Hospice Care with Congestive Heart Failure

[@doreenwhitehead4224]

As a retired nurse afrer working 43 yrs, I enjoy your channel. I am amazed at what you have created. You are matter of fact without being morbid; you normalize death; provide education and hope while being organized, clear and to the point. For what it's worth, i amproud of a another doing a great job. Keep on doing.

[@ctconway8684]

Adema, yes, but the fatigue just bad life choices. I've gotten to a point my #s R that of a freshman in HS.My GP is concerned. I'm worried 😮

[@elbee1290]

You expressed this so well, I agree 100%~ What a beautiful gift Nurse Julie gives us all, the way she presents all this information.

[@ctconway8684]

@@elbee1290 TYVM for reply

[@godschild3640]

@@ctconway8684 😡so I went to surgery to have a biopsy, 🥶which is against the rules would come to find out. I had a bubble in my left lung and a collapsed lung so guess what they did within an hour they took my oxygen my asthma machine, my toilet so I couldn’t go to the bathroom, and my wheelchair said the things that you need under hospice they never bothered to call me to see if I was all right and I felt betrayed, that I would never never have hospice again. Never did. I called up the social worker and told her what happened and nothing has happened.

[@godschild3640]

I had to pay $2000 every two months it is not a free service!

[@horseladyjane4321]

I went into CHF in the mid 90's, had successful mitral valve repair in '97, wasnt expected to live past my mid 40's and here I am kicking it at 62. You never go a second before God plans. Thank you Nurse Julie for your kind and compassionate content.

[@patriciarivas5369]

My mother had it since she was in her late twenties. She was diagnosed until much older. My mom always needed naps and when my mom had an episode requiring the emergency room, she became a hell cat. My mom was the kindest and sweetest person and she was very difficult for staff and had to be sedated. Then we were told she was end of life. The hospice staff were kind and helped us through this. The death rattle and the realization she was close to dying was hard. I gave my mom the first drops of morphine to ease her discomfort. Thank goodness for the hospice rns on the phone to help guide us. Hospice is a special breed of nurses for sure.

[@wendy1453]

Dear Julie, Thank you for covering this topic. I am a CHFer. When I was diagnosed, I repeatedly asked my healthcare team what the advanced stages would look like and each one of them, in their own way declined to answer. I think it made them uncomfortable than it did me. I have since given up asking, but still wondered. Thank you for having the courage to cover these topics. I see hospice nurses as angels of mercy.

[@catmama54]

My husband had congestive heart failure, and then the medication he was on for years affected his kidneys. At the end of his life, he was on dialysis his lungs were filling up with fluid and he came home from his last dialysis appointment and said I’m done. That night went into the hospital the next day they moved him to hospice And six days later he was gone. He was a big strong man and what he did to him was horrible. The hospice center he went to was wonderful. I can’t say enough about them. The worst time in my life, they helped both my husband, my stepdaughter and myself immensely.

[@nomadicfenceman509]

Can you share the med that did the most damage to his kidneys? I was just talking this morning that I was considering stopping my meds as they seem to do more damage than good

[@catmama54]

@@nomadicfenceman509 Entresto. He was on it for years and it kept him alive but his kidneys were affected. I wish you the best. Its sad but most medications have their side effects.

[@1MsStang]

Same thing happened to my dad. He did get a transplant but eventually his kidneys went. After a while the dialysis was not enough and his BP kept dropping. He had chronic PE. Not sure exactly what happened but he fell over and went into arrest. He suffered anoxic brain injury from being down at least 20 minutes and never regained consciousness. He was on so many meds, every organ was impacted except his liver.

[@catmama54]

@ I’m so very sorry about your dad. The medication’s killed my husband’s kidneys and six months a dialysis destroyed him. I never knew how hard that was on a person’s body, but it was devastating to watch what it did to my husband

[@DrParapsychologist]

My Father died from congestive heart failure. He had a pacemaker, defibrillator. He was moved to UAB in Birmingham, AL and moved his work/office (he was a Vice President of a major university in Florida) to be on the transplant list for a new heart. It never came after waiting 14 months. And he passed away waiting. Please be a donor. Thanks for your video, it brought back alot of memories. 🙏

[@DMV8662]

I'm sorry for your loss... Take comfort in the fact that your dad passed WHOLE with the body that God the creator gave him and is intended to be until he takes us home... 🙏🏻 As a nurse with experience in ICU and keeping donors "alive" for transplant, it honestly changed my views on the practice.. Its a very dark and eerie feeling knowing what their fates will be when the team comes to "harvest"... I took myself off the donor option on my drivers license... I'm sorry..❤

[@Monica-gj2yx]

Me, too. Always been an organ/tissue donor or for research if donation is not possible. My father died after a failed quadruple bypass and the installation of four pig's heart valves.

