How does Freya communicate?

[@Jennifer-qo4kz]

What a lovely family. And such a devoted mom to sweet Freya and her siblings.

[@Freyasluckyarm]

Thank you

[@junehulbert2885]

I love how your giving Freya options of communication to choose from. ❤️❤️❤️

[@Freyasluckyarm]

She is very opinionated. So we like to give her all the options

[@cheryleverard9728]

Like anything with a “typical “ kiddo, communication takes time!!!! Freya is a beautiful child. In fact all 4 of your children are beautiful. You are doing the right things. Keep it up. Thx for sharing

[@dawnedwall5419]

Freda is such a little doll. That smile will get her whatever she wants. 😊

[@streatfamily4430]

Love her smile... I lost my son at 28 been watching her puts me in happy mood hugssss

[@MarilynHolmes-kj2qc]

What a gift to be able to sign to engage the whole family. I love to watch her with you Marci as she watches the camera and smiles, she is a joy that overflows in the midst of learning how to do life with medical complexities and a limb difference. I love it that Freya has her own personality just as Liam, Fiona and Jesse do, and she seems to be determined too. Hope it is a sunny day and you have a great weekend together.

[@Freyasluckyarm]

She has quite the personality 😂and it quite determinef

[@kathybula6434]

I just wanted to say you are such a beautiful mom.❤

[@Freyasluckyarm]

Thank you so much

[@racheltessmer925]

Oh Freya! I had to laugh when she hit the the big button and music started...was Freya doing a little dancing? 🤗 I like how you explained how Freya communicates. Nice to see your family at the end of the video. They do well on the camera! Thank you for sharing your life! Love from Minnesota!🙋‍♀️🐖🐄

[@Freyasluckyarm]

Yes she loves dancing.

[@meowhisd4546]

Freya has such a great momma, I've always had issues with communicating for myself in ways, so all these options for her gives her so many ways to let you know what's up! She's such a smart lil one, she's thriving!

[@janetslicer3637]

That was very insightful to me. It is very sweet when she wants Daddy! Nice to see everyone again.

[@Freyasluckyarm]

She always wants Daddy

[@maryjones1]

Love Freya’s outfit today. I really look forward to her signing, and one day maybe speaking. When she was drinking her bottle, I thought she may have been smiling, as her eyes lit up. Then, she moved the bottle slightly and sure enough, there was her sweet smile.

[@Freyasluckyarm]

I love when she smiles behind her bottle. You can totally tell

[@letsdothis-chris]

Aww little sleepy eye's. She is so adorable!! ❤

[@Share2885]

She is Freya perfect

[@Fabviv]

I love your family! I can tell your children are loved

[@Danielleb723]

Freya smiles with her eyes. I noticed that when she was drinking her bottle. It seems that she really has a special bond with mom. When she listens to mom explaining her syndrome at different points in the video its like Freya loves that her mom and other family members know her so well.

[@Freyasluckyarm]

I love when she smiles behind her bottle.

[@DonnaGibbs-p4b]

She is a special little girl. Amazing 😊

[@hildacardenas-cn2pu]

She is so smart and cute . I like how she uses her lucky arm just like her good arm💜🤍

[@Freyasluckyarm]

She does. Her lucky arm is the good one in her opinion.

[@dawnaw1434]

Freya is such a darling little girl! I have always had a soft spot in my heart for Special Needs people. It's nice that she's learning Sign Language to communicate. Years ago I was a professional Sign Language Interpreter for USU, I interpreted for church meetings and Logan LDS Seminary. I also worked for our School District as a Teacher's Aid for the Special Education program and helped to teach a little girl Sign Language. I've known Sign Language for 43 yrs. and went to college for it. I also worked with the Deaf Community and had friends who used Sign Language. You don't have to be deaf to use it. I didn't know if you were aware that there are 3 kinds of Sign Language: SEE (Signed Exact English), PSE (Pigeon Sign English which is most commonly used) and ASL (American Sign Language). It's more difficult to learn because it's not English Order and is most commonly used in the Deaf Community. I thought this might help you. By the way, I live in Idaho.

[@Freyasluckyarm]

Thank you. For now we are using one word signs but as Freya’s vocabulary grows I would love to learn ASL

[@lynnparrish1335]

She really is adorable and for sure she has her own unique personality!

[@suemuster9826]

Keep up all the good work you're doing? I just love you and your family. I started watching Sebastian, and he is adorable.❤❤

[@Freyasluckyarm]

We love Sebastian!

