Dystonia, smiling through the pain

[@EngineerCorner]

She is a beautiful person. I was dx with dystonia recently. Life can change quickly, never judge. Thank you for this wonderful sign of hope. All the best, stay safe from Canada.

[@theozman38]

Patty is such a sweetheart. Wow 😢 how can anybody ever make fun of this person?? Who the hell are you to be making fun of anyone. When she said this it pissed me off. I would have no problem hanging out with her. What a big heart !!

[@Easilyentertainedhere]

I have cervical dystonia. Yes, we still work full time. Please dont point out to us that we are shaking. We know. Please dont ask us if we have a toothache when we are holding our head or leaning our face or jaw on our hand. We are just like you just with a neurological issue that brings a lot of pain and discomfort. We are smart and can work very hard. Hugs to all.

[@ateetsharma789]

How do you that? I too have cervical dystonia ans focal Dystonia. I had to leave my job

[@sarahespiritu8794]

How sweet are these two!

[@lovewenwin]

Dystonia is often medically induced. Psychiatric anti-seizure and anti-nausea medications often cause dystonia and akinesia sometimes you can get over it pretty quickly but also often it is permanent

[@frankmuller6834]

Don't forget benzodiazepines.

[@katelynfe]

Uhhh mine developed after i ate a starbucks coffee?? Mightve flared my mcas and pots

[@BorisBirkenbaum]

Yeah hers was probably also medication induced from the seizure medication. Pretty sad.

[@BorisBirkenbaum]

​@@katelynfemcas and pots are mercury poisoning you should look into the cutler protocol..

[@janineoseman1469]

I’m a UK resident who has developed Facial Dystonia in middle age. I can’t tell you how helpful it is to see this publicity for what is such a distressing condition. Patti is an inspiration to us all! Well done and thank you to both of you for raising more awareness and educating people about Dystonia ❤️👏👏👏

[@CarolKennedy]

Patty is the sweetest, kindest person. She’s definitely an inspiration to others with dystonia like myself. Thank you Patty for being strong and being you 💪 ♥️

[@Stormy5475]

Such a beautiful and honest smile from the heart.

[@emanuelzarate785]

I lost everything after my diagnosis. Including my mind. Look beyond.

[@FullTimePatient37]

I might be losing my life to it because I'm having great difficulty breathing and eating.. I wish we have a cure 😔 I have a KZbin channel

[@zoicomeau3063]

She AMAZING God bless her🙏😇🌠

[@sherylholcomb277]

I have generalized Dystonia by taking antidepressants after a cardiac arrest and stroke in May 2019. I understand a little of what you are dealing with. God Bless you 🙏🏼❤️😘

[@LouellaMagtajas]

Hi sorry but how does it felt? I have spasm at the back of my neck.

[@gurgy3]

When the reporter met her at the door I was thinking, wow she’s really friendly. Then they kissed and I was like 😮. But then she said they were sisters 😆

[@FullTimePatient37]

I have generalized Dystonia I can't even walk or talk or feed myself or talk... it's on my KZbin channel..

[@partialperson]

I am so sorry, I am degrading pretty fast and pray I never have to suffer like you. Thank you for being open about!

[@omidmehdi]

i got dystonia in 2016 and had the DBS surgery in 2018 and in 2019 went to Germany for my master's degree

[@farkhondehrezaie7725]

I have cervical DYSTONIA, it’s just horrible. I feel her pain.

[@keirobangs6666]

she is such a nice person ❤

[@sonyaj.6736]

Such a strong, positive young woman!

[@joshyemanuelbacenet5249]

In my case it started when I was 14 and believe me this condition is horrible

[@truegemrn]

She’s so pretty. ❤

[@Nightwolf3536]

Mine happened in 2019 at dinner i lt kicked in out of nowhere and till 2023 it still goes on. Been to chiropractor and tried massage guns and tens units, foam rollers and ice packs, heating pads, and you name it. Mine happens when theres crowds of people everywhere, but when im alone in my room its fine it goes away, its weird, i even went to the get an x-ray examine and they said nothing but that i have a spinal deformation a little bit. So now when i go see and talk to a doctor im gonna tell them about it. If thats ever happened to you guys or know anyone who has had it let me know. Cause i would like to hear there story.

