Ep. 87 Parkinson’s Disease After Eleven Years

It’s been 11 long years since my diagnosis. What has changed?
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[@ParkinsonsWigglesProject]

Thank you for sharing! and the laugh about not needing to run around the house naked anymore 🙃One of the greatest lessons I learned in the restaurant business is to always keep your cool no matter how insane and busy you are, because stressing out about it will get you nowhere and make it worse. This applies in all areas of life...especially with PD!

[@JeremyMcdonald]

Well said, Jennifer!

[@martinmatko6401]

Who Knew?? #BloodFlowMatters Supplying Oxygen and Nutrients to every Cell along with clearing toxic brain waste, what is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal flow, impacting neurological symptoms regulating mood and cognitive Senescene Psych issues? #CCSVI #BloodFlowMatters With age, blood flow to the brain decreases b/c blood vessels produce less nitric oxide, a gas that expands blood vessel walls. Such disruptions contribute to changes in cognitive function that occur with age. #Exercise increases nitric oxide & boosts blood flow to the brain. #Urgent #BloodFlowMatters Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI #BloodFlowMatters Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain, which after years results in MS Sleeping is a Silent threat to mankind! Keep in mind! Arteries are nothing without a Heart, and a Heart is nothing without Veins! Treatment improving Arterial Circulation is permitted and common, all treatments that improves Circulation in Veins are not widely available. #CCSVI Help facilitate Neurovascular Disease Research Best chance for longevity quality of life depends on availability Neurovascular Disease Research Collaboration. '“When we age, one of the common things that happens within our brain is that the blood vessels do become compromised in part because of chronic conditions,” it is said. “And when that occurs in normal aging, what happens within the brain is … silent strokes.”' As much CCSVI has been Scientifically established to have a role/part in 43 so Neurological afflictions including Dementia and so called MS 'There is evidence to suggest COVID-19 impacts the same blood vessels that feed the brain. If the virus is damaging those vessels, which could speed up aging, this, in turn, means some survivors might be at risk of getting early-onset dementia.' Time for Learning Science #BloodFlowMatters Apparantly nothing else matters critical Healthcare So happens CCSVI a TREATABLE Congenital Science Confirmed Recognized Med Condition STUDIES show causative factor so called Multiple Sclerosis & role/part 43 other SO called Neurological Afflictions Incl. Migraines, Asperger Autism Dementia/Alzheimer's Aphasia Optic Neurtis Tinnitus Transverse Myelitis Ect! facilitate collaboration defining the path forward establishing the understanding and treatment of Neurovascular disease organizing unified clarity in Science knowledge and progress!⁰⁰ Critical Healthcare Research addressing Neurovascular/Cardiovascular Disease including Heart & Brain function Amygdala Dopamine/Serotonin related Mental Health Depression Vascular Disease issues! #anxiety #VascularDepressionConsensus FB Group: MultipleStenosisSociety t.co/7JNmFD7W4l Apparently What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow Impacting circulation and homeostasis balance? #CCSVI #BloodFlowMatters #spasticity #perfusion Horizontal sleeping causes Reflux of De-Oxygenized blood towards the stenosed Hypoxic brain CCSVI is Science Confirmed Recognized Medical Condition STUDIES show causative factor MS Varicose Veins Fatigue Atrophy Inflammatiion Thyroid issues Covid-19 Heart function matters Cramps Mental Health problems Bowel & Bladder affairs insomnia Senescene Psych unusual behavior! Studies have shown that mostly ineffective often harmful or poorly tolerated Pharmaceuticals that 'TREAT' so called Multiple Sclerosis (M$) $20-40Billion W/a B/yr industry! Living with the Symptoms of Multiple Sclerosis is torturous tortuous tumultuous utter misery! Chronic Cerebrospinal Venous Insufficiency CCSVI/Neurovascular Disease CCSVI is a Treatable Congenital Scientifically Confirmed Recognized Medical Condition, Established Causative Factor in Multiple Sclerosis SymptoMS, AND plays a part 43 other so called Neurological afflictions! CCSVI may be impacting yourself right now and you are unaware! #CCSVI Apparently the Sooner a Person Receives Venous Angioplasty for Treatment of CCSVI! best possibility eliminating cause of MS Symptoms and easing or disappearing! So Called Multiple Sclerosis is more important to some than others Pharmacists, The M$ Society, Neurologists 'so called MS experts', Cane Manufacturing, Scooter and Power Chairs companies, etc Etc ETC So Called Multiple Sclerosis (MS) is/HAS been a MYSTERIOUS elusive UNPROVEN Autoimmune THEORY solely based on SYMPTOMS! STUDIES show Pharmaceuticals That 'TREAT' so called MS only 20-40% Effective DO NOT slow Progression of the Disease Often have Harsh Corrosive Side Effects sometimes DEATH! #CCSVI So Called Multiple Sclerosis (MS) is/HAS been a RUBBISH UNPROVEN Autoimmune THEORY Based Solely on SYMPTOMS! #CCSVI Venous Hypertensiono >microbleedings >iron >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Hypertension M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ neuro inflammation #CCSVI So happens, to mention apparently, Neurogenesis and Homeostasis, are often side effects of Venous Angioplasty treating CCSVI!! Apparently sooner treatment best possiblity Symptoms easing or disappearing. 1/1 #CriticalHealthcare_Research #CCSVI Neurogenesis is the process by which new neurons are formed in the brain. Neurogenesis is crucial when an embryo is developing, but also continues in certain brain regions after birth and throughout our lifespan. qbi.uq.edu.au › brain-basic Homeostasis is an internal feedback system that stabilizes and balances our body's chemistry, so that our organs work smoothly and efficiently with each other. Sickness is the disruption of homeostasis, which doctors treat with medicine.Oct 20, 2016 www.bmj.com› bmj.i5643 Blowing the Whistle on Corrupt Pharmaceutical Industry by Gwen Osen FB Group: MultipleStenosisSociety facebook.com/share/p/jQxWX5Ce6sZgzmky/?mibextid=oFDknk