[@Jomama02]

​@@lberg5575IT isn't right to berate a person's point of view on organ donation. Just don't. You have not seen what she has and have not gone through what she has. And it's a very personal thing. I also have taken organ donation off of my license. It doesn't make me a bad person nor do I have a hardened perspective. Quite the opposite.

[@DrParapsychologist]

@@Jomama02 In some states, even though you have "Organ Donor" on your license, your FAMILY has the last say so and has to agree, know matter what your wishes are.

[@takenoprisoners837]

@DrParapsychologist my father had open heart surgery he had 4 procedures done. The doctor called me after the surgery and told me it was a success. The next morning they told me about 14 hours after the surgery he had a grand Mal seizure which led to a massive stroke on his left side which left him paralyzed and comatosed. I just knew they weren't telling me the truth and I found out My suspicions were correct. He never had a seizure or a stroke. We found this out months later from the neurologist and all the tests she ordered. He was in a coma for about a month and my Father is my best friend and currently my roommate. He has a very large property and I had recently gotten out of a very unhealthy relationship and eventually when he did come home I acted as his caretaker which was great because I knew he was getting the best care possible around the clock from me. The promise you the world when he was finally discharged but give the bare minimum of help. It's extremely sad.

[@Zvynb]

“Our bodies are built to die, they know how to do it” wow this gave me so much relief ✨

[@dalequale9365]

I'm 69 and the healthiest person in my veteran housing. My neighbor is now in the hospital 🏥 again so mortality is so REAL. I'M OK with that but you've removed the terror of the dying process. 🙏 You're an angel 😇 🙏

[@wanderer44-xr5si]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@THEMamaVicky]

COPD, CHF, AFIB, and that deep breath occasionally is worth all the gold in the world! Rare, but so worth it.

[@jbone6246]

I have afib and mildly enlarged ventricle/atria and the shortness of breath can be scary. I try to just get somewhere cool and do something that isn't physically demanding and it passes with time.

[@miedgarful]

I was treated for CHF at the age of 48 and spent 10 days in hospital. They say that I have Dialated Cardiomyopathy and AFIB. I swim 5 times a week at my favourite outdoor pool and I am turning 64 later this month. Don't give up and keep moving.

[@LemonLimes99]

have you been in remission all this time?

[@marlenea.6465]

Best wishes for you ❤

[@miedgarful]

@@LemonLimes99 Yes, I but I feel a slow decline and increasing fatigue.

[@peterkoh5632]

Good for you, as each body is differnet and glad that you are doing well. always have hope.

[@MrAbbadabbado]

I have Dalated Cardiomyopathy as well ,with a CRT-D pacemaker (so a combination pacemaker /defibrillator...along with medication I'm doing fine...I was diagnosed at 55,now ,59...oddly enough its the little things that are bothersome...cleaning, bending over ,recovering from lightheadeness or dizzyness ...all in all though I'm very lucky and can live alone self sufficient till now,hopefully the heart function I have with stay stable for many years!...but keep moving ..like swimming ,walking...the muscle still needs a work out,...best to anyone suffering with this or any other chronic desease and hopefully hospice is not a necessity...

[@MrScscraig]

I'm in an assisted living facility CHF& COPD. I have 4 copies of your book. I share them with residents and staff. You helped me put a name on air hunger. I'm telling everyone I meet about your channel channel. Bless you and the work you're doing.❤❤❤

[@hospicenursejulie]

@mrscscraig! Thank you for being so supportive 🥰🥰. You are probably helping so many people where you live. 💕. I'm glad my channel and book helped you 🥹🥹🥹. Truly means the world to me

[@maryhruth]

Julie, what an amazing service you are performing with these videos. I've watched many and continue to appreciate your knowledge, guidance, and compassion. As a hospice volunteer, I find it is so helpful to tune in to your instruction!

[@jebediahgentry7029]

Watched my dad and uncle pass from CHF. Everything you said was spot on and exactly how both of them declined, like it's crazy how literally everything you said is what I saw with both of them. They went for years and years where you couldn't really tell they were even sick if you didn't know already. When they declined in the last year it happened pretty fast.

[@sillililli01]

My Dad lived with CHF up until he passed away 2 months short of being 99 years old. He lived with only 15% of his heart functioning for decades after being diagnosed as having CHF. He was doing well, all things considered, he would travel regularly, looked good for his age, and had a healthy appetite. The staff at the hospital were surprised by his activity level right up to the end. So, for those of you living with CHF, whether it is yourself or someone you know, take heart (no pun intended), and live your life.

