HEALTH UPDATE & Craft Room Tour

Today I went to the doctor and got some updates regarding my Hashimoto's disease. I was also diagnosed formally with one more auto-immune disorder and another condition I suspected. I know many of you have autoimmune disorders so please feel free to have that conversation!
My Main Channel: / nerdycraftsies
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Instagram: / nerdecrafter
Facebook: / nerdecrafter
Twitter: / nerdecrafter
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Hi fellow dweebs! My name is Jackie and I love crafting geeky diys. I mainly do polymer clay tutorials, but I also do resin crafting, felt diys, and custom diy soap on my main channel, but I love experimenting and having fun on my vlog channel too! Let's go on this diy crafting journey together ^_^ Remember to hashtag Nerdecrafter on Instagram if you make anything geeky. Also, if you share my videos, you automatically get love and sparkles (ﾉ◕ヮ◕)ﾉ*:･ﾟ✧ my main channel is / nerdycraftsies
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[@imladrad]

I also have PCOS, and when I say it I just pronounce the letters - Pee-see-oh-ess. It definitely does not help with weight gain and fatigue, it can be a little discouraging sometimes. If ever you want to chat with someone else in the same boat, I'm here!

[@mangobits8169]

My mom has it too.

[@hijinxnails633]

Me too

[@HokowhituESOL1]

I just say, my ovaries don't spit so well.

[@sweetdreamer1117]

Me too! I have the feeling it’s more common then what people think.

[@crafty_j957]

Both my sister and myself have it, so I feel every woman's pain who also has PCOS. Earlier in the year I had one of the larger cysts burst...... so not fun. I also have a few female friends who have Endometriosis, why do our bodies have to hate us so much?

[@elithefrog9463]

We all love the chicken, but I demAND MOre SPlinteR. Thank you.

[@lunajayde_xx]

Agreed. I would personally rather see Splinter than the bird.

[@elithefrog9463]

@@lunajayde_xx No! Both is best :)

[@hazel1834]

Honestly though, Angel is a little overdone, and Splinter and the other (forgot the name) need more screen time.

[@elithefrog9463]

@@hazel1834 I agree that Angel gets too much of a spotlight. We need equal time for all!

[@hazel1834]

@Just Artsy Yes!

[@desireelaird7513]

Oh man, I totally understand. Yesterday I got the diagnosis of "There's something wrong with your thyroid but we don't know what it is. Here's some Valium, try not to worry, comeback next year." Really? Just, really? I actually told the doc "I'm not depressed! I'm trying to not be mad at you!" Which, in retrospect, explains the Valium. Lol. Thanks for the update. I'm glad you're getting help!

[@LE123LE123]

Try not to worry---sure, that's a very good doctor right there. (rolling eyes). Honestly this frustrates me--it's like the patient also has to be the doctor! And any doctor who knows medicine KNOWS that valium just makes depression worse, so why on earth would they give you valium?!

[@desireelaird7513]

@@LE123LE123 Because I wanted to tap dance on his spleen? Lol! I was pretty mad.

[@desireelaird7513]

@@s6ac891 The way they treat some people is just shameful.

[@mrscalifdreamer]

No blood tests or anything? I have hyperthyroidism and I have blood test yearly. My biggest worry is getting Graves’ disease. Please try another doctor until you get the right one! Get a complete panel done. All levels should be checked.

[@desireelaird7513]

@@mrscalifdreamer Lots & lots of blood work. I have a bad pancreas and it makes the blood work hard to understand. Thank Heavens for my "real" doctor, my GP. She will get to the bottom of everything I'm sure. But the hospital doc, uh, no thanks. I wouldn't, in all honestly, let him treat my worst enemy. It's bad enough to not know what you're doing, but being a jerk about it is unforgivable.

[@LauraMaisano]

Jackie, I'm a Hashi and PCOS girl too! They often go hand-in-hand, so I'm not surprised. I also take Armor Thyroid. My suggestion is to make sure you get your hormone levels tested regularly, maybe every 6 months, because thyroid disfunction will progress and the amount of medication to help symptoms will need adjusting. I do hope your new doctor is helpful, and it sounds like it's great someone is finally listening to you. *hug*

[@Lexouchan]

Same here ! It's nice to not feel alone with these problems (even if I don't wish it on anyone !)

[@tahanighannam4459]

I'm pretty sure I don't have it but I wish you recover!!!! *It's just nice to have someone to understand you!*

[@gailgerard8604]

I have thyroid issues also and up until I started going to my current doctor, I only had my levels checked once a year. My current doctor (assuming I can still go to them because my husband changed jobs over the summer, so we had to get new insurance which kicks in next month) was testing my levels every 3 mos or so because they were so out of whack. They also palpated my thyroid, which I'd never had done before because my other doctors were like, "Yeah no. Not needed." and I was like "DA FORK?" because I know you're SUPPOSED to do that to make sure it's not enlarged.

[@LauraMaisano]

@@gailgerard8604 I've had my thyroid ultrasound done which once was normal and now I have nodules, which keep growing. I'm going to need thyroid surgery because they won't stop getting bigger. UGH. Hashi's is no fun.

[@Leannchops]

I don't have any autoimmune diseases, but I do have goitre, which is nodules. They are not cancerous and don't affect my thyroid function, so I would only need surgery if they restricted my breathing or swallowing.

