Hi Guys, I've Missed You! | Let's Talk IBD

Holy cannoli, a lot has been going on!! Between the multiple infections and house work, I stepped away to both rest and get stuff done. I'm continually grateful for your support and your check-ins - you are amazing.
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Hi, I'm Maggie and I have Crohn's disease. I am thrilled to be here sharing my personal experiences with Inflammatory Bowel Disease as well as living with an ostomy. I'm proud to share a little bit from a clinical experience as well, having worked as a GI pediatric nurse and ostomy telehealth nurse. I am so glad you are here. ♥ #ostomy #ibd #chronicillness

[@traceywatson2092]

Oh boy, do I understand. Blood work is decent, but I feel like crap! Showering is about all I can manage these days. LOVE your new wall color! So soothing and relaxing. Why can’t ostomy company’s send the same products every 6 wks or so without being notified? I’ve had my ostomy for over 30 years, so it’s not changing sizes or anything. I’ll make that call tomorrow! Take care, sweet Maggie. We’re all in this together. ❤

[@elizabethevett9258]

Maggie I just love your new paint , we just painted a spare room a very similar color , so soothing and makes us feel we are bring colors of nature inside. Sweet nanners I hope she is better by now .. maybe she dislocated a shoulder? That happened once to our pup . Just thank God for your good days Maggie and don’t beat yourself up for the bad days . We love you and your beautiful smile and you bring us happiness with your vlogs. Can’t wait to see your flowers after you plant them . Start every day with a grateful prayer no matter how you feel . ❤

[@mandybarnett3647]

😊great colour scheme! I used to have a painting business..,and was a colour consultant for YEARS....I totally understand your frustration 😢...but now let others paint...and removed myself from the house when it was being done! give yourself a break and let the energy be used by those That have it! We follow you all the time...because you are the best!!!

[@faithf5846]

Love your paint color. Calming color. So glad you had energy. I’m Thankful for those days too 🌺🌺🌼🌼 Prayers for Naners ❤

[@karencull9518]

When you find energy, please let us know where you found it. 😊

[@juliae.8237]

Amen, sister

[@mcrchickenluvr]

I’d like to know this as well. I see my nieces and nephews running around like mad Max and I have to admit that I’m kinda jealous of them. I wish I could bottle up some of their energy.

[@pjk1714]

Love the colours. Warm and earthy. After I find a burst, I'm done for a few days overdoing it. Hope you consider a mask when pollen is high. Reports claim it's the worst.. Ugh..medication ordeals. Sweet Nanners.. We use a shot that works for three weeks. Ours gets a fungus from ground ..we het mildew from drainage problems. The Dr gave me a medicated wash we leave on for 10 minutes. Hope she gets better❤

[@patriciaconstantino4669]

I can relate to you Maggie with everything in this video. Definitely the energy!! I am fighting a UTI right now and I’m dragging. Just got over Covid which kind of added to the exhaustion. On days I feel better I try to do everything as you do. I so relate to the Nanner’s not feeling well also. It’s heartbreaking to see our pups in discomfort and trying to figure out what’s wrong and how we can comfort them. My mini Schnauzer will be 13 in July and was recently diagnosed with heart disease. Doing well on medication thankfully. She does have days when she appears to be not feeling well and I feel so sad. I totally get it!! Your dining room looks great!! I love the color!! Such a big undertaking . You did a great job 👍 Praying you stay well and you can get to the bottom of your fur baby’s discomfort. 🙏🙏❤️❤️

[@susanschellenberg6980]

So glad that you are feeling better! The paint looks beautiful! You should be very proud of your efforts! I hope Naners feels better soon. Take care, Maggie!

[@jacquelinekok4788]

So glad you feel a little beter, and good wishes for Nanners 😘😘

[@nancystewart2063]

I'm so glad to hear you are feeling better. I love the new color for the dining room!! It's so much brighter. If you have a Bed, Bath and Beyond near you, take your paint chip with you and check out their curtains. (As you may know they are going out of business and have great markdowns). I hope poor Nanners feels better soon. My late dog had yeast infections in her ears too. She took Apaquel too. Sending love to you and Zak!!