[@fathersonbrotherunclefrien4238]

I was with my late father when he passed and you’ve described so much about what I saw (he was 55 and lung cancer). This video I cannot thank you enough for the knowledge shared and insight into my mums current condition, you’ve literally described my mum perfectly with her severe COPD, swellings, breathing, walking, sleeping more, hospital stays etc - I will share this with my sister and will continue to view your amazing videos and God bless you for the work you do…..I’m an ex prison officer/warden and have a strong desire to find a career in a hospice to help people. PS: I was hit in the face by a speeding vehicle aged 17, I suffered catastrophic head injuries and miraculously walked out of hospital just 10 days later to the bemusement of consultants, and while laying on the road with blood internal and external, I experienced an out of body near death experience. I wonder if you’ve any views on this? It’s something I can intricately describe but couldn’t type it all here. 🙏🏻⚖️💙

[@mygreenfroggy]

Thank you for helping me deal with my mom's hospice, you made it so much easier. I knew what I was seeing and what was happening. Thankfully she was only on hospice for a week before she died, but it was peaceful and I think she was comfortable.

[@peishancraken]

Psychedelics are just an exceptional mental health breakthrough. It's quite fascinating how effective they are against depression and anxiety. Saved my life.

[@speedemonxs]

Can you help with the reliable source I would really appreciate it. Many people talk about mushrooms and psychedelics but nobody talks about where to get them. Very hard to get a reliable source here in Australia. Really need!

[@47151632]

Yes, dr.porassss. I have the same experience with anxiety, depression, PTSD and addiction and Mushrooms definitely made a huge huge difference to why am clean today.

[@rhysbartram]

I wish they were readily available in my place. Microdosing was my next plan of care for my husband. He is 59 & has so many mental health issues plus probable CTE & a TBI that left him in a coma 8 days. It's too late now I had to get a TPO as he's 6'6 300+ pound homicidal maniac. He's constantly talking about killing someone. He's violent. Anyone reading this Familiar w/ BPD know if it is common for an obsession with violence.

[@speedemonxs]

Is he on instagram?

[@47151632]

Yes he is dr.porassss.

[@cassandrapua5970]

Thank you for this info, my husband has CHF and now I know what to expect when the time comes.

[@devindarko89]

I lost my husband 6 years ago to cancer and watched him die. He was 30, i was 28 at the time. It was so bizarre to watch and was my first death experience. Your videos are helping me cope with this experience and helping me feel a little more at ease with knowing my time will come one day too. Thank you❤

[@tonybennett638]

Thanks for your solid input into something almost no-one wants to think about... until they have to.

[@diane5593]

That's my husband! In total denial about my terminal health problems. Gets angry when I try and talk about the end for me. I'm already on palliative care,and he tells himself and me with the right meds, care I'll be able to go hiking again,and live another twenty years!😢 Is this commen?

[@Strongirly76]

My husband is 47 and just came home after 3 weeks in the hospital and they advised hospice as he is in the final stages he has COPD, CHF, and lupus. Our four kids as well as myself are devastated! Thank you for your videos they have been very helpful ❤

[@juliewesterling9045]

My Dad died of CHF also had Diabetes. We were told he had a week at most to live so he came home from the hospital on Hospice. He was awake for 2 days then went unconscious and passed 2 days later. Mom had to give him Morphine during that time. His death was peaceful thankfully.

[@MeanOldLady]

Yeah, that's preferable to dragging it out.

[@n.f.6126]

@@juliewesterling9045 Same situation with my dad. Once he started getting morphine, he no longer needed oxygen, he was so relaxed, he passed much like your dad.

[@GregSr]

Excellent info. You described my 88 year old father almost exactly. He lived with us for six years before he died. He was on hospice less than a month. He was so weak at the end but he really enjoyed taking a shower. We got him a special chair he could sit on in the shower. Then he would just sit there with the water pouring over him. When he was done I'd hear the water shut off. I knew he needed help getting out of the bathtub. I'd help him step out of the tub and then place his robe over his back and towel him off. He seemed to enjoy the whole showering process. I felt good being able to help him with his shower. His whole demeaner improved after taking a shower. Now I look back on those days fondly.

[@elbee1290]

Beautiful. Thank you. My Dad, too....89, weak with CHF, but loves his showers.....God bless you and your father

[@dinaflores]

Same with my Mom whose had a stroke due to Afib and CHF with some type of recent forgetfulness coming on. She wants to shower every day and we had to remove her shampoo cause her hair was getting so dry. She can still dress herself albeit slowly, but she loves her showers.

[@ctconway8684]

@GregSr is priceless, perfect story thanks for sharing

[@Sentimentalist0923]

My father died in May 2021 from CHF. All these things you described took place. Oh how I wish I would’ve found you before that. Thank you for helping so many people understand and be prepared 🙏

[@jamesduncan578]

I have watched many of your videos and appreciate your approach to the end. So many people act like we should live for ever and death is another disease. We all will die, how is up to the universe (God if you prefer). I have no fears of dying, only hoping that is quick and sudden. But if not, then I hope that I get someone like you to help me to the end. Bless you for what you do, both with people and with this channel.

[@kathylee5711]

Thank you for your channel. 4 years ago , my mother was 99, and after 2 years of being bed bound , she finally passed away peacefully. I was the main caregiver. Although my mom had a wonderful team of doctors and nurses. I learned a lot from your channel. I just love your matter of fact approach, which made everything so much easier. Thank you again.