[@fyredance]

Aaaa Jackie, I am SO glad you sought a different doctor. I'm a type 2 diabetic (diagnosed as a type 1 for 17+ years!), and had a similar situation to yours where the doctor just wasn't listening to me. I found a new one and I LOVE my new endo. She listens and reads my chart and thinks about what to do next. I hope these meds work for you! We're still trying to get things in order so I can go off of insulin (one day!). Have you thought about (or your doctor suggest) for PCOS (Pee See Oh Ess, I say it) limiting carbs? Not necessarily go keto, but follow a diabetic diet and restricting carbs. I experiment a lot with using almond flour and almond milk instead and its helped level off blood sugars a lot. I bet Sika would eat it too #feedsika I LOVE your craft room and love all the fun things in there! I am so looking forward to more vlogs!! You're amazing, and I love your vids!!

[@NerdEJackieVlogs]

I am already gluten free for 95% of the time ❤️ it definitely helps the fatigue levels. I also do intermittent fasting everyday!

[@RayneZaleska]

@@NerdEJackieVlogs please be careful with the fasting since you are insulin resistant you can go hypoglycemic quick. If you ever feel shaky or start stuttering please check your blood sugar level.

[@fyredance]

@@NerdEJackieVlogs Oh wow x.x I am so glad that's helping and you're finding something that works for you! It's so fascinating to see what things work for different people! I know for me personally, I would have sooo much trouble going gluten free, and I SO admire you to being able to stick to that type of diet. I know that I definitely feel a lot less sluggish when I have less carbs, but I also don't do intermittent fasting and have to eat less and more often so that my bloodsugar stays consistent.

[@AmmonMurphy]

@@NerdEJackieVlogs could you please show off your ecto 1? I see it all the time

[@justmoosethings]

The “bison” you showed us is actually a water buffalo. Bison are native to North American prairies, where water buffalo are native to (I believe) Asia.

[@hazeljanehopkins5652]

It could be an African buffalo also known as a Cape buffalo.

[@exercisesforme]

The only thing that's pops into my head is the water buffalo song

[@krystalpennell]

😱 ... No hat!! I see your hair 😁 I thought that painting was done 😊 Hi Splinter! 🐱 I wish you luck in your next step in treatment. *hugs

[@leighhope9628]

I have hypothyroidism( I was born without a thyroid) so yes I understand Jackie

[@bayknight6791]

I always recommend that people visit different doctors if they are not getting the answer that they're looking for. I've had my own issues with doctors for a long time until I finally found the one that understood what I was trying to say. For context, I am a trans man. I haven't always identified that way, but I knew that I wasn't cis for a very long time. Whenever I visited doctors and friend to explain this I got the response of "You're going through puberty and your brain is trying to figure things out." Or "You are obviously dealing with depression, have some Prozac and come back in one month." So for the past 5 years, I've had a diagnosis of having depression that I didn't believe that I had. It wasn't until I visited my new doctor about a month ago that I was told that I was misdiagnosed and that I actually have gender dysphoria, which I knew I had but no doctor had believed me until now. Now I'm finally being treated for my dysphoria through testosterone injections (hormone replacement therapy). I'm so happy that you have found a doctor that is treating you like a patient rather than someone to push through the system. That feeling of finally being understood is indescribable

[@autophilic_noctiphany]

When I first went to a therapist, he told me there was nothing wrong with me (I have gender dysphoria) and that it was just sibling rivalry disorder. What even is that?? Told me "Oh. You have gender identity problems. Ok" in the I don't believe kind of tone. Kinda hurt my feelings, can't afford another therapist. But I have hope because of comments like yours and others peoples. Have a great day 😊

[@angelorion8274]

I was diagnosed with a personality disorder and sent to a therapist who thought that I was a "scared little girl who grew up in an unsafe environment to be a little girl" and made out like none of the men in my life were positive male role models which provoked a strong emotional response. We only had three sessions together and they sent me on my way. They sent a letter to my gp stating I'm more than welcome to return and try again if I wanted to take therapy seriously. I found a different therapy under a different form of therapy (this was tactical analysis, previous therapist was supposedly dialectical behavioural therapy) and I've done a whole lot better. I'm hoping to start t soon!

[@cameo86]

I wish all three of you just the best and that you'll get the help you need!

[@kandipiatkowski8589]

I actually had to have my thyroid removed in 2010 when they found cancer...a lovely "oh by the way" moment when I got an mri to check the progress of the degeneration of a couple of discs in my neck. I have been on Armour thyroid for the past several years, but have had to neglect taking it because I don't have health insurance right now, and it costs just over $50 a month. I hope I get approved for disability soon so that I can get back on all my meds on a regular basis. A few women I'm friends with have pcos and have been lucky enough to get pregnant recently, so I pray that if you do want that someday, it works out for you. 💖 I really enjoy these kinds of videos of yours, it lets us get to know you on a personal level. You are a great person!! 👸👑🐢 Btw, I think the big jawed kangaroo and water buffalo are so cute!!! #NerdEficationsquad

[@constancemc]

These meds are so expensive. When I was living in Ireland I had to pay every month and my private health insurance didn't cover them (in spite of being quite expensive for me). But now back in France Levothyrox is fully covered by the State healthcare system and I hope, dearly, that you get them covered by your new status asap. For me it was cancer as well, and I found out by the surgeon's team welcoming me to my appointment with "oh, you're here all alone" (I knew it wasn't going to be good news)

[@kandipiatkowski8589]

@@constancemc when I had insurance, my Armour was 20-30 a month, depending on the copay structure. I won't go back to generic because I have had very positive results with the name brand....unless of course, one day they come up with a generic for Armour. Then again, I have been having very few symptoms while not taking anything, but I try not to do that for too long, just in case.