[@jeanetteh.9240]

"I am at the will of my body, and my body and my brain don't match." Yeah, just yeah. And yeah, it takes a lot of time to deal with chronic health problems. I hear you!

[@maricormier121]

Glad you are back! I understand your feelings. I have had 7 major joint replacements, the last one, an elbow 8 weeks ago, will have the other one in September. All I want to do is work in my flower garden an easy thing to do for most people, but not me. We just deal with the limitations as they come up. But, boy the joy I feel when I accomplish a task is undescribable! Hang in there, get well and do what you can!

[@michaelajoseph6856]

🙏 Get better! 💞🌷The color in your rooms looks fab! 🤩

[@laura6796]

Glad you are feeling better. Your room looks beautiful! Good luck with Nanners❤

[@garsu1229]

I can’t believe this I just let my blk lab that was 14 yrs 8 months go to rainbow bridge April6….. That was when I was looking for you!!! You are a bright light and now your sweet Nanners🐾🐾♥️….They checked for a tick I am sure….

[@jenny_rice]

Glad you are feeling better and good luck getting all your health needs taken care of. And I hope your dog feels better soon, too. As you said, we're all going through stuff. I had a rough week myself after my 2nd chemo treatment with the side effects. And then I found a loose stitch when changing my ostomy bag and kind of freaked out (I'm only 5 weeks out from ileostomy surgery) so made an appt to get that checked. Hugs to you! 💞🙏

[@vickirobinette1452]

I love that color!! I painted my bedroom that same color!!

[@kevinwagner9934]

Hang in there girl, Spring has sprung and go get your hands busy planting those flowers that you were growing indoors.

[@cathygeiser5829]

My dog jumped off the couch and hurt her back, er pet place ex rays and crated for two weeks, she healed fine! And I take vitamin B-12 liquid for energy and it has helped I’m colon cancer survivor!

[@lulamamie8524]

Ohhhh sweet Maggie ❤ I have been involved in my own pity party since St Patrick’s day 2023 😥😓 SICK, sick, sick. My mother had gut issues her entire life. Colon cancer happened when mother was about 65ish? I am 64 years young…. 65 will happen 9/17/23 😰 my GI and his NP are trying to figure out what is wrong with me. I have had blood work, X-rays, CT scan, and stool sample tests. Sorry everyone 😔 TMI 😂 EVERYTHING comes back GOOD! I am thankful for that 😊 ❤️ Now they want me to have an ACHT Simulation test and a CT Scan of my head…. I am sooooo tired of being sick 😷 I just need for someone to wave a magic wand over me and I will feel 100 💯 again!!! I feel for you with all that you have going on ❤ I hope you will be feeling much better soon 😘🙌🏻

[@betsybrennan7101]

What a great way to start the growing season 🎉 I love that color. Love that your feeling so much better 😊

[@juliae.8237]

Thanks for the update. So sorry Nanners is feeling poorly. No need to explain lack of energy and wanting to do it all 😊. You are among friends. Hugs to you, hope you feel even better soon.

[@bjandmercy]

Hey Maggie sorry you feel crummy 😢 fingers crossed nanners has the same thing that my older sisters pit has, arthritis in his neck. He is aalso a baby when anything hurts , even something like a scratch. He also reacts the same to her feeling his neck when it flairs up at 11 years old. Hopefully you both feel better soon 😊

[@marikotrue3488]

Glad you are feeling better. Animals, by instinct, hide their illnesses so do not feel guilty. I agree with holding off the X-Ray for a bit. If she is moving (at least as much as a usual potato), without hesitation or vocalizing, then waiting seems safe. BTW I also spell t-r-e-a-t-s in front of my cat...and my chinchilla...and my guinea pig. The non-humans we live with are a lot smarter than many think.