[@auntiem9758]

My mother died from CHF this morning. Life is different and I miss her like crazy already. However, Julie, your videos have been a wonderful resource over the last few months for me. Thank you.

[@wannabe41]

So sorry for your loss.

[@smajd86]

I wish you whatever brings you peace and comfort at this sad time. ❤

[@lindabeall5614]

@@auntiem9758I am so sorry for your loss. Currently going through my Mom having a heart attack with CHF. Prayers of comfort for you.

[@vanessita4138]

So sorry for your loss. My deepest condolences 😢❤

[@angelas3864]

I’m so sorry. My sincere condolences 🙏

[@createdandmadeful]

Thank you so much for this information. I've been in AFib since 2013. After numerous failed cardioversions and an 11 hr long ablation procedure that also failed, I've decided no more medical procedures. I'm 68. My PCP told me my future likely involved dying from a stroke or CHF. Only this year has the edema in my lower extremeties become a problem, but the biggest thing is the shortness of breath. I'm still low functioning and can even drive for short periods of time but I've really seen a decline in ability to perform ADL's. Your video is very much appreciated!! Thank you!!

[@jbone6246]

You are strong, that much is certain. I say this because I too have afib, but with me it comes and goes away. When I was first diagnosed, it would last a couple of hours then go away but with medication it now usually only lasts a few minutes when it happens. I know I am in afib when the shortness of breath starts and sometimes a pain in my left side, and sometimes can feel palpitations in my back when it happens. I would freak out if those symptoms lasted for a decade without end. Take care and be well.

[@katmom99]

I think you are wonderful! Thank you for what you do and sharing this info. It takes someone special to be a hospice nurse and YOU are!

[@Chrisgraww]

Hello 👋Beautiful Lady 🌹..How are you and the weather condition like ?

[@BrainBrew-hn6dz]

May God Bless You and Yours, Julie, for you and your channel are a Godsend. I recommend your YT channel to many folks, hoping that they’ll find your YT channel as informative and entertaining as I have. Thank you, ma’am!

[@Xeyedjohn]

She is like an Angel giving us such good information and guidance.

[@jelizabethpetrie6656]

Thank you for explaining better than any doctor has bothered. Caring for my 95yo mother with a pacemaker from Afib. Yes, breathing, fatigue and edema describes her bad days. Thanks for reiterating the lack of eating and drinking is not something to nag them about..thanks again.

[@raustin2287]

Thank you so much Julie for sharing your knowledge and compassion for your fellow beings. I got very sick after working all day December 5, 2022 from a defective heart valve and went into afib and stopped breathing and my heart stopped twice. Went into chf and managed it until I was able to have heart surgery 6 months later. I continue to have a lot of the symptoms that you just described. Some days are good and some days are bad. Was told how much better I was going to feel and I would be able to go back to work in a couple of weeks and so on. Think they call that gaslighting. But you are spot on with what you’re describing. It’s very discouraging and scary waiting on the “next” event. Thank you for all you’re doing to help us understand what’s going on with our disease and what to expect. The world needs more Julie’s! ❤

[@wanderer44-xr5si]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@Jodelle0503]

So many thanks, Nurse Julie❣️ These videos are fascinating for someone who is starting to lose her loved ones.❤

[@katboss1919]

My Grandma just passed June 22nd 2024 from CHF man I miss her. with these videos gave me the understanding I needed during the right time

[@BobSebring]

My condolences 🙏

[@jamestlynn]

My mom passed away today 9/13/24 from kidney and heart failure. After two weeks in the hospital and countless tests, we were told she wasn’t a candidate for heart surgery, but she couldn’t go on dialysis because of the her weak condition and her bad heart. (She actually had expressed to me verbally years ago she would never want dialysis so I don’t feel guilty about not seeking a second opinion about dialysis). We decided on hospice and luckily I found and watched you’re videos and they greatly helped me prepare for my precious mom’s passing including managing her symptoms as well as what to expect as her passing grew closer.

[@Linnie1021]

Thank you. I had a wonderful experience with hospice when my husband crossed over 20 years ago. He chose hospice care at home for end stage COPD at 54, and stayed under their care until his death 3.5 years later when he crossed in my arms. I am 76 and have CHF; had triple bypass open heart surgery 2 years ago, and diagnosed with stage 3b chronic kidney disease yesterday. I am also diabetic and recently had surgical procedures on both legs for Peripheral Artery Disease. Also am a 5x cancer survivor, and have other painful chronic conditions and I have had to use a rollator for a couple of years now. Even with all this, I am not negative, and I carry on active conversations with my Grandmother, husband and Daddy who are all on the other side. Although I have been near death several times, and have mentally prepared myself to transition (as much as I can), I will be here until God calls me. I guess He is just not done with me yet. 🥰

[@Groundedsquirrel]

Thank you. I am current (long distance) caregiver to a CHFer w cancer. Just got back from two weeks w her. I also have CHF. I have seen the end stage w another close family member. This is so very helpful. One thing I have learned is that the “expiration dates “ given by medical professionals can largely be ignored. In my experience people tend to beat the odds for months or even years.