[@dieLinn]

My thyroid was removed in 2017 because of cancer, so I can feel your Thyroid struggles. Since 2016 I knew that I have PCO. I think it's really interesting to see how other countries handle this diseases! I'm from Germany btw and here it's nearly normal to have PCO, everyone knows someone who have it 🤷🏻‍♀️

[@samibruno87]

I have PCOS too, a lot of us grains do it seems. You're not alone

[@havenhs97]

I, since 13 yo. Had to search into all kind of doctors an answer for my medical issues. Just by 18 yo i was diagnosed fibromyalgia. I'm now 21 and still looking for the correct treatment. Also, was diagnosed hypothyroidism last year, and i have pcos too. I have yet to find out if i have food allergy. I had to drop university and take a year to search for a proper treatment. It's hard, but we need to keep strong and have faith. Hope it all works for you Jackie ❤️

[@roguewolf7053]

Hang in there!💕 My Major health issues began at age 11. Had to do homeschool for half of 6th grade & all of 7th.😕 Then things got bad again in college & had to take a break for 2yrs to get things sorted again. You are not alone...just keep fighting for answers! For fibro...has your dr suggested Savella? Its REALLY helped my mom. Just a thought 💕 I’ll keep u in my prayers.

[@greenapple9477]

That doll from Dollightful~ He's still amazing looking. ❤❤

[@rocknromance78]

That's how I found Jackie! They the exchange.

[@PumpkinSpicedHorrorShow]

rocknromance78 That collab was how I found Dollightful!

[@crafty_j957]

Lol Jackie just an FYI, that was an African Cape Buffalo. So cute actually. I loved watching this, so nice and relaxing Edit: was kindly pointed out that I messed up on my animal identification, edited comment to reflect the correct bovine

[@CraftsbyMandie]

crafty_evilham 🎶🎶🎶everyone has a water buffalo 🎶🎶🎶

[@ManticorePinion]

It looks like an African Cape Buffalo

[@crafty_j957]

@@ManticorePinion you know what, you are indeed correct. It's weird but while I was watching, and Jackie showed the figurine, I distinctly remember watching various nature documentarys that refered to that particular looking animal as an African water buffalo. So in my mind, over time and with memory issues, I forgot the African part of the name and always just thought of them as water buffalo (even though I never forgot that they resided in Africa). But upon more current research I realized just how wrong my memory of this particular animal has been. But yes, there are not only geographical differences between the African buffalo (that has at least 3 sub species) and the Asian water buffalo, but also distinct physical differences as well. Not to mention the fact of belonging to different genus and species when it comes to their taxonomic classification. So thank you for correcting my ignorance and doing so in a non-aggressive/non-hateful sort of way ☺️

[@bobbybrown5193]

crafty_evilham woooowwwww unm

[@lauraknighton1347]

Jackie I had to have my thyroid removed today o cancer and know your issues I can completely sympathize hope the new meds work for you

[@victoriafrench6978]

Psos and im the same with the psos and i tas 200lbs but it took me a year to get to 185lbs. i have the same problem with doctors not listening to me with my young pediatric doctor but im seeing my adult pediatric doctor so i hope they listen and i can get help with sleep and my mental health. Im tired of not having energy and being extremely sad now and tgen. But im so happy you finally got help and i understand the health problems you are going through because i ben through simaler for a wile. I hope the new medication works out i hope for the best for you.

[@sadie4479]

I too have PCOS among other health issues- seems like there’s dozens of us here! ❤️

[@Dawn_Hannah]

We need a NerdESpoonies or NerdEChargies group or something! (Spoonies or Chargies being nicknames for those of us with chronic illnesses based on The Spoon Theory or the Battery Analogy)

[@roguewolf7053]

@Dawn Hannah YES!!💕💕 And if there are any others like me with Ehlers Danlos Syndrome (EDS) we can be Nerdy Zebras too.😂😂😂 A fellow EDSer friend of mine who is an artist gifted me a drawing of a Zebra with braces on its joints guarding a treasure chest full of spoons...which is perfect & hilarious!😂 Need to get a T-shirt made with the image on it. 🤣🤣

[@MultiMusicfan]

Rogue Wolf I have EDS as well! I definitely think there should be NerdEZebras!!!

[@FreggFaerie]

I finally started getting treatment for my conditions two years ago, so I spent more than fifteen years struggling, sick with out answers, and passed back and forth by shitty doctors. I've very familiar with the frustrating feelings of not feeling heard or understood and helped, so I just want to reiterate what Jackie said, don't give up. Keep fighting for proper treatment, especially if you are already getting some sort of treatment and it's not helping ( I was diagnosed with anxiety and depression really young and they drugged me and it destroyed my gut mircobiom which made me sicker. Turns out the anxiety and depression were symptoms of my conditions and I tolerate them better without drugs, who knew, right??) I know everyones journey is different, and we don't all have to the same access, but it's always important to keep pushing forward, do your own research and try to find medical professionals that understand your situation better to consult. But please, take it easy. Don't push yourself harder than you have to. The main thing I have learned about chronic illness over the years is that physical and mental stress can set you back immensely, and so it really helps to pace yourself,make time for things that bring you Joy and peace, and avoid as many situations as you can that will do physical damage to you (holding a full time job is not something I will ever recommend to a chroniclly ill person, we need time to rest and recover, as we all know from Jackies experience, just as an example)

[@catmomjill]

If your endo ups your thyroid, you'll feel more energetic! And I love how you said, "We HAVE to go to Japan." Cracks me up! Be sure to get the cool cabusan(?) from the vending machines!! I'd love to see that! Take care of yourself, Jackie! I love these personal, "let's chat" videos.

[@AthenaWisdom85]

Glad to hear that you've had better luck with this new doctor. I know how frustrating and difficult it can be. I have Fibromyalgia and am still having issues getting a doctor to understand the pain and problems I have.

