Glioblastoma Grade 4 - Terminal Brain Cancer at 34

[@youMatterItDoesGetBetter]

Alright, wayyyyy too many comments. I did not expect this to blow up. I was trying to answer most people, but it’s just too much. Much love to you all! Even if I don’t respond!

[@jarod_1983]

Don’t worry about answering every comment, and definitely don’t waste energy on the trolls. Just focus on documenting your journey. Try thinking of us as one big, supportive person instead of a crowd-it might make it feel less overwhelming. Wishing you strength and peace.

[@kamranzaheri3016]

Apply for social security disability ASAP. Get Medicare (takes several months). Good luck my friend, KZ

[@Clairebearthegoodfinder]

😢 ❤

[@youMatterItDoesGetBetter]

@ You get auto approved within 10 days with a GBM. I already am on it. Its on the compassionate allowance list. Most Disability takes 200+ days to be approved. Terminal cancer is instant and 100%. Joe Biden amended SSI when his son died of GBM.

[@chrbrogger]

Best of luck to you and thanks for your bravery. Check my comment below. If you want more information don't hesitate to contact me.

[@stolimarat875]

My neighbor had stage four glioblastoma. Sold everything and was given 1year to live. That was 10 years ago and he us still alive. I will pray for you

[@carolynnewcomb2153]

Amazing!

[@youMatterItDoesGetBetter]

@@stolimarat875 How is his quality of life? Does he workout?

[@crittermetimbers]

That’s amazing, I mean that neighbor is one of 0.71%! Are you certain it was glioblastoma stage 4? I lost a family member and close family friend to this.

[@susansuarez343]

Unbelievably outcome! I know that there are different types of GBM’S & I feel that it’s important to remember that when it comes to longevity & targeted therapy with chemo & radiation. 14:09

[@susansuarez343]

Unbelievably outcome! I know that there are different types of GBM’S & I feel that it’s important to remember that when it comes to longevity & targeted therapy with chemo & radiation. 14:09

[@denew.daugherty8844]

I have been a surgeon in NYC for the past 20 years. I am a trauma and emergency abdominal surgeon. I have treated the gamut of injuries and diseases across the whole spectrum of patients. I have to say that your video and story truly touched me. I admire your courage and strength. Your plan to live the rest of your life on your terms and doing what you love to do is inspiring, I wish you all the best as you go off on your journey... God Speed brother.

[@youMatterItDoesGetBetter]

I worked with a bunch of Trauma surgeons almost 14 years ago when I was in Nursing school (I can’t do poop). You are a beast kind sir. Those guys put in like 70 hour weeks. Is it still like that? The older I’ve gotten the more I’ve realized I like my “me” time and didn’t want to work 60+. Though your job is a calling.

[@ramonakent356]

@@denew.daugherty8844 Have you ever heard of this type of cancer being caused by lead feelings in the teeth?

[@silenz_178]

Thank you for what you do. As someone who had to have emergency abdominal surgery years ago, and would have certainly died otherwise, I am truly grateful.

[@youMatterItDoesGetBetter]

@ Surgeons are modern day magicians. You’re talking 12 years of college, then general residency, then specialized residency I believe. So like 16+ years before you’re a fully fledged surgeon. I know where I worked, to be a trauma/burn surgeon, it was a 10 year fellowship AFTER you received your MD. Those people are insane.

[@JohnDoe-su8ew]

You're braver than 99% of the population. Do not give up.

[@0s0n3gr0]

Live out loud my brother. I have 2 lost good friends to Glioblastomas. I also have a best friend who got a similar diagnosis for pancreatic cancer he is a 15+ year survivor. Fuck the odds and fuck cancer. I wish you nothing but the best. Have a blast in Thailand.

[@youMatterItDoesGetBetter]

@@0s0n3gr0 hey thanks brother!

[@susansuarez343]

@@youMatterItDoesGetBetterThat’s my motto in life, it’s a song by the rock group Triumph & it’s called Follow your Heart. Live for today & forget about tomorrow. Happiness is a state of mind. Keep on running your time has come, keep your dreams alive & follow your heart! ♥️ And remember old blue eyes Frank Sinatra, I did it my way! Songs like that inspire me when I’m feeling down. Susan ♥️🇨🇦 14:09

[@alinaqvi2638]

You are a very brave and intelligent man. I wish you all the luck in the world.

[@cheryljohnson7838]

I loved your laughter about not paying back student loans. Stage IV cancer patient myself. I agree. Quality of life.

[@youMatterItDoesGetBetter]

@@cheryljohnson7838 yes, I’m at radiation today and they just stared at me when I told them I’m leaving the country afterward.

[@MrTn629]

Hey man, look into both the ketogenic diet and Fasting mimicking diet, before you start hardcore radiotherapy and chemotherapy treatments.

[@MrTn629]

There are patients who have strictly adhered to either one of those dietary regimens and saw their brain cancer shrink and disappear and stay gone because of the positive changes those diets have on cancer cells, and your immune system overall. Seriously dude, research them both and give it a try.

[@drewmorg.]

@@MrTn629 Agreed, there are interviews about this on Dr Anthony Chaffee's channel

[@Kathleensailorgirl]

Prayers for you and your journey 🙏

[@RuthTheTruth-kd6om]

Holy shit, the radical acceptance of this situation is tremendous. Thank you for your candid honesty and just know you now have millions of people behind you bro. We’ll be here for anything you need.