[@10and2]

You will need to see a neurologist. A regular doctor is not qualified enough to know and most never heard of it. You can get Botox injections that help the muscles relax and certain medications they use for multiple sclerosis and Parkinson’s. It is permanent and you will definitely need treatments. If you don’t the muscles will get stronger and harder to treat. Also you will have major pain from the muscles contracting constantly.

[@Thecatnamedkiwi]

I had a distonic reaction and it was by far the scariest most painful thing I’ve ever gone through I have ptsd from it

[@andrasmatyiszevo7849]

once in the ER they gave me an intramuscular injection of lorazepam plus chlorpromazine. I'd say a good 12 hours later, after the lorazepam had worn off, I was sitting at the walk-in clinic for a bad cough I had when I started pulling faces like this poor woman, completely out of my own control. When I was finally seen I managed to stutter out "This...isn't why I'm here today.....but I cant stop....clenching my jaw...." They looked up the meds I had been given the previous night and gave my some I.M. diphenhydramine and within a half hour my face and neck stopped contorting.

[@frankmuller6834]

Why are they always change meds or add meds to fight the Side effects instead of just stopping the horrible treatment with those meds?

[@kalani1987]

Patti, I wish you and your boyfriend the best

[@mammadeuces6242]

I have dystonia and it effects different parts of my body. It was in my feet, then neck and now it’s been moving to my face, I keep making faces too. I was recently diagnosed with a brain disorder called FND. I have all the symptoms of people with Parkinson’s, MS, Stroke, and Epilepsy.

[@angelataylor2049]

There are some really horrible people. I wish you all the best and happiness. Take care.

[@awakenedsoul]

Many dystonia treatments.... it's caused by misalignment of tmj and usually happens at birth..then worsened as the adult molars come out

[@scrapezz3204]

I’ve got all of that what you just said right there, will taking out the molars help it?

[@awakenedsoul]

@@scrapezz3204 No you need to rebalance it. Watch these KZbin channels Dr. Lee South Korea dystonia Starecta rectifier

[@marinmansions2240]

Yes this has happened to my 11 year old son a couple of times. We were fortunate to find a dentist who treats these conditions. My son Is Hypermobile, and has cervical spine instability, and TMJ. When he gets too far out of alignment we see the Dystonia come back. He also sees a chiropractor regularly. She does gentle adjustments to keep him aligned, but every once in a while if he’s playing a sport and takes a hit, that will send things out of balance again.

[@awakenedsoul]

@@marinmansions2240 How's his eyes?

[@marinmansions2240]

@@awakenedsoul Good right now, except he is near sighted. He’s had severe double vision and flashes of light in the past. We are waiting for an appointment with the Elhers Danlos Clinic at Sick Kids in Toronto. He is definitely very hyper mobile, but hasn’t been officially diagnosed with EDS yet. Pediatricians wanted him to go to a psychiatrist and suggested meds might be helpful. I told them his history with Cervical Spine Instability, and they don’t seem to know what to do about that, other than meds. The dentist, chiro and osteopath know. I am sure my son is not the only one going through something like this.

[@martinsanchezjr8774]

I have dystonia to and I have a deep brain stimulation it helps a lot but I can’t do nothing like I can’t have a girlfriend and she is lucky to have a boyfriend 😢💔💔😢😢

[@frenchtoast7742]

I havé Dystonia where I can’t walk long distances or stand . I’m on disability 😢

[@getachewmuche3914]

😮 am living in Ethiopia , and i have the same sign/symptoms with this video ....could you give me a hint for treatment pls??

[@sapreebenzoh]

I wanna hug her! I’d love to talk and learn more about her disease not make fun

[@FullTimePatient37]

I have generalized Dystonia my KZbin channel is about my daily life with it..

[@misanthr0pic]

dystopia sucks. got it as a reaction to haloperidol…… didn’t get an antidote with it….. terrible.

[@icammeronmunger]

How could they make fun of her! Obviously its not drugs!

[@SeanNorsee]

medication induced dystonia. thanks pharma

[@AMG749]

I was having my first breakout today i experience it had to take xanax again for it, antisycotics caused it with sista invega

[@tropisk.]

Get out of it. Cbd oils instead perhaps? Don't end up getting parkinson because of the "medication"

[@AMG749]

I am trying

[@Nightwolf3536]

I used cbd gummies and stress gummies sorta helped but not really. I was thinking of trying muscle relaxers, or try a neck brace for my neck dystonia. 🤔

[@FullTimePatient37]

I have generalized Dystonia I can't even walk or talk or feed myself or talk... it's on my KZbin channel..