[@susanfarnsworth-mccarter1900]

I’m happy to hear that you’re getting somewhere with your condition. PCOS is a big reason why some women have weight gain and infertility issues. I know that you’re on the right track to getting yourself in better health. It’s just sad that you had to go to a private physician to get anywhere. I’m so excited for ya that you’re presenting next month at the con! You’re going to rock it out. Im just starting my KZbin channel myself. It’s basically things that I’ve been learning in my journey with polymer clay and resin. I’ve been making jewelry for a long time but I wanted to try something different as I was totally bored. My new channel is SusanMakesJewelry. I have one with my daughter where we just random stuff. That one is called JustBRandom I’m so jealous that you’re going to Japan!! I lived there as a kid but never returned as an adult. It’s on my bucket list. You are awesome girl! I love your videos and I love it when you have Birb and Sika visit ya. Take care! PS I was the one who sent you the memory wire bracelet! 😉

[@msbscreations4645]

It's a water buffalo. Awesome room!!!!! ❤️ You!!!!!

[@ivykat9009]

Aww sorry about your health issues. I know it gets so rough. I have Addison’s disease(which is pretty rare), and hypothyroidism. Gets rough but family helps so much. Love you tons!!💚

[@DorisS75]

YES! You have to keep looking for a treatment that works for you when you know there's something wrong. The journey will be worth the relief at your next step. I can't wait to see your Japan vlog! :)

[@traceymccowan1008]

I have PCOS too and I just got diagnosed this year. It explained so much and I have no idea why none of my other doctors diagnosed me. Glad you’re getting some answers and some help. You’re the best and I’m so happy I found your channels!!

[@GLolita666]

I have Hashimoto as well. I'm so glad your doctor changed your medication, it makes a world of a difference!

[@STICKYArt]

Awesome craft room! Love your style and originization

[@jenniferm5356]

So happy you got some answers and proper medication. Sending good vibes your way!

[@Throwingstarlight]

I just call it P.C.O.S! I am sorry, Jackie! It is definitely a rough thing to go through, especially on top of your Hashimoto’s and your thyroid issues. I am glad you were able to find a professional that listened to you and gave you a thoughtful and honest diagnosis instead of just shuttling you in and out of the office. Despite all this, you are so inspiring! Your work ethic and passion for your grains and channel are super inspiring to me! I wish I could go to KZbin Summit and hear you speak! But I will just have to settle for online viewing!! You are going to be great!! And I seriously canNOT wait for your Japan vlogs!!!

[@AurorasArtWorld]

I know exactly what your going thru... At 31 I had an emergency hysterectomy because of pcod and then a few years later diagnosed with Hoshimotos... I quit taking meds a few years ago because they weren't working and expensive.. Now I can't afford to go to a Dr and I have RA on top of it all.. We will get thru this!! 💖 Stay strong! 💖

[@lazyhomebody1356]

I always enjoy your videos, but simce , for the last month I've had a sprained leg and back, and am not really sleeping...reading the comments and commiserating made me feel much better!

[@absyntheew7075]

I am so happy for you to have a new Doctor! New treatment plan, and a better diagnosis! I have some severe medical issues...and sometimes just knowing the correct diagnosis can give you hope! (P.S. I am an American disabled Registered Nurse) Smooshy gentle hugs and kind thoughts to you! Your room is amazing! Have fun at the Con! Have even more Funz in Japan! Salty Grain, Amiee!

[@MusingsFromTheDen]

I'm glad you've found a new doctor with a plan. I hope you're feeling much better soon. 😊

[@llunakittie]

I just call it P C O S. I've been diagnosed for 10 years now along with several other health issues. My heart goes out to you

[@feliciaeasler3920]

Tells the cat hes not allowed while simultaneously opening the door... 😂 He's too cute to deny but he doesn't have thumbs so if his mama didn't open the door he couldn't get in.

[@Kaoskatt]

JAPAN VLOG! 😍😍😍 Hop the treatment works. Being on the right medication does change one's life. And thank you for being one of those who speak out about health (and how it effects your mental health)

[@jeanninebagley6354]

Thank you for your health update .... you are helping me which is helping my sister #knowledgeispower

[@jenetikitty]

I"m so glad your trip to the endocrinologist went well! Wishing you lots of love with your future health care

[@Oxymoroness]

I've got psoriasis, "suspected" PCOS, perimenopausal, with a metabolism that constantly forgets to wake up in the morning. So I hear you! The Endo is next on my list. I'm so glad you got a few more answers and I hope your new treatment works better for you!

[@TatiG]

Christine Wright I have psoriasis too! Plaque psoriasis, diagnosed this year (summer)

[@Oxymoroness]

@@TatiG A lot of these autoimmune & hormonal issues tend to go hand in hand. Hop you find the right treatment!

[@maiadion557]

Even if a single person knows only about one thing.. That is the beauty of sharing and passing on knowledge to each other 🤗

[@heathermorgan8817]

I am so glad your getting the help you need for your health. P.S. It's a water buffalo

[@mariecovalciuc5698]

I have Endometriosis, Anemia, Hypothyroidism, PCOS, I had problems with doctors listening to me at 20 years old, when I knew that I had Endometriosis, took 5 years and coworker referring her OBGYN. AMAZING doctor I am now 40 and I am still so greatful for the OBGYN Doctor. There are too many people having to fight, just to get someone to listen and not blame the patient or totally dismiss them. Keep Fighting You Are Worth It!

[@alannahjohnson4838]

I hope the new medication works out ❤️❤️❤️ we all love and support you!!

