Eric Stevens- ALS Patient Fighting for Hope

A captain of the Cal Berkeley football team, professional football player for the St. Louis Rams, and now a Los Angeles City firefighter, Eric was getting married to the woman of his dreams, Amanda. They were excited to start a family and their new life together with their dog Duke. But exactly one month after their wedding day, Eric was diagnosed with ALS at the age of 29. The diagnosis and subsequent education they received about the horrific disease was the worst news one could ever imagine.
Given his strong determination and success in anything he puts his mind to, Eric has chosen to fight and advocate for getting drugs and treatments available to patients NOW. Eric's goal with the help of his family and friends, is to raise awareness for ALS and act now toward getting treatments available.
Join us and Team Stevens Nation to #axeALS!!

[@paulamucinga118]

My husband just passed away a month ago from this terrible disease.. he had it for two years.. As his caretaker I know first hand how devastating it is.. I wish you the best!

[@cjmac2766]

If we could approve a COVID vaccine on an emergency basis because COVID is deadly, WHY CAN'T WE USE THAT AS A MODEL FOR THIS ALS TREATMENT BECAUSE ALS IS ALSO DEADLY?

[@missdaydreamss]

Because covid was delaying money and unemployment was at a high time rate. So u figure it out? MONEY. Smh

[@rogetprice920]

Of course and it's also life changing as well.

[@jazziez6467]

covid jab, guess you haven't heard the news about scyrocking cancer and heart attacks

[@chelseabaker5821]

We lost my brother on November 22,2021 we are heartbroken 💔 we are lost. How can there be nothing for ALS patients….He was 44 yrs old and left behind a beautiful wife and three wonderful boys… ALS is a terrible disease I don’t understand why there is no hope All we wanted was HOPE!!!!!!!!!

[@schweitzerae]

As a previous health advocate for MDA- I know the road families living with ALS go down, and it’s nauseating knowing that this drug is showing such great signs. Let’s get NurOwn to fast forward and let patients living with ALS take NurOwn now- sign a waiver noting that the patient knows it is not at the full trial stage. Whatever it takes- give these families Hope!!!

[@lmarshell7228]

God bless this young man I seen him on the Ellen show. Everybody please keep him in your prayers. 🙏🏾

[@gurmeetpannu3156]

God Bless U bro, my brother in law is dealing with the same thing, I understand what u r going through 🙏🏽

[@geeyaboo1017]

I’m 24 years old my husband is in the Air Force and I have two beautiful boys a two-year-old and a seven-month-old I noticed the changes in my body after having him and just hoping for some type of breakthrough so I can have the ability to be here for my two babies

[@missdaydreamss]

Any updates?

[@MS-uj5ui]

I’m 24yo as well and think I have MS (which scares me so much) but seeing stuff like this and my symptoms makes me HOPE it’s MS…

[@insearchoftruehappiness9214]

@@MS-uj5ui thinking that you have something and actually having it and living with it is different. Go and get yourself checked you might be worried over nothing.

[@lisadunphy41]

Any update ? X

[@user-nq8lt8tk3x]

@@MS-uj5ui I mean (ms)😄

[@arbcqueen]

I'm an Los Angeles City Firefighters wife, and I'm here with you and your family! Because WE ARE FAMILY!!!

[@ducheau100]

But sadly when the trial is over all the patients receiving the treatment stop getting it. FDA needs to approve this drug asap!

[@applejellypucci]

He's only 29, this is so sad.

[@canadasweetie]

As an RN for 30 years, he is right, they have great meds for HIV and cancer, and have some for ALS but restrict patients from having access to it. Something is wrong with the system here. This disease is a death sentence in less than 5 years after diagnosis. Something has to change.

[@jeffreyprice773]

15/8/22 , In the uk we call it MND motor neuron disease. I am a 74 years old male, my mnd started in 2006 at age 58. I wasn't diagnosed until 2015.

[@julieann8770]

Praying for you Eric! You are amazing 🙏

[@toreycarlyle9953]

Omgod every day that you are here I am so grateful. Thank you for spreading so much awareness.

[@steph2940]

I'm praying so much for you both.we are here for you and your wife.

[@brandonmcclain9988]

Praying for comfort, strength, and peace 🙏🏾

[@anazermeno3672]

I'm praying so much for you both🙏 I cried so much😪thank you for sharing your story. Every time I'm sad,depress I see your story to lift me up.

