Healing Update (EDS, POTS, Intracranial Hypertension, etc)

[@lacroix3931]

Hearing you say you no longer consider yourself chronically ill made me break down crying. It’s insane how the internet can allow complete strangers to connect with each other in this way. I am still in pain and scared every day but knowing that you have gotten through it (mostly) gives me so much strength. Thank you for making me feel less alone. I am so beyond happy for you. Much love

[@vee9133]

I would love to hear what your partner thinks of your healing journey and how different your relationship is now. ❤ glad to see you thriving!

[@RomanticRomeoCasanova69]

The science of cuckold marriages. - Dr. Susan Gower.

[@ThriftGately]

I have been on a very long healing journey myself, TBI/POTS/MCAS. I did Irene Lyons nervous system work in 2019 and it was a game changer. I could barely get out of bed before nervous system work. The last 9 months I have been doing a low histamine/animal based diet which has really helped as well. Over the last few years I have opened my heart to Jesus and have reverted back to my Catholic roots. I would love to hear about how your faith has helped sustain you on your healing journey.

[@jog5289]

I'm so sorry for your losses, Rachael. Thanks for the update. I'm glad you are doing well with your health. God bless. 💕

[@DrivenbypassionWG]

I'm so moved by all your videos. I'm on a similar health journey. You give me hope!

[@nrp5791]

Always thankful that you are so so much better. It's a blessing that you have been able to document all this on KZbin. Much appreciated 💜!!

[@cloedster]

So good to hear your update Rachael. Thank you! So inspiring to hear how many symptoms have subsided, and about the deeper emotional work. I would love to hear more about your journey with jaw/airway treatment. I am in a very similar situation and I know this is a crucial piece, but don't know which direction I want to take yet. Sending much love!

[@DisneyTwincess]

So true, resiliency is so important. We’re very grateful for you and all that you share. These unedited videos are nice.

[@beccery1]

Hey Rachael, thank you for your videos and sharing vulnerably. I was first given hope to heal my auto immune conditions through you sharing your story. I started Primal Trust because you introduced this to me. Thank you so much. I am on the roller coaster of healing atm and know that it is the best path forward for me. All the best to you, i enjoy hearing any updates from you.

[@amgnico]

Always rooting for you glad you are doing so good🤗

[@Bynatalieb]

Thank you for your bravery and vulnerability online. Your optimism set the standard for me to do the same

[@Lynn-nd8po]

I am sorry for your losses! I appreciate the raw and real updates. It would be most helpful to me to share some visualization techniques and tools to have in my back pocket when grief and situations out of our control happen in life. I am an empath and feel things very deeply. I am so happy that you are thriving and doing well! Thank you so much for sharing! Love to you!

[@notmysunshinesitsOURS]

thank you for continuing to share your healing journey! I am so grateful for Primal Trust too

[@HealingWithRachael]

Glad you're here :)

[@barrybrennan2135]

Well done, Rachael. Wishing you continued good health.

[@breyette4697]

I tried carnivore and it changed my life, for the first time I could feel my body was healing. Diet is SO huge for us I wish it was more of a focus even within EDS communities. So happy for you ❤

[@Truerealism747]

As it helped the pain I have heds autism ADHD fybromyalgia CFS IBS OCD diagnosis

[@breyette4697]

@ Yes I have less inflammation in my entire body which leads to less pain, as well as less fatigue. We share some diagnoses.

[@miezeken]

This all so relatable. Coming out of chronic illness myself, I I’m also discovering that life after chronic illness is not something that has talked about very much. I found my life to be very very different, most of my relationships have changed a lot and honestly, I’m not very interested in Relationships I used to be very attached to, and even my relationship with myself has changed. Would love to hear some content from you on this if you ever feel so inclined

[@JrStone-jr4mo]

Thank you for sharing your journey.

[@leldsoki]

I am soooooo happy for you!!

[@nickg1134]

Good to hear from you and it was so good to hear you on mindful gardeners channel. Hes one of my other favorite mindbody youtubers!

[@lapooh]

So nice to see you doing so well. The way you tackle everything with such determination is impressive. You used to deal with chronic fatigue as well right? Are you now feeling back to “normal” energy?

[@mattdarwin6497]

I would love if you made a video on the narrow palate. I have a hunch that you know what UARS is. Sounds like we have gone down similar paths. I’m debating doing primal trust to see if it solves my sleep/breathing/POTS.