[@glowilk5377]

Hi Julie, I found your fantastic channel this AM. I am a rural EMT, 10 years licensed. My very good friend died of CHF. I studied it in my classes, right side , left side, the swollen ankles, pitting edema, etc. I knew she had CHF while I was in class. And each year I saw her progress down you could say and I witnessed her S&S and decline. I heard of her last day at home where she fell and could not get up and her excruciating transport to major city in our state on a backboard if you can believe that. She was in such pain. We talked with her family and her multiple kidney dialysis in the attempt for consciousness . They just wanted to talk with their mother one last time. All the time I was thinking, what a waste of resources -they didn’t have reality in focus. I knew what was happening to my friend clinically. I kept my feelings quiet of course. CHF is a horrible way to die, it just drags on.

[@gretchenjaeger1551]

God Bless you! I am a new CNA caring for a prostate cancer 96 yr old. Your videos have helped me so much!❤

[@LittleBlueFish87]

My youngest son had CHF from ages 9 to 14. He had a heart transplant 11 years ago that eliminated the CHF. So far he’s doing really well.

[@lauridorrance1305]

@@LittleBlueFish87 I hope he continues strong!!

[@amypinigis7233]

🙏🙏🙏✝️

[@shawnwashington1778]

Thank you for your videos. My father passed away today. Watching your videos before he passed away has helped me deal with knowing that he really well his final days. God bless you & Thank you.

[@sirikoorapaty]

Thank you Julie. My dad is nearing end stage CHF & it is hard to watch his decline. The information you provide gives me courage & comfort to deal with the inevitable. Thanks again 🙏🙏🙏

[@MamaBearWimzi]

You never cease to fill my heart with hope. I am not looking forward to leaving this earthly plane and can see that I have congestive heart failure symptoms, so I am super glad to see your video on CHF. Thank you Nurse Julie. I think you should get some sort of humanitarian award for not only being a hospice nurse but being a beacon of information on death and dying. Thank you,

[@andrebordeaux5700]

You are fantastic! Thanks for your educating manner and compassion. God bless you

[@kisaak3977]

I want to thank you for these videos. My aunt died a few days ago and I was able to be with her, along with other relatives. Your videos prepared me for the process . It was less stressful as a result. ❤

[@deniseg229]

Ten years ago my dad was diagnosed with chf and had a pacemaker put in and years later a Watchman. Last few years I’ve been his co-caregiver. He had many hospital visits and was very difficult to control his edema. A year ago in entered the last stage of chf. In May he started palliative care. He made it clear he would never go back to hospital and had a dnr. One day in June he had a good day and was happy. I gave my parents some ice cream and dad told me it tasted extra good tonight then some family members came home from being out all day and 2 minutes later my dad was all of a sudden not responding and tongue sticking out, he passed away from cardiac arrest. He was 92. We are grateful he passed with his family around and at home just how he wanted to be.

[@johnduffy6546]

GOD bless you! This video came at such a time that I would have to say it was, "Heaven sent." After 26 years in healthcare, IMO, Hospice nurses are a special breed of Angels. I cannot thank you enough...THANK YOU

[@B-Real-Pshh]

Thank you so much! I'm currently caring for my father on hospice. He has CHF plus kidney disease and although doctors said two months ago he may not make the transfer home he has fought to stay with us. I am hoping he passes peacefully in his sleep. One day he seems perfectly fine and the next day seems like his final day, even the hospice nurses are surprised at his fight

[@majo3423]

Thank you Julie. This subject is what I need. My husband has CHF and he can still shower and dress himself but he is getting worse. He weighs almost 400 lbs so I worry and wonder what will happen when he can’t do these thing but doesn’t need to be in hospital. His Doctors never address my worries. I’d appreciate input from commenters also. You are a blessing Julie. ❤❤❤

[@RukiTheAnimeNinja]

I could have written this about my dad. You're not alone. ❤

[@reneesoli5345]

Is your husband's weight fluid build up?

[@majo3423]

@@reneesoli5345 no. He takes water pill daily. He’s just very heavy

[@reneesoli5345]

@@majo3423 my husband has CHF as well and I asked because I have read that CHF patients can gain water weight rapidly.

[@Aurora-27]

I wish I had seen your video a few years ago when my dad died from heart failure. Knowing what to expect would have helped us so much. Thanks for the information.

[@myvoice32]

Thank you for your video. When my mom was diagnosed with CHF I tried to get her palliative care doctor to explain it and she just wouldn’t. I don’t know if she thought that by not telling me the raw facts that it was going to make it easier, but it made it actually much harder. I go back and look at your videos and get comfort that what had happened with my mom in her passing was a natural process due to CHF. It helped a lot for my own guilt Because I didn’t understand what was going on. I hope more physicians do not shy away from explaining this. Because that approach is not helpful.

