Fibromyalgia as a Migraine Comorbidity

[@sarah9044]

Great discussion. Everything is making sense for me now... Please do a part 2 long format video! Thank you!

[@DMWebb]

I do the "anti-inflammatory" diet. The exercises I do are designed for fibromyalgia sufferers. Yet I still have uncontrolled pain. With my migraines, Qulipta no longer worked and Ubrevly, I end up maxing out each 24 hours. I've tried the LD Naltraxone, there was no improvement. And the other therapies I had horrible side effects from. Even tried the mast cell protocol. So I am still seeking a bit of relief and looking for that one thing that will break the cycle. Yet I never thought about fibromyalgia being a comorbidity from my chronic migraines, which had gone untreated for almost a decade before I moved to a new state. And it makes sense that after have the pain receptors bombarded constantly, the brain become sensitized.

[@kellyluvskolors2083]

I currently use Nurtec ODT two 75mg which is the only medication that has ever worked for my chronic migraines. Poor sleep quality & insomnia are AGGRESSIVE triggers for my migraines, I frequently use ice packs on back of neck along with full face ice mask for mine while laying down in a very cool, very dark room, without disturbing smells, sounds, or light. A friend insists she can't use ice or cold pack, but does use heat instead. The medical professionals NEED to focus more on patients sleep & STOP PUSHING & OVER PRESCRIBING antidepressants that do NOT work, for ANY pain at ALL & have horrific side effects. Fibromyalgia patients are not crazy, just because the medical Community doesn't have a FULL picture of this PROGRESSIVE SYSTEMIC DISEASE effecting multiple body systems. Since age 12 lifelong battle along with Allodynia, chronic fatigue, Polymyalgia, IBS, Chronic Migraines.

[@Truerealism747]

​@@kellyluvskolors2083does your fybromyalgia feel like migraine in the upper body it's constant it has moved over 7 years

[@Truerealism747]

​@@kellyluvskolors2083 me to though CFS pelvic pain fr9m 17 SPD is part of autism just diagnosed heds are you hypermobile us your fybromyalgia deal like migraine

[@Truerealism747]

​@@kellyluvskolors2083did you have SPD prior

[@elijahclydedeguzman896]

Thank you for additional information. I have migraine since I was 11yrs old. I’m 48 now and was diagnosed with fibromyalgia for 11yrs now.

[@Truerealism747]

My.main muscle pain feels like migraine everyday in shoulders armpits are sometime.more one side than the other does your fybromyalgia feel like migraine neurologist says it's migraine without headache.rhumo says it's fybromyalgia I have heds

[@elijahclydedeguzman896]

@@Truerealism747 If your pain is constant everyday and it feels like you’ve been hit by a truck and even can’t go out because of flare-up. You have fibromyalgia. Neurologist says that fibromyalgia is a commorbidity of migraine. It’s a never ending pain. Better talk to a neurologist as well. Have MS as well. Been diagnosed last 2021. I will undergo MRI of brain and spine for this year to see any changes or if there is additional lesions. Hoping and praying for a good result.

[@Truerealism747]

@@elijahclydedeguzman896 I am diagnosed heds now asperger's I had never ending migraines 25 years ago it feels like that in the shoulders armpits heal pain and tingling in shin.lidt my mum last year to severe ms just had another MRI all clear seams heds autism causes alot though my grandfather had it natural life got to 85 apart from slip dusk and detached retina from birth.thiugh my father's side all have fybromyalgia and my father had CFS now ok.ime doing sleep apnea test and food intolerances test do you take ldn? What do you take for fybromyalgia or.migraine

[@Truerealism747]

List my.mum.last year to severe ms heds asperger's though I no it was started by stress grandmother s funeral.all.my father's side have fybromyalgia ADHD my father had CFS now ok doing sleep apnea test food intolerances I had migraine s 25 years ago chronic now most pain upoe back is yours chronic do you take ldn? So hard to tame it

[@Truerealism747]

Deals like truck yes

[@SRPeeps]

Great info, thanks!

[@jamiebird6580]

THIS IS ME RIGHT DOWN TO MY FEET. THEY CANT FIGURE OUT HOW TO TREAT ME. I WAS DOING BETTER WHILE ON NARCOTIC PAIN MED. THEN THEY STOP. BUT NO CRYING EVERY DAY. NONE OF THOSE HAVE WORKED FOR ME. IVE TRIED SO MANY DIFFERENT MEDS I FEEL LIKE A LAB RAT😢

[@tracielang9500]

Chronic migraine, cluster headaches, fibromyalgia- then nerve stim causing sepsis that nearly killed me & 'burned the telomers off your nerves'... now there's no treatment left. I will tell EVERY migraine patient to get a closer to the equator as possible! Doc mentioned a study-I did the homework- then went and tested the theory for nearly 2yrs (ended due to pandemic) IT HELPS SO MUCH! No they don't know why but if it works, and it's beautiful, at this point I don't care "why" as much!

[@Truerealism747]

What nerve stim caused sepsis

[@Truerealism747]

Do you have Asperger's my mum had severe ms I have fybromyalgia CFS heds Asperger's ADHD causation

[@Truerealism747]

Spd autism why we get it in heds

[@kellyluvskolors2083]

Zero Quality of life

[@Truerealism747]

Have you.found.anythinh what help ime very sensitive with asperger's heds