[@karendavidson6272]

Happy to see you back. But it sure seems like it’s been a struggle. Sorry you have been going through this. I love the paint he really had some energy that day or two. And all my thoughts and prayers with baby Nanners. ❤

[@heatherstewart8800]

I'm so sorry you were so sick. I'm so happy you are feeling better. But please remember to give yourself more credit you were sick. ❤ from a person who has crohns and has had the same surgeries you have had. You deserve sometime to get better and I love your new wall color it's so beautiful. You did an amazing job. 😊

[@jamesdavis9180]

I was getting UTI’s constantly for a year. I was going to a urologist and nothing was working. Finally my gynecologist suggested checking my Vitamin D levels. Found out it was low. I have been on a prescription of it ever since and have not had one UTI since. - Joanne

[@mcrchickenluvr]

I’ve currently got a sinus infection and a UTI. I’m on a strong antibiotic that’s knocking them both out. My word is it knocking me out with them.

[@aftrainsia]

I can empathize with you on several of your challenges. Having lived with UC/Crohn’s for 20+ years, it is nice to know that I’m not the only one that goes through motivation challenges. Even without some of the challenges you have been facing recently, I have had zero motivation the past 6-8 weeks, slowly staring to work out of that. I have also faced similar challenges getting medication, I’m on Stelara now (formerly on Humira) and seen to have insurance issues in getting my medicine. If you only spent 30 min on the phone, consider yourself lucky 😊. We also had one dog get seriously ill in January. She wasn’t eating and when we took her to the vet she had a mass on her spleen. They did surgery to remove it and it came back as cancerous. She is doing well now, but going though that just adds stress that is not needed. Keep up the positive attitude and thanks for sharing your journey.

[@thewisepowerchair2369]

I am still alive :-) Good to see you again, Maggie. Sorry you have been through and are going through so much. Illness, pain, can leave you shattered, flat, not up to much. Wishing you all the best and sending hugs.

[@angelairvine3091]

Poor naners hope she feels better soon, well done to you for painting your dining room it's lovely , sending positivity love & hugs to you all xx

[@jenniferkelly1797]

Hope you feel better! I have several autoimmune diseases/disorders and I know exactly what you mean about energy! I want it SO BAD!!

[@karencull9518]

THE PAINT LOOKS GREAT. AND I HOPE YOUR FUR BABY( NANAR) AND YOURSELF GETS BETTER. ❤💙💚💛🧡

[@jamesdavis9180]

So sorry about your dog, please keep us posted. And I’m sorry you haven’t been feeling well . I have health issues as well, and so understand the frustration when the body won’t do what we want it to. You are such a lovely person, hang in there. - Joanne

[@jacquelinealcalde1964]

Hi Maggie The paint looks AWSOME, I get you I was full of energy, also a nurse ( OR) worked, tan, did trauma, multitasks etc… All of the sudden I was diagnosed with severe RA, bed ridden very little energy, I try to mentalize myself to get up and do things., but my body doesn’t respond. I turn around and go back to bed. It’s also very difficult to deal with family that are non medical knowledge. Since it’s nothing really visible they get frustrated because they say I don’t try . Sorry to vent!! Your videos are very inspirational for my mental status ❤

[@bjpm562]

Hi I get you Jacqueline I can mentally hear that right now "just try to push through"... if they only knew I'm pushing that's how I got something done. You are not alone vent away. Take care.

[@iscrewyew]

Sounds a lot like when my dog got a slipped disc in her neck. Both me and my friends dog got it without any specific incident. It can just happen whenever. Sadly. And they don’t do surgery in the neck to my understanding. So a MR and such would not be “helping”. Just hang in there! Strict bed rest is the answer.

[@wondertwin13]

Oh Maggie, I’m in such a similar boat. Fighting dual infections and wanting to do ALL THE THINGS but my body literally laughs at me. A few med phone calls ends up being an all day thing so I procrastinate. Never ending! It’s a full time job having a disability🙄 Edit…Especially with the pets we love. My farm dog loves to bird & bunny hunt and yaye me theres a dead bird on my porch. I hope Nanners feels better asap🙏🏻💙

[@LetsTalkIBD]

One of our doggos used to do the same... and I'm always the one to handle whatever was caught! haha!

[@jameschristiansson3137]

On those days when I have abundant energy I think it will last forever. Inevitably my body disagrees. Sort of feel like a plant that blooms periodically.

[@nataliegraham9552]

I like that analogy! I'm in the same boat. Lots of ambition but I need to wait for the next blooming cycle.😊

[@melissamoeller9608]

I really appreciate you sharing. I’m dealing with a similar season with my health and life. It’s nice to not feel like the only one.

