Fight against Thalassemia | Sujata Raikar | TEDxVIT

Sujata Raikar, born in a Punjabi family, is the Trustee of SAATH Charitable Trust (Support And Aid for Thalassemia Healing). She did her Master's in Computer Application from Gujarat and came to Mumbai post marriage. She came to know about Thalassemia in 2008 and is a person with a sensitive nature; she decided to dedicate her life for Thalassemia affected patients. She also pledged to spread awareness about it. As the work increased, she established SAATH Charitable Trust. Today, through this trust, 90 Thalassemia patients from extremely poor families are provided medicines and their medical needs are taken care of. Uptill now she has given information about Thalassemia to more than 50000 people all over Maharashtra. She dreams of a Thalassemia free India. Sujata Raikar, born in a Punjabi family, is the Trustee of SAATH Charitable Trust (Support And Aid for Thalassemia Healing). She did her Master's in Computer Application from Gujarat and came to Mumbai post marriage. She came to know about Thalassemia in 2008 and is a person with a sensitive nature; she decided to dedicate her life for Thalassemia affected patients. She also pledged to spread awareness about it. As the work increased, she established SAATH Charitable Trust. Today, through this trust, 90 Thalassemia patients from impoverished families are provided medicines, and their medical needs are taken care of. Up till now she has given information about Thalassemia to more than 50000 people all over Maharashtra. She dreams of a Thalassemia free India. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx

[@hardik9352]

I am Thalassemia major patient and every single word she said is true.

[@ayeshaazmath2441]

Where r u from

[@ChosingGod]

@@ayeshaazmath2441 I have this disease also, but minor, Lord God be with you. And love encompass you.

[@akifhussain9047]

@@ChosingGod what is the difference between minor and major?

[@abiajis8506]

@@akifhussain9047 major, you need blood transfusion every 3 weeks to boost haemoglobin level. Meanwhile minor doesn’t need blood transfusion but need to maintain well beings to make sure the hb not below par the standard.

[@hareem3653]

Ap ko bachpan sy hai kya

[@danishfaiz7801]

I could sense that pain of those children in your voice when you were speaking. Hats off to your efforts ma'am.

[@muskankeshri8461]

m bhi ek thalassemia warrior hu...😇 nd im proudly say im very strong❤️

[@hareem3653]

Plz mujhy btyn m bi minor hon

[@muskankeshri8461]

@@hareem3653 ji kya janna h btaiye kya help kru

[@MehlindaHeartt]

You are an Angel to help those with the major form. I think you are amazing. Thank you.May I make a suggestion in your talks? Please do not say that Thalassemia minor is nothing and has no symptoms because it does. It is not life-threatening, but our blood cells are tiny too, and we do not carry oxygen really well. We are anemic also maybe less but it affects our life. Just like depression is an illness and is not easily seen, that minor and intermedia suffer too. My Mother said I slept so much as a baby she had to wake me up to feed me to keep me alive. I moved slow and talked slow to conserve energy, I was always tired and sleeping. My father the same. When I was pregnant my hemoglobin was dangerously low and I had to be watched weekly, having blood tests and having to talk huge double prenatal vitamins, and I was still low. My baby was born with fetal hemoglobin. I deal with low energy levels all the time. If I did not take B vitamins and multiple vitamins I would be very low energy, which causes depression. So PLEASE b=neever say it is nothing, it has some side effects, please say that it does, because no one will listen to us and see we have a problem.

[@ammu9295]

I can feel you.. I have thalassemia minor .. extremely low on energy .. everybody feel like I'm excusing to not work .. but I can feel the pain..can you please share what supplements are you taking ?? I really need to know .. ❤️

[@MehlindaHeartt]

@@ammu9295 my mother used to think I was lazy, but I'm not I just had a lot of problems with energy, always tired

[@ChosingGod]

@@ammu9295 I have this disease to but only minor may the Lord be with you and may love incompass you now that I'm getting older I find myself pulling off to the side of the road just to rest for 15 minutes after driving try to eat right and exercise I was diagnosed a few years ago I'm nearly 60 years old now I often wondered how come sometimes I would just faint going to the bathroom in the morning and I've lost my hearing for over a year

[@sushmamatele5139]

🎂🎉🎊

[@mariahsabar3969]

@@ChosingGod Sorry to ask this, but how was life with this condition? Were you able to keep a job? Have children?

[@sauravus]

You're an absolute inspiration mam! It was great to attend your talk

[@yes-jc8gb]

True bro

[@sayaliphadtare776]

I literally cried after listening your story. I will do this test before marriage. Hate of to your courage

[@lisamitchell3116]

You’re a lovely person. To all of you having babies outside of marriage, still get tested.