[@i_love_rescue_animals]

I was thinking the same!!

[@fi1689]

Is not everybody but yep... I don't know, sometimes when shit strikes you just.. like... have it. I don't know what, but you do. Speaking for experience here. Still hurts, and you'll still have your grieving process but is different from what you might expect.

[@mindfortress105]

it gets harder, wait for the therapy symptoms, radio is horrible, chemo tolerable

[@aw1nish]

You made me realise how quickly life can change and to be grateful for what we have. Live the best you can bro.

[@youMatterItDoesGetBetter]

Me too, I've taken my health/athleticism for granted. I've always had 20/20 vision, etc... and so many people are born like blind, etc... What does suck is my vision is super, slightly blurry now.

[@GoFakeYourselfMeghan]

My precious husband passed away 4 days ago. He was like you..."I don't want to get to the point I am bedridden...." Such a strong, healthy man. He was unable to walk the last month...and he didn't like it. But he did love the time he spent with me and our two kids. Maybe you'll just know when you are over it all....😘but if you are strong like him, you might like the challenge of not giving in when others would. Anyway, I wish you the best. It's tough road....make the most of it all which sounds like your plan. Safe travels, here, and beyond. He was not vaccinated for Covid, btw. He was just a stubborn man who ignored many symptoms, for a long time. Have a blast while you can so get started on it NOW.

[@youMatterItDoesGetBetter]

@@GoFakeYourselfMeghan yeah, the moment I lose my ability to walk/talk… I’m out. I’m not letting it get to that point. I don’t want to live so badly that I do 10+ years of surgeries and treatments and lose my mind/body. It’s not survivable… just check out on life and be at peace with it. Seriously, I would just sky dive one last time and not pull my chute.

[@GoFakeYourselfMeghan]

​@@youMatterItDoesGetBetter - I'm ready to go whenever, so i get you. My husband did three years of cancer, but he was only immobile the last month. Unconscious only the last day. I would have made similar choices to yours, but I didn't push my 'way' on him. You don't deserve this, he didn't either. Know that.

[@ManzelaManz-pk8zy]

Oh man!!!😮😢 Hope you will life a amazing,healthy,happy live!

[@bonitamason7081]

You are an inspiration. Monetize this channel ! Why not? Don’t hold yourself to an impossible standard - monetize and live your life as you want.

[@warhammon]

its an honor to witness you in this life.

[@jewelleryaddict]

Yes we are all the witness to your life. You may feel alone but you are not. We all see you and feel for you. Stay strong. Miracles do happen, sounds hokey but it's true. I wanted my degree to. Chronic illness 30 years. Took ten years but I did it. You can to.

[@perkman2009]

my son had a 5 percent chance survival he had a blastoma at 8 years old on his brain stem tennis ball size now 33 dont give up bro if it's not your time you will come out the winner god bless you

[@phillipevans1152]

@@perkman2009 My cousin was diagnosed with stage four colon cancer and given three months to live. That was fourteen years ago, and he finished his first marathon two months ago. NEVER GIVE UP HOPE. He attributes his success to the Joe Tippens Protocol supplemented with wild mushrooms. He also starved his cancer cells with a zero sugar diet.

[@FrankskinOrweed-ep4ij]

Amen

[@turbokid99]

i love this

[@Ljosi]

Tennis ball size and on the brainstem.. I'm sorry but I simply don't believe your story

[@jonasmartinsen3439]

Sounds like your son got it genetically so it’s probably very different for a fully developed brain.

[@j3d354]

Well said young man “ I don’t fear death, I fear the act of dying”. I hope you have success in this journey. I will say a prayer 🙏.

[@MickDoolan]

Im curious when you say prayer, who do you pray to?

[@ellenherman9543]

I agree

[@jonwinder6622]

Im never complaining about life ever again. Truly inspiring.

[@NMV-ej4zd]

Long-time RN here, it is heartbreaking for you, a young, intelligent, articulate and baseline healthy young man to have this cruel diagnosis. Your attitude and choices to live a quality life are heartwarming, though.

[@karsenpeters2404]

Why don’t you read the room and get out of the comment section. He had to take a covaids shot just to work and survive, while you were dancing on Tik Tok. F.U.

[@lindacanham1835]

Our modern medicine has advanced with Glioblastoma. We have a female relative who had two large tumors on her brain. She is your age. After having surgery to remove the tumors, she went through radiation and chemo. She wore a cap with cooling tubes on her head during the treatments. At present, her cancer has not come back. Don’t give up, there are cases where people do get better. This relative is currently engaged to be married. Stay hopeful. She is three years out.

[@MiaTuzlic]

Watch “HEAL” 🙏 U will understand why it works for some and not others& how to make ur odds better. Good luck to anyone dealing with life threatening Illness

[@CanineGrowTime]

There actually have been FEW advancements with this particular type of cancer. Mortality rates have only SLIGHTLY improved and it's still considered fatal. Almost no one survives this cancer beyond 5 years... even today.

[@danka2000]

@@CanineGrowTime That might be the case. But there are new immuneotherapy treatments which so far seem to be promising. Some of them even got rid of the tumour. Stage 4 cancer is not always terminal, thats why 2nd opions even 3rd opinions are important. 34 is way too young to have such cancer since he is well under the age of 50.

