it, she just said, "Oh, that just means you have headaches." It was months before I got a real answer about it.
I have also been diagnosed with Periodic Paralysis since this time, and I believe both were contributing to this, which went on for months, but in different ways.

Пікірлер: 5
@SarahPriceHancock
@SarahPriceHancock 4 жыл бұрын
Oh my word! We are so similar! Isn't it weird how it waxes and wanes!? I have the exact same thing!
@1000_Dominoes
@1000_Dominoes 4 жыл бұрын
Yes, it certainly does. Actually, I have these jerking episodes too, and when I have them I will jerk several seconds and then stop several seconds. It's kind of like that with the speech, at least when I'm coming out of it. There have been times I can't talk (or move) at all. It really helps to know that we're not alone.
@MyMumHasEpilepsy
@MyMumHasEpilepsy 5 жыл бұрын
Not nice for you... Hope things have improved for you now.
@1000_Dominoes
@1000_Dominoes 5 жыл бұрын
Thank you so much. I still have problems with these episodes but currently they are more mild, more brief. My speech is usually affected only for a few moments here and there vs hours. Every little bit helps. 😊
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