Giant Cell Arteritis: Breaking Down Barriers to Optimal Management

[@Freespiritarts]

Very grateful for this information. Thank you.

[@lisabergan4036]

This is helped my education on my disease so much! Thank you

[@Fomites]

Great conversation. Thank you.

[@andreanicolette2961]

I’m 53 and after years of suffering a biopsy diagnosed GCA, my symptoms where dismissed because of my age.

[@sankiegreyling6309]

Bad sound. Please upload again

[@overlycreative1]

thanks for the hint, . I've had a biopsy after losing sight in my right eye which showed GCA. 10 years of complaints of fatigue, headaches, cough and such and lots of floaters over that period. Tons of every other imaging tests which showed nothing up to this point. I thought I was crazy or turning lazy.

[@MarilynParker5865]

Since it is just not common, many people like myself were misdiagnosed and 'wake up blind'. I belong to a forum in England, HealthUnlocked.com which has a forum for PMRGCAuk. There is more info and support on there than any other place I have searched through this journey...they saved the day for me when I was on so much prednisolone I didn't know what day it was. My best to you~!!

[@overlycreative1]

@@MarilynParker5865 Thank you for your generous reply and the lead to the forum. I just joined in. Best wishes to you as well, your touch of humor made me smile. Many Smiles to you and yours..

[@MarilynParker5865]

I had typed a reply with more info....don't see it? Did you get it?

[@overlycreative1]

@@MarilynParker5865 yes I did, and and an following up on what you said. Thanks a lot, very much , i think you have done your share of suffering to know that hope fades but knowledge can restore something of our human condition that allows us another day with diminishing complaints and invigorated dreams.

[@MarilynParker5865]

@@overlycreative1 So glad you got it! If you see Grammy80, that's me. This forum not only gave me knowledge and hope... it enabled me to ask more intelligent questions of my doctor and take part in my treatment instead of just being a 'lamb'. It is also inspiring to see the courage that many display! My world seems so much brighter and lighter than it did 11 months ago. Sometimes it is uplifting just to support someone else. Be well...