Flying with a Wheelchair & Feeding Tube . What's in our special needs carry-on bag? State of Escape

❐ ABOUT ❏
➫ Andrew is a former 28-weeker preemie twin with spastic quadriplegia cerebral palsy, epilepsy, and cortical visual impairment. After exhibiting a severe intolerance to formula, Andrew went on a real food diet (a.k.a. blenderized diet) when he was two years old. This proved to be a wise and life-saving decision; we threw out the formula and never looked back. Click here to read an interview about why we create videos: bit.ly/2uXciOm. More information about Andrew, the blenderized diet, and life can be found on our family blog: bit.ly/294uyue.
❐ BLENDERIZED DIET RESEARCH❏
➫ University of Cincinnati College of Medicine 2011 study: bit.ly/2ip0m2c
➫ Mayo Clinic 2015 study: bit.ly/2hWZ11x
➫ Johns Hopkins School of Medicine 2019 study: bit.ly/35MryPS
➫ Boston Children's Hospital 2019 study: bit.ly/2R20Le5
❐ ONLINE BLENDERIZED DIET SUPPORT❏
➫Blenderized RN Facebook Group: bit.ly/2is5DIl
➫Blenderized Diet Facebook Group: bit.ly/2iYCKQT
❐ Comparison video b/t Compleat Pediatric, Real Food Blends, & Nourish❏
➫ • Comparing Real Food Bl...
❐ Products We Love❐
➫Real Food Blends: bit.ly/2gddyK0
➫Functional Formularies Liquid Hope & Nourish: bit.ly/2orO2QQ
❐ CONTACT ❏
➫ [e-mail]
Music is licensed.
FTC: This video is NOT sponsored.

[@dorate100]

Why would anyone dislike this ??? Just goes to show the ignorant people in this world this is beautiful

[@eatlime]

I have a 12yr old with the same diagnosis as Andrew. I can never get through your videos without crying. They make me so happy. Thank you for sharing these adventures with Andrew with all of us.

[@earlybirdiesCP]

Thank you for the sweet comment! Best wishes to you and your child.

[@sakiyaashfaq8056]

earlybirdiesCP can I have your contact

[@zarrarkhan1668]

janet roehnelt del aguila i have also 14yr old with the same condition as andrew.

[@abukaf9710]

סתאאאם החבדניקים עעםגעיםכע האיטלקי

[@abukaf9710]

@@earlybirdiesCP הלגגככםגכעכעעךךךכ

[@AussieRollerDerby]

Wow, we are too scared to try and travel with Dusty. This is inspiring thanks!

[@earlybirdiesCP]

Being Dusty-Mae thank you for watching! ❤️

[@FiremanSam_LegoNinjago]

@Being Dusty-Mae I love your channel

[@abukaf9710]

لأ علمنا لازم عمل

[@mirianmelgarejo4157]

You are an amazing mom he is so lucky to have you!! Former special needs mom here ❤

[@AbbeySaunter0426]

It is such a beautiful thing to see him smile so much , amazing to see Xx

[@earlybirdiesCP]

Thank you ❤️

[@himaranisaikia7577]

Hi, thanks a lot for posting your videos. It's such a motivational. Each time I feel exhausted looking after my son ( Dystonic CP), your videos makes me to go for an extra mile. And you guys are so caring, adorable, respect it. Convey our love to Andrew. Looking forward for more such videos.

[@sunshi3205]

God gives special childs to Super strong special mom. You are a rock star ❤ god bless to you and the sweet boy Andrew

[@lupitaramos80]

Thank you soooooo much for your videos!!! You are my new hero!! My son is 9 years old and has a very rare deletion. After watching this video, I realize that I am such a coward. We've never been on a family vacation other than the PCH in California because we can drive to it. You have motivated me to figure it out and just try. I will definitely be subscribing to follow your tips. Once again...THANK YOU!!!

[@earlybirdiesCP]

lupitaramos80 you are not a coward! We all have to do what we have to. Traveling with our special kiddos is not an easy feat (as this video demonstrates). FYI, we took Andrew on a trip when he was two years old and it was a DISASTER. After that, we decided to leave him at home; otherwise, as a family, none of us would be able to enjoy vacations - Andrew included. It was heartbreaking but we had to do what we had to do. Five years later, he's medically stable and our family is in a much better place as a result. That's one reason I happily made this video; I remember the years when travel with Andrew was not possible. Thank you for the kind words! Best wishes and happy traveling to you and your son!

[@abukaf9710]

איראני עחדגכע אורנה המעודכנות

[@Sharonrosenschein]

Watching this before our first flight with our almost 3 year old CP boy. Nerves but hoping for the best. Also flying w JetBlue and I’ve communicated his needs so 🙏🏾🙏🏾 Good job to you mom, It’s hard but we do it!!