[@youMatterItDoesGetBetter]

@@CanineGrowTime yeah treatments haven’t changed in 30 years. There are some experimental stuff in Europe/china, but I don’t have $1m dollars to try to save my life. The optune go is super promising and I’ll be on that for as long as I’m around. Will be shaving my head every 3 days. What’s wild is I’ve always feared losing my luscious mane, but now I’ll never have to fear experiencing MPB lol. The things I was worried about just a few months ago… 5-8 years with QoL would be killler

[@youMatterItDoesGetBetter]

@@danka2000 it’s nuts. I work out like crazy and drink just under a gallon of water every single day. The amount of supplements I take is wild too.

[@SHope-rq1hc]

As a clinical therapist, your acceptance and resiliency is something to be admired and also studied. Thank you for sharing your story. We are all rooting you on to live your life as you choose!! Rock on, brother.

[@bigchungus1592]

I ask this legitimately and honestly. Could part of it be due to the effect of the tumor? I would be unable to talk in his shoes.... however he does it, it's impressive.

[@echofoxtrot2.051]

I mean, what else was he supposed to do??? Therapy doesn't do crap. It is the human spirit that overcomes.

[@youMatterItDoesGetBetter]

@@bigchungus1592 no, it’s just how I am about all things in life. When I got sentenced to prison, I slept like a baby in the holding cell that night. I fear nothing in life, almost to the point of arrogance.

[@michelle3842]

Hi from Canada, Stumbled across your video and this comment. Curious, what do you accredit this arrogance to; God, ignorance? Genuinely curious as I had a mental breakdown 3 months ago and ended up in the hospital and the extreme fear I felt was unearthly and trying to learn different ways to better my fears & anxiety’s. You’re very brave to just sell everything and go, I often have these thoughts of doing the same, my soul is utterly exhausted.

[@jeribranscombe7319]

Cancer definitely doesn't discriminate. I'm a stage 4b cancer survivor. I'm 7 years in remission now.I hope the best for you.❤

[@brittanyb5942]

❤️

[@v2ike6udik]

all who took "it", will be gone in 5-10y... let it grow, let it grow, let it grow.

[@smfarrie2943]

@@v2ike6udikso you think this guy who doesn’t trust the government took the COVID vaccine?

[@PoeLemic]

@@v2ike6udik That's pure conspiracy theory. Lot of people got "it" and are living great lives without any physical problems.

[@v2ike6udik]

@@PoeLemic You are so afraid, you cant even check the facts what is happening. "Govern me, daddygov, i trust you unconditionally."

[@juliherron8991]

My brother had Glioblstona of the Partial lobe stage 4. He lived for 20 years. Married of two of his older kids and saw all 5 kids enter college. When he died he had been cancer free for a number of years. I wish you a wonderful life.

[@mariel6201]

Amazing

[@flacohernandez4380]

Damn, brother i am praying for you. God will make a miracle happen in your life. Your attitude to this is incredible

[@GrantH2606]

He doesn't need a God. He's a rational thinker who understands we will all return to stardust and cease to exist.

[@flacohernandez4380]

Please do the chemo, do not give up please

[@officialdanplants]

I’m healthy, but I’m living like I am dying. I’ve sold everything I owned , and left to backpack the Philippines. Half of the people closest to me have already died from various ways. My dad fell 130 feet at work and died on impact. I won’t get into the other ways. Needless to say, I’ve quit my job, sold all my shit and I’m living in the moment. When I run out of money, I’ll figure it out. But I’m not living the 9-5 American rat race anymore. I feel like it would be a disservice to everyone else who can’t. I fully accept that I can die at any moment, for any reason. My mentality is I’ve already died and god gave me a chance to go back for one more ride on the roller coaster cuz the park is about to close. I’m gonna scream as loud as I can, laugh, eat too much funnel cake and live it up. Bless you man, this video inspires me

[@kathleenryan8545]

Unusual attitude to life!

[@Mnil52]

I'm not saying you're wrong but it's also very likely you'll live to at least 70, so don't think to negatively

[@youMatterItDoesGetBetter]

@@officialdanplants sorry about your dad, and I completely agree with you on your life outlook. Like I think I said in the video, I was moving to Vietnam anyway to teach English. I’m done with America, it’s not what it used to be. If you have a Bachelor’s from America, you can get a sponsored visa to teach in the Philippines whenever you might need money. You only work 20 hour weeks on average. It’s not bad.

[@youMatterItDoesGetBetter]

@@kathleenryan8545 Some people LIVE, others just exist. My dad is terrified of anything and everything. It’s no way to live IMO.

[@llavero5]

¿9-5 American rat race anymore? Its every country race, its called work. Now you will beg the hard workers for that rat race, and you are proud of it?

