How I Prepare My Feeding Tube Nutrition! (2/7/18)

[@TheBadSeed91]

first time I primed my daughters tube I didn't know about the cap and we where in the nicu with nurses watching me and I shot my husband right in the face lmao every one laughed so hard including him lol

[@Beafree]

Not weird at all. I used to work in a doctors office. Patients used to bring us desserts all the time and we of course loved it. You’re very sweet

[@ChronicallyJaquie]

+MyLife 2.0 that's awesome! My doctors loved it (:

[@quilabright4263]

Dentist offices love it too. Ironically, you would think that a dentist office would have no sweets, but every office I worked at had a candy bucket or stash for the employees.

[@irishis79]

Jaquie, I have to thank you! You have been an intricate part, of making my life, with chronic pain, a lot easier, by encouraging me, to be my own, biggest advocate. I have spoken up, at doctors appointments, and I was casted for my own custom AFO, for my left foot, and ankle, which has been causing me to fall, for the last 8 years. I have something called Complex Regional Pain Syndrome, and because of how it affects the involuntary things that my body is supposed to do, it has caused significant weakness (more than usual, with Osteogenesis Imperfecta), in my left leg. I had an appointment to get a new knee brace, because my old one was way too big, since I've lost nearly 100lbs, since my last spinal cord surgery, in 2013, and I was having to fold the material in, on itself, in order to make it fit "properly"... and even still, it was too large. But I was also casted for my custom AFO! It will correct the foot drop, and my tendency for my foot to roll out, to the outside, and cause my ankle to turn. My Mom used to help me with things like this, and suggest I speak up, during appointments, but sadly, she passed away, in November. So, I want to thank you, for being such an encouragement and inspiration to me, so I can get the help, and the tools I need, so that I can live MY best possible life, and keep myself moving forward. I really wanted to get one of your shirts, from last year, but I simply couldn't afford one... but I am hoping that I can get one from this year. I can't wait to see the new design! Thank you, for sharing your life with us, and being so great, at successfully making the world, more aware, about life with chronic illness, and chronic pain! You, Judd & Harlow are awesome! 💕💖

[@katpineau134]

You should do rainbow feed bags. Look at life with stripes latest video. It is super fun!

[@ChronicallyJaquie]

+Kat Pineau I saw that and I'm totally going to do it! I absolutely love Mickey 💚

[@renyputman7118]

Chronically Jaquie omg yes! It looked so cool!

[@danettehartsock6366]

Hi Jaquie I'm so glad you were able to have a date with Judd! I made cookies for my doctor's office. I think it's cool that even when you are in pain you push yourself to do things. God bless you and your family. LOVE and PRAYERS ALWAYS!!!

[@MP-mj3rj]

@Judd there is definitely a difference between a 20 and 22 gauge needle when it comes to flushing! lol Also Jacquie, I was curious to know if you have heard of the gastric electrical stimulators? I just read about them for the first time today and they are supposed to help significantly with gastroparesis. It essentially makes the stomach contract. Have your doctors ever mentioned this new technology? Not saying it would be right for you- just curious as too how much info is out there about them and if youve heard of it.

[@peachi3sweeti3]

Molly C I'm curious about this too!

[@ashleyklein9917]

They are helpful for some people. I however am likely to worsen from one unfortunately as the surgery I had last year, a pyloroplasty (widen the part of the stomach that empties), seems to have failed. It's unfortunately not one size fits all.

[@sammizelitt5494]

on the Kate Farms article about you it said your mitochondrial disease causes your EDS but mito does not cause eds. do you see a mito specialist? i have mito diagnosed via muscle biopsy and blood work and see a specialist who said it does not and cannot cause eds it just may cause what looks like eds as it causes low muscle tone causes joints to be loose. i wouldn’t put that your mito caused eds unless you’re for sure! if your mito did cause eds could you lmk what type!?

[@bonzwaygo]

i love the way you opened those two bottles at the same time. it looked really badass with the music!

[@meganlye7101]

Nooooooo I just made my first ever comment on your vlogs and it got eaten by the Internet! Anyway I was hoping you could do another cleaning hack video after tube awareness week is over? I'm struggling to figure out how to clean my cleaning tools (dusting wand etc) without triggering my allergies or contaminating my washing machine. I can't afford to throw away the dusting wand every time it gets dirty. Dusting is my household chore and my parents don't believe my allergies are that bad so they wont let me trade with my brother 😂 I'm so glad I found your vlogs, they've changed my outlook on life!

[@mytealdippedlife9702]

🎵 Babe Stop! There’s less resistance 🎶 😂😂😂

[@loveeragon1993]

For everyone that read my dog his story on the vlog off the 5th of february (sorry for my grammar there english is not my native language). Thanks for all the nice comments. Today he was seen again after a day of not been seen. Then after a Search for an hour we got a phone call that a kid was able to catch him and he was now in a classroom. I went there and got him, there i saw he had no wounds visually. But to be sure he had nothing inside we went to the veterinarian and inside was also nothing wrong with him. So now he is home after 2 days and except he is dirty he is fine.

