A History of Omav and the FA Community

As we await a decision from the FDA on the New Drug Application for Omaveloxolone in FA, we reflect on the many FA community contributions that brought us to this point. This animated video shares a summary of how a community helps advance drug development. Thank you to the research community, clinical research participants, and FARA supporters for the gift of your expertise, time, voice, and resources.
FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia.
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[@liamzgaminghd8683]

Let’s all sit tight with our fingers crossed today and hope for some positive input from the FDA because having access to something as big as Omaveloxolone is will change our lives forever in soo many ways, As soon as I know I will literally shed tears of relief 😭

[@jonnip7225]

My family member was approved to receive this new treatment, and is already showing small improvement! After 35 years of waiting, a treatment for Friedreich's Ataxia is here! This is a huge milestone, and we are so grateful.

[@krishnavenivallamdasu5529]

Hii Im from India and my family member is having Friedreich's Ataxia. So how to approach to receive this medicine? It is not available in India. Please give your contact details like email id. I want to talk to you further more regarding this.

[@jonnip7225]

@@krishnavenivallamdasu5529 Reata Pharmaceuticals makes the medicine called omaveloxolone, also called Skyclarys. The company can be found online and reached on the internet.

[@athivijayakumaran2988]

When we will get it in india, FDA and The company Discovered omav must circulate to all parts of the world

[@Meshamu]

But the tested mice never learned to say NRF2 properly, calling it "narf" instead.

[@amaliamaranhao1625]

Hi, FARA team, is it possible to allow subtitles in Portuguese for this video? Thank you very much

[@abahe-ataxiashereditarias]

Thank you so much