[@vanessaquintero9123]

God bless you Eric!! I am rooting for you! ❤️

[@benopie7772]

Liked and subscribed, When I was in college 5 years ago in a bio technology class I learned about the long long process it takes for a drug to be approved and even then I thought how ridiculous and insane this was especially for people with terminal illness. Hoping this can change soon it sounds like there have been some changes with some of the drugs that are in the pathway now where they are testing multiple drugs at one time it should speed up the process.

[@janehollingsworth8108]

My heart is with you both as you travel this uncharted road I traveled with my dear husband.

[@ElizabethWallace-Peters]

Brave beautiful soul

[@romy4593]

God bless Eric! I lost my twin 2 years ago to ALS and not a day goes by I don't miss her! This plays no favorites and we had not seen this in our family before. She was 56 when we lost her and she had this about 3 years we believe. She denied her reality and would not see a Dr to confirm til the last 3 months of her life. She was offered meds to help her live a little longer but she said no to it.

[@juliefleer4762]

If there is a way to create this quicker pathway to access this new treatment - I am so there to support that movement! Something has to be done.

[@michaeljordan3907]

Thank you for speaking for all of us ALS patient on Ellen I was diagnosed August 14 2019 and am 62 years old I will keep you and your family in my prayers God bless your wonderful wife and caregiver also

[@wisdom6437]

Praying for you Eric.❤❣️🙏🙏🙏

[@terenceobrien3438]

Hi Eric and Amanda we live in ireland we are with you all the way ,also my son in law was just diognoised with A.L S .and we need to get these new drugs out there god bless you guys rock my name is Terry

[@chelseabaker5821]

I look at Eric and see my brother I am so sorry that you had to go through this.. we are Canadian and as his sister I tried so hard to get him help…

[@godianabell]

Thank you Eric for sharing your story & fighting against ALS. You have an amazing wife, family & friends standing with you always. Very happy you are pushing this through DC too! My brother had ALS for several years until recently. I researched and had the same conclusion & frustration. Phase 2 had already started & phase 3 was a year out & $$$. It works, its proven. Our family & other ALS families wanted it but couldn't get it either. So he doubled calories & good fat, Super CitriMax weight Gain, organic Life Vitamin liquid, D-Ribose (these 3 mixed in 8oz flavored drink, any, 2x day). Electrolytes drinks, talk, walk lots even tho you're tired. Best food is whatever you want :) Another mention given to us & it honestly worked in minutes for trembles & sleep, was one puff of pot. They slowed/stopped in min.as we observed & helped. I hope your voice makes change and AxeAls. Takes a village, being +, having courage to fight, lots of love. Feel free to Contact me anytime, I will share all I/we know. Eric, you are STRONG! Never alone.

[@jodif916]

Love to you and yours ❤️❤️❤️🇬🇧🇬🇧

[@KonTikiBea]

LOVE YOU Cousin Eric Stay Strong, we are pulling and praying on the East Coast for you!!! Whatever it takes for you to beat this we will do our best to help!

[@vbrxcex1047]

He’s your cousin ,hope he gets better🙏

[@avecmabellefamille3264]

Le deseo una pronta recuperación de su enfermedad

[@Elizamcculloe]

Blessings to you both!! I too may have ALS, so I understand when you say “ you just know somethings wrong”. I am a respiratory therapist at a children’s hospital in the NICU. So I also understand the job of giving, caring and being a part of a team! I’m much older than you and your wife, so I feel so much for the both of you!! This new drug is my HOPE (again) also!!! So much in common and we do not even know each other. I will be following you and your wife’s store! I will be praying for things to work out for you soon!! Praying for you in Ohio!!

[@missdaydreamss]

How are you!??

[@Rae-qf7xv]

There is no justice! Why the young good people? Good luck to this brave young man. Wishing him a breakthrough he deserves it.

[@missbee3379]

I cried so much such an awesome guy God if you up there spare this guys life pls too young n good heart

[@louisianna5524]

Is this wonderful man still here, I really hope he is, Prayers to all suffering this awful disease ❤❤

[@pamelacagno2878]

Still with his wife and daughter as of May 2023!

[@tiannatalks7391]

This is breaking my heart

[@mitchellhess4177]

#axeALS My family is praying for you.

[@sandracanning2631]

God bless yu.

