I got denied life insurance because I take Carbidopa Levadopa. I am only 44 years old. I take 25/100 three pills three times a day. I was advised it was Parkinsonism. I tried researching the difference but they seem similar. I read Michael J Fox denied doing DBS surgery. I won't do it either. My other provider won't go off the diagnosis of a secondary doctor opinion. It's been difficult.

My husband was diagnosed with PD 3 years ago after his keno therapy sessions. He started taking levodopa/carbidopa and he was very active and doing fine but this year he went through a lot back pain sciatica nerve and Sesamoiditis so he couldn’t be active as he was then his PD symptoms get worse. Weight loss sleeping disorders depressed. It’s a nightmare😢. But we still have hope.

I'm not sure how I could properly express the thanks for this video. I'm going for my dat scan In a couple of days, but I'm pretty sure I'll have a diagnosis by Wednesday everything points to it. I am terrified to take any type of RX. I'm terrified of side effects and if I can be honest I was a heavy drug user back in the '80s. (Who knows perhaps that's what caused some of these symptoms!). Anyhow your joy and bravery really spoke to my heart. Truly. I am learning what a lot of the verbiage is and I've been wondering why when I'm getting up in the morning my leg is so absolutely stiff and it has increased greatly over the last 2 or 3 months. My arm is a mess I've been off work for 3 months now And short-term disability and have to get back to work! Your video gave me hope! ❤❤️

Mir

Vegas is hard enough to deal with, but with PD it's a beast. I'm glad security was nicer and you're back home (with some💰in your pocket). 💚

Great job, your words and things you do are always helpful and inspiring.

Congrats on beating so many other poker players. I'm newly diagnosed with PD. But I've had symptoms for a long time. Your channel is interesting and I appreciate the effort you're putting in. For me, I saw A neurologist Who wanted to do a spinal Tap test But I had But I had to have Total Hippocratic Hip replacement The following week so he Felt sorry for me I guess And told me that I could just take the carbidopa levadopa And if it worked That meant I had Parkinson's and if it did not work then I had something else. The medication worked So I don't guess I need to have A. second opinion. Anyway ,, I've been going through a range of emotions as you might guess. I started taking the Carbidopa Levadopa 1 week After a total hip replacement. I guess my concern is he started me on 6 tablets a day 1 every 4 hours exactly. He seems very strict on this But My concern is that I will acclimate To the medication medication and have to take more. I see more it's not it's not recommended I see more it's not recommended to take more than 10I see more it's not it's not recommended to take more than 10 tablets a day. I decided to See if I could bump it back To a lower dose By taking it every 5 hours. My symptoms may be a tiny bit worse But I'm gonna hold this5 pills a day See what happens. I'm worried the neurologist may be upset with me. We have almost no Neurologist in my town So I worry about That. Again I appreciate what you're doing here.

Yay, Jennifer so proud of you for going, especially alone. I'm not sure I would have done Vegas alone before Parkinson's. All the noise can really be disorienting and exhausting, sensory overload. Rest up my friend for whatever your next adventure will be. Be proud of yourself!

Thanks for articulating what I have been feeling in busy environments - I lumped it in the catchall, stress. I have decided I can no longer attend (special interest) conventions on my own. Similar to why I no longer drive on unfamiliar roads, too much input, too quickly.

Congratulations on your win! I was diagnosed with ADHD non attentive type, and I get really drained and anxious in places like Vegas.

😢 Hug resesrch

After thinking on this further those loud sounds such as in Vegas bring on my hallucinations which are so scary and awful 😢😢. I’m just wondering if any of your subscribers have any experience with meds named SEROQUEL? For hallucinations. Thanks for sharing.🌻🌼🌸🥀💐🌷🪸

Being retired from the airlines I love to travel for free ✈️✈️but just can’t take Las Vegas any longer. Fun but to many sudden sounds and loud sounds and flashing. Congrats 🎊🎉 on winning my friend. Thanks for sharing 🎊 🎊

You’re right on the money with that one, Jen - and not just because you cleaned up in Vegas! These days, even going to the office throws everything out of kilter (sensory overload, stiffer, and the tremor is a tad worse). Work travel, with little control over the agenda, and near-constant in-person interaction is the worst. I have to fight the temptation to isolate too much, but when I’m in an environment where I’m expected to be “on” all the time - well, it’s just not happening very easily. Even when colleagues and others know about my Dx, and claim to understand, I find that they really have no idea; they still expect an earlier iteration of Ken to show up.

That sounds trippy as hell! All the noises and people, the stress of poker. At least you won some dolla dollars!

I know what you mean. Any unexpected noise I jump. Travelling is very tiring with PD. Also those off times you feel so weird, as if looking at what's around you through a mist. Then it becomes clear again and keeps switching.

I got my diagnosis in 2023. I notice that I got very sensitive about loud noise. I live in the countryside and I like to listen when the birds are singing. Here in Germany it is not so hot we have 71 degrees and I am sitting outside on my patio beside my pond enjoying a glas of cool Guinnes. Take care

hi, i’m 12 years in and am scared stiff. PD care here where i live, UK is dreadful.I’m on my own and am looking for a care home so i’m not alone. well done to you as i think you are amazing. Sue UK X

I'll travel with you next time!

Congrats on doing so well. I'm glad you survived Vegas. I can't imagine how draining it must have been. I spent half the day out doing stuff and came home worn out. lol

Way to go Jennifer! Brave sojourn! I was in Vegas in April, 2 weeks after being diagnosed and starting CD/LD. The stress of that place made my PD symptoms worse than ever in spite of the added Levodopa! I have come to realize that one of Parkinson's major disabilities is reduced stress tolerance. I am very aware now of the effect of being around toxic people and environments. I must be very deliberate in what and with whom I do things all while trying to remain active and social. As always Nature is a salve to my mind and spirit! Thanks for sharing!

