Facing fatigue with Crohn's and Colitis

[@sshepard5222]

!!!! This!!!! I am struggling with this exact situation and it really depresses me. I love my job and my coworkers and it almost feels like like when I try and explain it to my boss in private they don't fully believe me. It's so hurtful and then it's so hard because I literally have felt like I've been hit by a truck on a daily basis for years and stress just makes the flare ups worse. No amount of sleep or rest fixes it.

[@armend9699]

Look at high carb page, about ulceractive colitis and chron healing story

[@hadespaul1]

Any improvement in your situation?

[@sshepard5222]

@@hadespaul1 haha , yeah. I quit my job, the stress of a shit boss was literally too much for my body. I've also been taking CBD oil daily, Along with a good diet and probiotics and I feel like a new human

[@hadespaul1]

@@sshepard5222 Good to know that.. Can you tell some natural options of Probiotics (other than dairy) .. Also what other foods in your diet you think have helped you... And how many meals a day you generally takes. Thanks.

[@sshepard5222]

@@hadespaul1 I started by making dairy based kefir myself, since making it yourself you can allow it to get to a point where it's non reactive to anyone with dairy issues because the bacteria eats the lactose as its food source. You can also buy live probiotic cultures in tablet form from pharmacies. You want lactobacillus specifically because it sticks to your gut unlike most other probiotics. I also made sure I had a good prebiotic base to keep my gut bacteria fed (miso soup is my go to). In general I had no refines sugars, no gluten, no spice, no lactose and low FODMAP. I tried to eat fermented foods when I could. But honestly the CBD oil daily has been the biggest help and change. I'd been on restrictive diets for ages and it'd get me stable but not healed. Colostrum as well studies have shown have great results on healing internal abscesses. I started CBD oil daily for another ailment, it want until I ate something one day with high processed wheat by accident (this would feel like I ate glass and I'd be lethargic for 2 weeks normally as well as abdominal pain in my right side and my fingers swell and feel arthritic). The next day came, no reaction. I started googling CBD studies and Crohn's and found people after 8 weeks of daily CBD seem to go into remission for symptoms. So I tested a few other foods I normally can't eat, again, no reaction. This is after 10 years of dietary problems that were only getting worse with stress from bad jobs. I still prefer my diet gluten-free and dairy free as I don't think those things are good for our bodies anyway, but knowing now I can go out and eat in a restaurant is a whole new freedom I never thought I'd ever have again.

[@NICKELL5]

He makes such a good point it’s not that I don’t like people, but the sensation makes it practically impossible to be around people let alone helping them

[@ItaThe3rd]

I was in good shape for more than a year, but now I'm suffering from a flare-up again, and I feel so alone with the disease. Today I went below 60kg (I'm a 1.85m man)for the first time in 3 years and I'm sick for more than a decade, but now I'm in my 30s, and my parents are old and can't help me physically anymore, and my good childhood friends don't live near me anymore. My dog is suffering from this too because I can't take him on long walks or play with him. I just want health in my life. Everything else is a bonus.

[@everythingandmore5871]

Oh my god. I'm so sorry. I wish you the best ❤

[@xtusk]

I have uc and This is probably the one thing i wish people understood the most about the disease. Currently im finding it hard to work full time coz the struggle of any task even if it's easy is difficult for me. Everyday it feels like ive been hit by a bus and people just think aw hes lazy but no its not my fault i feel like this. I love my job but its so hard when everyday u feel like ur doing less and less coz of the extreme fatigue. I hope this is just a phase of this illness coz i feel my true self slipping further and further away and leaving me an empty shell. Even my fav thing to do is gaming but cant do that coz im sleeping all the time trying to catch even the slightest bit of energy. Also anyone else constantly get tips from people who know nothing about the disease like....maybe change ur diet🤦‍♂️🤦‍♂️ anyone else experiencing this terrible extreme fatigue and got tips??

[@stevethegreasemonkey]

I have crohn's this last week I have had chronic fatigue. I get the feeling that the woman that's runs the department I work for doesn't believe that it exists as there is nothing to see on the outside

[@deanjohnson8097]

Fatigue is the reason I lost my job 20 years ago and never returned. It is hard for people to understand when you aren’t visibly sick.

[@PC_TV_73]

Yep I’ve had Crohn’s for 15 years. Had one major surgery where the doctor said he took something that looked like a basketball out of my stomach. He couldn’t even believe it now I’m on a asacole. I haven’t had surgery since but I do get stomach pains and I am tired all the time. Sometimes I feel bad for my family because I’m always tired and at some point it looks like I’m just lazy but they don’t understand how I really feel. My wife just thinks I sleep all the time or I’m always resting. I’m 49 now and it’s crazy because before this hit I was very athletic even if I was a little overweight I was very athletic now I can’t even ride a bike or I can ride a bike but I can’t freestyle on it anymore sometimes I see people my age and they’re so active. There’s times I get 13 hours sleep and I’m still tired during the day. Luckily I work for myself and I don’t need to put many hours in, but if I had a regular job I would be in trouble. It’s almost like a bad curse, and I tell myself it’s going to be my down for one day because of the constant pain if something more serious ever popped up, you wouldn’t even know I go for a colonoscopy every few years but I hate them I cannot stand the drink. I think I’m going to try CBD oil I have to say I don’t watch what I eat. Maybe that will help. I have to find a really good Crohn’s doctor in New York Westchester specifically.

[@PC_TV_73]

Sorry for the run-on sentences I was using voice to text lol forgot to say period.

[@vittuilutili24]

Same

[@Yosoyamcamc]

I’m fortunate to have intermittent fmla in the U.S. I just worked half a day because the fog brain is almost unbearable today. Still I feel guilty that I should be able to overcome it.

[@Jay-y8x1l]

know how you feel had uc since 06

[@richardcraig8780]

I know exactly where he's coming from

[@StefTechSurfer]

How to handle travel?