[@priscillavelazquezs]

She is very smart, and her sweet siblings certainly help her communicate better. 🌸

[@amyb2646]

Thank you for sharing this, Marci! That is so awesome that Freya can sign. It is great that she has ways to communicate. I can see how much her sisters and brother adore her and understand her. You all are blessed! Sending all my love and hugs, God bless you all 🤗❤️🙏🏻🥰💞

[@Freyasluckyarm]

They are better at knowing what she needs than I am.

[@amyb2646]

@@Freyasluckyarm Aww, they are so blessed! ❤️🥰🙏🏻

[@melindajohnson8586]

She is so pretty! It is easy to see how much she is loved and the joy she brings to your family.😇

[@lindamarie6574]

Signing is great. I am fairly fluent in sign language and my great grandson was recently diagnosed non verbal autistic so I want to begin teaching him sign language soon. He recently turned 2, so getting his attention is hard. That is nice you giving her options about communications. YOu can find sign language learning online, some free even! Freya is such a cutie and very smart! You guys are in my prayers nightly! God bless your family!❤

[@Freyasluckyarm]

It has been so great for us!

[@jetcitygrljewels9719]

Marci, you have such a beautiful family. I do love to watch this channel. When I was young, I used to babysit a lot. I used to often watch the neighbor kids next door, two little boys. One of the boys was non-verbal. At that time he did not have a diagnosis. I learned some ASL from babysitting. Now, I only remember the sign for more. I loved and still love kids. They are all so special. Sadly, I was not able to have babies of my own. But, I have nine nieces and nephews. I was very fortunate to get to spend a lot of time with them. In addition, I now have six great nieces. ❤❤😊😊❤❤

[@Freyasluckyarm]

More is a good one!

[@jetcitygrljewels9719]

@@Freyasluckyarm ❤

[@createconsiderconnect3356]

Love how consistent you’ve been with uploading! I hope KZbin turns into more than just an amazing outlet to have a community & educating. I definitely support you & your sweet family whole heartedly!!

[@debbiequada8241]

Freya is so sweet I just love her.

[@purpleandred7]

Marci, you are so calm and patient, and you enjoy every moment you spend with Freya. It's really wonderful to see how every member of your family connects to Freya in their own way, and how they know every nuance of what makes Freya tick .. it's awesome that they are involved and each have their own special relationship with her. I'm not sure if this is possible .. but am I the only one who thinks Freya gets cuter and more precious every day? I say yes, absolutely yes! Sending you 🤗💜, Miss Freya 💜💜💜

[@kathryndomer2109]

I can’t sleep tonight, so I got the I-pad out. Freya looks so cute. Her smile is infectious. Have a great day. Love from New Jersey.💋❤️🙋🏼💗💕

[@Krystiluvsu]

Her cute little cheeks!! Just absolutely adorable.😊

[@KevieG]

You are one great mom of four! Freya is perfect just the way she is!

[@barbhelle5481]

Thank you for helping us understand Freya. I think she communicates well.❤

[@Roro19609]

Marci, you are an amazing mom. Kudos to you. Freya makes my day. If I was close by I would love to babysit for you,not only Freya but all your children. Lovely children. Blessings to all.❤😊🫂

[@barbarahansbury2291]

Beautiful Freya is amazing

[@beckyrhodes8280]

Great video 👍 Freya got a great smile 😄❣️💕 You have a great family 😄❤️❣️See y'all on the next video 💖🥰 HAVE A BLESS DAY TO YOU ALL ❤️🙏❤️🙏❤️🙏!!!!!!

[@christinegallagher2536]

She is sooo cute, I love her laugh

[@donnathomson4048]

Thanks for all the info. Freya is so awesome hugs all around

[@judyashton3030]

This was a wonderful video. I wondered if sign language would be a good form of communication for beautiful Freya. And I'm sure you've heard this, but Freya definitely looks like her mommy😊 Have a great weekend, and I'll look forward to the next visit ❣️

[@jessicak4913]

Hands down your a wonderful mama and so good with her ❤

[@suegibson1960]

Love to see her grow!

[@suzybausch8587]

I don’t speak Freya, so if you could ever subtitle those tones you mentioned, or just say out loud what emotion is being expressed with her tone, that would be really interesting. I have noticed that she’ll vocalize for extended periods of time, but I wasn’t sure if it meant anything to you guys. Thanks for an interesting topic today!

[@Freyasluckyarm]

Yea great idea I will try to do that in the future!

[@valerie75104]

Adorable hair, mom!!