[@nickikopassis7343]

Thanks for sharing your story. I have been diagnosed with Chiari, AAI and most likely HEDS. I was referred to Fraser Henderson Sr and Paolo Bolognese...can you recommend another surgeon? I am very scared and want to research all I can...but it seems there are very few surgeons to choose from. TIA

[@bobbybero7452]

Glad you are feeling better! You are such a nice person and you deserve to live a good life

[@HealingWithRachael]

Thank you for your kind words!

[@miezeken]

I fail we are on similar journeys. I’ve basically healed my illness but the thing I’m focusing on now is sort of tidying up the residual trauma and I guess cobwebs that are deep in the recesses of my body - mind. as you say it is hard work, but it is incredibly fulfilling and a very rewarding journey to be on. Thank you for sharing your story.

[@Gelo_6trey]

Are you on carnivore?

[@miezeken]

@ nope. Not at all.

[@tomastorn1]

@@miezekenwould you mind sharing what you managed to cure yourself from, what did you do and how long did it take? Thanks

[@luby1694]

so so happy for you

[@GoFishOffice]

O do videos and I understand how editing can take so much time. Unedited here was still fabulous 👍. I truly enjoyed. Keep up the great work 💪. Much love my friend 😊❤

[@michellesummers8760]

Rachael, have you known anyone that is resolved with just wearing a neck brace for the rest of their lives? How's that going for them? Also, have you known anyone who went to Spain for their CCI surgery? Please reply. Thank you for all that you do to bring awareness to this horrible condition.

[@NoSleepFromBrooklynAdventures]

If you haven't looked into it, you may want to look up vocal cord dysfunction. I had to work my way through it and no longer experience it, however it caused airway limitations for me. I found simple exercises on KZbin which helped a lot.

[@Katherine-iu8td]

So sorry for your losses Rachel. My mother recently passed away from colon cancer and my grandmother and sister before her, so I empathize with your loss as well. It has been very difficult but certainly better since I found God. I really am inspired by your healing journey and am encouraged by seeing how much you have overcome. I have experienced some healing on Carnivore (of Lupus and Hashimoto's) but have been 'stuck' with certain other issues like pain and digestive problems that won't improve. I'm trying to do things like journaling, meditation, and gratitude practice to help and have noticed some improvement in my anxiety at least but not much with my other issues. Would you be willing to do a video of a typical day for you from arising until bed? I feel like I waste so much of my time researching what I can do or take to get better and it can be very disheartening sometimes. I know everyone is different but it might give myself and others pointers on things to help. Please consider this and thanks again so much for putting yourself out there to help others. You're a beautiful person inside and out!

[@BijalPatel-sh1kl]

I'm soooo pleased you are better. Please please share a daily routine video. Thank you x

[@juliamichas]

so happy for you!!!

[@chesterriley6513]

Hi, ive been watching a lot of your videos over the past few weeks and am so relieved that youre healing so well! Im having all the same symptoms you were having years ago before you got the prolotherapy, and my only question is how do they do payment??? I have 3 kids and several animals. My wife is the only one working because im basically bed ridden and cant do much without fear of fainting..we cannot make the trip to florida nor cover the cost of caring medicals price to get treated... its just soul crushing, i apologize to lay it out there like that but for me it seems ill be dealing with this condition for a while. Much live and light to you🙏

[@philclaps9370]

Glad to hear your health is better!

[@HealingWithRachael]

Thank you so much!

[@ignerohlsen6003]

❤

[@angeliahoward6537]

Thanks for the update. It's very encouraging to see that recovery is possible. So glad you're truly living instead of surviving!! Do you mind telling me what job or jobs you were able to start doing? Other than the social media job. My daughter is in college, trying to finish, but also chronically ill. She's went to see Dr. Hauser so his treatment might be in her future. But she's wanting to try to work.... at something. But its difficult to find something for disabled bodies and minds. Thank!

[@miezeken]

Take it slow. As I recover, I found jobs that I can do for a little while and then have a rest are absolutely perfect. For me, that’s Uber driving right now. But you get the idea. the money is honestly pretty terrible, but getting a little bit of social time and being able to do a little bit of work has been really great for me and I can see why your daughter is keen. All the best.

[@gp6521]

Hi glad to hear you are doing better. I m wondering what type of physical therapist you used after your neck fusion. Thank you

[@zlnine8272]

Any symptoms of IIH still?

[@kmtoatmeal]

I am wondering this too

[@carolinegibbons9744]

Hi Raechel! You are so inspiring. I'm healing from POTS, MECFS, traumatic brain injury, and long COVID. What is your relationship with your phone and social media? As I'm healing, I am spending more time at home than before my initial injury and I've found that I'm on my phone a lot more than I'd like to be. Do you have any advice for this?