[@Donna-w4f]

Julie, my mother passed from CHF. She did sleep more, but she actually ate the day she died. Your videos are great. I wish I would have found your channel sooner.

[@roserocker62]

I’ve learned so much from you explaining end of life . Thank you for all your explanations . You are very easy to understand . Thank you. I came up on your videos shortly after my mom’s passing in Dec. 2021. She was in Hospice for 7 days. All your explanations are exactly what she went through and i can only hope & pray that when it’s my time , i go as peaceful as she did. Thank you nurse Julie . You are a gem!

[@SuperGigi06]

My dad had it but was only able to have 1/2 heart surgery in November but then died in May the following year. He didn't tell me he was sick. I found out about a little more than two weeks before he passed away. I got to see him exactly 2 weeks before he passed. He lived 2 hours away from me, that's why I didn't see him much

[@debrawake1023]

My husband passed in May from end stage copd and CHF. We thought he was getting better but after multiple trips to the hospital. I believe the high levels of steroids from the hospital created an illusion. He started getting more tired and was eating less, he loss 30 lbs over time. Yes he had shortness of breath and had been on oxygen for years. In my opinion, looking back on our experience, he may have benefitted from more meds than he was getting. He was wanting to get in and out of bed every hour or two, it was exhausting for us all. I think now he was experiencing agitation. We loved our hospice team!

[@Chrisgraww]

Oh really so sorry about your loss. How are you and the weather condition like ?

[@kareldebures7006]

You explained this so well even I understand it! Happy Hump Day Julie!

[@hospicenursejulie]

Thank you!!

[@lavernedofelmier6496]

My dad was on hospice for two years off and on with CHF. Finally was just worn out.

[@theblockcat-ain1572]

My father was 92. Passed in the hospital of RSV and phenomena. Congestive Heart Failure. I miss him so.

[@bradr2142]

I've been with you from the start nurse Julie. You have great presentation about such an important time in one's life.

[@romanaannanova]

The love of my life - my dog, died of CHF a couple months ago. It was rather peaceful, actually. Although I had him Pts'd when he probably only had a day or two left and I regret that. I'm still bewildered that even though I contacted several vets and holistic experts, I wasn't getting the info I needed to navigate this well and to be able to make the right decisions for him. Thats why I've been learning all I can about dying ever since. He developed lung oedema towards the end with the exhaustive constant coughing that dogs with this disease get, and luckily I was able to resolve this with homeopathy. Also cuddles calmed his laboured breathing down, it taught me a lot about how important loving presence is. But I just don't understand why I wasn't offered morphine. Instead, two vets were willing to put him on IV fluids for dehydration, which I wasn't so sure about and later I learned that it's complete nonsense for a dying person, much less for a dying person with oedema! I'm just so sad that even the experts know so little about care for the dying. Thank god for people like you who are doing this education.

[@nomadicfenceman509]

I have CHF, Afib… edema in my lower legs, controlled high bp…, used to weigh 485 now down to 340….been building fences in the Florida sun for 47 yrs… I’m 65 and still working. The key is keep moving your body.

[@carmennooner2027]

I was terrified to go on morphine for a different disease, but once I finally gave in, I realized I was able to live a more productive life again. As long as it's well managed and you are honest with your doctor, you have nothing to fear. Yes, I was ashamed to admit to anyone that I was taking morphine regularly, until I told my psychologist about it. I told him I was afraid to admit I was an addict. He said that I wasn't addicted, but dependent on it. There's a difference that I have finally come to terms with. Just as others need insulin every day to help them with diabetes, I need morphine (small, time released dose) to get out of bed. And if you have a terminal disease, appreciate the fact that the remainder of your days will be spent more comfortably.

[@robert1293]

Wow. Fourth CHF You Tube I have looked at this week, and this was the most concise and informative. Thank you so much. I have CHF and trying to understand my future. Like some of your comments below, my team of heart-liver-kidney doctors and NPs are not good at describing the long term process of dieing of this disease. You did a really great job in 8 minutes. You also offered caution that much of your information begins at hospice, however, you did offer much that also applies before hospice. One also needs to read the comments below to embrace that exercise and diet are the best medicine for extending one's life under CHF. Thank you, again.

[@farahmohammed1963]

Excellent! Excellent! Excellent!! Thank you Nurse Julie, for helping us cope throughout some of the most difficult challenges we face in this life. Your calm, matter-of-fact manner gives me the greatest comfort and strength to face these challenges with grace & courage. It is all because of you!! God bless you and all of your good works!!🌷🌸🌺💐🙏

[@BobSebring]

My mom had died from CHF and now I got it. Thanks for the info.

[@debbyemison3281]

Thanks so much. I am on hospice and love the care I receive. Your videos have helped me become even more comfortable.