[@dvgrman3470]

I feel you. Thanks for the video. I'm a 47 year old guy and was diagnosed with glioblastoma grade 4 about 3 months ago. To say it was life changing is a severe understatement. Prognosis is 18 to 22 months but you never know. I'm shooting for longer. My oncologist likened it to shooting an arrow into the sky - it will land eventually(death) but you don't know exactly when or how far away. I like that analogy. I wish I had 15 years to live but I'm not sure. I feel sometimes that I can't allow myself the luxury of thinking that. It's been the worst time of my life, easily. But the only way I can square it away in my head(pun intended) is to realise I am on a timeline anyway, death was always going to come for me - know I know, barring some accident, how I will most likely die. I sometimes feel some relief from that but I worry more for my family and my girlfriend. I feel guilty for bringing this into their lives and for them having to adjust to having a loved one with this. It's a terrible feeling and I do my best to suppress it but when I'm feeling down in general, it rears it's ugly little head. Folks, don't put things off. Do what you want to do. Your health and time on this planet are finite - don't be lured into thinking you'll be here forever - you WON'T. I've put off doing my art for YEARS and I regret that. Will try now to make up for lost time. Life is so bittersweet, don't let fear hold you back. Anyone going through the same or something similar, best of luck to you. Do everything you can to prolong your time, that's what I'm going to do.

[@hereiam2942]

No more c 19 jabs. Intravenous vitamin C, high level Vitamin D. Fenbendazole. Anti parasitics. Fasting.

[@anniesimone]

❤

[@Lilly-iy3ob]

@@dvgrman3470 🙏🙏🙏

[@fufurabumbacka]

Read a book called 4000 weeks ​@@anniesimone

[@anniesimone]

@@fufurabumbacka ?

[@tylerlaflamme1601]

I hope for the best for you man, you seem like a solid dude.

[@youMatterItDoesGetBetter]

@@tylerlaflamme1601 hey thanks! I call it how I see it in life!

[@r.a.contrerasma8578]

Walk the walk my friend. Live your best life. Thank you for sharing this. You're 20 years younger than me, but yet you are teaching me. Thank you.

[@MorbidAngel616]

My friend has the same thing as you and was able to live for 11 years. He was 29 at the onset and died at 40. Good luck on your journey! Death is not to be feared, but embraced

[@jewelleryaddict]

We are dying from the moment we are born. Some get more some less. Grab what you can from life, maybe the next will be better. Am not believer , but.....

[@Jimdalf]

Hey man, I work in neurosurgery and I see patients every week with glioblastomas. Stay strong my man and love that you’re going to live your life and explore things, you sound like an amazing and awesome dude.

[@giovannamoro8564]

What 's the cause of glioblastoma ?

[@Catherine-u8l]

My mom survived a very aggressive glio at age 58. Three different MDs told my Dad to start making funeral arrangements. Yet my NY NeuroRAD friend claimed that was impossible and she could not have had malignancy. But a Surgeon in Waterville Me worked on her using the gamma knife. He put her photo on his desk and called her a miracle. She lived a quality life until age 78.

[@fukdimudi]

I can't believe how rational you are about this. You said you want to help people in the future, but you sure do it right now. I will definitely think about you!

[@rigit23]

I am also a 35 year old bodybuilder, much respect brother. I appreciate the candor of your statements. I can imagine that although a terminal diagnosis is never desired, it probably gives you a freedom few of us can relate to. Ill be following and wishing you the best brother

[@johnbrayton875]

I wish I had more people in my life who have your straightforward outlook, discipline, and practical approach. So much wisdom at your age. I will be following your journey. Best of luck. You are awesome.

[@phillipevans1152]

Wow man, you are facing this head on with no delusions or denial. Enjoy the time that you have. You're my hero.

[@pedrosttau]

Your mental strength is insane. I completely agree with you, living with quality is much more important than length. Wish you the best in these horrible circumstances.

[@dalcollegegirl]

Your positivity is the best thing you can do for your health. I lost my dad last year to stage 4 glioblastoma after an nearly 9 year battle, for which he was originally told he only had 1 year. With those extra years he continued to have a fulfilling life and create amazing memories, never choosing to believe the timelines placed upon him. I wish you the best and hope you also live a very full life.

[@meerapatel589]

You are amazing. Came across your video randomly and literally while balling my eyes out over how much a vestibular schwannoma has ruined my life at 40. KZbin must be telepathic. Thank you for humbling me. Have a blast in thailand!

[@almaconnor9171]

You are just unbelievable. You have a grade 4 glioblastoma. You’re talking and laughing. I’m older than you are and I would not even be able to function. God bless you. I will be following.

[@youMatterItDoesGetBetter]

@@almaconnor9171 they said 90% of people would have been bed ridden at my state and the size of the tumor, but because I’m younger and super fit, that may have had something to do with it. You’ve got realize though that most people are super lazy and eat awful diets (no judgement) so once they get sick, sick… they go down quick. I can do single leg squats without holding on to anything for balance. Yoga is amazing. And then you’ve got the rest of my family who are all 250lbs+ and only eat processed sugar and refuse to workout.

[@chrisp4125]

I don't know you. But I care for you and I love you. I'm sorry life happened this way for you. I'll be here watching, I wish you nothing else in life but to be fulfilled and have your days filled with love, sun, and happiness. God speed my brother.

[@youMatterItDoesGetBetter]

@@chrisp4125 So many good people still out there on the internet! Thank you!

[@cldixon5857]

My thoughts and prayers are with you !! May you have the time of your life in Thailand . You are an amazing human being . ❤❤❤

[@marcelalopezlira7105]

Sending you a virtual hug. I admire your attitude. I lost my brother to cancer 3 years ago. It was fast. He was gone in 6 months. He didn't want to fight it and just let it do its thing. I hope you get to do what you are setting to do. To everyone here who has experienced cancer either thru a loved one or your own illness, sending you a hug as well. ❤

[@ltcqqn]

I’m 24, starting out in my career, and already anxious I might be on the wrong path, just copying with social media like everybody else. Your words motivated me to reconnect with myself and live in the present. Praying for you tonight, hope you find fulfillment on your days and get to share yourself with your loved ones. Warm regards from Curitiba, Brazil.