[@ghost105st]

The Paint looks nice.❤

[@annegariepy3823]

I'm happy to see you back, take care of you. Say hi to Zak for me please ! 🙂 I hope that Nanners will be well soon. Your paint on the wall look great. 🙂

[@KennMSr]

Welcome back, so glad you are feeling much better. Sorry you had to endure those infections both above and below, also sad to hear about your puppy hopefully the meds will bring relief.

[@dkcanada2169]

Poor baby Nanners 😢….. I hope she feels better soon. Muscle relaxants always worked for our pup with some pain meds when needed. Not sure though if it’s a disc issue. I guess only and X-ray would be able to diagnose. 🙏🏼

[@maryallabaugh598]

Glad you are feeling better. The paint looks beautiful ! Hope Nanners feels better soon ❤️

[@cblue2]

Despite it all, you are always an inspiration. Hope you feel better soon! Thank you for sharing, it helps.

[@ItsIsma229]

Loved the update! Thank you!

[@scillataylor3883]

Just about your dog - I have pugs and they are heavy stocky little things - prone to disc and joint problems which can lead to licking paws and legs a lot because of referred pain. Don't need a specific injury really, aging can do it -- as I know myself!

[@Jane-lp8so]

Have missed seeing your smiling little face, and cheerful ways…glad to hear your feeling better…hoping that your sinus issue, will clear up as well. Love the new paint scheme….go easy on yourself…cheers to you Maggie…

[@queenofdramatech]

You have been sick, it is totally understandable that humira was not on your radar. A simple solution is calling your GI to see if they can give you one dose just because you have to take it on schedule. My rheumatologist does this for me with my idiopathic arthritis secondary to ulcerative colitis and sometimes it's just not your fault it is a fault of the company.

[@heatherstewart8800]

I truly hope Nannas feels better as well. Have a good night.

[@kathywhitaker1042]

I got a ielostomy in Feb ...a week ago I had a UTI that went septic ..hospital for 3 days home .....back in the hospital after one 1 day being out with acute kidney damage...crazy yes how fast one can get weak and sick...I feel like this will never end ...thks you for sharing....this crazy lipase count was 350 now 278....any ideas how to get this lower....they said chicken chicken more chicken backed....bo red more or alcohol which I don't

[@beckymellon8135]

❤️ you are exactly like me in almost everything you go through except I do not have Crohn’s. I do have gastroparesis with ibs and chronic bloody gastritis. I also have a bladder disease that cause sores and blisters to constantly pop up😬🤯 but I can’t figure anything out like when is it going to be a terribly bad day. Why is it a bad day, how many days in a row can I take it and am I ever going to get any better!!!! Sorry but every time I watch your videos I get frustrated because I bet that this, whatever this may be, is not that uncommon. However I don’t know of anyone else who has the same amount of nausea or sick days with the constant bladder pain 🤔😵‍💫 forget the sinus problems 🤧I’m hoping for some better days to come for you. You’re much younger than I am!!! I always have you on my mind❤❤❤Thanks so much for doing what you do🌹✌️🤞

[@HFMWheels]

Prayers for you and nanners

[@MSchipper]

Glad you're feeling better and have energy to do some of the things you want to do. For Nanners... is CBD oil available where you are? It's a miracle, that stuff. I had severe headaches due to a cold a few weeks ago. I took 4 drops and *poof*, within minutes my headache was gone! It might do Nanners some good to if her pain is causing so much trouble, It's safe for pets to take if you don't over do it on the dosage.

[@juhajarkkoulvila7041]

Nice colors there! I am so lazy that I just have what has been there probably 100+ years as my cabin in the woods is really old...

[@LetsTalkIBD]

Our house was actually built in 1854! The stone sections are part of the original structure, but the drywall I assume is more recent! Haha!

[@karenshepler7128]

Thank you for sharing! Wishing you all the best. Take care to you and yours. And your pup.

[@andrealarkin9109]

I need more energy/ motivation to do something’s because I’m just too tired. My daughter will be 2 in November and she just keeps getting more energy, I wish she could give me some 😂. I’ll be praying for namers I really hope she gets better soon.