[@haroldlinton8036]

Thank you so much, Julie. Your videos are very enlightening and informative, and are appreciated very much.

[@jim-brendasleeth2521]

I just want to thank you for your videos. I just watched this one and it has educated me considerably. My wife has early onset Alzheimer's and I now have a better understanding and information that will be important to our GP. Thanks again.

[@loriard190]

Thank you for explaining everything. I just wish I had found you before my mom was on hospice. She only on it for three days so I couldn’t get to know her nurses. I had lots of questions but as I watch you I’m getting the answers I was looking for. Thank you for the knowledge I will definitely need in the future.

[@Kelliedavis]

Hospice is great. They educate the family and there so compassionate

[@SS-lt3jd]

Such an awesome info and that's what's my mom nurse explained to us today 🎉thank you nurse Julie

[@HeatherRenee2017]

My grandma just got diagnosed with Diastolic Congestive Heart failure and already has constant A-Fib. She’s 86 and she said she’s ready to go, she has a DNR and my aunt put her in the hospital because she had a hernia and ended up having a full abdominal surgery to fix it, not a laparoscopy. She’s so mad and frustrated because it’s not what she wanted, she’s been screaming and crying wanting to go home. 😢 I feels so bad for her but can’t do anything because I’m not her POA.

[@fredaowens2728]

I wish I had seen this when my my mother was diagnosed with CHF. I never saw anyone die slowly before and didn't understand what was happening. Now I know she experienced some normal things and some not normal, treatable things while going through the process of dying. I was very busy denying her death. If I had known I might have been more of a comfort to her.

[@shrs.3448]

Nurse Julie, thank you. You are God send. You explained the dying thingy so well. Appreciate you. Blessings from LA.

[@testetwitter7100]

From Brasil, thanks for your work here. ✌️

[@Gusthedawg]

Thank you for your service.

[@wandacason1792]

Thanks, Julie. You are the best. Education is key. I have a limited medical background and your videos help educate and show the human compassion.

[@lesleyhoban6559]

Th at 72 I've been told I have congestive heart failure ... electric system is winky...the more I know the better prepared I will be

[@wanderer44-xr5si]

Just want to remind you about the most most important decision we need to make before we die, and that is to receive Jesus as our Lord and Savior. I just wanted to let you know a little about what the bible says. It takes more than just believing in God. John 3:3 says, we must be Born Again to get to heaven before our time is up.. Everyone has sinned and fallen short of God's glorious standard, and all need to be made right with God by his grace, which is a free gift. We need to be made free from sin through Jesus Christ. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, which means a change of mind, and putting your faith and trust in Jesus. Romans 10:13 says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven. That is why Jesus died on the cross. He took all of our sins upon him, so that if you accept Him as your Lord and Savior, you can have eternal life in paradise. You do not get there being a good person, or doing good deeds. Many people believe that is all it takes. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort before your time is up. Its the most important decision of your life. You can then have that peace and assurance of salvation in your heart. All you have to do is humble your heart and pray with faith,... "I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Jesus to forgive me of all my sins, come into my heart, and take control of my life. From this day forward I want to live for you. ..... It's not about the words, it's about your heart. The Lord will then send His Holy Spirit to live on the inside of you. The Holy Spirit is Gods seal of salvation, and your evidence you have been Born Again. He will transform your heart and mind. He will bring you into a personal relationship with Jesus. You will become a new person inside. 2 Corinthians 5:17 says: “Therefore, if anyone is in Christ, he is a new creation; old things have passed away; behold, all things have become new”. Its truly amazing! You will be filled with peace, love, and joy of the Lord inside you. All the fruits of the Holy Spirit. He will comfort you in your time of need, and give you the strength to endure. No matter what you are going through, Jesus wants to help you through it. You can lean on Him. Its the most important decision of anyone's life. God's Word says that we are saved by grace through faith in Christ Jesus and not by our own efforts or works (Ephesians 2:8-9). Grace Alone. Jesus is the only way to heaven. Please believe me, its all in the bible. Its the Word of God..I am not judging or condemning anyone, just letting you know there is much more if you put your trust in Him. Jesus cares for you, and does not wish for you to be separated from him. Please don't wait. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. I'm praying for you. Please ask Jesus to come into your life today, my friend, You are special to Jesus. Romans 10:9-10. "If thou shalt confess with thy mouth the Lord Jesus, and shalt believe in thine heart that God hath raised him from the dead, thou shalt be saved. Be blessed

[@MMXX55]

I have scleroderma antibodies AND lupus antibodies creating an "overlapping" rare experience. And Lord knows it is hard to remain unangered when all ailments are undeserving. "You & your videos brought me personally a joy & peace that cannot be described. Love you like family & thanks"

[@alicecain4851]

I'm glad this has been invented, but so sad that it's needed. My children are all childfree by choice. I've never been so happy to know that I'll never have children or grandchildren who might be hurt or killed in a school shooting. If I still had school-age children, I would be keeping them home. Even to the point of moving to a smaller home.