[@nibindringiel]

Why is baking so much more difficult than cooking? I'm a pretty decent cook, but baking a simple cake is a form of sorcery I cannot seem to master. Those brownies looked good though, well done :)

[@FiMilton]

It is because cooking is an art and baking is a science. Baking is also about reactions so it has to be the right ratios but with cooking you just do it to taste!

[@kawai9682]

I am the opposite! I can bake pretty much anything and everything all from scratch! But when it comes to cooking im mediocre. Give me a recipe for any baked goods and im good to go but give an egg to fry and well hope you dont mind popped yolks!

[@nibindringiel]

Makes sense, sort of...But...but...I'm all about science, not very artsy at all! Haha! It's all backwards :P

[@theworld2me]

I can bake with a recipe. I can cook cause my mom taught me a lot. I am more into cooking than making since I bake vegan.

[@joshuacreel3000]

I've only been watching a few months at this point but I wanted to say even in that time your hair has gotten so gorgeous!

[@talonsage954]

CHEW HER UP JUDD!!! So cute, you two!!! 💚💚💚

[@FunsizedStyle]

Praying for successful appointments!

[@bunnylacy2097]

Hey Jackie, I miss you. I haven’t watched a video of yours in awhile, but I do think of you often. I’m so sorry you had to pass so young. I’m so sorry Jed that you lost your wife. At least she’s no longer sick and in pain.

[@Not_a_snake]

Think that must have been an 8x8 brownie box mix.

[@sarinafrohn6751]

You say fore the banana bag you have a steril protocol but what do you do to keep Your hands steriel what is the protocol fore that we never see that so i whas thinking about that

[@cdonnellyp]

Sarina Frohn she always uses hand sanitizer beforehand :)

[@ChronicallyJaquie]

+Sarina Frohn sterile gloved are required for port needle changes but no IV meds/infusions. For example, the tubing itself on the outside isn't kept sterile (it touches my backpack, skin, etc) BUT the connection to my port IS sterile. I alcohol swab it. Also, they are right about the hand sanitizer (:

[@sarinafrohn6751]

Thanks fore awnsering guys learnd a something today bicous of asking

[@laurenpheeblerelf4951]

Hello Jaquie Judd and Harlow 😊. Love your channel Jaquie. As a chronic pain warrior also I struggle frequently but your videos always make me smile

[@karendixon2250]

I loved the Turkish March music at 8:08 :D

[@kellyc.1479]

hey jaquie! with your feeding tubes and stomach problems i assume it causes some stomach sensitivity? do you have any pants that you recommend for sensitive stomachs?

[@savannahballard5786]

I love baking and I the best way to tell if I like you (and your staff) as a doctor is if I bring you dessert! I have several who've never gotten anything lol

[@karabates4482]

Hey Jaquie I’m kara you are such an inspiration to me! If you are ever in central California I would love love love to meet with you! Have a good day!

[@tangalalynnbuchholz5479]

LOL you silly young people. Harlow is so cute.🙏🐾🐕💕💕💜😍

[@marie-heleneriou4215]

Today I learned that my insurance doesn't cover my new asthma inhaler, but your vlog cheered me right up! Thanks for your infectious positivity 😃

[@ReelAdventurering]

Not trying to sound mean or make you feel bad but do these conditions shorten your life span?

[@ChronicallyJaquie]

+Topshot9890 1 no, none are terminal (: But some are life threatening (anaphylaxis) so we are diligent with my care.

[@ReelAdventurering]

Chronically Jaquie ok thank you for replying.

[@oflifeandstuff]

Glenda Pearl that's not fair or nice. I'm pretty sure Jacqui has a quality of life. It may not be as good as yours, but that doesn't mean it isn't worth living. She's so positive and finds joy in the small things

[@Shanti565]

Glenda Pearl Now that remark is very mean and insensitive!

[@212leu]

You are so brave! Hope all is well.

[@awildlizzy8586]

May I ask when you are getting your custom AFO's?

[@Laura-bc4iq]

I love the videos and Harlow made my day again ♡. Such a cute pup.

[@doreenmaclean4953]

Jaquie🌹💕, wow girl you make, it all look, so easy. I admire your strength & determination. I agree, making treats, for our Drs & Nurses, is a great idea. Love you guys. Praying that you, will make a full, recovery real soon🤞😎💕...

[@petsbooksmovies]

Have you ever tried deep heat? I have hypermobility and finds it helps for me not sure if its right for you but thought I would let you know. I have all so been trying using a travel neck pillow in the car in hopes that it may help stop my back playing up again not sure its for you. Feel free to totally ignored all that I have said if its not right for you.