[@youMatterItDoesGetBetter]

Work hard, just make sure it's something that is worth doing and not purely for $$$. That stuff will eat at your conscience eventually.

[@michael1769]

I am in absolute awe of your confidence and acceptance. I watched this video and began to feel fear and discomfort and worry about my own life and health, and all I'm doing is watching the video, you are the one with the cancer and yet you are calm and still looking forward to adventure. This video is one that I know is going to stick with me forever, and all I can say is that when I turn 34 I'd be grateful to have even half the confidence that you've displayed. I hope you have an amazing time, thanks for being here now and thank you so much for this video. If you can face this without fear at such a young age then I have no reason to be a coward in the smaller challenges that I face in my own life. Sending you love brother. You've left quite the impact.

[@youMatterItDoesGetBetter]

@@michael1769 thank you for the words. It’s just kind of how I’ve always been. I was pretty reckless in my 20s, just grew wiser around 30… but still don’t fear much of anything.

[@Mike-qo8nm]

Wife is from Thailand, been there many times and it is an incredible country. Healthcare is awesome and cheap. Keep up the fight brother.

[@topshothotshot666]

I'm not sure there is anything better than the blunt honesty you get from a dead man walking. Sorry you were dealt this hand, brother. Sounds like you have your priorities right. Enjoy the time you have.

[@Louiers2012]

Randomly found your channel through a comment thread, praying for you brother. I hope you get to enjoy life to the fullest with whatever time you have left man. Your video was super relatable about modern life and how it sucks now.

[@youMatterItDoesGetBetter]

@@Louiers2012 hey thanks! Rough first video, but if it can help anyone… I’m all for it! Modern life suckkkkkks. Rat race is horrible.

[@Louiers2012]

@@youMatterItDoesGetBetter wasn't rough at all brother!! I'll be here for the ride!

[@youMatterItDoesGetBetter]

@ thanks man!

[@gianluca4893]

I hope you the best. God bless you❤❤❤❤

[@brendapeterson4637]

Wow, I love your attitude and how you are handling this. My Husband died of Glioblastoma in 2018 after a 15 month battle.He was 62 and was a fit man who could outdue a 30 year old.I called Glioblastoma the Beast. I would love to follow your story and see you do all the things you want to do. Again, I love your attitude !!!😊😊😊😊😊

[@Catherine-u8l]

My mother had a very aggressive glioblastoma and my dad was told by three docs to start making funeral attangements. She lived 25 more years and died at 76.

[@youMatterItDoesGetBetter]

@@Catherine-u8l 25 years on a glio? How was her quality of life? I know Carmen Rice is the longest documented at 20 years right now and she’s a champ, but she’s rich and has a family to live for.

[@ChrisPatrick-q6k]

What a brilliant guy, really positive and inspiring.

[@0rtmasta]

You're incredible. I wish the world had more people like you. I wish you all the very best on the journey ahead. You're not on that path alone. We are here with you.

[@roblipman7069]

Oh man, so sorry for your cancer diagnosis and ultimate prognosis. I hope you’re able to get the best out of life for whatever time you have left.

[@youMatterItDoesGetBetter]

@@roblipman7069 Thank you! DOC was not happy that I’m not participating in a 2 year experimental trial (horrible side effects). She was like, “Do you not want to live?” “You don’t understand, I’m leaving to LIVE.”

[@SD-ht6wr]

Brother, a hug from India. I am in tears, seriously how life can change within a shot span of time. I've learned a few things from this vid- what truly matters in life, what is true living, how to look at the vircle of life and other things that you've told. I'll stick around to watch your videos. ❤

[@Dep973]

It really is wild to think how crude surgery is with all the technology around us. I wasn't able to get my brain tumor fully resected either (over 10 years ago). The tumor grew back very slowly, still is, only thing I have to live with are seizures. Your story is inspiring and I related to so much of it. It also made me feel more grateful for the life I have in the current moment. Thank you for sharing!

[@youMatterItDoesGetBetter]

@@Dep973 Yeah, this cancer spreads tentacles throughout your brain. It’s super creepy, like something from a sci-fi movie, so they can’t get it all. Or your brain would just turn to mush. Sorry about yo seizures! What’s weird is the seizure I had at the hospital, I was completely there for. Like I was coherent and knew what I was doing. No convulsions, I was just aimlessly walking around.

[@wandahernandez5002]

Awesome surgeon! My dad had exact diagnosis. We enjoyed 10 months with him. Wish you all the best. Enjoy the time you have left.

[@wicklestein]

You have a very strong mentality. I think you should post more videos. This was great.

[@youMatterItDoesGetBetter]

@@wicklestein totally will do. I’ve had splitting headaches again, so have been taking it easy. Expect more in the next few days. My sleep has taken a hit. I think it’s just healing from the craniotomy. I was probably too active immediately after surgery, but I’m super stubborn, one of my flaws!

