Olivia's Cervical Dystonia Recovery: How She Found Relief Without Botox

[@esteladavoodi6609]

Thank you for sharing! So happy you could be helped!

[@mariaolgamartinmediavilla9310]

Does this treatment tend to have definitive results? Is there any risk of getting worse? Does the patient have to do exercises daily to maintain his improvement? Relapses may occur, which makes it necessary to apply more treatments?

[@ItsStabilityTime]

I have CCI and dystonia now as well. The team has helped me too but my CCI is severe so they are one important aspect as I continue other healing treatments for my neck 🫶🏻happy to hear you found so much relief for the dystonia. It’s so hard

[@partharoy6077]

R u eds or injury why u have cci cause

[@anonymoushuman4316]

I have hEDS and dystonia. I’m desperate for pain relief. I don’t have tremors. Just muscles stuck hard as rock shoulder elevated

[@northwestfunctionalneurolo5250]

@@anonymoushuman4316 please reach out to us at [phone] or [e-mail]. We will set up a call with one of our providers and determine what we can do to help.

[@Dawnside-g7l]

@@northwestfunctionalneurolo5250where are you located medical services at mam and sir? I needed assistance for same health concerns as cervical dystonia! I been tried so many treatment options but none of it works! I’m looking for any existential alternative solutions even just a relief and safe! Been dealing with this problem long enough and I’m from here in Los Angeles California. Hope someone will give me a context based of this solution! Thanks in advance🙏

[@sam691999]

My understanding is that there is no cure. So I’m glad this is helping you and I wonder how you will be in 5 years or so. Feel free to follow my dystonia page also. It’s debilitating!

[@mariaolgamartinmediavilla9310]

How long have you been doing this therapy? It is completely proven that it does not have any side effects in the medium or long term, and after intensive treatment, do you have to return after a certain time to maintain the results? They have Spanish translators, or they speak Spanish in the clinic, my English is very basic and if I go I don't think they will be able to accompany me to translate for me.

[@Dawnside-g7l]

I have this condition long enough and I haven’t found any relief solutions despite I tried so many treatment options included Botox injection which is the main treatment of cervical dystonia and I did also prp injections and some meds but none of this works! I am desperately looking for a reliable relief solution for my health problem but safe and effective! I am from Los Angeles California county. Thanks in advance🙏

[@northwestfunctionalneurolo5250]

Please reach out to us at [e-mail]. We will get a call set up with one of our providers and see what we can do to help. Be well!

[@gabstar6767]

Can you make a video showing your exercises?

[@northwestfunctionalneurolo5250]

That would not be helpful. The exercises that we create are specific to the individual. What helps one person could be the opposite of what someone else needs. Everything we do is determined by precise neurodiagnostic testing. There is no cookie cutter approach to treating dystonia, every case is different.

[@Whatsupbuddiebud]

​@@northwestfunctionalneurolo5250where are you, do you have a website and do you accept health insurance.

[@headtrips1]

Where did she experience tingling ?

[@prateekagarwal9856]

Could you please send a video of yourself before the treatment so viewers can compare before vs after? The problem is that NFN doesn't accept insurance and is out of network. So it's hard to develop trust by just watching a video. This will require a lot of money to give it a shot.

[@oliviamahony1249]

Hi there, I'm the person in the video but NFN took the video and we did not film prior to going through the intensive therapy week. I also don't 'vlog' so I never took a video prior to treatment going over my day-to-day symptoms. I totally understand that NFN is an investment. They are able to provide superbills of each visit that you can retroactively bill to your insurance provider. I did this and was able to receive about 1/3 of the total cost back. The remaining 2/3, while expensive, was completely worth it to me AND something I would easily spend in ~1-2 years of botox treatment (mine was ~$1700/visit every 3-4 months, eventually hitting my deductible), not to mention other service providers to help deal with the pain (chiropractors, massage therapists, physical therapists, etc.). The initial diagnostic exam is where Dr. Z is honest with you about your results and tells you if he thinks he can treat you -- I personally trusted that more than watching videos of people in similar situations because Dr. Z goes into so much detail about your specific results and what's going on with YOU neurologically, pinpointing the issues and tell him what they could do about them.

[@markcrisp07]

so what was the treatment option? Is that top secret? Laser therapy?

[@northwestfunctionalneurolo5250]

The treatment was a specific set of exercises to resolve the discrepancies in her visual and vestibular maps, coupled with therapies to promote better function of her basal ganglionic system. More information can be found here: www.northwestfunctionalneurology.com/blog/what-is-a-dystonia

[@davidmiller5995]

Why aren’t you sharing the exercises? You’re just here to talk.

[@oliviamahony1249]

Correct, the purpose of this video is to share my experience at Northwest Functional Neurology. The exercises are incredibly personalized based on each individual’s neuro testing results, so it wouldn’t be helpful to share what worked for me, as they almost certainly wouldn’t help the next person with cervical dystonia. For example, during one of the tests, you stand on a balance board that digitizes your center of gravity. They put a foam block on it to remove your brain’s ability to locate where you are in space using your feet, have you look in a specific direction (R, L, up R, up L, down R, down L) and close your eyes. In every direction except for one, I was generally able to maintain balance. But in one direction I almost completely lost balance the moment I closed my eyes. That direction was unique to my case of CD and was tied to the location of my vestibular imbalance and the directions used, along with other neuro testing results, in treatment for things like gyrostim and some of the eye exercises provided after treatment. Hope that helps.

[@Whatsupbuddiebud]

​@@oliviamahony1249do they accept health insurance?

[@istanbul27001]

Botox every 3 months but still not pain free.