[@thewhitneyrichmond]

So glad you have a new direction with your treatment! Congrats on your speaking engagement at the vid summit too! Here’s to a million grains soon!

[@NoArtisticLimitation]

My sister has chronic fatigue and it really is a hard thing to live with at times, so I can imagine you would have your bad days too. Don’t push yourself too hard in Japan, okay? As for Japan vlogs, can’t wait! Turning on notifications now so I don’t miss it! (Not that I would, your videos have been coming up all over the place XD)

[@animerlon]

Good for you, taking your health care into your own hands. Hope this Dr. doesn't disappoint & that the new meds work well.

[@juviigraviles1842]

Jackie, I started watching your videos with my daughter almost a year ago and the more we've watched, the more we have fallen in love with you so I thought I'd share my story. I was diagnosed 15 years ago with BiPolar-1 and P.C.O.S and told I'd never be able to conceive. Much to my surprise, 6 years later I got pregnant with my little girl. 3 years ago, I finally heard the word " hypothyroidism" from a doctor. I was given 3 medications to try to help me. They didn't work. So for the last 2 and a half years I've been completely unmedicated and barely feeling like I was hanging on. After hearing you talk about Hashi's, I've got a feeling that I need to get a new doctor and be tested for it. Thank you so much for being open enough to talk about it. We love you Jackie! ~Nicole and Joslin

[@susangruhlke8782]

I’ll keep you in my prayers!! Ring in pain all the time sucks!! 😢

[@luckychaoskitten6139]

Chaos & I love you!!! Extra Huggles!!! Feel better soon!!!💖💖💖🐾😻😻😻

[@skabs508]

Having a doctor who listens to you and actually recommends steps forward that are tailored to you is sooooooooo refreshing. I hope your new medication does well and you can get your energy backup to the point where you are happy! I can’t wait for then next video! And I will be anxiously awaiting your one millionth subscriber with the rest of the grains!

[@picklesworld7112]

I really hope this doctor helps you and I'm glad you got more answers. Also congrats on presenting!!! You definitely deserve it. You're one of the most genuine KZbinrs I watch and you inspired me to craft again :) #nerdeficationsquad

[@sierracarpenter3191]

Awe. I feel you on so many different levels Jackie! I have SLE and for so many years (almost 8 to be exact) I took every lupus medicine avaliable as well as for the last year EXTREMELY high worse of steroids DAILY. Like 100 to 150 mg a day because the lupus was killing my platelets. Finally my platelets dropped to around 45k and the doc was like nope you need chemo. So I went through 4 rounds of chemo. And since then thank God that the platelets are fine but the inflammation from the lupus cause me to have bad arthritis in my right ankle, wrists back and neck. 26 and I feel 80 😂😂 but I still hold down a full time job, full time business, full time college, and am still finding time for my crafts and even attempting my own KZbin channel (not under this name. No shameless plugs) as crafts are my absolute passion (next to Pusheen!). And watching you and your craft vids give me so much inspiration. And for that I appreciate all the work you do in spite of your condition! I'm with you 110%!

[@secdoover]

So glad to hear you're on the track to proper treatment. The frustration from doctors who just don't listen is so so discouraging. I've lived with severe back pain for nearly 20 years and despite a decent amount of weight loss, I'm continually told it's because of my weight and nothing else. Recently however my PCPs assistant finally discovered I have a birth defect in my hips which is causing the back pain. Good luck to you, Jackie. I've not been watching you for too long but I have gone back and watched nearly every video on both your art channel and this one. (You randomly mentioned in one video about Temptations being bead for cats. My cat had been sick for a bit and lived those tests. Stopped giving them to her and she's much better! Thank you so so much for that!)

[@kandipiatkowski8589]

I was told to "lose weight" for over 16 years because of my back pain....until someone finally found a kidney stone. By then, it was impacted. Had constant infections after that. In 2012, I was in hospital for something else, so they tested the function of it 31%! They tried to clear the blockage, but it only made things worse. I ended up losing my left kidney due to so many doctors not listening to me!

[@KestralWolfe]

I was misdiagnosed for almost a year. They said I had a sinus infection, even though antibiotics and heavy painkillers did nothing for me. Finally, I switched doctors because the pain was... bad doesn't cover the feeling. I was diagnosed with Trigeminal Neuralgia, finally put on meds that help control the pain, and dull it. All this to say, I understand that frustration of not being listened to for so long, and then finally saying 'screw you', and going to find someone who /will/ listen. I'm glad you're finally going to get the treatment you deserve, and need so badly.

[@laartje24]

I have that brand for my thyroid and it works great for me. Good luck with getting your health up.

[@lexusmorrow6095]

Jackie, I am so glad that you have seen a private doctor, I totally feel you when it comes to having a medical condition that no one else sees and answers that no doctor can tell you. After 4 years, which is short in comparison to others, I was finally diagnosed with Fibromyalgia, after years of doctors telling me "none of the test show that something is wrong - therefore it's all in your head." And "just deal with it." Finding the right doctor and advocating for yourself are two of the biggest things that you can do. Thank you for fighting for your health instead of settling for poor advice. You truly do inspire me to truly take care of myself, and to push when you know that something is wrong.

[@hopee.wankenobi1085]

Putting your name down in my prayers and positive vibes box. ❤️

[@gemmaupton2127]

Your videos make me so happy, especially the more personal ones, as it makes me somehow feel close to you, in a non-creepy way, if that makes any sense. Lol. I have anxiety and struggle to make friends, but kinda wish I lived closer to you as I feel like we would get on so well and have super crafting sessions, but sadly I'm in the UK! :( Just so you know, I can relate on the PCOS as I also have it and all the symptoms that come along with it and the doctors here aren't great either! I also have Ehlers Danlos Sydrome and Scoliosis, so generally aches and pains are my life which sucks, but I hope the new medication helps you and you start feeling better soon. Thank you for being you.