[@shelbymccarty2373]

Y’all are so adorable together

[@nicolebezanson8734]

Jaquie you're a amazing people,thank you so much for sharing your life w us hugs 😊❤️💪🏻💪🏻

[@EpicPixels1]

Were you playing the original RDD? Cause if so, and you haven't seen it already, I think you'll really get a kick out of the Manimals glitch XD

[@luvgoldens12]

Have you ever considered swimming for exercise or is there too many complications with that? It takes the pressure of joints

[@irishis79]

Myojin Yang because Jaquie always has her port accessed, because of her risk, for anaphylaxis, that is why she doesn't swim. She cannot get the port wet, while it is accessed, because it creates a higher risk of infection. Otherwise, she probably would take advantage of the benefits of aquatherapy. But, until they start making a covering, that actually seals out moisture, completely, I don't think Jaquie will do the aquatherapy. But it is a very good question! ;D

[@nikolinapobi3981]

February is a Turner syndrome awarnes month. 😊. I guess february brings a lot of awarnes to chronic illneses. Sorry for spelling. English is not my native language.

[@briatecheira9269]

Harlow is so adorable that’s so sweet you’re bringing brownies to your doctors so nice of you judd you are a very good husband I hope you’re yummy pain goes away 😍😍😍😍

[@monikabredesen4273]

Even though we followers wanna see all please don´t feel guilty by leaving camera at home on datenight.

[@hannahmariellewellynllewel7128]

Hope u do feel better soon and with treat ment get feel better

[@starboy8825]

i find the infinity pump so much easier than the joey, works easier for me

[@sueschultz9358]

We have a shoe and pedorthic store and customers bring goodies in all the time! You two are too cute!

[@rebekahchapin2222]

I'm losing lots of food I hope it doesn't end like this I just lost the ability to eat nuts last week

[@Nightengale64]

Your curlin pump went off and I checked mine... I am awake I swear.

[@LupusPositiveLife]

I laughed so much Judd is funny and so is Joaquin they make such a good couple

[@anunez3450]

You two are a beautiful couple.god bless and stay 💪

[@danielabaker285]

Wow you are amazing and strong keep up with good vibes positive

[@mandylisa]

you seemed happy today!

[@MC-gb4zn]

Hope they like the brownies!

[@o.o4566]

My mom is like that she always wants to make stuff to take to people. I’m more like judd where I find it awkward.

[@laurenpheeblerelf4951]

Greetings from New Hampshire

[@hmslovesmonkeys1403]

i have a kangaroo pump so i prime mine different

[@janicebird610]

I agree with Judd. Nobody ever brings any of my doctors treats.

[@meganlye7101]

They are usually creeped out by it and nicely throw it away when the person leaves. Only if it's a LONG time patient or a patient they also know outside of a hospital/doctors office setting do they normally eat it. It's the thought that counts though!

[@HeatherBurke32]

I live in Jacksonville! Would love to meet u if u ever come up with him ❤️ we have extra bedrooms in my house if you need it ❤️

[@hannahmariellewellynllewel7128]

In joy your day

[@reanna1441]

I think brownies are yummy good idea😄🍫🍩🍮

[@hannahmariellewellynllewel7128]

And also got my paint rocks out in Lafayette rock game look it up juqie

[@lifewithmentalhealth7333]

We love you you family is the best

[@jackiemcglasson4195]

My husband loves Red Dead!

[@hannahmariellewellynllewel7128]

Me to am takeing a break what a fun morning

[@KevinLCanada]

The claw!

[@Nilguiri]

You forgot the most important ingredient in the hash brownies!

[@sierramartin9684]

I’m back sorry I missed a lot I was grounded

[@alyssawssinging4039]

Hey jaquie

[@hannahmariellewellynllewel7128]

Hope u have good day juqie I just got back from cvs in Lafayette help couple of people from wreck there ok then behide my house your moo cows got out in my yard now there missing now join my day been fun

[@hannahmariellewellynllewel7128]

Hi jude

[@Cuddlesandcookies]

Do you think you would ever adopt a child or have a saroget mother ? How do you and judd feel about either never having kids or other alternatives? Im sure this is a big part of life for people who have chronic illness.

[@abbyc4266]

xoxo lover She answers that in a vlog called "Are we having kids?" from May( I think)

[@hannahmariellewellynllewel7128]

Have good night eving

[@cbjgirl23]

the CLAWW

[@hannahmariellewellynllewel7128]

Instam

[@hannahmariellewellynllewel7128]

Facebook

[@hannahmariellewellynllewel7128]

Hi hardlow I see u hideing

[@bunnylacy2097]

Hey Jackie, I miss you. I haven’t watched a video of yours in awhile, but I do think of you often. I’m so sorry you had to pass so young. I’m so sorry Jed that you lost your wife. At least she’s no longer sick and in pain.

[@bunnylacy2097]

Hey Jackie, I miss you. I haven’t watched a video of yours in awhile, but I do think of you often. I’m so sorry you had to pass so young. I’m so sorry Jed that you lost your wife. At least she’s no longer sick and in pain.