[@mubeensheroz769]

My child also suffering from thalesmia mager it true and I am facing lots of problems for blood some time I really appreciate for those who gave blood donation

[@Ishankulkarni]

Did you marry your cousin?

[@VampJKwillkilleveryhuman]

As a Thalassemia patient myself I feel myself as a burden on my parents because I have also a rare blood type Ab- I really feel so bad when my parents call everywhere for blood and waste their whole day and take me hospital for blood transfusion 🙁 Except of helping them they are caring for me I am 16 yrs old teenager and every teenager wants to help their parents in these years I start getting annoying and frustrating from this disease I don't wanna to go hospital anymore but there's no other choice ☹️😓 Take blood transfusion or rather Die

[@erzas556]

It’s okay, we have parents because we need them, they are there for these situations. I’m sorry because I also feel like a burden sometimes and I feel that I can’t help my mom especially that she works alone to get me and my sister good life. At least you got both of them! Just be thankful

[@VampJKwillkilleveryhuman]

@@erzas556 no bro Actually my father is abusive or what can I say He beats my mom he don't love her and always asks for divorce and leaves home He simply says without any emotion that me and my sibling is just how mistake and he is responsible for any of us and I feel bad that already my mother is suffering and I am here making it worse she's also having depression because of that abuse from father GOD IS WATCHING EVERYONE HE WILL TAKE REVENGE 🙏🏻

[@erzas556]

@@VampJKwillkilleveryhuman oh that’s tough. God will take care of him. But don’t assert what he says to you, you deserve to be taken care of no matter what. This is his responsibility. Otherwise no body forced him to have children

[@yes-jc8gb]

👏👏👏👏👏👏( clapping).... Thank you very much for the eye opening presentation

[@premiadm]

Absolutely touched by your efforts and commitments. May God abundantly bless you with happiness. We too at Rotary club in Navi Mumbai have started an End Thallesemia movement. You are an inspiration to all of us

[@yashomatiyashomati9236]

I am a Thalassemia patient..so TRUE

[@ayeshaazmath2441]

Where r u from

[@Saiyyann]

Public health care in india must needed topic to discuss

[@zebashah3785]

Absolute inspiration. Thank you for sharing maam.

[@prosperitypeace1554]

Thank you so much for all you do! I have thalassemia intermedia and can relate.

[@vijayarya2688]

Thank you all very much

[@moinhassanprince8095]

This speech makes me cry!

[@swatikumta7594]

You are great!!

[@urvivora8777]

Very commendable to accomplish so much

[@MarinChanev]

Great video :) Very inspirational.

[@yes-jc8gb]

Last line 🔥🔥🔥🔥🔥🔥

[@sheeshsheesh1778]

welldone.

[@vedantshetty5581]

Pls maam my daughter is thalamessia major she had to give blood frequently in the gap of 15 days pls arrange for blood donors no donors are available

[@ayeshaazmath2441]

Where r u from

[@funwithpiyush3548]

Now government provide Meree ko khud Hain

[@gurpreetkamboj7618]

Two time pregnancy tests found as Thalesemia Major Is it possible that third time bring happiness to parents both having Thalesemia Minor 😥😥😥😥😥😥😥 Should we try third time

[@avikdatta6740]

Did you try for the third time? I have similar question.

[@bettybona6316]

My eight year old daughter is Thalasseamia, I desperately need your help! Please help me!

[@Ishankulkarni]

She was at my college during my freshman year.

[@pritamjewellers8687]

Blood donation camp ki tarah iska awareness keliye camp / miking karna jaruri hai.. logo ko awareness karna hai...

[@zaradarlong9589]

Please get tested for HPLC before marriage.

[@aryathefunnyboy2072]

I am a Thalassemia major patient.

[@ayeshaazmath2441]

Can I just get her contact because we have same aims and I am a thalaseemia patient too and want to see thalaseemia free india

[@ammu9295]

I have thalassemia minor ..can feel the pain 💔

[@MohitKumar-yl6px]

Hlo tell me minor me Kitna mushkil hai

[@ammu9295]

@@MohitKumar-yl6px good diet and regular checkups SE you can maintain health .. don't neglect your health

[@sutapasanpui7947]

i also have thalessemia minor

[@ranika5305]

I also

[@no_onecares3266]

@@ranika5305 same

[@sachinbhati6113]

Devi🙏

[@alishaazad1519]

I have thalassemia Major

[@gurpreetkamboj7618]

25% is true but it tests continuous 2 time as Thalesemia Major 😓

[@MrKumargopalan]

Fathers abandon children ? Are you serious ?

[@madchris2868]

I have thalassemia minor, I feel so bad for that little girl

[@MohitKumar-yl6px]

Monir ke bare me hmme batao meri gf ko nikla h

[@fede_doro]

I have minor