[@nataliegraham9552]

Love getting an update from you Maggie... So much of what you talked about is reflected in what I've been feeling and dealing with too. Kudos for getting the paint job off your to-do list - it looks great! And my heart goes out to you about Nanner - we never want out fur babies to be sick, especially since they can't tell us much about what's going on. I hope the meds help her feel better. Take care, and as always, I'm looking forward to your next post here on YT. ❤

[@melodysmithey3172]

My daughters cocker spaniel did the same thing..vet gave strong steroids he was fine on s few day

[@Kattaz0309]

I love that green!! You are very ambitious, looks great!

[@nancyterrywhittemore2015]

I'm glad you're feeling better Maggie, and I sure hope that nanners feels better soon. I always worry so when my fur babies are sick. 🙏

[@deborahmeyers551]

Wishing Nanners better Maggie darling I hope you feel better too but I understand don't you worry if you need to take a break loking after yourself. I hope your dad is OK too. Take care Maggie darling 🥰

[@keac84]

I love the color of your dining room!

[@kathybrandt6060]

The paint you chose is very nice. I hope ( Nanar ) feels better soon. I hope you’re feeling better soon.

[@annegraheck5713]

Take care of you❤

[@amandadeprey4250]

I was literally typing a comment about talking to your vet about cytopoint for nanners. It is an absolutely AMAZING medication for allergies. As an LVT I always recommend people ask their vet if it’s an indie Al option for their pet

[@naturegirl7420]

Group b strep probably vaginal origin Glad you are feeling better

[@garsu1229]

UTI’s are so painful … You look good ThankGod !

[@shenazpatel8195]

Hey Mags Glad you're better...be positive Nanners will get better too...what does Nanners mean??? I am about to finish my antibiotics for my Uti!!! Let's see how I do??? Take care!!!❤😊

[@LetsTalkIBD]

Thank you!! We actually didn't name her, but it's just short for Banana! I hope the antibiotics cleared everything!!!

[@kristierobinson9602]

Really like the paint

[@lydiadale7024]

Glad you're back and are feeling better.

[@dacisky]

I'm glad your better and I'm sorry about Nanners.

[@LSW2022]

I was worried, so glad you’re back! ❤❤❤ I’m glad you’re feeling better, that sounded like a rough time. I hope Nanners feels better soon too ❤️

[@karendavidson6272]

I’m a nurse too and now I was listening at around two minutes in on the video, and it occurred to me. There be some sort of a fistula developing. I don’t know if it’s possible considering your anatomy but you never know. Something that is allowing E. coli to get into the bladder. I’m sure you already thought about this. I hope it isn’t.

[@LetsTalkIBD]

I had thought of that actually! I haven't noticed any other symptoms that my indicate a fistula, but I'm keeping that in mind as it wouldnt be my first!

[@karendavidson6272]

@@LetsTalkIBD hi Maggie , I guess I remember hearing you mention that you did have a fistula in the past in one of your vlogs. Have you ever tried elderberry for immune defense. And maybe extra vitamin C and zinc.? Just thinking of ways to keep these infections away. Even though sinus infections are just so stubborn. Hope you feel better soon.💟

[@garsu1229]

Paint looks great

[@yomama8873]

Glad you are feeling better you look great❤❤❤❤❤❤❤to nanners

[@Dexy83]

CADI injections were a life saver for my allergic to the world Shorkie!

[@nancyelizabethbrown-smith9774]

What are they? Cortisone shots - maybe monthly?

[@jodij6280]

I have Spina Bifida, which is the least of my problems. I have to make 4 Dr. appts. before summer but nobody's calling me back. My prescriptions are coming due but the pharmacy says they can't get a hold of the Drs to get refills. When I call them I get their voicemail and, guess, no one calls me back. It's frustrating.

[@donnaruswinkle4396]

You should go to the office if possible. Happen to me, my Dr left the that practice without notice. 😡

[@jodij6280]

@@donnaruswinkle4396 Not an option, I'm in a wheelchair and don't drive. The office is 11 miles away.

