Hemochromatosis, Two Years Later

[@keanamuba]

Just want to share here, after my 2nd phlebotomy, ferritin dropped to 487. It drop quite significant number.

[@KyleClaytonGore]

Awesome!! Congratulations! You'll be within 'normal' ranges in no time!

[@keanamuba]

Thanks. Keep it posted here Kyle. I would like to know your ferritin after 4 months break. Did you watch your Iron intake in the last 4 months?

[@KyleClaytonGore]

Just tested it today, so we'll know more soon! I have a new video coming about the update and how to prepare for a phlebotomy.

[@streetrider2487]

wow thats almost half in 2 venesections.! i hope i can get those results too

[@KyleClaytonGore]

Me too!!

[@mumenrider862]

Taking less naps? My after lunch nap is something that I look forward to. But in all actuality, if my phlebs help I could handle not taking naps if it means I'm healthier! :) I hope my joints and muscles also get less sore. I've only had one phleb so far. Thanks again for sharing!

[@KyleClaytonGore]

After lunch naps sound great! Don't give those up! However, my napping was kind of excessive back then, I still take naps but only when I've been super busy. Phlebotomies made me super tired too. Glad you got one down!

[@mumenrider862]

@@KyleClaytonGore Just had my 2nd yesterday! Again a pint in 5 minutes. Ferritin was down to 4000 from 4600 in 2 weeks after my first. You're right, I feel super tired (almost zoned out) after but the next day I feel great (well, as great as you can feel with HH). I went for my morning run in the cold rain and enjoyed it as much as anyone with this can enjoy exercise.. :)

[@KyleClaytonGore]

That's great! Your iron will come down fast at the beginning. That's awesome to hear. Glad you felt good and got a run in! Hopefully that just gets better over time!

[@yamilehodson4362]

Kyle , are you taking any medication to control the iron levels or just a diet ? My husband is suffering with this problem for 3 years and he is no been treated yet , we are waiting and waiting ...I just found you ,, Thank you !

[@willmcallister8464]

Thanks for the vid mate,i've got my first venesection this coming Wednesday.My last ferritin level was nearing the 700 mark so am hoping to get down to normal levels asap

[@KyleClaytonGore]

You’re welcome! I hope they help! I also have a video on how I prepare for venesections, if you need some tips. I’m glad you have an appointment and can get your levels normal ASAP.

[@willmcallister8464]

@@KyleClaytonGore Now heading for my 3rd venesection,joint pain reducing and what you mentioned about hair growth is significant as growing back strong .Wishing you a happy Christmas :-)

[@KyleClaytonGore]

Great to hear!! That's so awesome. Happy Christmas to you and yours as well!

[@willmcallister8464]

@@KyleClaytonGore & a happy new year kyle :-)x

[@bobbybassman0917]

hi Kyle just went to my doctor and my ferritin s 565.and she requested to do some ultrasound for my abdomen.

[@KyleClaytonGore]

That's good, are they checking your liver? Glad you're getting it checked out!

[@keanamuba]

Thanks for sharing your journey. My iron level is only 942. Yours is 4000?

[@KyleClaytonGore]

Yes, I started at 4,200 and almost 3 years later I am down to 146! How’s your treatment going?

[@streetrider2487]

\mine's 628 and I am freaking out already.

[@KyleClaytonGore]

Take some deep breaths. It's normal to freak out at first, I sure did. You'll get it down! Mine is finally down to within normal ranges and so I've had a 4 month break. I am about to go see what my ferritin jumped to during that time!

[@streetrider2487]

@@KyleClaytonGore wow, u are amazing. yeah did my first venesection 4days back. gonna do once 3 monthly, prob recheck the ferrition after 2 venesection [ 1pint each time ] to see the progression. lowering the iron is very impt !! its like a silent killer.

[@KyleClaytonGore]

Glad you're getting it taken care of! That sounds like a good plan!

[@keanamuba]

I havent started yet. I will posted here my progress. Btw how much iron will reduced at each treatment approximately?

[@KyleClaytonGore]

My ferritin decreases by around 30-60 per month on average. Although my iron would spike every 5 months, so it was a little of a roller coaster. Keep me posted and don’t hesitate to reach out! I have more videos about phlebotomies and stuff too! Hydration is the key!

[@keanamuba]

Hi Kyle, what do you mean by Hydration is the key?

[@KyleClaytonGore]

Your veins are more easily accessed the more hydrated you are. So I make sure to start hydrating a couple of days before my appointment. I try to drink 80+ ounces of water per day. Not only are my phlebotomies more efficient, it helps me avoid an hour of saline drip post phlebotomy.

[@keanamuba]

Got it Kyle.

[@KyleClaytonGore]

That's my current rate. I only get phlebotomies 1x per month. The last 2 years I have gone almost every week for phlebotomies and my rate was higher than that. Plus I had way more iron in my blood during that time. Hope that makes sense.

[@matthewmccullagh3515]

Hi I have hemochromatosis. Was wanting to know bout foods to eat and foods not 2 eat. Cheers

[@KyleClaytonGore]

Generally it is good to stay away from "fortified/enriched" foods like pasta and bread. They add extra iron to them. Red meat has a lot of iron too. Talk to your Doctor about what they recommended. My Doctor didn't suggest any changes in my diet.

[@timshel011]

Please continue to update. I was concerned when my ferritin was 360. Now at 168. I want optimal of about 60.

[@KyleClaytonGore]

Thank you! I have another update video coming soon! Glad you are getting yours down!