[@wlnrmtl4093]

I’m 34 and this hit so hard. Your attitude and your candour is inspirational. Sticking around for the ride. Sending you love and strength.

[@oliviathomas9598]

And I thought I was having a crappy day! Fear not monetizing your videos in the future and maybe donating all proceeds to cancer foundations. Or not, I loved being able to watch this without anticipating some scam advertisement. This video wasn’t as motivating as much as it was reassuring. In a way we all have cancer. And in the end, it isn’t until we realize how close death is until we finally do what we want.

[@youMatterItDoesGetBetter]

@@oliviathomas9598 correct, I get to actually live now instead of exist doing the daily grind.

[@Bonnie62563]

You are an amazing young man. Your honesty is incredible. Your courage is admirable. May all you days be filled with everything you desire. I will say a prayer for you. ❤

[@Cravenn5]

What a beautifully stoic human being. I'm so grateful to have come across your likeness courage and heart! Big blessings to you and if this can be beat I think you're the one to do it !!❤

[@valaquenta220]

Hi there. French fellow over here. I lived in Thailand as a kid, and loved the country (still do to this day). You're 100% going to enjoy living there, it's fantastic if you know where to go. I wish for you to be part of the lucky 5% survivors and live for 5+ years so that you can enjoy this adventure you're going on as long and as fully as you can. We all die one day, sooner or earlier, but a life lived fully is a good life no matter how short. I'll be following you and watching your videos from now on. Take care man.

[@youMatterItDoesGetBetter]

The radioactive dye called “Gleolan” is used to cause the tumor to glow in the dark under a special light during surgery. It tasted like stomach acid and by far, it was the worst part of the entire process. I would do the surgery without that drink 10 times over. It wasn’t a big deal. Update: Sorry for no video yesterday, I'm having debilitating headaches again and could hardly get out of bed. Also, the amount of family reaching out to tell me about experimental procedures is getting tiresome. My aunt wants me to fly to Germany to try cryo-therapy. Like what? I'm not freezing myself and waiting for an AI cure. Lol.

[@bgsagdgasgasg]

search up fenbendazole please it will save your life

[@davidkeel8376]

Looking forward to seeing more videos when you feel up to it mate - thanks for sharing 👍. It really puts everything in perspective. Having aunts tell you about their fkn prune juice therapy that cures cancer is not what you need right now 😂... sorry to hear you're dealing with that. Hope the symptoms improve brother 🤜

[@BorisKickAss123]

fenbendazole and Joe Tippen's protocol.

[@YogaBallzHuge]

bro cryotherapy?? you mean they just kill you ???

[@martamaljkovic5242]

Your health comes first, do not worry about the videos. I am sorry though to hear that you have headaches again😢 I truly hope you get the quality life that you wish for 🙏🙏❤️

[@chrisallen3140]

Video popped up on my feed randomly and I ended up watching all of it. I’m sure everyone who sees it will be rooting for you. Subscribing and looking forward to your next one. Sending love from the UK

[@awesome_comment]

I look forward to following your journey from Australia. I like your no nonsense, straight forward approach. Take care ❤

[@user-zn7lz8tv8s]

I just said a prayer for you brother. Nothing else to be said, just feeling compassion for you.

[@seananog]

Lost my Mom at 80 to Glioblastoma. She had a resection shortly after diagnosis and chose to decline chemo and radiation and live her best life with the time she had left. She remained comfortable and alert to nearly the end.. You're handling your reality with remarkable clarity, I have only good wishes for you on the remainder of your journey. As an aside...I don't know about the practicality with your travel plans, but hospice care in my Mom's case was wonderful; -caring people with their focus only on you and your wishes.

[@youMatterItDoesGetBetter]

@@seananog yes, I will return to the us and get on hospice at my mom’s house at the end. You get allllll the good drugs. Just go out in your sleep sounds heavenly. A way better death than millions of people have had before us.

[@dianaregan6698]

My heart and prayers go out to you and all of those who are your people. Live your life to the fullest. Our daughter had Pancreatic cancer at 48. Lived 18 months. So we know the time will come on its own. But it’s up to you to do what you want and when. 🙏🏻❤️

[@doitallste]

Thank you for your contribute, I will not forget you, you made me realise how important it is to be grateful for life and to not stress too much. Stress is the worst. Write the book, move to Thailand, swim, surf, meditate, eat healthy. I'm sure you'll make it. Stefano, from Italy.

[@youMatterItDoesGetBetter]

@@doitallste stress will destroy you. I learned that long ago.

[@catsanddogs8983]

You are so courageous and great. Thank you for posting.

[@kellyrankin9145]

Instant subscription. Thank you for including us. You seem like a great gentleman who doesn’t deserve what’s happening but your positivity is truly inspiring

[@jamesscherrer1642]

I sat here with my jaw on the floor listening. You are SOOOO brave and seem so incredibly grounded. I just finished Cancer treatment and for what I went under, the Chemo didn't really bother me (until I realized it later) and the radiation pretty much did me in for a solid six months. I spent my life on the couch, literally! I have NEVER considered moving to another Country but I give you total cred!! I wish you God speed and the VERY BEST POSSIBLE!!!!!!!!!!!!!!!! You're an amazing guy. Made me tear up and just wish you the best. Be strong, cry when you must and give yourself Grace!!!!!!!!!!!!!!!!!!