[@maybirdie1]

Hi. I’m on the same boat. About into fly with my 3 year old CP boy. What are you using to sit on the plane? Any suggestion?

[@Sharonrosenschein]

@@maybirdie1 Hey, they say I’ll have to use the car seat and they’ll find a place for our adaptive stroller BUT I am so worried!! That’s a $2000 stroller and I need it to be in one piece after this trip!

[@Sharonrosenschein]

I’ll let you know after we board.

[@Jacoe413]

I get sensory over load issues. And I always keep a pair of noise canceling headphones. They don't actually play music anymore ( probably because I carry them so often, and they just shorted out) but they sell ones that are just headphones, with no cords. They make kid size ones too, check home depot or lowes.

[@earlybirdiesCP]

Dianna Province Thanks! We’ve tried several different noise canceling headphones for Andrew but they haven’t worked out - they’re either uncomfortable and/or don’t stay ON! I just ordered yet another pair recently so hopefully this one will work out. Thanks for watching and commenting!

[@gudassachin5362]

Wishing all Happiness, may you all be Happy and Peace😊

[@mommaofatrioplus1752]

Thank you so much for this. My son isn8yrs old with spastic quad CP also in a wheelchair. We are traveling to Fla for a disney vacation. I'm going to make an appt with the airline for assistance as well. We are traveling with our 3 other children as well. We visited the Expo also in 2017 & 2018. Its very informative. We live in SI, NY.

[@earlybirdiesCP]

Momma of a Trio Plus1 Thank you for the kind comment. And, wow, we have so much in common. You’re doing great, mama. Have the best time at Disney. 💕

[@rosalbaalonso6684]

Omg! I was searching for this a lot!!!!!! Thanks for all the usefully information, I’m planning a trip and this was great. My son also has CP. I hope you guys are ok! I would love to see new videos

[@tinav4jc]

Thanks for this video. My son is 8 years old and we are getting ready to travel. Hey everyone Please research on heavy-metal/parasite detox is there is so many testimonials of kids that start to walk and talk after getting detox from these heavy metals that are found in food, water, vaccines, etc. I just started it myself

[@PheonixStarsx]

What happened to Andrew ? Did he pass away

[@exdoode]

too bad there isn't a "love!" button to click. I loved watching every minute of this. Andrew's mother is nothing short of fantastic and inspiring. Andrew is very handsome and has a great name :)

[@juliebowers550]

My daughter used ear protection with grandaughter on plane when she was small so could nap.

[@wnavlogs6207]

Thanks for this video you are just a great Mom keep up the good work god is watching every good deed is countaible

[@jenc9886]

Thank you so much for this video! We are traveling in April and our youngest of 4 has CP and gtube fed. She will be 19 months when we travel. She is also on real food blends.

[@earlybirdiesCP]

Jen Chavez Thank you for watching! Have a great trip! :)

[@rubenmargaritocontreras4ev363]

I have a daughter with almost the exact same needs you are brave and you inspire me

[@earlybirdiesCP]

Ruben Margarito Contreras 4 Ever Loved So happy to hear that. Thank you! These videos are for you! 🤗

[@christinah2065]

I have a special needs 4yo child we will be going to disney next year I'm kind nervous of the sensory overload. I hope they make special needs changing for kids over 4. There has to be a change.

[@earlybirdiesCP]

Christina H Hi! We have never done Disney with Andrew (he can’t actually go on that many rides and it is definitely sensory overload for him). I have read, however, that you can use the First Aid stations at each park - it offers cots, curtains, privacy, air conditioning, etc. So definitely look into the locations of the First aid stations as well as the Companion/Family bathrooms. Have a wonderful trip!

[@nikkijoes]

Hey Christina.. Just reading your comment now.. we have done Disneyland the last 8 yrs with my son on the Autism spectrum. I have used a cane for each trip. then last year we used a wheelchair for my husband. my son takes Sunglasses, ear buds a hat and a hoodie.. all to help with sensory over load. We used to take our own food into the parks with us, but as he has gotten used to the food and can trust it, we tend to eat our evening meal there.. you can get a pass from City Hall. its called the Disability Assistance System. or DAS for short.. this pass will allow you to wait outside the stand by lines. and then enter through either an exit in the older Disneyland or Fastpass lanes at California Adventure land. this pass people are under the impression that its a front of the line pass.. its not.. it gives you are return time , you can go somewhere else.. go eat or rest . or on another ride. and then when its your window of time you will head to the entrance line.. if your son is using a stroller you will have to take him out of the stroller and park it,, unless you ask for a stroller / wheelchair tag.. this is important. as they WONT allow you to use the stroller in the line unless you have this tag, you will also get this at City Hall. Most often people who use a wheelchair will have access to the regular lines at Cal Adventure land.. and some parts of Disneyland.. as a wheelchair user you may be able to get the DAS if there are other considerations with your child. when you ask at City Hall for the pass, the cast member will ask how waiting outside the standby line is a benefit to your child.. Most of the Toilet blocks have good change areas for smaller kids.. and the baby changing and first aid areas have spots where you can rest and regroup.. if you go off season.. Jan, feb. and in Sept just after schools have gone back.. its a low season and crowds tend to be less.. although the weekends no matter what are busy due to locals visiting .. go To Disneys website and look up their disability policies.. and rides that need you to transfer and rides you can stay in your chair.. if you go I hope you have a fun time.. one thing that made us enjoy ourselves was to go for 5 days,, go back to hotel middle of the day,, and rest.. play in pool . veg in front of the TV and then later in the day go back to the parks for more fun..