[@suzanamarbx5188]

Have Faith in God ..you are going to get through this.. we will remember you everyday in our prayer 🙏.. stay strong and keep on fighting.

[@ZentaFergie]

Is this gentleman still fighting the fight ❤

[@cindyr4143]

I have shared this with multiple media, fire departments, and friend's pages. I'm active in the fight for this to be accessible to every ALS patient. Time is of the essence, and as Eric stated, there is a 100% guarantee that you will die from ALS. So why are they holding back treatment when there is nothing to lose?! Will pray for you and keep fighting. I have a cousin whose son is battling ALS #shredALS God Bless you, keep praying and keep fighting.....I will do the same.

[@lmarshell7228]

God bless your cousin and his son🙏🏾

[@lestercombs1871]

Rest easy Son.

[@yolandaramirez4649]

I'm praying for you! God has the last word!

[@debbieandrade4482]

😢😢 I also have ALS, it's such a terrible disease.

[@donnae2013]

My cousin is down to bed only, baby formula, and he is scared how the end will be. It’s devastating. He’s only 47. Under 2 years since diagnosis. No trials given.

[@InHitchWeTrust]

And now NurOwn is standing on it's last legs. Too bad it didn't turn out to be a cure many hoped for. It truly breaks my heart.

[@joelmason4513]

Pulling for you Eric. It's 2022 I hope your able to get the meds now.

[@jacksonhineckin110]

As an als patient I can tell u it’s still not approved no drug is approved yet there’s new ones now that can extend ur life by months n years maybe even cure u but no the fda thinks it’s dangerous even tho people with als 100% likely u will die from it im 20 years old this world is fucked and not worth living in sometimes

[@archdogg879]

He was in the nurown trial and is still getting it through expanded access. He's still able to walk, etc.

[@zentafergiefergie7044]

Is this man still going strong

[@steveingo6769]

I have als also I had no idea about all this red tape. Please let me know what I can do to help. I will be in touch with my Congress man I got to do something. I live in Virginia. This really burns me up!

[@prisfam1939]

I’m 29 and also got diagnosed with ALS in July 2020 and I hate it I can’t walk I fall down constantly I have 3 kids my husband does everything for me just don’t understand !!! Why me!!?!

[@GTschumacher]

29 that's heartbreaking

[@LittleCutieABDL]

There are a few other meds out there but i don’t know if they’re in Europe vs the US. Let’s all join to end all types of MND, Huntington’s. Cancer.

[@Jnglfvr]

I think that we know enough about the natural history of ALS that we can use historical controls to evaluate any treatment without the need for a placebo group. The problem with double blind placebo controlled studies in this disease is why would anyone take a 50:50 chance with a treatment if someone else could simply obtain the drug/therapeutic on demand? This is a difficult problem made even more so by the short window of opportunity given the average life expectancy of these patients.

[@leabaltrenas7205]

I Hope there's a Cure for all Nuerological Diseases 🙏🙏🙏🙏🌹

[@kristinesanta6971]

Thank you! I have MD

[@lindablack2854]

Science is right here.Belive you be fine.

[@jntb3000]

Please look into the Deanna Protocol. It could be helpful

[@johndcoutureii9193]

I hope they will get a cure or something to prolong life. I have just been diagnosed with ALS. I have a love for life. So what is next?

[@elmobolan4274]

My husband has adult muscular dystrophy and has participated in clinic treatments but nothing has ever come out of it....it just makes others rich....we've given up, even MDA, which didn't offer much to begin with sent out letters saying that were cutting their already limited services, so my question is, "where is all that money that they've collected, going???"

[@Mr2012KAC]

Eric thank you for this video!!!!!! In January I noticed a lot of muscle twitching in my upper body on a daily basis. I have been working out regularly for the last 30 years, and have been in very fit condition over the last 30 years. I know my body really well and I also knew something was not right. I visited the top Neurologist at Cedar's Sinai in Los Angeles who recommended an EMG. From there he referred me to the ALS Clinic at Cedars where I had my appointment in August of this year. I was told I have a greater than 50% chance it is ALS. It hit me like a ton of bricks!!!! I was started on Riluzole and take it 2x a day. It makes me tired and weak but the twitching has subsided a bit, although recently I started getting the twitching in my Quads and Hamstrings too. I have another EMG scheduled for December to get a final diagnosis. Eric I need to talk to someone who is going through this too, I am about to emotionally break and need to talk to someone who can relate.... so if you are okay with it, I would appreciate you contacting me at [e-mail] Thank you in advance. Wishing you peace and health!!!!!