[@kyrauk]

My daughter is T1 diabetic and was diagnosed when she was 4. Her dad has it, my stepdad has it, and my brother in law has it. I also have a few friends with T2, my partner's dad is T2, and I have history of both in my family. Before we moved the children's team we had were so stuck up, and despite having grown up around T1 (both with those who were diagnosed during childhood and one who was diagnosed in their 20s) they treated me as if I had no clue and they knew better, all because they had degrees. I had personal experience. Thankfully we moved, and although I'm not overly keen on her main doctor now, he doesn't treat me like I have no clue and the nurses we see are fantastic. I've also had my fair share with regular doctors being prats, and some who were absolutely fantastic. It's maddening when the people who are meant to help you with your health are so willing to dismiss patients or diagnose at face value, without any real investigation. Hopefully now you'll get the care and treatment you need, and your health can start improving. Best of luck and well wishes to you!

[@emilyfries5649]

After years of being undiagnosed, I finally got a proper diagnosis of bipolar disorder. Although it isn't a "physical" condition like PCOS or hashi, I spent years questioning and being told by family and doctors that I need to "man" up. It wasn't until my symptoms got so severe that I had to go to the hospital that people started to believe me. I understand the frustration when you want to just be heard and people continue to shut you out. Now I'm finally on a treatment plan that works and my episodes have decreased in severity so much as well as my mind finally becoming calm after so many years. Jackie, and others suffering from chronic illnesses, if you think there is something wrong, don't sit in silence and just let the pain take over. You deserve a healthy body just like everyone else.

[@prezihikari5665]

I hope the new medication would do wonders for you jackie and would work, having a personal endocrine doctors might help you if the public doctors kinda shoo away your needs so i wish you the best. I also had troubles with the medicine for my thyroid which is Levothyroxine that my doctor gave to me because either the dosage is too low or too high but i cant skip a day....but the levothyroxine did work at some points... So taking time and adjusting your medication can be worth it. Having those baby steps.. This year, i finally got the right dosage of levothyroxine that i need and it makes me function like a healthy human being.. Less tired, got my metabolism, feeling less depressed. Best to not stress all the time as well cause stresses can cause a lot of body problem.. Like the bad stress that feels like your body gonna go whack. Also eat what you need to eat helps a lot too.. I went to an ob gyne at first cause i thought i was having Pcos due to my bloating and hurting on my abdomen... Turns out it was not and she notices my neck.. She recommend me a doctor for endocrine.. And there it started. The good thing is that these doctors cared about my situation and did their very best. I started a monthly check up.. Then 3 months and now im off to 6 months check up. I hope you find thaf type of doctor for you soon jackie.

[@april1999apricott]

These vlogs are so scarily relaxing... they make me sleepy 😂😂 so soothing!! Love you Jackie ❤️

[@navashaolaughlin1169]

I have friends with PCOS. Good job for fighting for your health. Good luck!!

[@CarissaKlu]

I suffer from PCOS and insulin resistance as well. I've been struggling with it for as long as I can remember and it didn't come to light until I saw the just right doctor who didn't blame it all on my weight. I glad you found a doctor that treated you like a patient and not a paycheck and actually cared about what you were struggling with.

[@skullsandstuff5804]

hypothyroid lady here! mines being managed very well with the meds I was put on, which is great. I'm so glad that you got a doc that was willing to listen and get you meds that works for you, so happy!

[@TashaAkaTachi]

I love that Sailor Moon poster. 😍 Also, I hope your new medication helps you more. ❤️

[@NerdEJackieVlogs]

Fingers crossed

[@LE123LE123]

I am so glad you went to a private endocronologist. My step mom had a similar experience---both when she lived in the US with my Dad and they now returned to Ontario to retire and she continued to have the same problem. She too has hashimotos and found an excellent doctor. She is much older than you and was going through menopause so she ended up using biodentical hormones and she has found it saved her. She suffered with debilitating migraines for years, and she knew it was hormone based. While you can talk to your new doctor about bioidentical hormones, with PCOS, that may not work for you. PCOS is brutal. Every friend I know who has is suffers from fatigue and weight gain. I pray your medication works for you and that it starts to work SOON! And just an FYI, I love your kitties! They sound like my siamese kitty I grew up with.

[@TheMoonyOwl]

Hey Jackie, I just call is PCOS (essentially just stating the letters). I was diagnosed with it when I was 16 years old (I’m 26 now). I’m glad they are actually giving you medication for it! My previous physicians always just told me to lose the weight and eat better and it will all go away. WRONG! I’m still searching for the right physician for me, but I’m excited to see how it works for you!

[@TheMoonyOwl]

Also, side note! The weight gain is also associated with the PCOS. The disorder makes gaining weight a breeze, but near impossible to lose. I’ve been recommended many types of dietary options, but by doing a lot of research, I believe a vegan, gluten free diet would be a better option than others, but that is just from my experience.

[@kayteegrace8283]

I’m in the states and have just started my chronic illness diagnosis journey...I have hypothyroidism and I’m also being sent to a rheumatologist and endocrinologist because my immune system is attacking my air way. It took me yelling at a ER doctor for someone to finally listen and believe my breathing difficulties weren’t just anxiety. I had a nasoendoscopy and they found a build up of scar tissue that is narrowing my airway from 12mm to 6mm.

[@ThePrincessWrestling]

I’m polycystic aswell, it’s called PCOS in the UK.