[@jodij6280]

@@giovannimaisano9194 That's too expensive. I was talking to another Dr today so I mentioned it. She said she'd send a note to the other doctors. Crossing my fingers.

[@MSchipper]

Yeah, I feel you. It's hella frustrating having to advocate for yourself, when you feel weak and tired. Hope you soon get what you need!

[@amac6421]

Sending you some love Maggie! ❤️Glad you’re back

[@NorseButterfly]

It almost sounds like arthritis forming in Nannas neck. If the meds don't work that well, have the vet give you an oral sedative. You'll give it to her roughly an hour before x-rays. It won't knock her out, just make her sleepy and not care as much. For youtube, what you're describing is an editor instead of a manager. Way easier to find! Good luck with everything, and I'll keep your fur baby in prayer.

[@LetsTalkIBD]

Possibly! She has some leg issues as well so can definitely be the issue! Just seems so sudden! I actually prefer doing the editing (especially when I show my stoma lol) but need help with emails! I get so many!

[@kristierobinson9602]

Hi at times I know how you feel because I have got ttp medical a rare blood disorder also I have got lupus

[@kristierobinson9602]

I am glad that you are feeling better 😊

[@Michael-MYR]

Absolutely love the new colors, glad you are in good spirits. I completely agree after 12 years of UC then getting my Illeostomy, I am always on the go, driving everyone crazy, Keep Smiling

[@Aaliyhastormrowland]

Thats good continuing to pray for you got this ❤

[@nadinecooper8709]

LOVE the new color

[@QueenPatty381]

I'm glad you're feeling better ❤

[@LetsTalkIBD]

Thank you Patty!!

[@christycrawford7084]

I have had 2 sinus surgeries they did not cure anything. The headaches are blinding I am sorry for you. I have no advice but neti potting with distilled water and salt ❤

[@kylerford5522]

Have you looked into migraine? I thought I had sinus infections, but finally a neurologist said they were migraines and with migraine meds. I’m feeling a lot better.

[@nikkiwunderlich3570]

So your dog put Andy or Hittman on her seat or ever she licks until it’s dried out and then him if it’s on a seat, put socks over it and put some tape for a rubber band around the leg that’ll help with the licking on the legs I had to do that for my golden retriever yellow Ladson

[@pjk1714]

Consider Juke Production Josh Cantu. He does great work editing, music and story telling..

[@mariafahey750]

Aww get well doggy😊

[@malinnesse3876]

☀️

[@marilynstevens5592]

🤗 ❤

[@magdalenadetoffol6406]

❤️❤️❤️

[@kristys7172]

I was doing great, them I popped a muscle in my calf! Ouch!

[@brenda0823_]

As soon as I'm able I order my humira a.s.a.p!!

[@yomama8873]

❤❤❤❤❤❤❤

[@rebekahdahlstrom8049]

I’m getting ready to get an ileostomy. I’m scared

[@cynthiagawin2991]

Praying for you Rebekah! “What time I am afraid, I will trust in Thee”.

[@rebekahdahlstrom8049]

@@cynthiagawin2991 amen to that! Thank you

[@brenda0823_]

Poor doggie!!

[@KennMSr]

Maggie I watched one of your videos where you said you were going back to school to get your WOC certification. Was that ever completed or what’s an update on your progress.

[@LetsTalkIBD]

I unfortunately has to stop school for it because my colon started to go downhill (which I then got removed)

[@KennMSr]

@@LetsTalkIBD thanks for the quick response and you should consider updating your many followers with that information. Hope you’re enjoying your new colors in your Kitchen and Dining Room. Did you see my cartoon on the Lavatory Retriever I emailed you?

[@blustarmom]

Maggie…I may have missed this somewhere along the way, but what ever happened to your barn renovation into a wedding venue?

[@LetsTalkIBD]

We don't talk about it much but a few locals have been a nightmare and our township has made it difficult. We are still trying to open, it is just so much slower than any of us (Zak, I, lawyers) ever expected!

[@blustarmom]

@@LetsTalkIBD Gotcha. Neighbors can be a blessing or a curse. I wish you the best, moving forward. I, for one, thought it is an amazing project and I hope you can see it to fruition.