[@RioBahiaWilliams]

My father diagnosed with glioblastoma multiforma at 72 at UCSF, 6:07 significant tumors (total of 4), passed away within 3 months. I tell you this, he had no pain and was in wonderful spirits the whole time, he was a great man and had no regrets. I also tell you this, your attitude is refreshing, and I wish you many adventures, much love and friendship, and hope you have many, many days, weeks, months and years ahead 💜💜💜

[@youMatterItDoesGetBetter]

@@RioBahiaWilliams holy crap. 4 tumors?

[@RioBahiaWilliams]

@youMatterItDoesGetBetter Indeed, they were of various sizes, and other than some cognitive changes no symptoms. We were concerned he may have early dementia so had him checked out and were given the news. He never had any pain and was not scared, but during those last months he would recall different events, have difficulty walking and such, and then the next day seem fine. He was also hilarious the whole time. I'm sure everyone's journey is different, but his was not horrible and we got to shower him with our love, and he his with us so it was hard, but it was also good 💜💜💜

[@youMatterItDoesGetBetter]

@@RioBahiaWilliams hmm, I’ll be on hospice so I’m not worried about the final days. I’ll just be sleeping on fentanyl I’m sure.

[@dylanmurphy4953]

I admire your strength. My dad passed away from stage 4 brain cancer on October 21st. Wishing you the best

[@youMatterItDoesGetBetter]

@@dylanmurphy4953 so sorry, it seems like a hell of an insidious cancer. I’m sure I’ll break down at some point when the symptoms return. We can only be so strong lol.

[@MaskedGamer]

Hey man, wishing you the best with everything ahead of you, and I hope you get as much quality time as possible here on this earth. Make that book happen too, maybe after finishing your master's degree!

[@youMatterItDoesGetBetter]

@MaskedGamer heyo! I subbed to your channel, love the gameplay commentary. Yeah I’m not writing until I touch the beach. I graduate this summer and will walk for my diploma. I’ve got like 3 exams to cram for right now, but I’ve been putting that off dealing with all this stuff.

[@cindynok]

I am a glio sarcoma (under GBM umbrella) widow. My husband was 65 at diagnosis, always healthy. He went to MD Anderson, lived 26 months. There are steps forward in this disease, never give up! Oh you touch my heart, I will pray and keep you in my thoughts.❤

[@youMatterItDoesGetBetter]

@@cindynok thank you and I’m sorry about your husband. Crazy how this thing just pops up out of nowhere with minimal symptoms. Like I was just popping Excedrin until they didn’t work anymore. Then BAM, you have brain cancer. Like what?

[@avarismimi]

Wow your way of accepting this is amazing. Sending positive energy ❤

[@deven8084]

Saw your comment on another video. Thanks for creating your channel and sharing your story. ❤

[@anitadenton1468]

I am blown away by your self awareness with this dreadful insidious disease, the way you are handling this. I will most certainly pray 🙏🏻 for you every night. You are so special, a good person, Do your best,

[@Jasapan-u4s]

What a positive and handsome gentleman. Christ loves you. Don’t blow him off.

[@Melinda-g5u]

My 46 year old husband passed away in 2005 from Glioblastoma Multiform. I pray you have a miracle in your life. God still heals and restores. Praying for you. ❤

[@Effoff027]

I admire your attitude towards this horrific diagnosis. You seem like a genuinely kind person, and I’m sorry you were dealt these cards, life seems very unfair sometimes. I think we can all learn a lot from this video and how you’re handling what you have been given. I wish you all the best.

[@Galvin-j7u]

You’re amazing! I respect how you want to live your life in Thailand and know you’ll be happy and well taken care of over there. God bless you and thank you for sharing a part of your life with us. 🙏

[@linamartinez5808]

I happened to see your video by chance. You and I think alike. ... Actually, very much alike. The difference is that I am a 67 year old woman, not afraid to die and I don't even have to question Religion. Good luck on your journey, my wish to you is: "May you be able do all of the things that time can give you".🙏🏻 ❤❤❤❤ ❤❤❤

[@youMatterItDoesGetBetter]

@@linamartinez5808 thank you for the kind words!

[@msbeecee1]

Your channel name "Be Nice to People" .... what a good message from someone with every right to be in self-pity. You're a FORCE, man. I just moved to Cuenca Ecuador. Best thing I've ever done! Live & enjoy ur experiences.

[@youMatterItDoesGetBetter]

@@msbeecee1 I’ve heard South America is beautiful.

[@killtherude]

Wow what an incredible human. You’re a breath of fresh air in a ‘beds are burning’ world. I hope you have the best of years ahead until you ✌️ out brother!

[@staceylpittman532]

My mother and sister had this, I helped look after them during the entire process and I work in healthcare as well. Your Drs. and hospice will be great and informative, I don't know but if you have any questions. I couldn't agree more with you with the quality-of-life issue having looked after my mother and sister, it's going to be really tough. I hope you will reconsider God. I know "religion'' I get it; I've seen it as well. I'll keep you in my thoughts. Take care.

[@kuurakeinen]

All the best wishes from Finland! You seem like a really good person and no matter what happens, we are glad to have existed here with you. We all become stories in the end, some sooner, some later, have fun in Thailand and live your life like you've never lived before!! 🎉

[@kuurakeinen]

By the way, about writing the book, there is a challenge where people write a book in just 1 month (I've done it once before) so if it's really something you are passionate about, the timeframe in your case still works. (Some people think it takes like years and years, that's not true) Focus on just getting the words out, someone can then even edit the whole thing for you later. Good luck!!!