[@user-xk6xn2du8q]

I’m living this . Grateful for the P.D. community. You express the journey eloquently.

[@JeremyMcdonald]

I appreciate that!

[@SDWP]

I see that Prince behind you! High five! Take it a day at a time…that’s all we can do. Love the attitude.

[@SuperEinstein21]

Using your powers for hood instead of evil! Enjoyed this so much. My father has Parkinson’s probably 15 years now. He’s 82, still tries to make it to the gym and wants to get back to rock steady boxing. He is declining more mentally but my moms his hero! She drives him everywhere now. Keep up the good work. We love you from snowy Maine

[@JeremyMcdonald]

Tell your father to keep it up! Thanks for watching!😎

[@joecarr3337]

Hi Jmac I’ve watched most of your videos and you hit the nail on the head with so many of your observations. I was diagnosed 9.5 years ago. I had DBS surgery about 4.5 years ago. Without going into gory detail, I think it has been a net positive experience but who knows how the trajectory of my condition would have taken had I not had DBS. My tremors have been nearly stopped and I have no dyschonesia (sp?) to speak of. But freezing of gait has been horrible. I can barely walk and rarely leave the house. Fortunately, my wife has been a real help and I am 67 so I am now on Medicare and SS.

[@JeremyMcdonald]

Thx, Joe! Did you have freezing of gate prior to DBS?

[@joecarr3337]

Yes but it has gotten much worse since I had DBS. My neurologist says that DBS doesn’t seem to affect freezing of gait. So it is impossible for me to tell whether or not DBS has made it worse or just has no affect on it.

[@MLStanleyK]

Thanks Jeremy! I am coming up on 2 years diagnosed on Sinimet, with probably 2 years before that undiagnosed. Your words are helpful as we walk this 'Long and Winding Road'! God Bless.

[@JeremyMcdonald]

Thank you, Stanley! Long and winding road indeed!

