Episode #49: Experiencing new pain with Parkinson’s

[@someonenew9442]

Thank you Jessica and Melissa, you are two lovely, uplifting ladies! I was diagnosed two years ago at grand age of 60 (!) but had symptoms well before that. I don’t know if it is worth discussing what to avoid with PD. My personal life has been stressful, a ‘bad marriage’ now behind me. What I’m trying to say is, if anyone out there is living every day with difficult people, giving you sleepless nights etc, it will take a toll on your health/ nervous system. You have a good husband Jessica, mine made fun of my hand tremor which got worse with his temper. So my number one tip of things to avoid is anything or anyone causing regular stress. I’m in a happy place now girls, finding people like you! Well done from N Ireland.

[@melissacarlson1963]

Thank you for your kind words and sharing your story! Blessings to you and moving forward! You can do hard things!

[@johndavid1585]

You are by far the most beautiful woman on KZbin, in my opinion. I wish you and your family well.

[@pattirossiter1065]

Thank you, Jessica. I love your podcasts.

[@loriwong3]

It’s been 4 yrs for me too as a young onset pt. I love the candidness of this show and learned so much.

[@johndonaldson5126]

Jessica, you spoke of your elbow pain. I'm pre-motor but the one thing that can bother me is pain in my elbows. I've mentioned it to various doctors but they have no response. The pain can start while swinging my arms while walking. The pain builds to the point that I have to stop walking, sit and let the pain pass. I would like to learn more abour your elbow pain. John

[@thesecretlifeofparkinsons]

I want to learn more too. So far, no one has been able to explain it except that it's just a part of PD

[@gailclarke3676]

I thought that my elbow pain was from arthritis. Even had x-rays done. Nothing to be seen. This was before my diagnosis. Now I understand that it is a PD symptom

[@billmather4422]

Thank you. I watch all of your videos. You are a great soul doing great work From UK

[@cdp6896]

I really enjoy your show but it’s not long enough. You present so much good information in too short of time. Thanks

[@chrisc9259]

Melissa and Jess the Dynamic Duo :) Good to see you both! I wanted to check in on Brian too...everything good in his world? I have had my DBS Surgery finally, was pushed out 3-4 weeks. This is week 2, get the staples out on Valentines Day....The Mrs and I are going to make a Date out of it, have some fun lol. Programming is the 2nd of March, crossing my fingers! I was told to take it easy for the last little bit but the Dr says I can finally do light workouts..starting next week.. I finally get singed up for PD Next Steps and I have been on a hiatus haha. Thanks for the Show as usual! I have an idea for your kit too. Take care ladies, 💜Keep on keeping on!

[@melissacarlson1963]

Chris! Keep us posted on your progress! Brian is good - he was doing a clinical trial with DBS!

[@chrisc9259]

@@melissacarlson1963 It's definitely been a ride! Everything has been Great up to this point. My first programming session was yesterday, Amazing!

[@nickmaffei5123]

Yea! Great session. Keep it up.

[@gailclarke3676]

Hi. Just been diagnosed and this podcast was a revelation. I’ve been struggling with a painful elbow is now understood. I'm feeling not so alone now..?

[@kevinhoskins7997]

I love your show! It's hard to explain to folks just what we go through. I had the exact pain thinking I had slept with my arm hanging over the edge of the bed, but I hadn't. It was just a new symptom, and I just have to realize that's what it is. Thank you for your openness! I am a young onset patient and recently had DBS surgery.

[@thesecretlifeofparkinsons]

Thank you for watching!

[@jeancattoi2796]

Great video. Jessica you are an inspiration to us all.

[@thesecretlifeofparkinsons]

Thank you so much!

[@itsJoeslife4486]

Dry Needling will help you with some of the pain and cramping in the elbow.

[@magdalenoadventures8049]

I just found out I have it and it's a Rollercoaster

[@thesecretlifeofparkinsons]

Sorry to hear it. But you are not alone! Be sure to reach out in your community to find others! Its amazing how much it helps the journey! and exercise!!!

[@magdalenoadventures8049]

@The Secret Life of Parkinson's I'm going to the gym now but haven't found any groups around here yet, thank you.

[@johnredding7486]

As time goes on? Do you and your husband still have companionship.

[@janepinho9052]

How can I can be a part of your network?

[@thesecretlifeofparkinsons]

Hi Jane - you can send me an email: [e-mail]

[@cdp6896]

@@thesecretlifeofparkinsons I would love to be a part of your networking. Sometimes it can be very lonely.

[@kitkat20221]

​@@thesecretlifeofparkinsonsMy symptoms are very similar to yours. I was just diagnosed in September. I would love to connect. As I am very lost and scared about this whole thing . 🙏