[@kimsaunders8172]

Hi your videos are so helpful thank you so much I don’t see any recent ones ...I hope you make more🙏🏼😊

[@earlybirdiesCP]

Kim Saunders Thank you for watching and taking the time to comment. I’m so happy you find the videos to be helpful. More videos are coming! This summer!

[@Whiteblack834]

Can you please mention the CP wheel chair that you use daily for your son and also details of it like where you purchased and any customisations?

[@renyputman7118]

What happened to this channel? I would love to see how you guys are doing!

[@earlybirdiesCP]

Reny Putman Thank you for watching and checking in on us! Life has been very busy but we are doing great. More videos are definitely coming. But you’ll have to wait until summer!

[@loco4locos142]

I always have sensory overloads on flights

[@harrisonkalundai5817]

I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email [e-mail] and WhatsApp connection is [phone] for help...I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email [e-mail] and WhatsApp connection is [phone] for help...

[@alannahbanana4453]

Congrats on 1k not sure if you hit recently but anyway well done xx

[@earlybirdiesCP]

Alannah Banana thank you! ❤️

[@babyhoya67]

What a inspiring video!! My son is 3yrs and I’ve never went on family vacation. I am kind of scared to take him on a plane. Thanks for the video. I wish I could see more videos. From all of your videos, Ive learned a lot and got lots of information! Are you planning taking more videos?

[@earlybirdiesCP]

Mika Lee plane rides are not an easy feat but doable. Best wishes on future travels! I’m hoping to get a video or two out this summer. 🤞🏻. Thank you for watching and I’m so glad you find them helpful.

[@ainaolaso9572]

Thank you for sharing this!! this made me bawl my eyes 😅 I have a child that has cerebral palsy and is tube fed also. This video really helps me. Thank you so much

[@taniac01]

Loved your video!! Hope life gets a bit easier and you find time to make more of them :) My son is 2yo, also quad CP, but eats by mouth. We might travel for the first time soon and I totally didn't consider the possibility of sensory overload. Thanks, it was helpful!

[@earlybirdiesCP]

taniac01 thank you for watching! I’m hoping to get a video or two out this summer. 🤞🏻. Happy travels!

[@worldsfunniestvideosandbes3684]

I am a 17 years old with CP. I also live in NYC.

[@forevergoddessqueen4404]

Thank you both.

[@Queenb.90]

Haven't seen an upload in a while! I hope you and Andrew are doing well ❤

[@gabrielavasquez89]

Hello I was wondering if the special tomato sitter can go 8n the plane as our kiddos car seat? Do you happen to know if it can go onto the plane? My 2year old is most comfortable on that sitter. Same diagnosis, same ST sitter. He has no head/trunk control so if he can take that in the plane as a carseat it would be awesome!!🙏Let me know if you happen to know!😊

[@earlybirdiesCP]

Gabriela Vasquez hi, I’ve wondered his too and I don’t think so. Car seats seem to be the only acceptable option I know of so far. Please me know if you find out differently! Andrew is happiest in his special tomato sitter as well

[@stefandavidson5954]

@@earlybirdiesCP our daughter is 5 similar condition and dreading going on the plane and travelling. Wish there was a space on the plane to just wheel them into and they stay in there chair

[@tinav4jc]

Special tomato has a new chair that is approved for travel

[@agnescharlieho2016]

Andew is a extremely good boy

[@tiffanyvo3094]

Hello, thanks for sharing. We have a disabled 5 y/o daughter and took her on a flight in March. A major challenge we had was changing her during the flight. The cabin crew would not let us change her in the very back of the plane because that’s where drinks/snacks were prepared, so we had to use the lavatory. Our daughter was small and light enough to be changed on the changing table, but this was still a challenge. How have you had to accomplish changing your child during the flight? Was the aircrew able to make arrangements for your child to be changed in another area of the plane? Thank you.

[@hientruong4758]

❤it’s been longtime, just wondering how you guys are doing now?

[@StevenandMaxi]

My son also has a gtube. When you make homemade blended food for a day do you have to warm it up for each meal?