[@jackmcloraine5354]

Jmac I never miss your videos. They always contain great content. I shared your you tube videos with my siblings and they all love you. Keep up the good fight, kiddo.

[@JeremyMcdonald]

Awesome thank you! I hope I give them something to think about and a way to relate to your struggles. 😎

[@adawehi55]

Thanks for the inspiration. One day at a time-for sure. Somedays, it’s moment to moment and that’s OK.

[@JeremyMcdonald]

So true!

[@alittlebitshaky]

Thanks, JMac. It’s so true that PD is such an individual journey. Same same but different…for everyone… But it is so helpful to hear other’s stories, the good and the bad and know that there’s no right or wrong, it’s “what works for me”. Cheers ❤️

[@JeremyMcdonald]

So true! Thank you!

[@GoProGoalieUzi]

Good job J! I agree with everyone you mentioned. One task, one day at a time. Cheers!

[@JeremyMcdonald]

Thx, Uzi!

[@kendc4725]

I usually don't pay attention to motivational posters, but I saw one that has resonated with since PD entered my world. It's a scene of the Colorado River cutting through the Grand Canyon. The message was something like: "In the confrontation between river and rock, river always wins . . . not by strength but through perseverance." I think there's special message in there for us! BTW, I also think there's a message in your album/book backdrop every week. I just haven't been able to crack the code. Maybe you are telling us that Paul actually was the walrus; or that it was John...

[@JeremyMcdonald]

I like that saying! As far as the album selection, it’s a combination of my mood, colors and the occasional secret message!😂

[@brucefowler3371]

You’re awesome man. Keep it up

[@JeremyMcdonald]

Thanks! Will do, Bruce!

[@newworld6474]

good reflection ...

[@JeremyMcdonald]

Thx!

[@LifewithParkinsons]

Hey Jeremy that is good advice one day at a time one task at a time at least we can get stuff done that way. 😊

[@JeremyMcdonald]

Thx, David!

[@MrTimFarnham]

...one day at a time...hold on to the good moments.

[@JeremyMcdonald]

Right on, Tim!

[@paulinegalvin152]

Love your videos Jeremy keep on keeping on you’re inspirational 🙌

[@JeremyMcdonald]

I appreciate that, Pauline!

[@Anthony99355]

Hey Jeremy, great video. During your consultation for DBS, did your MDS say your gait would be improved? Or just tremor?

[@dasmiths69]

Thanks for your transparency, Jeremy! I was just diagnosed in September and I was fortunate to catch it early. I took Carbidopa / Levodopa for about 6 weeks and decided (with my doc) to do some experimentation and cycled off my meds, as I know there are side effects from long term use so I am trying to not take it as long as I can. I have been logging my symptoms each day and seeing how my body responds to diet and exercise adjustments. Didn't realize you were in STL....I am just an hour and a half northeast of you in Springfield, IL. I have been thinking about doing another channel like this to document my journey. I have been struggling with severe apathy....I know everyone has slightly different challenges, have you or did you struggle with severe apathy at any point? How did/do you overcome it? I am very ambitious by nature, but this apathy has to be the hardest part of this right now, as it is a battle to get things done that I know I need to get done. Anyway, thanks again for your insight, great video, and keep up the good work!

[@JeremyMcdonald]

I struggle with apathy on a daily basis but I don’t know if it’s because I literally can’t get out of my chair to do the things I love or if it’s just PD. Honestly, music and exercise are the only things that really get me going. It can be difficult to start, but once I get going, I feel better. Thx for watching!

[@dean8by7]

I was diagnosed 6 months ago I realized I had symptoms about 5 years back do you ever think it would be better for your family not to go through this

[@JeremyMcdonald]

I used to feel like that, however they make it very clear every day that they love and need me now more than ever.

[@Anthony99355]

Hey Jeremy, great video. During your consultation for DBS, did your MDS say your gait would be improved? Or just tremor?

[@JeremyMcdonald]

We aren't that far along yet but will update ASAP. Thx, Anthony!