Getting an MRI, Writing Poetry

[@sabbapixie]

Glad you got to the appointment! Love your poetry.

[@Eryykc]

Thank you! Hope your day was great 😊

[@kerry5377]

such a common place for those of us with autoimmune conditions... just because it can't be seen, doesn't mean it's not there 🫂🫂🫂🫂🫂🫂

[@Eryykc]

Facts

[@margakat]

That was an excellent poem. I was thinking about your channel earlier today. I woke up in a bad mood, angry at myself and angry at so many other things. Just an hour or so ago, I thought about the words you open your video with. I thought hearing them now would be helpful but also thought that it was unlikely you would post another video so soon. Yet, here you are being open and vulnerable and helping me to forgive myself even if just a little bit. Thank you.

[@Eryykc]

Thank you for sharing this, it encourages me to keep sharing and posting. I don’t have a fixed posting goal at the moment, I simply try to make videos when I can, and be as authentic about where I am in the moment when recording.

[@earnestlanguage4242]

Damn. that poem hits hard.

[@Eryykc]

Thank you! ❤️🖤

[@earnestlanguage4242]

@@Eryykc I've got POTS. (Lupus was a consideration at one point, but it wasn't that.) Can absolutely relate to the pressure to just stop talking about your symptoms because no one knows what to do and so they get mad AT YOU about it! Every illness did not have a name once. Every collection of symptoms may be a chance to learn, identify something, and help people. Unknown symptom clusters are an OPPORTUNITY y'all!

[@Eryykc]

Yes! The fact that we are the ones who feel bad for being in pain or needing help is crazy. But I am trying to learn how to find peace even on the bad days, and not wait to be rescued.

[@thefoggysystem]

I'm getting an MRI tomorrow as well, lovely video! Your poem is beautiful and painfully relatable as well.

[@Eryykc]

Thank you so much! Hope your MRI goes well

[@thefoggysystem]

@@Eryykc thank you, it was better than last time! I’m autistic so very sensitive to sound and this time they let me use both earplugs and headphones so it was better :)

[@Eryykc]

Yay! I’m autistic too and yes, the earplug/ headphone combo is the only way to go

[@josephsells4187]

After listening to your poem i felt that i should tell you that you are loved and matter as well. Silent suffering is just as detrimental to our well being as what we are suffering from. There is a reason animals cry out in pain. We cry out, if for no other reason than to let others know, so we do not suffer alone. If we stay silent, then we will never find those willing to listen. I love poetry and write some myself. It is the true art of writing. Like any artist the poet can convey something and yet, still leave it for interpretation of the appreciater. Let today be better than yesterday and leave room for improvement upon tomorrow.

[@Eryykc]

Thank you so much for your kind words my friend. I really appreciate you.

[@lenarose3190]

The last stanza really resonates, well placed

[@Eryykc]

Thank you! 😊

[@tallulahcrow776]

I feel that your poem probably expresses the experience of many neurodivergent people for whom interaction with medical (and other!) professionals can be discombobulating and unsatisfactory - particularly in the context of often-missed diagnoses such as lupus (or neurodivergency). Your poem is eloquent and graceful - thank you for sharing it.

[@Eryykc]

Thank you for your feedback, I really appreciate it. Yes, I was reflecting on my experience as a neurodivergent adult with a chronic autoimmune disease, and the responses I have received pre-diagnosis to my calls for help.

[@HeyCo_okie]

Your poem resonated with me so much. Thank you.

[@Eryykc]

Thank you! I appreciate you, thank you for spending time with me.