[@miezeken]

Hi there I’ve pretty much recovered from long Covid and my two cents on the phone and social media are that overall, they’re best avoided entirely and replaced with a good book (if reading is an option) or podcast or audiobook. The reason is that they are highly stimulating and too much for the sick brain. Of course, if you can’t put it down entirely try limiting it to say half an hour. There’s a great app called screen Zen which can lock you out after a time limit, if you find yourself getting addicted.

[@Eliokd]

What helped you heal plz? ​@@miezeken

[@IndialienJones]

Did you have blood pooling in your extremities and did you happen to get diagnosed with venous insufficiency? I'm currently struggling with this and all the doctors and info online says vein valves don't heal and that it's a chronic condition. It's affecting the blood flow to my brain and causing many symptoms that make living extremely difficult, as I know you're well aware of and have experienced. I'm so happy for you that you are feeling better these days and I hope you keep trending in a positive direction.

[@Mystical.Art77]

Hi do you have venous insufficiency in your legs. Can that cause pots?

[@IndialienJones]

@ I do have venous insufficiency in my legs. Idk if that can case POTS but I’m assuming it can because I’m pretty sure I have POTS. I’m not sure what to do.

[@Mystical.Art77]

@@IndialienJones I was diagnosed with venous insufficiency in left leg I had lots of pain a heaviness pooling then few months later pots symptoms started now im bedbound due to the pots. Been to many ERs no one can help so I'm seeing a functional medicine dr now..I hope I can heal this soon. And I hope you get better too. 🙏🏽

[@marciabenkert7766]

Do you still use grounding shoes? If so brand?

[@vijayamara817]

Glad you are getting better. I want to know your opinion on peptides like bpc157.

[@HealingWithRachael]

Thank you! I don't know much about them and haven't tried them. Maybe they could be supportive but I doubt could be the major contributing factor to someone healing!

[@Eliokd]

What has helped you the most you think? Carnivore? Brain retraining?

[@tashamcmahon251]

What about an expander / oral splint.

[@Truerealism747]

Do you not still have hypomobility

[@larablackburn9649]

Hi Rachel 😊R u still having adrenal crashes?

[@B3l0v3d05]

Vanessa from Your Grateful Guide is your coach? I'd like to work with her since she's faith based too

[@bridgeclara6249]

Hi, what about the bpm now, is there any changes please? And how much time does it take you journey until now?

[@Bynatalieb]

I did start DNRS when I was first diagnosed with CIRS but ended up still pursuing medical treatment. Either way DNRS has been an integral part to my healing. However I'm curious to see if it's possible to heal without medication. Have you tested to see if you have the CIRS gene? It would be wild if you could set the example that CIRS can be treated without medication. There are so many who don't have the money for treatment and looking for other options.

[@Fresh-qc3zn]

As if she's going to go and get tested for that gene after what she's said in this video. She doesn't class herself as ill anymore so I highly doubt she'd be wanting to investigate CIRS or confirm she has it for any reason. That's literally doing the opposite of what brain training would suggest you do.

[@HealingWithRachael]

I’m so glad to hear you’ve been making progress, that’s amazing! Personally I haven’t gotten tested for CIRS but used to have all the symptoms. I’ve seen many people heal from it without any sort of treatment or protocols. I believe nervous system dysfunction is almost always the root of this immune response. The body knows what to do and can heal given the right conditions. ❤️ You may enjoy some of Vanessa’s work from “Your Grateful Guide” on instagram and here on KZbin. She’s been really helpful for me in navigating letting go of limiting beliefs. ☺️ All the best to you!!

[@Bynatalieb]

@@HealingWithRachael Thank you!!

[@seanawashburn3411]

Rachael, thank you for sharing your journey and how to get there. I can speak for many of us and myself especially that the fact it’s also free advice. You’re doing the lords work, and I’m thankful for you. You’re gonna be a piece to my puzzle.

[@Truerealism747]

Cirs is mcas

[@BCBMerajAlam]

Hi mam❤🎉

[@EvangelineSmith-ww7nb]

How long did it take to get to this point?

[@HealingWithRachael]

3.5 years!

[@EvangelineSmith-ww7nb]

@ Thank you for sharing your story! You are amazing!

[@CleanRoll]

@@HealingWithRachaeldo you still send out newsletters? Also is there any beef protein bars that ate not chewy like beef jerky or any thing similar? Thanks

[@Varallisuus]

did you see videos about vitamin b1, here in youtube?*****************************************

[@Truerealism747]

As it helped you b vitamins help with autism

[@Varallisuus]

@@Truerealism747 you speak/write really bad in english