[@ariannamolinari1473]

Hope everything is gonna be alright and this therapy work!!! You deserve just the best ❤️

[@lisamann4828]

I'm excited to see vlog Japan! I hope the new medicinal cocktail works for you.

[@a.mchamp9159]

Hi! I definitely understand your frustration. I am 22 years old and was diagnosed with PCOS (70% of women with PCOS have insulin resistance, no one knows if PCOS causes insulin resistance or the other way around. It's like the chicken or the egg. I have always had a healthy diet and diabetes doesn't run in my family and I have insulin resistance! )when I was 20 but knew something was wrong since I was 15 years old. I have been to over 7 doctors in the past two years and still trying to figure this all out. It can be incredibly difficult but we got this!! Thanks for your continuous optimism!

[@danim3738]

Hi Jackie. My sister-in-law also struggled with hashimodo's (or however that is spelled) and was struggling with her weight and lack of appetite. One thing that her Endo suggested, along with the expensive meds, was to do an elimination diet to see if any particular foods were triggering the flare-ups and if, by eliminating those foods, it would help her thyroid and reduce inflammation. I can tell you she has been med-free for about 2 years and has lost 80 lbs just from finding out she was allergic to gluten and dairy. It might be worth talking to your new endocrinologist about trying that, along with the meds. The book her doctor told her to use and follow is called "The Elimination Diet" and was really easy to follow.

[@Dustanne]

I am happy that you are getting the help you need and deserve. I am sorry it has been this long and that too many quacks are out there. Loved the tour! Thank you ❤️

[@lizzy7597]

❤️🧡💛💚💙💜🖤 Another Great Video Jackie Thanks for always brightening my day 🔆

[@JayofallTrades]

I was diagnosed recently with hyperthyroidism and I take levothyroxine for it. I also have pcos which makes insullin resistant as well. I envy you for being able to do so much in spite of your health. I wish I had the motivation to do more crafting and art despite my chronic illness. Love you Jackie and be well

[@ashleymorris8433]

Omg. I can relate so much to everything you said! I too have hosimotos, polycistic ovarian syndrome (pcos the way you said it is the way i say it lol) and insulin resistance. Its definetly a struggle i have had the same issues eith my medications and have seen at least 6 different drs none of them ever have anything helpful to say. Hopefully your new medication works for you. Id love an update once you've taken it for a while maybe its a medication that cpuld help me too! Thanks for sharing! ❤

[@nicolehill8801]

Wow so many grains in the same boat (shaker)! It is nice to know we are not alone with these medical struggles. Thank you for sharing. Thyroid issues are often overlooked and the more we support each other the better.

[@michelleross9782]

Jackie, I am so happy for you that you found an educated compassionate doctor. I'm sorry you have been diagnosed with additional illnesses in the process. I sincerely pray that the treatments in place now will bring you health, strength, & a comfort that you are in good hands & your health is going in the right direction.

[@KatelynMcCaigue]

Love your office! So many fun goodies and artists I recognize from Toronto Fan Expo. I am glad you were able to go to the private endocrinologist. For years I went to a general doctor who claimed to have "thyroid training" and my levels were all kinds of messed up. I finally bit the bullet and started going to a private practice and man the doctor has really helped me monitor and control my thyroid disease. I hope the new medicine works out well for you and sending some good vibes for tackling and living with your other recent diagnosis. Like you said, it can be tough but I am glad you have a better doctor that can help you! Sending love your way and hope all else is well!

[@acornacus_77]

I have a slew of issues, not limited to IBS/GERD, OCD, ADHD, anxiety, depression, sciatica issues, spinal fusion, fibromyalgia, and diabetes, not to mention hormonal issues, too. So I absolutely feel you on this! My body never relaxes, I'm always in pain, and I always have to be on high alert because of my blood sugars fluctuating. I also have non alcoholic fatty liver disease from my dad's side, so my body is still trying to recover from high liver damage anf high blood sugars. I had gestational diabetes but was not diabetic before pregnancy, but doctors here didn't help after birth when I eventually became fully diabetic, even though they had my charts and blood sugars and never said anything. I went to urgent care with a sugar reading of 500! It took a nurse on her 4th gestational diabetes round of pregnancy to call and get me to an endo asap. Numbers are pretty good now though! Went from 9.6 to 5.8 in like 1.5 months, lost over 30lbs, etc. Now it's just the longer road to keep losing weight and see my c-peptide go up, liver numbers go doen, and blood average steadily get lower (I try to stay under 120).

[@beantoes4107]

Hi! Love you Jackie.

[@tatril]

You are the first person online that I know is going through what I am. Diagnosis 2001 hashimoto, fibro, permanent body nerve damage, total body arthritis, spine fusion, endometrial cancer, and carrier of the colon cancer gene. I am going on my 2nd year cancer free.

[@lifesagame2006]

So glad you found a doctor who takes you seriously and is actually trying something to help. I doubt anyone’s reading this, but if you are and you think there’s something wrong that they won’t even test for then, if you can, I would say keep trying. I know it’s exhausting and not everyone has access to healthcare that means they can, but if you can then it will be worth it in the end. Even if tests come back negative, if they’re prepared to do them it can help lead into other tests. At one time I was going in to have blood tests every month with one doctor, not fun but at least he was trying! I have m.e. and pots and it took so many different doctors saying ‘this is just how you are’ and being told my fast heart rate at times was anxiety before I finally got the pots diagnosis from a neurologist. I’ve also had hormone issues, cysts and pain and been told ‘that’s just your body’ but now they’re saying about pcos or endometriosis so going for more tests hopefully. It’s so frustrating when you feel like there’s something more there as you know your own body, but people won’t listen or lump it with an existing condition. Sorry this got long, but basically yay for good doctors! They’re the best when you find one who’s willing to test for things and hold onto them if you can!