[@Freyasluckyarm]

Thank you

[@DesAMowadeng]

I don't know if Freya goes to Primary Childrens but if she does they might have a sign language program through OT there for her. Elisabeth Harris here on KZbin doesn't teach sign but does shorts with sign as well as speaking. She recently has done some where she's suggested good KZbinrs to learn from. If you do look on here be sure the person is actually deaf and be careful that the person isn't British and using BSL. It is possible if Freya chooses to use a letter board for communicating as she gets older and learns how to spell words she could have a laminated letter board that could be suck to a surface that couldn't or if dropped wouldnt break. It makes communication slower but totally doable! I've also seen wheelchair users with huge talkers that sit on their laptrays in front of them like a computer on a desk. Typically once kids learn an Ipad is there voice they arent as likely to break it but accidents always can happen!

[@Freyasluckyarm]

Anything is possible for her and I love to keep her options open

[@colleenford5398]

I love how her hair looks after you've braided it. 😊

[@Freyasluckyarm]

Me too!

[@charlieoglesby3468]

Wonderful video. Always great to see you guys.

[@marilyngaeta1362]

I love watching you. You are such a good mom.

[@suzannewalls1002]

I love you all!!!!🎉❤😊

[@ΑΙΚΑΤΕΡΙΝΗΤΣΙΑΒΟΥ]

Πόσο όμορφα νιώθω κάθε φορά που βλέπω αυτό το γλυκό προσωπακι❤❤❤❤❤❤❤❤❤❤❤❤❤❤

[@betsybabf748]

Stephanie explained that Sebastian has a severe brain disease in addition to CDLS, which is responsible for many of his struggles as well. Does Freya have any conditions in addition to CDLS which cause challenges or does she deal with strictly CDLS? I had never heard of this syndrome so was just trying to figure out what was due to CDLS and what was brain disease related while watching Sebastian to get an understanding of what CDLS entails. Hope that made sense. Have a great weekend!

[@Freyasluckyarm]

She has some different diagnosis from Sebastian but most are due to cdls. She does not have any brain or heart disease

[@betsybabf748]

@@Freyasluckyarm Thank you for answering! I've been raising many kids for so long (eldest is 33 on Monday and still raising school aged children), and have worked in the juvenile system. I am shocked I never once heard of CDLS prior to Freya and Sebastian. Your videos are definitely educating because I can't be the only one.

[@tanisha7801]

Thank you for sharing!! It’s so cute watching her sign! My favorite thing in the world is when my kids would lean to me because they wanted me to hold them. Does she reach up or anything when she wants to be held?

[@Freyasluckyarm]

She is just starting to do both of those things and I love it

[@crystals7979]

Such a pretty little girl

[@jeanmorgan5410]

I use a communication device for my grandson and we use an iPad which has an otter box on it. Protects it better

[@Freyasluckyarm]

We have a shock proof case on Freya’s as well. It might just be one of those worst case scenarios I have in my head.

[@peklin12]

Thank you very much, Marci, for this update concerning Freya’s communication🥰 I like your attitude of accepting and practising every communication that Freya chooses. I live in Germany and work as a speech therapist. A few years ago I worked with a little boy with CdLS and now it’s sooo interesting to see how Freya is developing. Do you know the non-Profit app spreadthesign? It contains suggestions of signs (videos) from different sign languages around the world including ASL 🌍🌎 Thanks again for the video!

[@Freyasluckyarm]

I don’t know that I’ll have to look it up.

[@jennifer_duncan]

It makes life a bit more challenging when a child has a fiercely independent streak, but it’s amazing to watch them discover what they like and make their own choices as to how they want to do something. They become so adaptive and creative and more likely to try new things. I wouldn’t be surprised if Freya decided to use her own combination of communication methods. 😊❤️

[@jennifer_duncan]

Whoops! I meant to post this on the main comment thread!

[@wendymorales5299]

When will Freya stop taking a bottle?

[@Freyasluckyarm]

When she can drink her milk through a straw without choking.

[@Leslie_ann_h]

Tbh, I'm almost 35 and I still use a bottle...... because I have a bad tendency to drop cups or opened bottles. So I use a drip/leak proof sippy spout by the brand Pura or bottle nipple by nubyon the stainless steel Pura bottles. Granted, I have a 22oz bottle by Pura. But, it has saved my bed and my clothing SO. MANY. TIMES! Personally, if something works for someone then they probably shouldn't change what is working a whole lot. And, as I'm also on the spectrum and have high levels of anxiety along with tourettes and an absolute shit show of chronic pain issues, I still use a pacifier (it is an adult sized one by Little for Big) to help reduce my need to use my available doses of the crap ton of meds I'm on (because tolerance to them is a thing along with addiction potential although I lack some of the body/enzyme/neurotransmitter traits that would make addiction to the specific meds possible).