Thanks Jennifer for sharing how the trip went. Sounds like you did some good work with poker! Understadable about stress tho and oh the relief of getting home! Las Vagas is a bigger deal than we get into because tending towardds music gigs with chilled vibes, less rock, more roll!! Best wishes, John, Auckland.

I can relate to your wave length thing. I avoid crowds and especially Vegas. It is exhausting. I went there 9 yrs ago to get married. When I got home, I scheduled an appointment with dr to explain why my hands were randomly going into severe cramps. Doc sent me home with C/L and it helped. After a DAT scan I was diagnosed. Congratulations on the poker tournament !!

I can't comment from the perspective of PD. However, I've had a different disability since the day I was born, legally blind, and getting outside of my routines and known areas always presents a challenge that requires additional physical and emotional energy even when it's someplace I really want to be. I found traveling with friends can be helpful to reduce stress though I do travel solo at times. I do more planning ahead now and accept more assistance these days - airport wheelchairs are now welcomed!! I have more tremor within airports as that environment stresses out my symptoms and my vision. I actually find the plane more relaxing than the airport. 😎 Nice job at the tournament! 👍

The levodopa test is how I got my diagnosis. Within 30 mins of taking it,my stiffness tremor and slow movement improved.

You have orgams

I'm curious; I know you're not a doctor but if you have any insight that'd be nice! I got diagnosed with YOPD in April of this year and had been displaying symptoms as of 2021. I mainly suffer from tremors and mild distonia in my shoulder and ankle/wrist. I'm on 25/100 C/L right now and am seeing minimal improvement. How long did it take you to dial in the right "dose?"

I've watched video this a few times. I'm trying to work out though it wrecks me for an hour after. I'm fine during the workout, but I have symptom overload afterwards and have to ensure I have couch time after a workout. 😵‍💫 Also, making small changes to nutrition. I could eat better but small steps and want to get my exercise working first. Just don't want to change everything at the same time. 😎🌴

I have 20 years since diagnosed.❤

You are so hot

‘‘I am not only happy am alive but also glad that "#DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease (PD) 🦠🦠with their herbal treatment. My smile is so bright because I am happy 😊😊.’’

‘‘I am not only happy am alive but also glad that "#DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease (PD) 🦠🦠with their herbal treatment. My smile is so bright because I am happy 😊😊’’

‘‘I am not only happy am alive but also glad that "#DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease 🦠 (PD) with their herbal treatment. My smile is so bright because I am happy 😊😊😊…’’

‘‘I am not only happy am alive but also glad that "DrMadida" was able treat and cure me with his herbal medication of my parosmia, Meniere disease and Parkinson disease 🦠 (PD) with their herbal treatment. My smile is so bright because I am happy 😊😊😊😊..’’

I always take a nutrgr lnbar after

Good for you for hiking! Totally necessary.

i'm 66, a fairly recent widower with Crohn's disease and no family nearby. I was diagnosed with PD two days ago. Your channel is the first one i found. I'll be back. Thank you

glad you passed 11 months ago. How often do you need to reevaluate? Every year?

In addition to this new journey, I was born legally blind and with albinism, I've had people staring my entire life, I've had people worry about me as I go downhill skiing or repelling off of a cliff face, or riding roller coasters. Just the other day I was having trouble crossing a street simply because there was a lot of two-way traffic, a gentleman stopped his van and got out to assist me, I let him and I thanked him. My point is not doing some thing because of the way other people view your reality only limits you. I often say that limitations are externally set before they are internally believed, don't let other people set your limitations. 😎🌴

She wee and a urinal. I have used when hiking in 2015, but it seems it would work at home. 😎🌴

Great advice. Love your videos.

I vote yes. I wondered if my sensitivity to my wife and marital problems was the cause of PD.

Best time 6am and 4pm empty stomach,it works very well

I've heard you say that you responded to C/L right from the start. Did you respond to C/L with the 1st dose? Or did it take several doses before you responded?

I’m in my 4th year of CDopa/LDopa. How do I know it works?? When the drug wears off, muscle stiffness and moving in slow motion markedly increases. When I take my dose, the “slo-mo” effect goes away and I become reasonably functional. Do I experience a little dyskinesia? Yes, I do. I love what you said about your bartending- that you realize you are “ dyskinetic”, but you choose to ROLL WITH IT! I feel the same way, I still do public speaking with my job and I still occasionally gig with my band. In each case, I have to time my dose and watch what I eat prior. - For me,if I am fasting ( 6 hours or more from my last meal), I might get 5 hours benefit from my dose. If I am one hour or more since my last meal, I might get 3 hours benefit from my dose. If I try to take the dose with a meal- it’s a waste of time. That’s my current matrix with L-dopa . I’ll deal with the dyskinesia until we find something better. Thanks again for your voice!

Very insightful! I agree, “dopamine “ is hot in the current pop culture lexicon.. meaning the word gets clicks (regardless of the content) As a person fighting PD, YOU are my favorite follow. Thanks again 😊

Has anyone heard of high B1 thiamine dose therapy? I read a book B1 and Parkinson's! I started 400mg of Thiamax ttdf thiamine, 100mg L-Threonate magnesium, and 100 mg Potassium 4 months ago and though it hasn't 100% cured me it has greatly helped in every way with no side effects! I'm 58 and had PD for 4 5 years. I also take 25/100 MG carb/levo 3/day

Do you ever take the Sinemet under the tongue for faster absorption?

Great advice, as always! 🙂

How about the DBS surgery?