[@Meowsesparson]

I was diagnosed with PCOS 16 years ago. Taking Metformin has been the ONLY thing that has helped with Insulin Resistance and Vitex Chasteberry supplement for cycle regulation. I had hypoglycemia when I was at my heaviest, however after losing 40 lbs that has not ever come back. I'm not sure if I've ever heard you mention anything about ever wanting to have children, but if you do there are many vitamins and supplements that can help. Best of luck to you with your new medication!

[@iamchriss77]

I have had the same issues with doctors in California. One even asked me if it was all in my head. Finally another doctor ran tests and I have a auto immune disorder. But what sucks more is I tested positive years ago for hpv that turned into cervical cancer (had hysterectomy a year ago, cancer free now) but after my surgery I found out I had Endometriosis. I have been going to doctors since Jr. High and found all this out as an adult....sheesh. I can relate. Keep you the faith you'll get through this and have more good days then bad.

[@etchersplace]

I'm a PCOS-er as well, Jackie! It's a pain in the bum but I'm glad it isn't something worse. Sadly, I couldn't have kids because of it (I'm 47 now) but I've learned to be okay with it. My best advice to give is get away from bad carbs (candy, pastries, chips, etc); if you stop and notice how you feel after eating them, you will notice a difference (I feel fatigued and brain foggy if I eat too much sugar or bad carbs). Love your good carbs! Whole fruits and veggies, grains, hearty breads. If I want something that isn't great for me...moderation, eat just enough to get rid of the craving. When I first started it, I thought I'd starve. Didn't happen, feel better and keeping the weight off. A few years back, my doctor here in the US put me on Metformin, which is a pre-diabetes / insulin resistance drug... it screwed up my stomach, and me for about three months. Didn't work for me. What did help me get my eat habits under control is this supplement called Inosital and have been taking for the last 6 months. I can get it on Amazon and at local stores (read Amazon reviews and do your research). What it did, for me at least, was to help get my blood sugar stable and I lost the weird cravings that would leave me feeling terrible (a whole bag of chips, a huge bowl of ice cream swimming in fudge, etc...I went from 150 to over 200 in a year). Gone within a few days of taking it with no horrible bad belly effects like the Rx meds. I learned about it from the PCOS groups on FB and really learned a lot of practical information from the other ladies who have this as well. I'm not a skinny minnie but I'm finally losing weight, sleeping better, more energy and thinking clearly again. Over eating even ended when I started asking myself "am I eating because I'm hungry or because it tastes good'. It's like a switch flipped. Once my jeans started fitting better, I was sold! No shakes, not diet plans, just stopped and really realized what I was eating. I wouldn't put crap gas in my SUV, why do I put it in myself? Hummm....thinking. I love your channel, I love watching you and your sister! Keep smiling, keep researching, your answer is out there!!!

[@jillconner7657]

Love you Jackie❤❤❤❤❤...no matter anything youll still be my favorite youtuber and an amazing tanlented person❤

[@alexissmith4716]

I have PCOS and Hashimoto's Disease as well. Never knew I had it until July of this year.

[@ladysamu9329]

Hashimoto's is a hard diagnosis and PCOS does seem to go hand in hand with it. I've had both of those diagnosis for several years, and it doesn't get easier. If they have you on Armour, you're going in the right direction. Keep your head up, my dear. You will come out on top! Congrats on your speech!

[@blueumbreon444]

Good luck on your new treatment. I wish you the best.

[@jenelle6132]

Ugh. Health issues. I know what that's like. Just keep on keeping on. Grains stay united.

[@kianaamarnani3]

The last time i was early youtube was not targeting female, and arts and crafts creators

[@cardcaptorsnaruto]

I have Hashimoto's syndrome too! When I'm on the meds I get extreme pain in my stomach. Some days my balance is good and sometimes its high, sometimes its low. The swings are crazy even if I don't eat anything and have no appetite I don't loose any weight. Its awful. Thanks for sharing you experience it's encouraging to have someone you look up to share their experience and encouragement on it!

[@shabbycrafter]

This was fun! I enjoyed seeing your lighting setup, and all your paintings!!! I think I saw the Triforce push pin I made you so many years ago. It was so cool seeing your old corkboard from Mail Monday. I’m so glad to know we can pay a fee and watch VidSummit online. Thank you for the info. I’m so glad you are getting some better medical care. 😘💕💕💕

[@Fumanchuchu]

Ermagerd you did the thing I asked about, both the things! Thank you Jackie!

[@Fumanchuchu]

AHHHHHHHHHHHHHHH I HOPE YOU CAN MEET WITH SIMON AND MARTINA COLLAB OF THE CENTURY AND YAY ABOUT THE NEW DOCTOR IM SO GLAD YOU FOUND SOMEONE THAT WILL HEAR AND HELP YOU! Sorry for the caps I'm just so excited!!! CONGRATULATIONS!!!

[@rocknromance78]

I also have p.c.o.s. I ended up losing 1 ovary due to cysts. So I can relate. Add chiari malformation ( the cerebral tonsils fall down into the brain steam causing spinal fluid blocks) talk bout headaches. Keep on being salte, sometimes that's what keeps us going! Love ya and the saltecritters!

[@tahanighannam4459]

I really don't know what type of illness I have but I know it in Arabic 💖 so you can say I live in the hospital....for the past few years, I had to fight many illnesses but today I feel awesome 💖💖💖💖💖💖 I am Muslim and I wish everyone to be better, even if you were Christian, Jewish,all Religions lead to one God💖😘