[@Freyasluckyarm]

Thank you! I love to hear from disabled adults! And I completely agree. If it’s working don’t change it.

[@wendymorales5299]

@@Freyasluckyarm she is so cute

[@wendymorales5299]

@@Freyasluckyarm oh, Freya it’s cute one day she will stop having her bottle don’t rush her. She would do it when she is ready but you go girl you are a best mommy for her. I’m proud of you. Keep up the good work.😀

[@bhsyv]

Freya's mom sometimes like last Wednesday My sign language teacher Ms S called on me to do a sign with my hands I either turned myself around in my seat and i don't wanna do it or i fell asleep in that class

[@biddiemutter3481]

BSL is regional ie: some signs are different depending on where you live. Is that the same for ASL?

[@Freyasluckyarm]

Yes I have seen a few signs are different depending on where you live

[@biddiemutter3481]

@@Freyasluckyarm (I may have asked before in which case, sorry ) does Makaton exist in America? because in the UK it is standardised. And the words are in the same order as spoken English.

[@Freyasluckyarm]

I have no idea?!

[@zerolightness6674]

community colleges have ALS classes.❤

[@inamart]

Does Freya understand everything you tell her?

[@Freyasluckyarm]

I think she understands a lot. She is not very good at following directions so it’s hard to measure but in our day to day I think she understands most everything.

[@britt-louisefransson6487]

exakt helt rätt , ni behöver också lära dig teckenspråket, så freja kan prata med er , min dotter var 18- 19 år när hon lärde sig prata , men hon äter emega 3 i dag

[@irenedavo3768]

Do you have Leonard Cheshire ?

[@conniemaniaci3612]

Do you know how children with CDLS are disciplined? Obviously as they get older there would be a need for discipline.

[@Freyasluckyarm]

We will figure it out when we get there. I have lots of more experienced cdls moms to call on.

[@juliefreeman4199]

So do you know any child with CDLS that speaks?

[@Freyasluckyarm]

Yes I know a couple that do.

[@irenedavo3768]

Are there people in Africa with same condition?

[@Freyasluckyarm]

There are people everywhere with the same condition

[@campgirl6242]

Start asl is a go site to learn asl

[@debbiesedereas3485]

its so nice you have freya all ways dress and not in p j

[@patriciaharkin1571]

I think it's awesome how all your kids are so involved with Freya, I hope they continue to do this as they get older and hopefully she will emulate what she sees them do.

[@Freyasluckyarm]

Me too

[@michellespencer5449]

Fraya will communicate with sighing when she the need and when she's comfortable DON'T push her

[@tracihayden5741]

Hi Marci, I was just wondering if your community colleges in Utah offer sign language classes? Connecticut has 4 community colleges that offer the classes. Freya has such a beautiful smile and I love her hair, its getting so light.

[@Freyasluckyarm]

Yes they do. I have looked into taking one here

[@alexthesaintbernardlover5938]

Hey Freya

[@christinavonheidenstam3206]

Do you feel Freia from your intuition ex what she want

[@Freyasluckyarm]

Yes but I think it’s more just knowing her

[@sonjalee9433]

Will she go special school for need help she need when older

[@Freyasluckyarm]

She will go to our district school and have disabled education there

[@denisdesvergnes7032]

Bonjour Madame, je viens vous demander pardon ! pour un précédent commentaire très déplacé, qui à été posté en mon nom, je suis confus, même si je n'en suis pas 'investigateur, je ne sais pas du tout ce qui s' est passé, mais, par politesse, je venais vous écrire ces quelques mots... Avec toute mon respect.

[@Freyasluckyarm]

Thank you I did not see it. But thanks for the apology

[@allisonsadler719]

Did u get. A parcel

[@Freyasluckyarm]

I will have to go check the PO box

[@michellespencer5449]

A beaker I mean

[@irenedavo3768]

Can you research Group Homes? Not for Freya! Is there Care for people with Learning Diifficulties?

[@irenedavo3768]

Two Thousand views in 4 hours

[@michellespencer5449]

She a look so should be using a beaket

[@pookieloo7707]

I am learning sign language now, and I too live in a small community with little options to learn. I have found an APP that so far seems to be pretty good. I am only a week in to it, but so far I have learned quite a bit.. The APP is called ASL Bloom

[@Freyasluckyarm]

Thank you I’ll have to check and see