[@TheThriftierPerson]

Luckily I survived head and neck cancer two years ago.. so why watch your videos? To help me understand that the body knows what it needs to do and when that times comes.. I will be fine.. I am not as afraid as I was. Thank you for helping me understand. 💕

[@gailg1458]

Thank you. I hav CHF and find great comfort in your videos.

[@stevefavia]

Great video Julie!,just purchased your book,can’t wait to read it!

[@richardmacpherson3924]

Thanks!

[@michellenicole3305]

My father is going to see a cardiologist next week but with the symptoms you just mentioned, I believe my father has CHF. He has had periodical swelling in his legs and feet and he is always short of breath. He got to a point a month ago where he couldn’t drive or even walk without help. Today he is back to normal. He doesn’t think he needs to see a cardiologist but I said to him, do it for me please. For Peace of mind! He says he doesn’t want to spend the money on the cardiologist appointment. He’s also allergic to morphine.

[@grantgoldberg1663]

The key to not ending up in hospice from CHF is treating high blood pressure early. Once it's gone on too long the heart grows because it's a muscle which squeezes the ventricles to the point they can't pump right. I had alarmingly high bp at 38, went on beta blockers and thank God I did. I'm 45 now. I would have been on the road to this otherwise.

[@nanbarber6631]

My husband died of CHF. He had a pacemaker. Unfortunately, he declined quickly the past year of his life. I didn't have any help and I'm also the care giver of our severely autistic daughter.

[@patrickflohe7427]

I’m so sorry. May God bless you.

[@angelas3864]

I’m so sorry. 🙏

[@elbee1290]

So challenging. I hope you find the strength to carry on, your daughter is blessed to have you taking care of her.

[@stevenseltzer986]

Great video! GOOD LUCK WITH YOUR MOVE…….and congratulations…..very excited for you….Sally

[@gsilcoful]

Thank you.

[@ivanhicks887]

Thankyou for the Truth

[@irmapena9319]

Great info. Gracias dear Julie

[@jesse73jl]

You have so much info I thank you for your insite

[@shirleyporter7795]

My husband died of chf/copd 2 weeks ago. We are living in Belize where home hospice is not yet available. He hated the thought of going to the hospice house, so I took care of him at home. Your videos were in valuable to me to know what to expect. At the end he wanted to sit up. Do I pulled him up and propped him up with pillows. He looked at me and said If this is how I've gotta go, it sucks. A few seconds later he looked up just above my head, eyes wide, and smiled. Then he closed his eyes and just stopped breathing. Thanks for preparing me for all that!

[@elbee1290]

Awww, this must have been so hard. I'm sorry for this. I sincerely hope a family member or beloved friend was waiting to bring him over to the other side and that was the reason for his smile....

[@larryulery3729]

Thanks Julie it helps in knowing what to do in actively dieing.

[@TravisGrant-q9f]

Thank you young lady I got to help my wife one of my brothers and my father wonderful experiences 😇❤️😇❤️😇❤️😇

[@mskat1954]

73 yr old husband was recently diagnosed with CHF & stage 4 kidney failure. Trying to learn as much & fast as I can. Doesn't eat much anymore

[@FullTimePatient37]

Thank you again and again for speaking about hospice cases ❤ can you talk about mitochondrial diseases if you have seen that , thank you Julie again 💌

[@Goosa125]

Hi thank you for the wonderful videos you make very informative I do appreciate your time that you make to make these videos to educate us I am 26 recently diagnosed with CHF I had a heart catheter done I have the left side ejection fraction of 45 and was told my heart isn't squeezing properly however I am currently taking medication and hoping that helps I no longer have symptoms of shortness of breath or lightheadedness I also take water pill I love the videos that you make and I do appreciate you for making them thank you for educating us. ❤

[@theresa5168]

Hello, thank you for your help.

[@Kay_The_Coffee_Weirdo]

I'm convinced that some people have direct control over their moment of death. My grandfather was in failing health for several years, and he had congestive heart failure due to several heart attacks over the years. He went into the hospital a month before he passed, and him and my grandmother signed a DNR. Then he went into the hospital due to renal failure, and they told him he had three days to live. They were planning on sending him home to die at home on hospice, and while he was talking to the hospice nurse, she told him she wouldn't be there to help my grandmother to manage his care. He literally died right there on the spot, and I'm convinced it was his choice to die right then because he didn't want my grandmother to be managing his care at home without professional assistance. There was never any cognitive decline, or gradual death process like you describe. It was sudden and seemed almost deliberate. He was found to only have 17% of his heart working when he passed, and he should've died long before that. We're all convinced he held on because he was afraid my grandmother wouldn't be taken care of. He was even jokingly naming suitors for her on his deathbed. I think my grandfather said something about seeing his mother in the room, but he was sharp enough to know how crazy that sounded because she'd been dead for 30 years.