Gastroparesis Life&Advice // Sophie

[@seanfortine2707]

I understand the social difficulty part to a degree. The list of foods I'm intolerant to is extremely long, and I've convinced MOST friends not to worry about finding someplace where I can eat a full meal. It's not ideal, but I'm usually satisfied enough.

[@Dulcimerist]

I have hypermobile type Ehlers Danlos syndrome, which causes a lot of pain, fatigue, dysautonomia, digestive dysmotility, and a lot of other issues. It's also one of those "invisible illnesses" that doesn't look obvious to other people. When people give me the "But you don't look sick" line, my response is "But you don't look stupid."

[@julietannOsfan1972]

Thank you for this, I found it really useful. I’ve had Gastroparesis for about 3 years & have also had a gastric bypass. Because of both of these things I find it really hard to eat solid food. I’d love some videos on eating with gastroparesis. Take care.

[@Thedramaqueensoph]

Julie Tann I’m so glad you found it useful. It can be hard knowing what to eat/what not to eat. I did do a video on food & gastroparesis so be sure to go back to that but maybe I can do some updated ones :) I hope you’re doing okay xx

[@seanfortine2707]

I had a friend with gatroparesis, and probably undiagnosed EDS now looking back. Unfortunately she made some really bad life choices and I've never heard back from her. The one thing I never understood is how gastroparesis is caused if someone does not have some form of traumatic injury to their nerves. Do you know how that happens?

[@Thedramaqueensoph]

There’s different reasons you can get/have gp. Things like diabetes, the after math of a nasty virus, surgery that’s nipped the nerve, hypothyroidism, nerve diseases, connective tissue disorders and then sometimes they just aren’t quite sure

[@Dulcimerist]

I have it from Ehlers Danlos syndrome. Diabetes or Parkinson's can also cause it. Quite a few other things as well. The vagus nerve stimulating drug Mestinon treats my digestive motility issues really well. It's an old drug that researchers have recently repurposed to treat gastroparesis and other digestive motility issues.

[@alyssawssinging4039]

In a bad flare rn with gastroparesis not fun at all I was diagnosed at 17 but the flare I’m having rn is making me nauseous and bloated stomach and just don’t feel good at all also not been able to eat as much as I used to so yeah I’m just not doing good with my gastroparesis rn

[@Thedramaqueensoph]

Aww I’m so sorry to hear that you’re in a bad flare up :( I know the feeling and it’s horrible and rough. Even rough gp days are bad enough. Keep pushing though. You have got this. You been strong enough to get this far and you’re strong enough to keep on going :) x

[@alyssawssinging4039]

@@Thedramaqueensoph ❤️