[@sm6706]

Join facebook group 'No More Excuses! FDA and ALSA Protest' and 'Team Stevens Nation'

[@nathancates516]

Keith cohn most likely you have bfs research that before you jump to als . I have had 2 emgs both fine with twitches everywhere . You will fimd support there 573 854 2705 is my personel # ive had this for 2+ years . Let me know your results. And you can text me with ? Or concern anytime

[@missbee3379]

I pray its not ALS may God heal you by his word. I know his word assured us of his sons blood which was sacrificed for our healing and if hes not a God of lair i pray u get healed and comforted

[@nathancates516]

Same her buddy bfs sufferer aka "do i have als and fear "!!!

[@courtneycote2178]

Get tested for lyme disease.

[@peanutbutterisfu]

The people with als would rather take the chance then wait for it to be approved because they don’t have any other options just give it to them so they have a chance because without it they have zero chance. I pray and hope they find a cure for als and everything that a cure is needed for.

[@user-vc7bu5yb7s]

My brother passed away 7 years ago with ALS

[@betinasway2]

This may be an assumption, but it seems as though there are so many football players with this awful disease. Why is this happening to them? There should be a research study on this occurrence. I pray for a cure and hope that this wonderful young man can lead a successful life with his beautiful wife.

[@charlestongirlforever1584]

Betina Morehouse I was thinking the same exact thing and I scroll and see your comment. It is suspicious and strange.

[@alexghisimigliari]

Here in Italy a lot of football players too.

[@wendyscott3345]

I knew a kindergarten teacher who had it.never played football

[@evakondiek7423]

And why so many cases in the West and unheard of in Africa? I live in Africa with challenges in sanitation but ALS is unheard of (or unreported)...

[@holdencawffle626]

Bad assumption. Als can strike anyone

[@ankakloka6724]

I notice that als more touching males than womens. God bless u x

[@50sRockChick]

Seems to be alot of football players too.

[@ankakloka6724]

Maybe the type of sports they practice influences the fact that this disease appears, hmm to much activities or its not the case?

[@scottlee8498]

Why would they not allow this drug to be used by everyone with ALS that is willing to take the risk?

[@reidthompson6272]

I just knew as well. It took doctors awhile to confirm what I knew was ALS early. Trust your gut.

[@holdencawffle626]

Lost my uncle in 18 and my brother in 22 to als. Horribe disease.

[@corniss]

Why so many trials. This is not right. Such a shame this young man has to fight to get treatment.

[@bobjones289]

There already terminal. What's the harm in letting them try and fight to stay as active as possible for as long as possible.

[@meganhenry5795]

How is he doing?

[@elainaphillips9245]

Any updates?

[@MY-hy8bh]

Sorry for my words if you feel bad? But i jst wanted to know that your EMG comes normal?

[@rontudor3721]

my God just get thr drug to them, i am hiv pos but have meds that keep me healthy so just do it , god bless you

[@stuarthanna3650]

Its almost always former athletes or veterans that get this disease, I guess that's the risk of contact sports i suppose.

[@deborahcapaldo8204]

I do not see any more recent videos after the Ellen show and 🙏🏻🦋🌈

[@LittleCutieABDL]

As bad is this sounds I hope this pandemic let us learn that we in fact can speed up things. We did place so many drugs in the market straight away for the virus where as would take years. But in fact we can, They just don’t think it’s necessary. The people whom approve the drugs that is not the researchers. Not every researcher is perfect either but the 90% including me suffer to try to get to everyone above us to make something better for humanity. It’s disgraceful.

[@stuartlee6622]

The AIDS pandemic showed that pressure can successfully be applied to make drug approval fast!

[@davidfleck9635]

i just lost my husband .is he still with us ???

[@alanalymon3164]

My grandmother was diagnosed with that disease, and she died three years later!

[@lindablack2854]

You are gonna be okay .Work out your legs.Get the treatment. God bless you be okay.Promise

[@islam_will_Dominate]

There is no cure at the moment. He won't be okay that's why we need to have this medicines available. I know someone who had to travel abroad to try some treatment.

[@cyberlyd]

Hello

[@user-xs7xn6yp1o]

Hello. I am Sofiane from Algeria. I am 35 years old. I discovered als disease three years ago. The disease is increasing. I want help. We are poor. The disease needs capabilities. It is possible to help me cure.

