Glaucoma support group: Research - Vitamin B3

Our digital glaucoma support groups allow you to attend and have your questions answered from the comfort of your own home.
Professor Gus Gazzard, Director of Surgery at Moorfields Eye Hospital and a Professor of Ophthalmology, joined us to discuss all the latest research into vitamin B3.
You can view and register for our upcoming digital glaucoma support groups here: glaucoma.uk/supportgroups

[@MC-ds5ox]

Very informative

[@vivientan2991]

Apart from supplements, here is a suggestion when glaucoma affects partial vision loss for a solution to be hopefully reached. With the onset of A.I, perhaps glassware producers of spectacles could invent and extend or expand the remaining sight for improvement.and ability for users to see better. As it takes time to reach total blindness with the onset of glaucoma, a study could be initiated to produce specially made glasses that will expand any available remaining sight for the individual glaucoma victim. This may be an alternate method for preservation of partial sight loss since damage of the optic nerve is irreplaceable at this point of time in Yr2024.

[@gnooy13mdfk]

one of the most informative talks I've seen so far, planning to start B3 myself

[@ayhansimsek8506]

thanks for sharing it with us

[@averagebodybuilder]

I have read that increased B3 is associated with an increased risk in heart disease.

[@Nilamoire]

Thanks for the very informative video!! You answered many questions I was wondering about the trials. Was the listener who mentioned cholesterol lowering confusing niacinamide w niacin? Niacinamide is not supposed to affect cholesterol; niacin is.

[@timparker9174]

What do you think about taking TRU Niagen supplement which is supposed to increase NAD+? Thanks

[@juanb6514]

Hi thank you it was very informative. question...the retinal glangion cell that are berely surviving will they recover? thank you

[@mballer]

42:22 you're assuming it's the pressure that is the reason it is beneficial but seems there is a different function, lower pressure being a side effect.

[@gilbertabdo8813]

what is the recommended dosage ?

[@risenshine2783]

Hmm a bad liver or going blind…? Which to choose ?

[@risenshine2783]

I have low pressure glaucoma and underactive thyroid which means my mitochondria dont work. Thyroxine (T4) doesnt sort it out properly but try telling a doctor that! I was best when I could get natural dessicated thyroid… but cant get this now

[@24728481]

My diagnosis: glaucoma suspect with Pigment dispersion ; My ophthalmologist does not want to consider SLT, the reason being, she believes that IOP increases after SLT in those with PDS. Has anyone else run across this?

[@lightliz7834]

It seems like there is still a lot of uncertaincy about this vitamin

[@risenshine2783]

So I take 600mg a day which is 2 tablets…so I need to double this at least..?

[@gilbertabdo8813]

can someone please advise a brand that is good and affordable- thank you

[@risenshine2783]

I got some from BetterVits a UK company

[@risenshine2783]

Health leads uk not better vits !

[@robp2282]

Important info: I had taken nicotinamide 500mg most days since feb 2022. In august 2023 I upped the dosage to 3000mg. After 2 weeks, i needed emergency medical attention as I went into urine retention and needed a catheter fitted- doctors couldn’t find evidence as nicotinamide as the cause. Bloods/scans were fine. I started taking nicotinamide (same dosage, more precise times) in October. Again after 2 weeks, I struggled to pass urine. This continued for 7-9 weeks. This month I took niacin 250mg, 1g a day, for 4 days- I’m now struggling badly to pass urine, and my bladder is near mullered!

[@moondriver232]

That's terrible, and I'm totally sympathetic. And thank you very much for sharing your experience with us. I'm thinking that, like some participants in the study who had adverse reactions when the dose got up to 3g a day, could it possibly have been better for you to increase your doses in really small increments? Maybe you would have experienced less severe side effects and been able to stop, or at least reduce your dosages without such awful bladder problems? Just a thought. At any rate, thanks again for sharing with us. I, for one, will be keeping my doses at 600mg (300 twice a day) for several more months until I slowly experiment with slightly higher doses.

[@robp2282]

@@moondriver232 thank you. Just to add, when I started taking it in February 2022, I was taking one 500mg most days, I can’t put a date on it, somewhere between autumn 22-late spring 23, I noticed I was struggling to fully empty my bladder at night- I really didn’t think anything of it. I see this now as a warning sign. Also each times I have had this reaction, I’ve developed a really metallic salty taste in my mouth which lasts for weeks. Not to mention the change in bowels! Please be careful, this vitamin needs many more trials, especially longer term. Urine retention- it was probably the scariest thing I been through. At the time hadn’t passed urine for 30hrs+.

[@user-gu9gs1zp1d]

​@@robp2282maybe it caused by other drugs, sometimes i struggle with the same and I didn't take any b3

[@blueskyes99]

​@@moondriver232 - I am using 500 mg nicotinamide B3 capsules. I had been taking one a day, but recently increased to two a day. I will be careful and now perhaps only take this twice a day intermittently. I am also taking citicoline daily and n-acetyl-cysteine or s-acetyl-glutathione about once every week or two. These are also supposed to help. There is some research on lithium orotate for glaucoma. It is apparently low in soil. Yet I will wait to add this until I can get my lithium level tested. Another form of lithium is apparently used for psychological disorders and I read that it is known to cause weight gain and thyroid damage. So it seems the right form and dosage would be very important for glaucoma. (The jury is out on this, so I will defer any use of this until I learn more.)

[@unassailable6138]

I'm on 3g nicotinamide for glaucoma and wake up 3 times a night to pee. lol

[@risenshine2783]

Is B3 Niacin or Nicotinamide ??

[@alle492]

nicotinamide

[@chapellinator]

A at A was a a a q

[@dr.amitabhamukherjee3601]

Utterly useless info. Nothing definite and a lot of make-up-your-own-mind waffle.