[@fortnitemontages6054]

I havent left a comment in years but bro this is hard man and you making this video shows what kind of man you are. I have massive respect for you and take my hat off for you. Keep your head up brother!

[@TheChaserTV]

You are such an articulate and honest person, and your acceptance of what will inevitably happen is really moving. I hope you make the most of Thailand, enjoy the Pad Thais cause they're amazing. All the best, much love from Australia

[@LaurenB.-qn4hh]

Your strength and the love you carry in your soul are truly extraordinary. The way you face life with courage and perseverance is something the world desperately needs more of. Even in the hardest moments, you radiate a light.

[@bmwmd110]

You don't always have to be this tough. If you change your mind and have fears no one will judge you, don't hold it in. You remind me of myself, I have no patience for BS.

[@myidea7898]

FWIW i watched a family member fight the hopeless battle against GBM 4. You are brave and absolutely right to do it your own way. I wish you peace of mind, rest, fun and many happy days in beautiful Thailand. Go for it my man we are with you 💜

[@carovegan9174]

You are so strong in the face of this adversity. You are helping others with these videos. I love the title "Be Nice To People". A podcaster named Neil McCoy-Ward made a video on youtube called The 5 Reasons Why I Made Thailand My Second Home. He seems like a thoughtful, nice guy so it occurred to me that you might want to watch that video and might be able to reach out to him for advice about living there. My heart goes out to you, and I wish you all the best.

[@fennec1]

You came up in my recommended at random. Wishing you all the best for your treatment.

[@nybe]

Followed... my pops passed from GB exactly 10 years ago at age 80. He wore that head gear backpack combo and made it almost 6 months from initial diagnosis with no chemo. I'm pullin for you, dude... please keep us posted. Wishing you much luck

[@WhatsDaveUpTo]

80 is a good age to make it to regardless of how you go at that age.

[@youMatterItDoesGetBetter]

@@WhatsDaveUpTo yeah, that’s a full life. Also, super hard to recover from anything at that age. Even the common cold can kick your ass. My grandpa is 80 and can barely walk, but he was a very, very poor blue collar carpet layer. Worked his ass off his entire life. No joke? I clocked him at 10 min just to get out of his chair in his living room. It’s rough watching him live.

[@bkhan3521]

I was gonna skip your video and see it later but the more I heard you speak and say things like they are, I felt humbled, moved and affected, and really invested in your story. I wish you the best time of your life and hope you find comfort, peace and strength. Opened my eyes for sure and not take anything for granted. Lots of love and support from London, UK. 😊🇬🇧💝

[@mariapadilla7501]

As a health care provider andhaving worked Neurotrauma at a tertiary hospital, I wish you the best on your road to recovery. Attitude is everything and you've got a great one!

[@patrickhyatt172]

Hey bro, watching from Richmond VA , pulling for you to live as long as possible like everyone else, may God heal you

[@mmanow27]

My grandma had this cancer she unfortunately passed. Really appreciate these videos

[@PattiMcalpin]

Love and prayers for you my friend. I am a retired oncology nurse. Spent my career with people just like you. Lost my brother to cancer. I will keep up with you here on your channel. Thank you for sharing your journey that we all will walk someday. Different diagnosis but all the same. Love to you, Patti from Kentucky🕊️

[@elindenstein]

Saw your comment on another video and came here. I'll keep watching as long as you keep posting. Wishing you the best, brother. Maybe think about posting short form updates on something like Instagram - your story and strength will help a lot of people.

[@davederoux3361]

Dude, i'm gutted by this video and you got balls of steel. You are hugely inspirational I think everyone should see this video. The world would be a much more positive place. I hope you will reconsider going to Thailand alone. This cancer can have a tendency to go south quickly. I pray it doesn't and you beat the odds but you can't afford to be alone in a foreign land with such an unpredictable disease. Best wishes my friend.

[@youMatterItDoesGetBetter]

@@davederoux3361 nah, they have super good cancer treatments out there. A world class hospital. Tons of Americans over there. I’ve never liked to be around people that much, like I don’t want to be hugged and cried over every single day. It drives me nuts. I want independence. I would probably just skydive without a parachute if it got bad enough.

[@davederoux3361]

@ Ok brother..all the best!

[@jessicakay5630]

Hey internet stranger, this video Both gutted me and made me insanely Grateful all at once. Thank you for having the courage to share your life & story with us. I will be praying for you every single day. Fuck, this hurts.

[@bevc590]

You are so brave to be sharing this. You really will be helping others by sharing your story. God bless.

[@youMatterItDoesGetBetter]

@@bevc590 that’s what I’m hoping for. Be okay with death and stay strong! Only once my symptoms worsen will I probably not be as “happy.” Living with a migraine is awful. Makes you an angry, angry person. lol. I’m feeling great today and just like my old self!!

[@markymarv13]

You are a very intelligent & rational person. This comes off in your demeanour, assessment of the state of the world and the actions you’re choosing to take for your life. I hope your journey lasts long. I lost my father to glioblastoma 2 years ago and your coolness one the face of adversity very much reminds me of him. All the best brother.