[@lindablack2854]

Magnetic treatment

[@pamelacagno2878]

FDA just voted against the drugs use, even though it seems to help some people

[@Rae-qf7xv]

Why the hell?

[@jenniferjohnson9733]

Please find a cure. This is just awful. 😢

[@user-ny3lz3id6c]

No fate

[@user-gv4ks4nr8i]

In addition probiotics, daily,digestive enzymes, l serine, Test for lyme if lyme found need lyme specialist

[@aghaagha-et3if]

What a new treatment please tell me als mnd please tell me als mnd IAM young girl moon from Quetta Pakistan

[@jotaylor8868]

My heart breaks for all suffering from ALS. Come on drug companies lives are at stake!

[@letsbefreeletsbefree7183]

Im glad that its exist People who educate themself many many years to try to Solve problem like this.

[@sychophantt]

ALS is worse than death :o(

[@courtneycote2178]

Get tested for lyme disease. Some people with chronic lyme get a ALS diagnosis when it's really lyme. You never know.

[@Jillybeej]

Exactly! I have late stage neurological Lyme. I deal with weakness off and on

[@pro-mf7uk]

​@@Jillybeejdo you have atrophy

[@pro-mf7uk]

​@@Jillybeej do you have atrophy

[@bornfree7788]

Try detoxing. Something you have been exposed to has gotten into your brain and flicked the nerve shutdown switch. Some think it may be chemicals or mould or blue green algae. Many people may get exposed and suffer varying illnesses or non at all but occasionally it triggers something that results in ALS. I know because I breathed toxic fumes at my work. I had many ALS symptoms like lose of strength in fingers and arms. Weak legs that collapsed many times a day. My saliva turned to thick gel and had extreme fatigue. My fingers were so weak I would struggle to undo my truck airlines. I fell to the floor twice at my bosses feet. They wanted me to see their Dr. but I showed them a neurologist report saying I’m ok. It has been a gruelling 6 years of slow recovery and thankful it’s not ALS. I did a detox and only drink water and natural plant based food. The chemicals washed out of my body but has left residual damage. Some people have found that sauna and steam room sessions have helped a lot. All the best with whatever you do.

[@ducheau100]

Interesting. I have muscle twitches and other symptoms. Went to a neurologist and they didn't find anything. I'm thinking I was exposed to a toxin too.

[@StephanieAlice]

Vaccines. I have all the symptoms after covid vax as many others do too. It’s also toxins. Detoxing with diet acupuncture and herbs - never would have believed these things before would help at all but absolutely especially when western med does NOTHING if a machine can’t tell them they are useless

[@melaniewalker5226]

Life's just not fair.

[@janicechilcoat7537]

I am including you and your family in my prayers. Also praying that people in positions of power have a heart for people clinging to life while they wait for access to what should be a God given right... health care and access to ANY treatment out there, even if in trial stage. I too have nursed and lost a family member to ALS. It is a very difficult process to say the least. God hear our prayers and speak to the hearts of the people that are in control of making such decisions to allow people in need access to treatment, particularly the treatment of NurOwn for ALS patients. Who in their 'right minds' would deny someone access to possible life saving treatment?!?! PLEASE.... Try Essiac Tea (recipe of Rene Caisse). Many people have given testimony at its results. I highly recommend trying it. God be with you and HEAL YOU, IN JESUS' NAME.

[@fufurabumbacka]

Its not called Lou Gerigs disease for no reason. If you play football your chances to get ALS are high!!

[@Paratus7]

Absolutely no correlation between sport and ALS has been proven. None. It can affect anyone, anytime.

[@silviamurray8938]

I went to Cancun for stem cells and exosomes

[@silviamurray8938]

I have als one year

[@whiteclouds26]

How u feeling ​@@silviamurray8938

[@ghirardellichocolate201]

Can you try chocolate pudding? It definitely does something to you. I think vitamin a deficiency caused this. Best way to treat it is first eat chocolate pudding, then sweet carrots. These are direct injections for a. Definitely returns you back to your normal self.

[@davidfleck6700]

I wish these doctors will keep saying that there's a cure there is no cure. Yes that new drug might help you temporarily but once you stop taking it that's it you're back to normal falling apart and it's not for everyone you have to have good breathing to start this new drug they're talking about here you can't be below a certain breathing