[@earlybirdiesCP]

Dalia Ferguson hi! When we are home, we do pop his food in the microwave for 30-45 seconds, stir, and serve. There are times we don’t and that’s fine, too! Thanks for watching.

[@RikWCrlsn]

Thank you for sharing..

[@earlybirdiesCP]

RikWCrlsn thanks for watching!

[@ServiceDogRosie]

Love your organization!! I have alot of medications, 2 feeding tubes, double lumen portacath and all iv stuff

[@faizalrathwan722]

Very inspiring. I m so worry to bring my son to fly. Condition quite same like andrew. Tq for this video

[@plor1261]

This helped a lot. Thank you!

[@AdrianaMendez-sg1qt]

Thank you so much for this video

[@user-jp4tl9zd8n]

Most airlines won't allow any disabled access to the plane with other people. And it the pilots and airline association are uncomfortable 😣🥵 to have any disabled people who are on the plane.

[@bencaldecott6583]

Good morning. That is awesome. You are an amazing mom

[@earlybirdiesCP]

Ben Caldecott Thank you for watching! 🤗

[@bencaldecott6583]

earlybirdiesCP aww. You are quite more than welcome. Merry Chrismas

[@minipigs1014]

I have the same jacket

[@zarrarkhan1668]

I have 14 yr old son with the same diagnoses as andrew.

[@melissamarin641]

I have the same thing cp

[@antnjaxz04]

How is Andrew?? I have a son with the same condition...and he will be getting a GJ TUBE...I wanted to ask how he is...blessings

[@moonwalkernoahnoah4524]

I love You sympathetic Boy Is that right you are talking the world in a Other way. Have a great time in L.A.❤️✌️👍😍😎😇🍀👦

[@dorate100]

how are you all doing ive not seen any more videos for a long time

[@jezmyahrios3688]

So cool in a wheelchair

[@gmays3003]

Hi will you all be creating more videos?

[@ashleybragg9647]

Do you have a bag/cover for his wheelchair? Or was it fine without one? My son just got a convaid rodeo and we will be traveling later this year!

[@kaylar8708]

Please make more videos, so amazing!!

[@humaraazhar6346]

Lots of love❤

[@naiyahp]

I’m one of your biggest fans

[@kathyr7156]

Since your son uses RFB, can you tell me which extensions he uses? My son has a 18 French Mickey and I can’t push it through his extension. Do you use a special one? Also, can you post his feeding schedule including water? Thank you 🦋

[@codymumbrue4912]

Why does he still get changed on a baby changing table

[@kriss8288]

How did you figure out a schedule for the g tube? My daughter is 2 years old and she's tube fed I wish she could tolerate her 8 oz of food in a sitting I give her 4 oz and have to wait 1 hour before I give her another 2 oz and then another hour to finish. It's very hard I miss your videos

[@juanaldana7355]

Loved the video i have a daughter that is 11 years old that is diagnosed with quadriplegic spastic cerebralpalys. I love that meals ideas you use for your son dose it help a lot with maintaining his waight?

[@earlybirdiesCP]

Juan Aldana Hi! Yes, it does. We mostly blend meals at home for Andrew. But when we are traveling or out and about, the Nourish and Real Food Blends pouches of food are delicious, healthy, and convenient.

[@kaseyrodgers8470]

So i can’t mix them before going on the flight? I use the same food do u just mix it in his feed bag?

[@emeraldkimble7602]

He can’t be moved to aisle chair

[@lupehernandez5050]

Awww he is so cute god 💕 bless him love your channle

[@loco4locos142]

my my my what a cute kiddo!

[@earlybirdiesCP]

GLOWING BONE STUDIOS Thank you! 🙂

[@PardeepKumar-og9fu]

Chair price

[@rameshthamburaj6589]

Hi Madam, how to contact you, I have a daughter who is affected by CP and she is 6 years old, having some doubts in vehicle set up....

[@raulmonderojr6965]

Amen

[@brianbratcher2047]

Why he uses a wheelchair for I want them to get a new well share why he can't

[@elishachilds8057]

His beautiful

[@earlybirdiesCP]

Elisha Childs Thank you! 🤗

[@tiffanijordan45]

Want a beautiful boy he is

[@earlybirdiesCP]

TIFFANI JORDAN thank you so much!

[@amandawhite7044]

He's sweet and beautiful

[@earlybirdiesCP]

Amanda White thank you! We think so too 🤗

[@brittanysellars1248]

Please prayer for him he is suffering 🙏

[@emeraldkimble7602]

Medicaid pays for all that

[@alexie1119]

Cute

[@cynthiamaybunya4622]

every hour he gose poo In the diaper he gose pee in the diaper every hour he need to have his dipaer change put some crema on his butt if he get a diper rash need to check in the car seat