Hope for the Future | In Pursuit of a Cure 2024

Some of the youngest members of the FOP community share why your support matters.
"Please give so kids like me can keep doing the things we love!"
Please give to create a more hopeful tomorrow for those living with FOP:
ifopa.salsalab...
💚 FOP (Fibrodysplasia Ossificans Progressiva) is an ultra-rare disease that turns muscle into bone, obstructing movement and hindering lives: ifopa.org/what...
🌎 The International FOP Association (IFOPA) is here to help find a cure through funding research, raising awareness, and supporting the community: ifopa.org/abou...
👋🏽 CONNECT:
IFOPA
/ cure_fop
/ ifopa
/ international-fop-asso...
📬 Sign up for the newsletter and stay on top of the community and the path towards a cure: ifopa.org/connect
👨‍👩‍👧‍👦 Register for the next Family Gathering: ifopa.org/fami.... Relive sessions from past Gatherings: ifopa.org/fami...
🛠️ Check out the Ability Toolbox Guidebook featuring tools and home adaptations for independent living: guidebook.ifop...
📆 Get involved with our family services, fundraising and awareness events: ifopa.org/cale...
📗 Learn the scientific terminology surrounding FOP in the IFOPA Glossary: ifopa.org/glos...
❤️ DONATE and join us to fight FOP and support families in their journey: ifopa.org/donate
🙋🏽 FOP Frequently Asked Questions: ifopa.org/fop_faq
#cureFOP #RareDisease #disability #RAREParenting #caregiver