Grief and Vasculitis: The Road from Loss to Empowerment

Presentation Slides: www.vasculitis...
Living with vasculitis brings not just physical challenges but also deep emotional ones. Noelle Creamer, a Board-Certified Health and Wellness Coach who’s also living with vasculitis, dives into the grief that comes with a vasculitis diagnosis and how it affects more than just our health. She explores what this grief looks like, why it's so hard to talk about, and how we can move forward with hope.
What you will learn in this workshop:
Understanding Grief’s Many Forms: Gain a deeper insight into the various types of grief one may encounter with a vasculitis diagnosis, including loss of control, loss of trust in one's body, or loss of personal identity, purpose and direction.
Unveiling Disenfranchised Grief: Discover what disenfranchised grief is and why it's significant, especially when your feelings of loss go unrecognized by society.
Recognizing the Symptoms: Learn to identify the symptoms of disenfranchised grief and understand how they might differ from those of traditional mourning.
Physical Manifestations of Grief: Explore how grief can be embodied, learning to recognize the physical signs and symptoms that grief may be affecting your wellbeing.
Self-Reflection Prompts for Tough Days: Arm yourself with thoughtful questions to guide you through difficult moments, fostering introspection and self-compassion.
Cultivating Self-Care: Learn about practical self-care strategies for challenging days, designed to nurture both body and spirit.
Embracing Your 'MVP': Engage with key practices-Mindfulness, Visualization, and Purpose-as tools to center yourself and find peace amidst the turmoil.
Applying the 3-H's Approach: Determine which type of support you need at any given moment and learn how to communicate these needs to others.
Community and Support: Learn the importance of sharing your story and finding a community that understands and supports you.
About Noelle:
Noelle Creamer is a Board-Certified Health and Wellness Coach with training from Duke University, and the Co-Founder of BrightlyThrive™, a community-based app that supports those living with autoimmune conditions, inspired by Noelle's own victory over Granulomatosis with Polyangiitis. Noelle’s credentials also extend to certifications in breathwork, mind/body connection, lifestyle medicine, nutrition and yoga, enriching her holistic approach to wellness.
Her mission is clear: to empower people to transcend health challenges and live fully today without fearing tomorrow. Noelle specializes in cultivating a positive mindset and building healthy habits in nutrition, exercise, sleep, and community connection. She is a guide, mentor, and advocate for thriving health and wellness.

[@dollyb1968]

Thank you for this presentation. You hit the nail on the head touching all facets of vasculitis and the grief process. You made this presentation so helpful by keeping it more general vs specific forms of vasculitis. I have primary CNS limited yo my brain only and don’t find many educational videos that make sense to the average person. If you know of any specific to PCNS vasculitis please let me know. Will you be giving further presentations? Last thank you again for doing this you did a spectacular job, your presentation was insightful and very helpful I will be sharing this with my family. Blessings to you on your vasculitis journey and in general you made a difference for me.

[@vasculitisfoundation]

We are so glad you enjoyed this workshop and found it helpful. Here is a link to the playlist of videos we have on CNS vasculitis. kzbin.info/aero/PLr6Bwau6uSmtl4dlyTZhYcFe4QBfQbgmu You can also find more information on our website www.vasculitisfoundation.org/education/vasculitis-types/central-nervous-system-vasculitis/

[@antdelacruz7421]

Thank you for sharing this. I was recently diagnosed with MPA and it's true that there are days where you kinda question why your body is taking time to respond to medication and sometimes you just have to suck it all in. This discussion best expresses what I'm feeling and understanding how to deal with grief living with vasculitis.

[@vasculitisfoundation]

We are so glad that you found this helpful. If you have not already connected with a Vasculitis Foundation virtual support group you may find that helpful as well. There is so much to take in when you are first diagnosed and other support group members are wonderful sources of information and support. You can find out more about support groups here www.vasculitisfoundation.org/living-well/find-support/ If you are looking for more information about MPA here is the link to our MPA video playlist kzbin.info/aero/PLr6Bwau6uSmvxKxI402gSU6bdxaxQne7O and the link to the ACR/VF treatment guidelines for MPA www.vasculitisfoundation.org/anca-associated-vasculitis-gpa-mpa-egpa-guidelines/

[@sarahanderson7594]

❤