How I Got Diagnosed & Live with Sjogren's Syndrome, Fibromyalgia, & Rheumatoid Arthritis

Welcome to @ChronicEntrepreneurClub!
This is a home & growing community for ambitious and financially freedom driven, chronically ill individuals.
In this video I share, quite rawly, my journey to diagnoses, some of my daily treatment, and I how I pay my bills.
Learn More About These Autoimmune Diseases Here:
Sjogren's Syndrome: www.mayoclinic...
Fibromyalgia: www.mayoclinic...
Rheumatoid Arthritis: www.mayoclinic...
Some Medicines & More That I Take:
I am not sponsored by any of these
1. TheraTears Extra Dry Eye Drops (so necessary)
2. TheraTears Eye Nutrition (Omega Complex for eyes & depression)
3. Silicone Eye Implants (maintain eye moisture)
4. Generic Vitamin B - Complex with Vitamin C (supports energy & immune system)
5. Generic Vitamin A (supports eyes & skin)
6. Jarrow Formula Ubiquinol (supports mitochondria AKA energy)
7. Generic Ibuprofen (pain relief in muscles & head)
8. Generic Melatonin (helps with deeper sleep)
9. Prescription Methocarbamol (muscle relaxant)
10. Biotene Mouth Wash (increases saliva production)
11. My Sugar Scrub to reverse & prevent skin rashes from dry skin:
- Coconut Oil
- Bergamot Essential Oil
- Wild Orange Essential Oil
- Hawaiian Sandalwood Essential Oil
- Sandalwood Essential Oil
- Cedar Wood Essential Oil
- Clary Sage Essential Oil
- Lemon Essential Oil
- Spikenard Essential Oil
12. M-61 Hydraboost Eye Serum
Learn More About Eating an Anti-Inflammatory Diet Here: www.mayoclinic...
Connect with the @ChronicEntrepreneurClub Community
Facebook Page: / chronicentrepreneurclub
Instagram: / chronicentrepreneurclub
Website: www.ChronicEntr...
Work With Me:
1:1 Coaching or Intensives, please email me at [e-mail] and headline the email "KZbin, 1:1 Help"

[@irinamcdaniel]

Thank you for sharing! Knowing details and hearing your personal testimony helps others going through this same issue.

[@cindyvan7570]

Thank you for sharing your experience of Sjogren's Syndrome. Your information is so helpful! I have learned so much from you. I am currently seeing an excellent doctor who is helping me deal with my symptoms. I wish you continued success in your health & your business.

[@cheryl8493]

❤❤This was wonderful! Me: Sjögren’s, Fibromyalgia, Raynaud’s, Hypothyroidism. Currently I’m under the care of Functional Med Dr who’s recommended the same supplement regimen as you, so now I know for sure we’re on the right path. I’m also on Plaquenil from my Rheumy. Nothing helps with the Fibromyalgia pain. I’m at my wits end with it!! So much pain. Fatigue a bit better. Apparently, I have adrenal fatigue. Hope you’re feeling relief these days, as I know how debilitating it all is!

[@chronicentrepreneurclub]

Thank you for your comment! For Fibro, I needed Methocarbamol & Melatonin every night for 2.5 years before it became manageable without pills! I learned none of the "anti-depressant" pills that are also used for Fibro worked for me after taking a genetic anti-depressant medication test called Genesight (they have financial assistance so it can be free if needed) because I cannot tolerate any SSRIs. I had bad reaction to Plaquenil, so corticosteroids are the only thing that help during bad flare ups. For my brother, ashwagandha supplement made a huge difference after a few months. He takes it for a few months straight, then weans off, and then restarts again when the adrenal fatigue comes back.

[@charlenebrissette3348]

I went through about a billion tests too, they even tested me for AIDS.

[@pippippin1854]

ditto,I have the same symptoms.Been seeing rheumatologist for years.diagnosed with sjogrens,raynauds,fibromyalgia,osteoarthritis plus i have alot of other medical conditions.I think my autoimmune disease started from having gladular fever in my 30s.im now in my 50s

[@anamikakothari5053]

Any relief

[@adalcindagerena9825]

Wow sweetheart I can relate to you I have all of the above & I am always Thirsty dry mouth dry eyes always in pain. & this is all new to me. I just got diagnosed not too long.

[@chronicentrepreneurclub]

I'm wishing you luck! Be super pro-active!!! SS can go into remission (temporarily though! My longest was 8 months). Go to dentist & ophthalmologist ASAP and often! It's my biggest regret not doing that sooner.

[@ruthlaity6093]

I have everything you have plus ankylosing spondylitis too. I have one on each hip starting to close and many spurs in ankles and feet. I just take one day at a time. Keep moving if I need to sit for awhile I do. I also start vitamins but I am going to try omegas too. I only was diagnosed year am half ago. I was so depressed turning 60 cause everything went badly for me. I also got pimples but I never had any on my face as a teenager. Oh well good luck with everything Ruth

[@mamashiraz]

I realize this video is over a year old and you may already know this by now but not everyone with Sjogrens tests positive for Ro and La. Years ago, an “Early Sjogrens Panel” was developed based on research that detects anti salivary protein, anti parotid and carbonic anhydrase. This would put the question to rest whether you have Sjogrens or not (it definitely sounds like you do!). Are you taking Plaquenil or getting infusion treatments? Did you test positive for Rheumatoid Factor? ANA? Sjogrens is so much more than dryness in the eyes, mouth and skin. It’s known as Lupus’ cousin because it can cause organ damage in some people. It can also manifest in lymphocytic infiltration and eventually lymphoma cancer. A lot of docs don’t take this condition seriously or don’t really know much about it. I hope you have a good doctor in your corner. Stay healthy 😊

[@chhayanaidu4540]

I am an Indian 63yrs Fe with all the. Dry mouth andeyes what to do

[@chronicentrepreneurclub]

I’m thinking of doing a follow up video on how things have changed since I posted this video. Would that be helpful?

[@mamashiraz]

@@chronicentrepreneurclub ABSOLUTELY!!

[@mamashiraz]

@@chhayanaidu4540 Talking with your doctor and have them do testing. Wishing you good health.

[@rreddy4640]

@@chhayanaidu4540 I am having severe dry eyes. Could you suggest better eye solutions. It's miserable. Thanks

[@rreddy4640]

Hi entrepreneur, Great effort to have posted on Sjogrens. I have severe dry eyes & other symptoms for many years. Please suggest any developments and solutions for dry eyes as it's severe. Thanks

[@chronicentrepreneurclub]

Thank you! Use a sleeping mask that doesn't touch the eyes but secure around face (amazon has good ones). Use Theratears extra during day, Systane Night Gel in summer at night, and Systane Night Ointment in winter. The thing that helped the most were Silicone Tear Duct Implants - go to ophthalmologist for these!

[@joannerobinson1879]

Please get on with it

[@amikkadisciple]

My mom is really suffering from sjogrens. Has it affected your esophagus? And do you have any tips on pain relief from it?

[@chronicentrepreneurclub]

Yes, it can get so bad that I get a clicking sound/pain when I sleep. I use Xylimelts when sleeping. I had bad reaction to pilocarpine (and related) but that can help a lot for many SS! I always drink water (but not too much!), Gatorade zero sugar helps a lot during the day when I can't use xylimelts and water makes it worse.

[@amikkadisciple]

@@chronicentrepreneurclub thank you so much for replying!

[@anamikakothari5053]

Any relief

[@chronicentrepreneurclub]

Yes there has been! I’m thinking of doing a follow up video to this one on how things have changed. Would that be helpful?

[@carsanddrives1464]

Hi do u experience cold feet and hands?

[@chronicentrepreneurclub]

Yes! Look up Raynaud's Syndrome if they also turn white/blue-ish. It's a very common pairing with SS/RA/Fibro

[@carsanddrives1464]

@@chronicentrepreneurclub hi thanks for your response what the best to prevent cold hands and feet?

[@chronicentrepreneurclub]

@@carsanddrives1464 It'll be different for everyone due to the reasons and environmental factors! Google, reddit threads, & Facebook groups on the issue will be helpful

[@mkrp4]

Nice lipstick and enlarged thyroid!